lemonadeandgrace

Lemonade And Grace Blog

🍋Blogger-Caregiver-Mom-Advocate . Life lessons caring for child with Tethered Spinal Cord. . Inspiring through Lemonade and Grace. #lemonadeandgrace

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In my daily busyness yesterday, a lady I don’t often speak with complimented me on a job well-done. Her kind words took me by surprise. . Later in the day while attending a business/medical meeting, yet another lady spoke more words affirming a job well-done. . I don’t think often on the medical complexities and navigation of insurances anymore. I forget the skills are born out of years of necessity and God-given mindfulness. . These ladies reminded me of the importance of speaking life into lives. Of how speaking life opens doors for authentic relationships. . Heart conversations are made possible with people who see and are willing to speak into the lives of people around them. . Let’s be the women who speak life and open the door to authentic relationships. . . . #wednesdaywisdom #faith #inspiration #bloggermom #friend #family #faith #grace #bethechange #speaklife #wordsoflife . #givehope #quoteoftheday #dailyquote #womenoffaith
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🌼Go ahead and rest right there with the gentleness that requires nothing from you, just accepting that this is favor from God who wants to shelter you in Him. . . . #quoteoftheday #inspirationalquotes #saturdaymorning #bloggermom #mylife #youmatter #instagood #silence #bestill #moments #faithmoments #advocate #inspire #chronicpain #spinabifida #caregiver #mom #awareness #reallife #gracequotes
🎈 All of the lasts are opportunities for firsts. 🙌🏼 I don’t know how we say goodbye to people who know the intimate details of Jess life. More than knowing the intimate details, they have known how to see her, the person, and ensure that she understands she is more than the medical stuff. They’ve taught her skills: physical, mental, and emotional. Now it’s time to make room for another child who needs one week every summer to be, quite simply, a child, while their parents have some respite. . . . #campspifida #campvictorypa #spinabifida #spinabifidaawareness #awareness #kidscamp #disability #chronicdiseases #grace #faith #advocate #grace #summercamp
🎈It’s Camp Spifida Week! Jess will be spending time with some of her closest friends.. in a safe fun environment where they are accepted just as they are! . . . #campspifida #campvictory #spinabifida #awareness #advocate #chronicillness #chronicpain #childhooddisability #celebration #disability #disabilityawareness #volunteer
THE camp for children with special needs!! CAMP VICTORY is a place for meeting other children and families with similar medical conditions. Here, our children are able to have a camp experience in a safe environment while doing all of the fun camp things that they never thought possible.🙌🏼 CAMP VICTORY has one week dedicated to each type of medical condition with special events held throughout the year. 🗣Our personal testimony: Camp Spifida ( held one week every summer at Camp Victory) has been pivotal is Jess life! Prior to attending Camp Spifida Jess was very insistent that she was the only kid with her medical condition. We could not convince her otherwise and that “normal” was what she made it. Well known now at Camp Spifida, Jess has many healthy and lasting friendships, regularly communicates with “kids like her” ( something she desperately wanted and needed ), and has gained tremendous confidence that life IS navigable with chronic medical conditions! ❤️This is Jess 8th and final year at Camp Spifida. 💻If you have, or know of, a child with chronic medical conditions, please take a close look at Camp Victory located in Millville, PA. Children attend from all over the US. The medical staff is top notch and children are in excellent care. . . . #blogger #campspifida #chronicpain #tetheredspinalcord #spinabifida #volunteer #specialneeds #disabled #inspire #kidscamp #campvictory
For sure!! Anyone else feeling this today?! #forsure #thursdayvibes #laughteristhebestmedicine #summertimes #tired
🎈Camp Spifida ~ The countdown to year 8 & final year for Jess! A safe place for kids with spina bifida to experience summer camp and all of the typical activities while connecting with other kids from all over the US with similar disabilities. 🎈Spifida.org - visit the web for more Info! . . . #campspifida #spinabifida #spinalcord #moments #camplife #nonprofit #jessiesjourney #tetheredspinalcord #disability #antibullying #warrior #chronicpainwarrior #inspire #nurse #caregiver #summercamp #campvictory
🎈In honor of Jess 18th Birthday ... here is a Transformation Tuesday! . Her first birthday.. and now ... . . #tetheredspinalcord #transformationtuesday #birthdaygirl #redhead #chronicpainwarrior #johnshopkinshospital #johnshopkinschildrenscenter
💛Another big milestone tomorrow, July 3 - Jessica Rose turns 18! . . . #tetheredspinalcord #spinalcord #chronicpainwarrior #milestone #birthday #momlife #moments #celebration #caregiver #faith #family #grace #goals
🌺 Jess saw another one of her doctor’s today. This doctor told me what a good job I’ve done as a mom. This while we are in the annual fight to get her meds approved. Tonight I was at VBS surrounded by children. I don’t know why some of us get our miracles and others don’t. I’ve sat in pediatric surgical waiting rooms and listened to parents begging God on behalf of their child. I’ve sat in PICU and watched and heard children code. I’ve held Jess more times than I care to remember while she was out of her mind with pain. 🙏 G’s friend Quinn got some hard medical news today. Please pray for Quinn as he and his parents seek a second opinion. . . . 📷: G . . #thoughtfulthursday #mythoughts #miracles #rainbow #bloggerlife #mylife #advocate #inspiration #motivation #gracemoments #havefaith #dontgiveup #tetheredspinalcord #chronicpain #warrior #faith #family
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