14,815 posts

🎃I Enjoy Summer, But I 💛 Fall 🍁. Ever since Becoming A Lupus & HS Warrior the ☀️ Sun & Me Don’t Mix! Too much Time in the Sun is not good for Us, & Since We’re Almost Vampires 🧛‍♀️ Hello Fall....🌛🌻👊🏼💛 #LiveWithGuts #Lupus #HS #HelloFall #Spoonie #LastDayOfSummer #Fall #LupusAwareness #Lupie #LupusWarrior #lupussucks #lupusproblems #Spoonies #lupusfighter #chronicillness #invisibleillnessawareness #hidradenitissuppurativa #hidradenitissuppurativaawareness #HidradenitisWarrior #YouDontLookSick #Latina #PutOnPurple #spoonielife #spooniestrong #Blessed 📷: @livewithguts1
I always have faith that I will get better! I never could have imagined my whole world would change in this way! Multiple Chemical Sensitivity has devastated the lives of millions of people worldwide. It has impact and effected EVERY single area of my life. My health, my career, my family, my friends, my human rights, my opportunities. I fight every single day...every single minute! I don’t need sympathy, I want my life back in any small or big way possible! Fragrance Free policies worldwide need to be created for employees and visitors! No signature scents in stores, No Air Fresheners, No fragrant products in public spaces. Indoor air quality has become an important health and safety concern. So much work is required. Can you help? Everyone can make a difference. Every letter, phone call, any effort to bring awareness matters. Your help will help others who have tried to plant seeds before, together we will make changes for us and for future generations! #campaign #chemicalsensitivity #multiplechemicalsensitivity #mcs #worldwide #speakup #youmatter #humanrights #activist #pleasehelp #invisibledisability #myrights #workplace #indoorair #ohs #doctors #medical #hospital #beaware #youdontlooksick #chronicillness #believeinyourself #youcan #standup #wordoftheday #fragrancefree #womenempowerment
Always stay magical 💫
Hard to believe it’s been 11 months since I had the stroke ......... I guess it’s about time I get back to work and do something Amazing with this second chance I have been giving #youdontlooksick . But I still am believe me. #strokesurvivor #strokerecovery #strokegamestrong #stroke #newstart follow me at the follow 👉🏽#jacksonthebrand #jacksonsfluent
It's been kind of a rough day for the fuzzy sausage and I. I have been struggling terribly with sleep for the last two months and today my body finally crashed from that and everything else. I feel so incredibly exhausted and I'm having difficulty just moving around and staying awake. I am a bit nervous about surviving at work but I am hoping to be able to sit a good deal. Though I told them from the start I am disabled I still feel guilty and like I am being judged when I ask for even the slightest change to accommodate my health. However, I am still as active as my body allows and I work as hard as I can. I stay engaged and I always look for a way to help others while caring for my own needs. So I really hope that counts for a lot. In other news, Sparky is struggling because his momma left for two whole days, and also I won't give him any of my lunch. Poor guy. #chronicillnesswarrior #disability #youdontlooksick #fibro #potsyndrome #chronicpain #sleepy
Chronic illness & doctor appointments go hand in hand. But for me, having to go the doctor rattles my core. . Woke up early this morning, feeling sick. Scratchy throat, coughing and a stuffy head. But got dressed and drank my pre-workout like always for leg day. . I remembered I had an appointment this morning during my workout. And in this moment, it hit me. . This one was going to tell me how I'm progressing and what else is happening. Which I always dread hearing!! . But instead of letting it take me down, I decided to get the workout done. Leave it all there on the floor and crush it. The outcome of what's happening to my illness will always be the same. . So in that moment I choose to let if affect me or push me. I choose the latter. No matter what happens....I'll be fine! I'll get through it as I always do. FIGHTING!!!
I’m gonna get some real talk up in here. I’ve met and followed so many amazing Lupus and Chronic Illness Warriors here on IG and I love seeing everyone’s journeys. A constant theme I see amongst people I follow is how happy they are to have their partner/spouse in their life for support. But how many of us out there don’t have that? 🤷🏼‍♀️ • I’m as single as they come and I can’t say that I love it. Dating is hard enough when you’re a 32 year old girl but it’s even harder when you carry multiple chronic illnesses with you. Dating can be tiring and stressful and what does fatigue and stress cause? Flares. 🤦🏼‍♀️ • I have an amazing group of family and friends that are constantly there for me so I’m not complaining about being alone - in the slightest. But sometimes I wonder what’s wrong with me and why I’m still single. 🤷🏼‍♀️ I’m not meaning to whine to everyone - I just needed to vent. Also maybe my vent would help reach someone who feels the same sadness and loneliness that I feel. I am here to be completely open after all. 💁🏼‍♀️ • I’ll just smiling I guess. Thanks for listening. 💜
Never give up....always keep striving to be better than yesterday 😊💕✌
Every Sickle Cell Warrior can relate to being told*** "You don't look sick"*** Remember, looks can be very deceiving. ^No shade^, when our comeback is.***"You don't look stupid"*** 📣📣📣📣📣📣📣📣📣📣📣📣 #SickleCellWarrior #SickleCellAwareness #SickleCellDisease #TeamSickleCell #Youdontlooksick #Youdontlookstupid #lookscanbedeceiving #noshade #savagesicklecellwarrior #Savage
The ocean is everything I want to be - beautiful, mysterious, wild, and free. 🌊💜
Reached a whole new level of tired. I can hear my roast in the oven sizzling over and I have zero energy to go and sort it out. Should have listened to my husband and got take away. . . . #Endoproelium #Endometriosis #Endo #EndometriosisWarrior #EndoWarrior #EndometriosisAwareness #EndometriosisAware #EndoAware #EndoSister #EndoMonster #EndoStrong #ChronicCondition #ChronicIllness #InvisibleIllness #PainLevelSquiggles #YouDontLookSick #Pain #Tired #Fatigue #FrozenPelvis #Surgery #ExcisionSurgery #Excision #Recovery #SendHelp
Today as I stood looking at the beauty in & out of the Getty Center, I was beyond grateful for the opportunity to experience it standing on my own two feet 👣. . 3 years ago, this wouldn't have been possible after losing my ability to walk due to my illness. . What most people take for granted...is my blessing that I had to fight to get back every day. . I'm proud of myself for fighting to not allow my illness to take me down. For fighting the pain, the fatigue, and the depression & anxiety. For taking a chance on me when people laughed, saying I couldn't do it. And for all the sweat and tears to get to this moment. . They say...building up a weakness just makes you less disabled. Building strength can take you to the top of the world 🌎. . The past 3 years, I've been doing just that and today I feel as if I'm on top of the world 💕.
💚 I so wish I could say this out loud - maybe I should? Yes or no! 💚• • • #lymediseaseawareness #lymewarrior #lymesurvivor #tickborneillness #youdontlooksick #zerocarb #autismmum #stayathomemum #sharonfrances #feelpretty
🧡🧡On Monday I started a new medication for my MS called Tysabri. It caused horrible headaches but I finally feel almost back to normal and I’m able to craft again today. Whew! If you’ve been waiting on an order or a message from me, I’m trying to catch up! Thanks for being patient! 😉 . . . . . . . . . . #barberscraftshop #ms_fighting_mom #msfighter #msawareness #multiplesclerosis #multiplesclerosisawareness #multiplesclerosisfighter #curems #ihavems #mswarrior #momswithms #chronicillness #autoimmunedisease #invisibledisease #invisibledisability #healthylifestyle #cannamom #mmjmoms #mmjpatient #etsylife #cannabiscommunity #craftymom #cannamoms #tysabri #curemultiplesclerosis #msers #youdontlooksick #invisibledisability #fuckms
Took a field trip today to the Getty Center 🖼🎨 . The grounds, the sculptures, architecture, and views are stunning! . I'm having a hard time deciding if I like the outside or the art inside more. The Van Gogh's, Monet's, Degas' in person are breathtaking to see and imagining them as it was crafted by their hands 👨‍🎨 . Little unknown fact....I fell in love with art as a young child, going to museums. The first piece of art I fell in love was Edgar Degas, The Little Fourteen Year Old Dancer as it stood on a pedestal in a white room all by itself on display. I remember it like is was yesterday. . Art has always been a passion of mine. I could've spent all day here and surprising with hours spent, still didn't see everything. That's okay....another trip is in order 🚗 . Do you have a passion for something? What?
This post may be a bit controversial. I certainly don’t want to offend any of my followers but I really mean this post. I experienced that the more I fought my diseases, the more angry and stressed I got. Only from the moment that I accepted the circumstances, I could look for solutions and feel better about every step I took. I know that this doesn’t count for everyone but for me the acceptance really helped me. As Nietschze said: If you fight monsters, you might become one. - ❤️ - 🇱🇺🇧🇪 Hoewel deze post een beetje controversieel is, wil ik niemand beledigen. Ik merkte het laatste jaar op dat ik door te vechten tegen mijn ziekte steeds gestresster werd. Pas toen ik mijn situatie accepteerde, kon ik vanuit rust verder kijken naar oplossingen. Het helpt vast niet bij iedereen, maar acceptatie heeft me echt geholpen. Dat wil niet zeggen dat ik me hierbij hulpeloos zal neerleggen maar vanuit rust probeer te genezen. - - #youdontlooksick #chronicfatigue #cfs #invisibleillness #asthma #hypersensitivity #chronicillness #mindsetiseverything #mindset #lawofattraction #ilovemyself #spoonie #spoonielife #onzichtbaarziek #chronischevermoeidheid #chronischvermoeid #fibromyalgie #fibromayalgia #hoogsensitief #asthma #astma #acceptatie #acceptance #nietschze #philosophy #rust #peace #warriormindset #warrior
Since the Walk to End Lupus Now in LA is almost here.... Had to do a #tbt to STANDING EIGHT... The award winning short film I wrote about a #boxer who is forced to retire after being diagnosed with #lupus This joint is one for my all my #lupies You can even see that 🦋 on my face Check out the trailer in my IGTV
#ThankfulThursday . I'm thankful for opening my eyes this morning, being able to walk and not be in pain. . What are you thankful for?
“Work on being in love with the person in the mirror who has been through so much but is still standing.” 💕 • Recently I was thinking about the last 5 years of my life. I spent so much of that time truly hating myself. I was miserable with my weight. I was miserable with my looks. I was miserable with my dating life. I was miserable with my job. On top of all this misery I was introduced to my good friend Lupus. 😣 • I was miserable and scared and lonely and lost. I would be lying if I said I’d never considered what this world would be like if I wasn’t in it. I spent a few years dragging myself through my lowest point. I wondered why others didn’t want to be around me. As I said, I hated myself. 😬 • Sometime around this past December - not sure exactly when - I woke up and realized how detrimental this was to my overall health. I started my path towards healing. My first step was to stop letting little things I can’t help get to me. After that I started working out again and eating better. Once I had accomplished those, I set out to make plans for this year that would truly make my heart happy. Fun trips and my amazing move have made me feel so full of life. I look in the mirror now and I see a girl who has fought a battle and is still standing. The battle will continue but I’ve armed myself with the tools necessary to fight back. When I look in the mirror I see a person that I love and I’m excited to see where her journey will take her in the future.💁🏼‍♀️ • This picture says it all for me. I was going out in LA which can be an intimidating and superficial city. I threw on a $20 Kohl’s dress and some Target boots and I kept my head up all night. Not once did I care if people were saying anything and I had so much fun. Don’t ever let yourself be your own worst enemy. Love yourself first. 💜
Entyvio day is my colitis reminder. Once a month I come to the day hospital to receive treatment. I have a history of ignoring my health when in remission and feeling good, but that always puts me back in a bad place. It has been a challenge between finding the balance of accepting my disease without being depressed about it. I do have to work a little bit harder than most to be healthy, so it is good to have these small reminders to keep me on track.
This made me chuckle. I was back at work today after a dreadful sleep, I'm pretty exhausted and the pain level increased more than it has been recently. Hoping for a good sleep tonight! . . . #Endoproelium #Endometriosis #Endo #EndometriosisWarrior #EndoWarrior #EndometriosisAwareness #EndometriosisAware #EndoAware #EndoSister #EndoMonster #EndoStrong #ChronicCondition #ChronicIllness #InvisibleIllness #PainLevelSquiggles #YouDontLookSick #Pain #Tired #Fatigue #FrozenPelvis #Recovery #Surgery #ExcisionSurgery #Sleep
This time last week was RU OK? Day and for me it was more than OK spending time with amazing people and my go to tribe @onewaveisallittakes who are putting so much colour into an often taboo area that is mental health. It was great to see the next few days also sharing the message RU OK? One week later I’ve had a couple of days of not being OK and that’s okay too as I let those close to me know. These are moments that pass on the mental health continuum, so please keep asking the question! RU OK? I hope so! 🙏🏻 #ruok #itaintweektospeak #mentalhealth #youdontlooksick #feelings #moods #happiness #sadness #love #life #smile #karma #reachout #conversation #grateful #itsokaynottobeokay
Never thought as a 29 year old I would be worried about going to sleep and not waking up because I went into severe hypoglycemia. Then I see a story of a sweet little girl who went to a sleepover and died because her sugar went too low.😔 It’s been an eye opener and a change of pace but it is helping me in all the right ways. #diabetes #diabetesawareness #t1d #youdontlooksick #diabeticfriendly #diabetessucks #skylinechili #ravenclaw #juicebox #triplefisting 💉
Have you ever felt you had to prove your #invisibileillness or #chronicpaincondition 🤷🏼‍♀️ “The worst thing you can do is make someone with an invisible illness have to prove their sick!” #youdontlooksick #chronicpain #chronicillness #chronicpainwarrior #crps #fibromyalgia #lupus #ms #endometriosis #migraine #eds #disability #spoonies #lymedisease
Nights before infusing. I’m just like my lola
I am 28 years old and today I got my very first flu shot. I never got them before NOT because I believed in anti-vaccination stuff, but rather because for people with my specific diseases, doctors are pretty much split 50/50 as to whether it is a good idea for people like me to get this particular vaccine. I admit I was and still am a little scared of how my body might react, but after talking with my pharmacist who was very patient, I decided myself that it was worth the risk, especially with how poor my current health Is. Earlier this year I got a bad virus and had a 103 fever. I was in terrible pain and at night despite trying to control it with meds I ended up passing out, which is common for POTS patients. Somehow I fell into the narrow space BETWEEN our two dressers. It could have easily turned out different. I could have smashed my head right on the furniture and would have gotten a gash in my head or worse. The shot doesn't guarantee that I won't get the flu, but I hope it gives my body the very best chance at fighting. And, since I am disabled, I need all the help I can get. I think people with health issues should dig deep into research to see the pros and cons of getting the flu shot; no one knows our bodies better than us! But of course, if you can get it then do, because you aren't only protecting yourself, but everyone around you. 😊 #disability #spoonie #chronicillnesswarrior #youdontlooksick #potsyndrome #fibromyalgia #celiac
Update!! 🙈 Ugh! This top is pretty but gives off the impression I have MAHOOOSIVE saggy boobs, which looks super strange next to my tiny arms. Haha! 🙈 Ok, you can all stop looking at my boobs now!! Swiftly moving on - for the last 3 days except a little trip out for dinner yesterday I have been in super nesting mode ( No not the pregnant type of nesting ) More kind of stepping a few paces back from negative and emotional energy, to get a more perspective look on what’s been going on emotionally for me and etc, so yeah just sort of calming down as well from all the excitement of Summer, pacing more, sorting inside the house and doing lots of Psychology reading work, which is quite intense at times especially when it’s for my own benefit and mental health and I’m trying to manipulate my thoughts into more internal positive emotions for every day use. It’s all good though because every improvement in our lives requires a lot of work and If you want something really badly you just don’t mind putting all that effort and work in. 🌙💛🌻 Back to School soon for my 3rd year!! 🎒📚 Yay!! #ootd #mirrorselfie #positivethinking #ontheroadtorecovery #grungeaesthetic #grunge #noroomfornegativity #onwardsandupwards #mecfs #mecfsrecovery #thriving #selfie #aestheticclothes #aesthetic #studentlife #myblog #aesthetictumblr #model #spooniewarrior #youdontlooksick #vintage #lifeblogger #spoonieblogger
I love capturing sunsets because they always remind me that tomorrow is another day and another chance to work towards your goals and dreams. 🌅☀️💜
After a terrible morning....I needed to unplug and get away. . What better place to escape than my happy place...Disneyland. . Got the Mickey ears on, a jungle julep in hand and forgetting all the worries for now. . Just time to enjoy myself 💕
Yesterday I felt like a human, today I feel like I've been thrown down a flight of stairs. I'd love nothing more than being able to stay home and rest (my body obviously needs this) but the show must go on, I've got kids to drop at school and a job to do. My employer has been so understanding over these past few weeks when I've needed time off or have left the office for an hour here and there to attend a multitude of appointments. I still feel awful calling in so as so many people with chronic illnesses do, I put my make up on (concealer is my friend) drag my butt to work and tell myself Ive got this #youdontlooksick #chronicfatigue #chronicillness #fibromyalgia #chronicmigraines #occipitalneuralgia #potssyndrome #chronicallyillmum #stillfabulous #workingmum #staypositive #igotthis
Avast me hearties! Happy talk like a pirate day! I sincerely hope that ye scallawags be pilfering and plundering the English language fer all it’s worth today. And if ye can, top the day off with a nice cup o grog. (I’ll only imbibing asthma medications. Blarg!) #talklikeapirateday #pirates #piratecouple #piratefest2018 #piratefestlv #pirategoals #oldpicture #inowhaveprednisoneface #chronicillness #youdontlooksick #invisibleillness #asthma #crohnsdisease #ibdawareness #ostomylife #vegaslife #vegasperformers #permformancelife #evilpirates
When all you've done today is enjoy lunch with a friend for an hour on your porch and work on jewelry for an hour and you need to go lie down... . . . . . #yearofwantto #yearofyeahright #chronicfatigue #chronicillness #epsteinbarr #insomnia #youlookokaytome #youdontlooksick #invisibleillness #functionalish
It’s coming along nicely 💘 when I was in and out of hospital when I was undiagnosed, I always wished I’d got a blanket I could take from home. I saw others around me with crocheted blankets and remember thinking I’d make myself one one day. It’s taken me a while but hopefully now if I ever need to go back into hospital I can have this instead of the scratchy NHS sheets 🎗• • • #endometriosis #endometriosisawareness #endowarrior #endosisters #1in10 #invisibleillness #youdontlooksick #fightlikeagirl #pcos #cysters #chronicillness #chronicpain #spoonie #chroniclife #chronicallyfabulous #mentalhealth #depression #anxiety #endosucks #endogal #ibs #pelviccongestionsyndrome #pcs #pcos #polycysticovariansyndrome #endostrong #positivevibes #positivity
So this week I appear to be making many a stupid mistake. Brain fog, fatigue tired is kicking my ass. Here are a few examples: 1) buying gorgeous sprinkle photo albums for the baby shower pics to discover they only fit instax photos AND it said that in BIG letters on the front which I clearly didn’t read. 2) Buying this diary for my mum to hide away until Christmas, only to get home and realise it’s a 2018/2019 diary which is no good. Again, it quite clearly says this on the diary! 3) forgetting to put sugar in a cake mix and only realising this when I took it out from the oven and it didn’t look right. Is this week done yet? Because I am! #brainfog #mecfs #myalgicencephalomyelitis #myalgicE #spoonie #spoonielife #spoonieproblems #youdontlooksick #hiddenillness #invisibleillness
September 19th is the date that we have repeated over the last six years. Writing the date on so many new patient doctor forms for all specialties, having consultations after consultation and repeating September 19th to the doctor over and over. Sitting next to people in ER waiting rooms to pass the time while waiting for hours to get called back. So many ER visits sharing the date with the triage nurse, technicians, nurses and repeating for the ER doctor. Thirty plus hospital admissions sharing her story with the day nurses, night nurses, interns, residents and Attending doctors. Surgeons, anesthesiologists, psychiatrist, therapist....We could go on and on and on about how many times September 19th 2012 has started Aliyah's story. This is not only Aliyah's story but our families story. September 19th, 2012 will always start the story. #ndph #pseudotumorcerebri #iih # chronicdailymigraine #newdailypersistentheadache #keepswimming #nevergiveup #youdontlooksick # familystory
In honor of #ChronicPainAwarenessMonth , I’ve decided to be a little vulnerable and share a portion of my story. When I was in undergrad at #AuburnUniverisity I was diagnosed with a chronic pain illness named Fibromyalgia. Over the years my feeling towards this have been all over the place. I remember being embarrassed and frustrated with people’s inability to be empathetic. I saw people’s frustration when they would ask me why could help and I had no answer. Now, I’m more grateful for what fibromyalgia has shown me about myself and those that I am connected to. I HAVE to be extremely intentional about where I go, what I wear when I go, how long I’ll be there. and even where I sit when I get there. You’ll often see me with a bag of some sort with a bunch of “pain essentials” so that I can be prepared for best and worst case scenarios.🤷🏽‍♀️ To everyone who has supported me through an episode, taken me to the hospital, driven me to meet my mom, taken me home, held my hand while I cried, made me laugh, purchased/picked up my medicine (pills, creams, patches), let me borrow their heating pad, prayed for me and even genuinely asked me how I am feeling, I appreciate you and I remember those moments. If you know someone who suffers from #ChronicPain , THINK before you make a comment about their condition. We’re in enough physical pain, please don’t add to it by being insensitive by saying “it can’t hurt that bad” OR “you’re too young to know about back pain” .... Feel free to ask me questions!! #ChronicPainAwareness #invisibleillness #youdontlooksick #strongerthanyouonyourbestday #fibrofighter #fibromyalgiaawareness #dontfeelbadforme #BeEncouragedByMe 📷: @nate_bngpro
“We are not given a good or bad life. We are given a life. It’s up to us to make it good or bad.” 💁🏼‍♀️ • I just got back from a trip I’ve dreamed of for years. I had so much fun. But what am I doing today? I’m working from home in my bed because my body can barely move and I have a fever. 🤦🏼‍♀️ • It would be easy for me to sit here and wallow about my illnesses and how I’m stuck sick today after such an amazing trip but instead I want to focus on the amazing trip! ⭐️ • My flares will always pop up and more than likely I’ll be sick for the rest of my life but I refuse to let that stop me from living my life. Life experiences are wonderful - even more so to a chronic illness patient! Today I challenge you to try and see the good side in something - even just one little thing. Because despite the crappy hand you may have been dealt in life, you still have a life. Take an little opportunity you can to live. 💜
Got your attention, didn't I?! You're probably thinking WHAT?! . They say that beautiful is what a girl needs to be. But forget that...don't be beautiful!! . Be angry, intelligent, witty, klutzy, interesting, funny, adventurous, crazy, talented and an infinite number of other things! . What is being beautiful anyway....but just a bunch of letters that make a word. . Be your own definition of amazing! . That is so much more important than being beautiful...EVER 💕
Mexico 😘 absolutely beautiful how they honour and appreciate their passed. We should do the same because it lives on and some of these tombstones were very old.. 🤗
He took my place on the very small couch he would not move. Now he is my couch. #silly #tired #relationships #spoonie #youdontlooksick
I’ve spent my entire life dreaming of the day when I could go to California. I feel so blessed that I was finally healthy and stable enough to make this trip and enjoy it with such amazing women. A dream come true that I’ll remember forever. ⭐️
HOLY #transformationtuesday 😯 I seriously couldn't wait to share this one today 😊 . There is 3 years between these pics and a lot of changes.... ❤ Self confidence ❤ A smile ❤ Weight loss & inches too ❤ Smaller clothes ❤ Less health issues ❤ Happier ❤ Stepped out of the shadow ❤ Chronic illness survivor. . This journey has been long with lots of up & downs, successes & failures BUT I wouldn't change a thing about it. . Along the way, it's given me a life lesson in who really Danielle is and is capable of being. . She's a fighter, a warrior, strong, resilient, and regardless of illness never allows excuses to give up on life. . I never was this way 3 years ago! I just went through the motions every day and was absolutely miserable!! It sucked and life was depressing. . Who knew that getting sick with a chronic illness would change that all for me and have me fight harder than before! So when people tell me they're sorry I'm sick, I don't see it that way. I'm blessed because it gave me so much in return. . Every day I work a little harder to be better. To try new things and be the best version of me 😊💕 . If I can do this....you can! What a stopping you?
It’s so hard trying to explain the specific type of pain that endometriosis brings. That dragging, stabbing, exhausting, constant pain. I have so many people who I know understand fully to the best of their ability but there’s nothing quite like talking to someone who really KNOWS. But the sad truth is that to be able to have that talk with someone the other person has to have endo too. Cause no one else really, truly gets it like another sufferer, without you having to explain. I’m so thankful to all my family and friends for being so loving and supportive throughout my journey but I’m just as thankful for all you other warriors because you make me feel less alone. I’m just sorry you’re going through this too. ❤️🎗 • • • #endometriosis #endometriosisawareness #endowarrior #endosisters #1in10 #invisibleillness #youdontlooksick #fightlikeagirl #pcos #cysters #chronicillness #chronicpain #spoonie #chroniclife #chronicallyfabulous #mentalhealth #depression #anxiety #endosucks #endogal #ibs #pelviccongestionsyndrome #pcs #pcos #polycysticovariansyndrome #endostrong #positivevibes #positivity
Some days I really want to stand out for myself, write a negative review, send an angry open letter,.... This is all negative energy that offers me nothing but frustration and anger that lasts longer than the posting of that negative review. I try to focus more on the positivity. Every time when I feel like saying something negative (even when it’s the truth) I think about what it is going to offer me. Will it solve my problems? If not, i don’t do it anymore. Positive vibes are more important and helpful! 🙏🏻⠀ -⠀ ❤️⠀ -⠀ 🇱🇺🇧🇪 Er zijn zo van die dagen dat ik op de barricades wil springen en van me wil laten horen door bijv een negatieve review, een boze open brief,.... Het is helaas allemaal negatieve energie die me vaak niets meer dan frustratie of boosheid brengt die langer duurt dan het posten van bijvoorbeeld die review. Telkens wanneer ik vanaf nu weer in de verleiding kom om iets negatiefs (zelfs al is het de waarheid) te zeggen, dan vraag ik me af wat het mij zal brengen. Zal het mijn problemen oplossen? Zo niet, dan doe ik het niet meer. Positieve vibes zijn belangrijker!⠀ -⠀ -⠀ #youdontlooksick #chronicfatigue #cfs #invisibleillness #asthma #hypersensitivity #chronicillness #mindsetiseverything #mindset #lawofattraction #ilovemyself #spoonie #spoonielife #onzichtbaarziek #chronischevermoeidheid #chronischvermoeid #fibromyalgie #fibromayalgia #hoogsensitief #asthma #astma #choseyourbattles #battles #positivevibesonly #positiefdenken #positivenergy #positieveenergie #bekindalways #vriendelijk #emotions
Two months ✌ ago today was my last infusion therapy session 💉. And at the time I thought it was the worst decision I ever made! . Living with a chronic illness already, the risk for the side effects to be greater was a possibility. Well..just my luck, they were. . After my treatments, I would come home and pass out for hours because I couldn't take the nausea, pain and the fatigue was out of this world. . Pain so intense, I would rather die. And in the middle of the night, I would wake up in a quiet house, cry and have thoughts of taking myself out of the pain. . Would get a day off and then right back. I would cry the night before knowing I had to go in. I didn't want to feel the pain 😭. . After it was finally over and a week had passed, I realized that although it was the worst experience, it was the best decision I made. . I had no chronic pain, sleeping through the night, had amazing energy, and no fibro flare ups. Two months later, still NOTHING!! I finally feel alive again 💃. . Although I feel amazing, next Monday I will find out if it was successful 🙏💕
Drinking a beer at 7AM to toast all the amazing West Coast memories. It is 5 o’clock somewhere after all!✌🏻our California! I will most definitely be back one day. ✈️☀️
This is the second time this has happened to me in less than three weeks. I am especially shaky in the morning I guess. Thankfully it's only Zyrtec and not one of my important meds, but that shit is still expensive! What a good way to start a Tuesday. Maybe I should just go crazy and put a pop Socket on everything I own! 🙃😬 #meds #shakyhands #youdontlooksick #chronicillnesswarrior #potsyndrome #frustrated
In case you forgot 😊💕✌ . Tag someone who needs the reminder today!
Do you remember this wonderful toy? I’m so old that my slinky was metal. The new ones are prettier but not quite as slinky. Oh but what fun for a girl & a boy. 🌸 Back then it didn’t take much for us to find joy. A slinky, a lollipop, a small Hot Wheels car & some dirt were all we need to feel joy. 🌸 What does it take to make you feel that simple kind of joy now? For me, it’s a slice of red velvet cake, a walk in the woods or super yummy yarn, especially if it’s on sale. . . . . . #spoonie #invisibleillness #chronicillness #chronicpain #spoonielife #chronicallyill #autoimmunedisease #myalgicencephalomyelitis #fibromyalgia #chronicfatigue #health #spoonieproblems #chronicillnesswarrior #fatigue #mentalhealth #cfsme #anxiety #chronicfatiguesyndrome #autoimmune #fibro #spooniestrong #spooniewarrior #womenshealth #mecfs #migraine #butyoudontlooksick #youdontlooksick #chronicmigraine #jointpain #survivor
YOGA - VINYASA FLOW- Day 4 complete. .🧘🏻‍♀️💃🏼💪🏻👊🏼👍🏼🙌🏼. . . Definitely getting more challenging. Had to repeat day 4 today... slightly better but still need to improve my form. . . Forward Fold Low Lunge - modification with blocks Plank Crescent Child’s Pose Reverse Tabletop Single Leg Hamstring Fold Seated Hip Stretch. . . Click on my stories to see more yoga poses. . . #yoga #yogachallenge #yogapose #yogajourney #yogainspiration #yogaforall #yogapractice #vinyasa #vinyasayoga #vinyasaflow #forwardfold #lowlunge #plank #crescent #childspose #reversetabletop #singleleghamstringfold #hamstringfold #seatedhipstretch #hipstretch #spoonie #chronicpain #chronicillness #chronicpainwarrior #chronicfatigue #youdontlooksick #healthy #healthandwellness #healthjourney #livingmybestlife
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