#thespoonielifechoseme

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Writing Christmas cards has been a challenge this year, I've been able to do most things with my left hand but I'm definitely not upto left handed handwriting as yet. ๐Ÿ—ณโœ’๐Ÿ“ฎ Good news is, theres been a significant improvement with the movement of my arms, since the steroid shot; got a long way to go but an improvement is an improvement. The pain is still up there but its early days still and I remain optimistic. It's just a shame that everything that seems to give me a bit of relief, is a short term solution. I'll take what I can though, even if it's just a short break, I can live with that ๐Ÿ™‚. Have a great Sunday you lovely lot. Much love ๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’– #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
After five months of being in bloody agony and deeming my right arm useless, with my left closely following behind, my 'emergency' appointment with rheumatology finally arrived yesterday. Before I say anything else, I just want to say a huge 'thankyou' to one of my closest and best friends @leighbosworth , for not only being my taxi driver but for always being there for me. Thankyou Albert, you're worth your weight in gold ๐ŸŒท๐ŸŒท๐ŸŒท๐ŸŒท๐ŸŒท So back to me ๐Ÿ˜œ๐Ÿ˜ After a very thorough and lengthy consultation, it would appear that I have another autoimmune disease, which has a direct link to my bowel disease. For years upon years, I've suspected that my congenital bone disorder was connected to the IBD, yet no one has ever joined the dots. I can't tell you how relieved I am, knowing that someone has finally agreed and acknowledged the connection. As a short term solution and to buy the consultants some time to discuss a long term plan with gastro, they gave me a very strong steroid injection, that will reach every joint in my body and hopefully, reduce inflammation and help with the pain. Already this morning, the swelling has reduced but as with all steroids, its gets worse before it gets better and I feel like I've been run over....again and again. All in all, I'm very happy with the way the consultation went and I definitely have a sense of relief. On that note, I wish you a gentle but fabulous weekend and as always 'much love' ๐Ÿ’™๐Ÿ’– #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
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Homage to the last time I felt human. ๐Ÿ˜–๐Ÿคข๐Ÿ˜ฉ You know when you live with an illness or disease, and you get pretty good at knowing why your body behaves in a certain manner? You can go to see your Dr or consultant and say 'this, this and this is happening but I'm sure it's because of this' !! Well, that's not happening so much right now. I feel peculiar, weird, off, not right....and I can't put my finger on it at all. Ive no energy at all; none, I'm constantly nauseous, stomach distended and acting in a non typical manner for my disease, trouble sleeping, anxious and generally feeling 'plaaah' .......and I don't like it, I feel very out of control ๐Ÿค”๐Ÿค”๐Ÿค”๐Ÿค” #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
"Never judge a book by its cover"! This is something we are all guilty of doing, at some point or another. These photos were taken exactly 18 months apart. In one photo, I'm a size (UK) 6 to 8. In the other, I'm a size 12. So if I asked which picture I was ill in, your natural reaction, if you didn't know me; would be the second frame, right? The answer is, both!! Its so easy to jump to a conclusion, based only on what we see. I've heard it all, "You dont look disabled", "You're too young to be ill", "You don't look ill", "You're young enough to get rid of that"......and all these comments have been based on how I look, not the facts. Truth is, we all have stuff going on, we all have things that aren't visible or we hide well. Usually people who live with illnesses, are the professionals when it comes to hiding; we become masters of disguise. With this said, be kind, be patient and don't make assumptions based on how someone looks because you never know what that person is hiding from the world. ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
PLOT TWIST ๐Ÿคข๐Ÿคฎ๐Ÿ˜ท Well won't that teach me, for being cocky about feeling well during a flare!?. ๐Ÿ™„ I feel absolutely, positively disgusting today. The type of disgusting where you daren't move your head, incase it triggers another vomiting session. That's how disgusting I feel ๐Ÿคข๐Ÿคข๐Ÿคฎ Goodnight instaworld โคโค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
The wonderful thing about IBD, is how unpredictable it can be. Put it together with other illnesses and ailments and you've pretty much lost any form of control, you thought you had. For the past 11 months, my thyroid has been giving me the run around; its been impossible to get it stable. So one minute its overactive and weeks later its underactive. Anyone who suffers with thyroid disease knows how shocking an over/under active thyroid can make you feel, so for the best part of this year I've felt pretty 'blugh'....add surgery and flare ups to that, plus other diseases; you pretty much get the picture. ๐Ÿคข About a week ago, I suffered a bad bleed, which continued for a couple of days, then turned into a flare. Ive no appetite, when I do eat I'm sick, when I don't eat I'm nauseous, Ive dropped 8lb in weight in six days and I've got permanent reflux........ ....yet I've never felt so well!! WHAAAAAT ????? ๐Ÿค”๐Ÿคฆโ€โ™€๏ธ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
Did you even go shopping if you didn't take a lift selfie?? ๐Ÿ˜๐Ÿ˜ Certainly paying for it but had a fantastic Christmas shopping day with these two loves. Shout out to my beautiful bestie; heavily pregnant with a split pelvis, she trundled round like a trouper and despite clearly being in agony, she never complained once. Up most respect for my beautiful soul sister ๐Ÿ’ช๐Ÿ’–๐Ÿ’– It's amazing what a change of scenery can do, think it did us all good to get out and potter about. As a treat to myself, I found these gorgeous limited edition Puma kicks, at a bargain price....so, you know....had to get them ๐Ÿ˜‡๐Ÿ˜. #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedsickchick #girlswithoutguts #pma
I get to spend the day with my besties today and participate in a sport.....more commonly known, as 'shopping'. ๐Ÿ›๐Ÿ‘œ๐Ÿ‘—๐Ÿงฅ๐Ÿ‘š๐Ÿ‘ข๐Ÿ‘  This could get messy. ๐Ÿ’ฐ๐Ÿ’ฐ๐Ÿ’ฐ๐Ÿ’ฐ OOTD consists of an old favourite, #levi jacket๐Ÿ’™ Front tie, fine knit jumper from #newlook ๐Ÿ’š waxed, leather look jeans #newlooktall ๐Ÿงก and silver block heel boots #jasperconran โ—โ—โ—โ—โ—โ—โ— HAVE A BEAUTIFUL DAY, ALL #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedsickchick #girlswithoutguts #pma
OOTD Oh my goodness, I'm all for comfort but it was so nice to get out of decorating overalls for day. Might give myself this weekend to rest, then get cracking with the next project ๐Ÿ™„๐Ÿค”๐Ÿ˜’ Happy weekend everyone. Be good and if you can't be good, be careful ๐Ÿ˜‰๐Ÿ˜š #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
So this has been my main outfit for the past two weeks and the reason I've been quiet. Let me tell you, replastering and decorating a bathroom when you have calcified wrists, is NOT easy. But then, what kind of crazy idiot decides to decorate with calcified joints? That'll be me then ๐Ÿคช #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
๐Ÿค”DREAMS๐Ÿค” I noticed in my late teens, when opiates and I were first acquainted, that my dreams were becoming rather vivid. Fast forward a few years and a shed more opiates, my dreams are on a whole other level. They aren't just mental, they're totally bat shit crazy. I'm so grateful no one can see my dreams; I'm pretty sure padded cell would be my permanent home if they could ๐Ÿ˜œ๐Ÿคฏ๐Ÿคช โ— โ— #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
They say that everything happens for a reason. That there's a lesson to be learnt from everything that occurs in our lives. That from every negative, a positive can be find. Living with chronic illnesses has taught me some really positive and valuable life lessons and for that, I truly am grateful. I've had to learn, that sometimes, I may not be able to gain all the answers. Before the IBD and bone disorder really grabbed hold, I was highly strung; I wanted to know all the facts about everything or I couldn't settle mentally. I have two unique diseases and learning to live with this, was hugely based around the fact that I would never know all the facts. It's a learning process for everyone concerned. It's taught me patience and to slow down. This may amuse people who know me and anyone who has witnessed me driving; but it's true. It's also taught me not to sweat the small stuff. I've stopped worrying about things I have no control over. I don't let insignificant people bother or upset me. I am truly grateful for the little things. But most importantly, it's taught me what matters; what's really important. โ˜†โ˜†โ˜†โ˜† This is me and I am who I am because I'm ill and I like me; so again, for this, I'm grateful ๐Ÿ˜Š โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Nothing is as black and white as it appears. You only see the catalyst. You don't see the battles within. You don't see the pain, the smiles hide. You don't see the sadness behind the laughter. You don't see the tears that are cried in private. You don't see the destruction within the soul. You don't see the disease that's here to stay. โญโญโญโญ You also won't see that one person's cruel comment or uneducated opinion, could be enough to push someone too far. We all have a private battle but some are fighting private torture. โญโญโญโญ BE KIND OR BE QUIET. โญโญโญโญ #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
Caught in a smog that's deep inside, That broke me down until I cried. The pain beats within just like a heart, For a moment could we just part. You're chipping away at my inner peace, Just once I wish for a bit of relief. You dug in deep and spread out wide, But you'll never take away my pride. I live for the days the heaviness lifts, I briefly get back the person I've missed. This is my normal, my every day life, My broken body cuts like a knife. I dig so deep to remain strong, Each day is hard and feels so long. I won't give up, I'll soldier through, The daily battle that's me and you. โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
๐Ÿ”ดFELLOW FIBROMY'GODTHATHURTS'ALGIA FOLLOWEES๐Ÿ”ด I need to pick your brains, if I may. So, is this the deal? I have one day of normal routine activity, then am left with excruciating joint pain, total exhaustion and rendered totally useless for the next two days?? Is this it? Does it get better than this? Does it normally come in peaks and troughs of tiredness and pain? What causes you to flare, other than being alive?? I'm really interested to hear your experiences with fibromyalgia and any tips you may have. Much love to you all โคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Good evening you lovely bunch of humanoids โคโค โ— โ— After a day of hospital appointments, I can safely say, that I am more than happy to be sat on my butt. โ— Anyone else have those hospital appointments, that don't feel like hospital appointments because you've known your consultant/surgeon for that long, it feels like you're going to see a friend for a quick chat?? I swear, we spoke about everything but what I went for ๐Ÿ˜‚. It dawned on me today though; I've seen more of my surgeons than I have my closest friends over the past few years. Really need to change that. โ— I do hope you are all doing OK and today has been gentle to you. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Throw back Thursday.....trying to remember the last time I actually slept. Had exactly zero minutes sleep last night ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ Made the oldest mistake in the book....I laid down on the sofa. Swiftly stood up again and I'm now going to play with some electrical machinery. What could possibly go wrong ๐Ÿ˜† โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
So..... The arthritic flare that I thought I was having, turned out not to be an arthritic flare. After the pain got to a level where I could have happily have swallowed a live granade, I thought I'd better see my Dr. I know I am a bit silly at times, I try to rationalise symptoms, by connecting them to the illnesses I already have but something was telling me that this wasn't the arthritis, however I had, experienced then pain, swelling and discomfort before. I spent a long time with the Dr and had a bucket load of bloods done and have since been diagnosed with fibromyalgia. Everything totally makes sense now and a few questions have been answered; which is not something that often happens to me AT ALL. Even though I don't feel better physically, I almost feel relieved. A diagnosis is not something I'm used to getting, it's always "well we've never seen that before" but it appears this time, I ticked all the right boxes. ๐Ÿ˜Š๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Hi you gorgeous bunch ๐Ÿ’–๐Ÿ’™ โ— โ— Sorry for my absence, I'm having a bit of a rough time at the moment, that's taken me by surprise somewhat. I'm having the worst arthritic flare I have ever had and it's pretty much rendered me useless. All I can put it down to, is the sudden change in weather we've had. My arthritis has always been worse in damp conditions, more so than the cold but this has just floored me. I've virtually lost the use of both my hands and arms, so typing has become incredibly difficult. So im trying to catch up with you guys as often as I can & I'm liking your pictures in my heart for now. โ— I've had a few frantic messages over the last few days, so I thought I'd better let you know what's going on. โ— If anyone needs me, just dm as you have been doing and I'll get back to you ASAP. I'm trying to carry on as normally as possible but losing the use of my arms and hands is a new one , even for me. โ— Much love to you all ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
โฌ…โฌ…โฌ…โฌ…THROW BACK THURSDAY to 1985. This photo brings back so many memories for me. It was taken in Perpignan, France, whilst doing my PADI training. One very clear memory, is of my Dad, who took the photo....eventually. He spend half an hour laughing at the fact my wetsuit was baggy!! We'd been in France over a month at this point and during that time, I had one hell of a growth spurt. On returning home, I went back to school and a week later, I dislocated my left patella for the first time. This was the first moment that I found out I had a bone disorder, that effected every joint in my body. I was told that I'd be a cripple by the end of 30 and all I remember is thinking "that's not happening ". And it didn't. Don't get me wrong, it's been difficult, it's still difficult but I think this was the definitive moment I got a fire in my belly and an urge to fight. ๐Ÿ’ชโคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’ซ๐Ÿ’ซBusy Busy Busy ๐Ÿ’ซ๐Ÿ’ซ Just about to have my nails did ๐Ÿ’….......at least I can sit down for half an hour. โ—โ—โ— Insomnia is back with a vengeance, managed an entire 2hrs sleep last night, before the alarm screamed at me. Definitely on autopilot today....just hope she knows how to drive ๐Ÿ˜จ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
When the sun hits your mirror and makes it look like you live in a hovel. (I'm decorating). ๐Ÿ’Ÿ๐Ÿ’ŸOOTD๐Ÿ’Ÿ๐Ÿ’Ÿ Dress an absolute bargain from Newlook. The material is actually really thick, so would definitely be perfect for spring and summer. It's currently ยฃ8 but sizes are sparse. It also comes up VERY small, I've had to go up two dress sizes, just to get it over my fat ass.....either that, or I'm totally in denial about my dress size ๐Ÿ˜•. I do love it though, it's very comfortable and I think it looks pretty ๐Ÿ’–๐Ÿ’– โ—โ—โ—โ— Happy Monday instafam, much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ—โ—โ—โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Shamelessly stolen from @cheerfulcrohnie. This did tickle me. We've all had it....."eat more veg, have you tried fibre, it's your lifestyle, you need to believe in God, cut out meat, infact go vegan, try organic it helped my ingrowing toenail, try juicing anything that's green, camomile tea is great for that thing I've never heard of....' we've heard them all. ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ I'll leave this here whilst I pop off and twist my arthritic bones into a 'crouching artichoke'!! โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’Ÿ๐Ÿ’™OOTD๐Ÿ’™๐Ÿ’Ÿ โ— โ— Oh, how I love this dress. This was a firm favourite when I had Stanley stoma, the material is a more rigid cotton & it hangs really well. The pattern deflects from any extra lumpage and bumpage, caused by an 'active bag'. It's not skin tight but neither does it hang like sack. The sandals, I've had for years but they match so well. The ultimate girly girl today ๐Ÿ’–๐Ÿ’– โ— โ— Have a wonderful day everyone ๐Ÿ˜˜๐Ÿ˜˜ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Good evening my instalovelies ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— Well, today would have been Stanley stoma's first stomaversary ๐Ÿฐ๐ŸŽ‚๐ŸŽˆ๐ŸŽ‰ โ— I've been looking at these photos today, with great fondness; in a way I actually miss him. Even though Stanley and I rarely saw eye to eye, I grew quite fond of the windy fella; he was my side kick. Stanley saved my life, for that, I will be eternally grateful but very quickly it was evident Stanley was going to be the bane of my life too. I don't think I have ever heard of anyone else with an output like mine, I know my stoma nurse and gastro team never had either. My daily liquid intake was one litre of water, mixed with ten sachets of dioralyte...that had to last 24hrs. No tea, coffee, juice NADA; just my litre of salt water. On top of that, I was taking 50 lopermide per day, yet my output was ridiculous. Emptying a stoma bag over 50 times per day is no joke, even if I did laugh it off. Every week without fail, I would have a public explosion...usually in the supermarket, Asda was Stanley's favourite. I couldn't put weight on and I became very ill with multiple deficiencies, which resulted in weekly transfusions. Time did nothing to ease Stanley's temperament and it was no way of life but I still remained fond of 'him' ; nothing changed that. In February this year, the choice was made to do an emergency reversal....which didn't really go as planned either but that's a whole other story. I now function on two thirds of a large bowel. Chances are, there will be a Stanley mark 2; it's a 90% probability, yet I'm not fazed one bit by what the future will hold. One thing Stanley taught me, is that we can't control everything that happens to us but we can control how we deal with it. You can be bitter or you can embrace what you have. Stanley altered my life but he didn't change it and he certainly didn't change me, he just made me stronger. Thank you Stanley and happy 'stomaversary' ๐Ÿ’ฉ๐Ÿ’™๐Ÿ’™๐Ÿ’ฉ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy
Just got back from the hospital, visiting my stepdad. Bumped into one of my gastro nurses whilst I was there and she cried! Not because I bumped into her ๐Ÿ˜‰!! She said it was the first time in years, she'd seen me at a healthy weight, tanned and looking so well. It's amazing isn't it, that we can be feeling so rotten in ourselves but a comment like that can make us feel great. I don't think she'll ever know how welcome that was today. ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
You should never wish away time but my lord, I'll be glad to see the back of this week. Sleep would be good too. How can you be so mentally and physically tired, yet stay awake all night? It's crazy. Anyone free to knock me clean out this evening, feel free to pop round and use what means you see fit. Oh and I've got three splinters, so if you could get those out of my finger whilst I'm unconscious, that would be great too. Help yourself to tea and biscuits ๐Ÿ˜„โ˜•๐Ÿช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Mandatory toilet selfie @ St James'. How are you all my gorgeous bunch of instabeauts? ? โ— Sorry I've been so quiet, I've got pneumonia again and I've had a bit of family business to attend to; we're a pretty poorly family at the moment ๐Ÿ˜”. Hoping you're all doing well and staying strong. Much love as always ๐Ÿ’‹๐Ÿ’‹๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Despite feeling like the leading star from The Living Dead, I went and had my hair did ๐Ÿ˜Š. โ— This is the first time in two years, I've let anyone near my hair. After being left devastated, when a combination of Prednisone steroids and deficiencies caused my hair to snap at the root and fall out, I couldn't even stand a brush being put through it without panic, fear and anxiety setting in. โ— โ— I really feel like I've hit another milestone today. I know it feels like we never catch a break when living with chronic illnesses but today I think I may just have to high five myself ๐Ÿ‘‹ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Hey lovely people โค๐Ÿ‘‹โค๐Ÿ‘‹โค๐Ÿ‘‹ โ— โ— Sorry I've been quiet, I've picked up a hum dinger of a virus. Little bonus for my offspring though, I've completely lost my voice. I've got a hefty course of antibiotics to treat laryngitis, sinusitis, chest and throat infection....because I can't just pick up one bug! โ— โ— SO, here are some pictures of my gorgeous new shoes that landed in my hands this morning. They look a hell of a lot prettier than my face right now ๐Ÿ˜•. โ— โ— I hope Monday was kind to you all. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
TBT to 2015 โ— โ— Four months after this was taken, I was given 4 days to live. I was in hospital for 2months, slipped into a coma and my children were brought to hospital to say 'goodbye'. At this point I'd already had two resections but the disease was just rife. Every year since, I've endured the same fate and every time I've refused to accept that was the end for me. To this day, my gastro team have no idea how I survived. Stubbornness and my need to annoy people.....although I'll give the surgeons a bit of credit ๐Ÿ˜‚๐Ÿ˜‚ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐ŸŒž So, this happened ๐ŸŒž I had my first proper work out in 11 months, today! Not much of an achievement I hear you say! WRONG. Yet again, something that my surgeons had said would never happen again, I made happen. I do love it when someone underestimates me, time and time again. Right now, I'm feeling rather happy with myself ๐Ÿ’ช๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Before every achievement came a struggle. A struggle that made me feel like it was impossible to reach the goal and a struggle that made me feel incapable. With each struggle came my biggest fight and each fight ignited a spirit in me that I never knew existed. Living with chronic illnesses is tough, really tough but I'm grateful for the lessons it's taught me and the way it's shaped me into the person I am today. ๐Ÿ’ช๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
๐Ÿ’ฒ๐Ÿ’ฒOOTE๐Ÿ’ฒ๐Ÿ’ฒ โ— โ— Outfit of the evening is a bit of a global ensemble. Jeans are @dorothyperkins tall, the blouse I bought in Spain, the sandals are from Korea and the yes/no clutch bag is from an Italian designer. I found a Korean seller on Amazon UK, who supplies beautiful footwear. I find Asian footwear is a lot narrower than European, so fit me so much better. For someone so tall I have the most ridiculously small feet. Whoever designed me must have been high...... โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
Such an awesome evening with these babes @jemimaisobelgrant and @frannamstyle , laughed till my cheeks hurt. Love my gurlz so much. โคโคโค These nights are so few and far between, so it means so much more to us spoonies when we all manage to be 'well' at the same time. We did it ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
The Humira hangover is real. ๐Ÿ˜ง โ— But....on a brighter note, I get to spend this evening with my beautiful fellow spoonie @jemimaisobelgrant to help celebrate her birthday. ๐ŸŽˆ๐ŸŽ‚๐ŸŽ โ— Don't go out for 2 years, goes out twice in one week! Ah well โคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
๐Ÿ’™๐Ÿ’™OOTD๐Ÿ’™๐Ÿ’™ โ— โ— Woke up this morning, which was a plus, but felt like I'd swallowed a picket fence. Sore throat, stuffy nose and banging head....fabulous. I'm not doing my humira, I can't cope with the side effects of that on top of this. If I didn't have to go out today, believe me, I'd be in pj's and under a duvet. Every super hero has their down day ๐Ÿ˜• โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
These were literally my words in 2015, when my surgeon told me I had around 3 days to live! I can't even take my own death seriously! No one tells me when I'm popping off. โ— โ— 2000- tried and failed 2014 - nope 2015- wrong again 2016- ha, still here 2016- trying again are you! 2017- almost but...nope, again! 2018- do we really have to do this again.... IBD, YOU WILL NOT WIN โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
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