#thespoonielifechoseme

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OOTD Oh my goodness, I'm all for comfort but it was so nice to get out of decorating overalls for day. Might give myself this weekend to rest, then get cracking with the next project ๐Ÿ™„๐Ÿค”๐Ÿ˜’ Happy weekend everyone. Be good and if you can't be good, be careful ๐Ÿ˜‰๐Ÿ˜š #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
So this has been my main outfit for the past two weeks and the reason I've been quiet. Let me tell you, replastering and decorating a bathroom when you have calcified wrists, is NOT easy. But then, what kind of crazy idiot decides to decorate with calcified joints? That'll be me then ๐Ÿคช #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
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๐Ÿค”DREAMS๐Ÿค” I noticed in my late teens, when opiates and I were first acquainted, that my dreams were becoming rather vivid. Fast forward a few years and a shed more opiates, my dreams are on a whole other level. They aren't just mental, they're totally bat shit crazy. I'm so grateful no one can see my dreams; I'm pretty sure padded cell would be my permanent home if they could ๐Ÿ˜œ๐Ÿคฏ๐Ÿคช โ— โ— #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
They say that everything happens for a reason. That there's a lesson to be learnt from everything that occurs in our lives. That from every negative, a positive can be find. Living with chronic illnesses has taught me some really positive and valuable life lessons and for that, I truly am grateful. I've had to learn, that sometimes, I may not be able to gain all the answers. Before the IBD and bone disorder really grabbed hold, I was highly strung; I wanted to know all the facts about everything or I couldn't settle mentally. I have two unique diseases and learning to live with this, was hugely based around the fact that I would never know all the facts. It's a learning process for everyone concerned. It's taught me patience and to slow down. This may amuse people who know me and anyone who has witnessed me driving; but it's true. It's also taught me not to sweat the small stuff. I've stopped worrying about things I have no control over. I don't let insignificant people bother or upset me. I am truly grateful for the little things. But most importantly, it's taught me what matters; what's really important. โ˜†โ˜†โ˜†โ˜† This is me and I am who I am because I'm ill and I like me; so again, for this, I'm grateful ๐Ÿ˜Š โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Nothing is as black and white as it appears. You only see the catalyst. You don't see the battles within. You don't see the pain, the smiles hide. You don't see the sadness behind the laughter. You don't see the tears that are cried in private. You don't see the destruction within the soul. You don't see the disease that's here to stay. โญโญโญโญ You also won't see that one person's cruel comment or uneducated opinion, could be enough to push someone too far. We all have a private battle but some are fighting private torture. โญโญโญโญ BE KIND OR BE QUIET. โญโญโญโญ #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
Caught in a smog that's deep inside, That broke me down until I cried. The pain beats within just like a heart, For a moment could we just part. You're chipping away at my inner peace, Just once I wish for a bit of relief. You dug in deep and spread out wide, But you'll never take away my pride. I live for the days the heaviness lifts, I briefly get back the person I've missed. This is my normal, my every day life, My broken body cuts like a knife. I dig so deep to remain strong, Each day is hard and feels so long. I won't give up, I'll soldier through, The daily battle that's me and you. โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
๐Ÿ”ดFELLOW FIBROMY'GODTHATHURTS'ALGIA FOLLOWEES๐Ÿ”ด I need to pick your brains, if I may. So, is this the deal? I have one day of normal routine activity, then am left with excruciating joint pain, total exhaustion and rendered totally useless for the next two days?? Is this it? Does it get better than this? Does it normally come in peaks and troughs of tiredness and pain? What causes you to flare, other than being alive?? I'm really interested to hear your experiences with fibromyalgia and any tips you may have. Much love to you all โคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Good evening you lovely bunch of humanoids โคโค โ— โ— After a day of hospital appointments, I can safely say, that I am more than happy to be sat on my butt. โ— Anyone else have those hospital appointments, that don't feel like hospital appointments because you've known your consultant/surgeon for that long, it feels like you're going to see a friend for a quick chat?? I swear, we spoke about everything but what I went for ๐Ÿ˜‚. It dawned on me today though; I've seen more of my surgeons than I have my closest friends over the past few years. Really need to change that. โ— I do hope you are all doing OK and today has been gentle to you. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Throw back Thursday.....trying to remember the last time I actually slept. Had exactly zero minutes sleep last night ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ Made the oldest mistake in the book....I laid down on the sofa. Swiftly stood up again and I'm now going to play with some electrical machinery. What could possibly go wrong ๐Ÿ˜† โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
So..... The arthritic flare that I thought I was having, turned out not to be an arthritic flare. After the pain got to a level where I could have happily have swallowed a live granade, I thought I'd better see my Dr. I know I am a bit silly at times, I try to rationalise symptoms, by connecting them to the illnesses I already have but something was telling me that this wasn't the arthritis, however I had, experienced then pain, swelling and discomfort before. I spent a long time with the Dr and had a bucket load of bloods done and have since been diagnosed with fibromyalgia. Everything totally makes sense now and a few questions have been answered; which is not something that often happens to me AT ALL. Even though I don't feel better physically, I almost feel relieved. A diagnosis is not something I'm used to getting, it's always "well we've never seen that before" but it appears this time, I ticked all the right boxes. ๐Ÿ˜Š๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Hi you gorgeous bunch ๐Ÿ’–๐Ÿ’™ โ— โ— Sorry for my absence, I'm having a bit of a rough time at the moment, that's taken me by surprise somewhat. I'm having the worst arthritic flare I have ever had and it's pretty much rendered me useless. All I can put it down to, is the sudden change in weather we've had. My arthritis has always been worse in damp conditions, more so than the cold but this has just floored me. I've virtually lost the use of both my hands and arms, so typing has become incredibly difficult. So im trying to catch up with you guys as often as I can & I'm liking your pictures in my heart for now. โ— I've had a few frantic messages over the last few days, so I thought I'd better let you know what's going on. โ— If anyone needs me, just dm as you have been doing and I'll get back to you ASAP. I'm trying to carry on as normally as possible but losing the use of my arms and hands is a new one , even for me. โ— Much love to you all ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
โฌ…โฌ…โฌ…โฌ…THROW BACK THURSDAY to 1985. This photo brings back so many memories for me. It was taken in Perpignan, France, whilst doing my PADI training. One very clear memory, is of my Dad, who took the photo....eventually. He spend half an hour laughing at the fact my wetsuit was baggy!! We'd been in France over a month at this point and during that time, I had one hell of a growth spurt. On returning home, I went back to school and a week later, I dislocated my left patella for the first time. This was the first moment that I found out I had a bone disorder, that effected every joint in my body. I was told that I'd be a cripple by the end of 30 and all I remember is thinking "that's not happening ". And it didn't. Don't get me wrong, it's been difficult, it's still difficult but I think this was the definitive moment I got a fire in my belly and an urge to fight. ๐Ÿ’ชโคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’ซ๐Ÿ’ซBusy Busy Busy ๐Ÿ’ซ๐Ÿ’ซ Just about to have my nails did ๐Ÿ’….......at least I can sit down for half an hour. โ—โ—โ— Insomnia is back with a vengeance, managed an entire 2hrs sleep last night, before the alarm screamed at me. Definitely on autopilot today....just hope she knows how to drive ๐Ÿ˜จ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
When the sun hits your mirror and makes it look like you live in a hovel. (I'm decorating). ๐Ÿ’Ÿ๐Ÿ’ŸOOTD๐Ÿ’Ÿ๐Ÿ’Ÿ Dress an absolute bargain from Newlook. The material is actually really thick, so would definitely be perfect for spring and summer. It's currently ยฃ8 but sizes are sparse. It also comes up VERY small, I've had to go up two dress sizes, just to get it over my fat ass.....either that, or I'm totally in denial about my dress size ๐Ÿ˜•. I do love it though, it's very comfortable and I think it looks pretty ๐Ÿ’–๐Ÿ’– โ—โ—โ—โ— Happy Monday instafam, much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ—โ—โ—โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Shamelessly stolen from @cheerfulcrohnie. This did tickle me. We've all had it....."eat more veg, have you tried fibre, it's your lifestyle, you need to believe in God, cut out meat, infact go vegan, try organic it helped my ingrowing toenail, try juicing anything that's green, camomile tea is great for that thing I've never heard of....' we've heard them all. ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ I'll leave this here whilst I pop off and twist my arthritic bones into a 'crouching artichoke'!! โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’Ÿ๐Ÿ’™OOTD๐Ÿ’™๐Ÿ’Ÿ โ— โ— Oh, how I love this dress. This was a firm favourite when I had Stanley stoma, the material is a more rigid cotton & it hangs really well. The pattern deflects from any extra lumpage and bumpage, caused by an 'active bag'. It's not skin tight but neither does it hang like sack. The sandals, I've had for years but they match so well. The ultimate girly girl today ๐Ÿ’–๐Ÿ’– โ— โ— Have a wonderful day everyone ๐Ÿ˜˜๐Ÿ˜˜ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Good evening my instalovelies ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— Well, today would have been Stanley stoma's first stomaversary ๐Ÿฐ๐ŸŽ‚๐ŸŽˆ๐ŸŽ‰ โ— I've been looking at these photos today, with great fondness; in a way I actually miss him. Even though Stanley and I rarely saw eye to eye, I grew quite fond of the windy fella; he was my side kick. Stanley saved my life, for that, I will be eternally grateful but very quickly it was evident Stanley was going to be the bane of my life too. I don't think I have ever heard of anyone else with an output like mine, I know my stoma nurse and gastro team never had either. My daily liquid intake was one litre of water, mixed with ten sachets of dioralyte...that had to last 24hrs. No tea, coffee, juice NADA; just my litre of salt water. On top of that, I was taking 50 lopermide per day, yet my output was ridiculous. Emptying a stoma bag over 50 times per day is no joke, even if I did laugh it off. Every week without fail, I would have a public explosion...usually in the supermarket, Asda was Stanley's favourite. I couldn't put weight on and I became very ill with multiple deficiencies, which resulted in weekly transfusions. Time did nothing to ease Stanley's temperament and it was no way of life but I still remained fond of 'him' ; nothing changed that. In February this year, the choice was made to do an emergency reversal....which didn't really go as planned either but that's a whole other story. I now function on two thirds of a large bowel. Chances are, there will be a Stanley mark 2; it's a 90% probability, yet I'm not fazed one bit by what the future will hold. One thing Stanley taught me, is that we can't control everything that happens to us but we can control how we deal with it. You can be bitter or you can embrace what you have. Stanley altered my life but he didn't change it and he certainly didn't change me, he just made me stronger. Thank you Stanley and happy 'stomaversary' ๐Ÿ’ฉ๐Ÿ’™๐Ÿ’™๐Ÿ’ฉ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy
Just got back from the hospital, visiting my stepdad. Bumped into one of my gastro nurses whilst I was there and she cried! Not because I bumped into her ๐Ÿ˜‰!! She said it was the first time in years, she'd seen me at a healthy weight, tanned and looking so well. It's amazing isn't it, that we can be feeling so rotten in ourselves but a comment like that can make us feel great. I don't think she'll ever know how welcome that was today. ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
You should never wish away time but my lord, I'll be glad to see the back of this week. Sleep would be good too. How can you be so mentally and physically tired, yet stay awake all night? It's crazy. Anyone free to knock me clean out this evening, feel free to pop round and use what means you see fit. Oh and I've got three splinters, so if you could get those out of my finger whilst I'm unconscious, that would be great too. Help yourself to tea and biscuits ๐Ÿ˜„โ˜•๐Ÿช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Mandatory toilet selfie @ St James'. How are you all my gorgeous bunch of instabeauts? ? โ— Sorry I've been so quiet, I've got pneumonia again and I've had a bit of family business to attend to; we're a pretty poorly family at the moment ๐Ÿ˜”. Hoping you're all doing well and staying strong. Much love as always ๐Ÿ’‹๐Ÿ’‹๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Despite feeling like the leading star from The Living Dead, I went and had my hair did ๐Ÿ˜Š. โ— This is the first time in two years, I've let anyone near my hair. After being left devastated, when a combination of Prednisone steroids and deficiencies caused my hair to snap at the root and fall out, I couldn't even stand a brush being put through it without panic, fear and anxiety setting in. โ— โ— I really feel like I've hit another milestone today. I know it feels like we never catch a break when living with chronic illnesses but today I think I may just have to high five myself ๐Ÿ‘‹ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Hey lovely people โค๐Ÿ‘‹โค๐Ÿ‘‹โค๐Ÿ‘‹ โ— โ— Sorry I've been quiet, I've picked up a hum dinger of a virus. Little bonus for my offspring though, I've completely lost my voice. I've got a hefty course of antibiotics to treat laryngitis, sinusitis, chest and throat infection....because I can't just pick up one bug! โ— โ— SO, here are some pictures of my gorgeous new shoes that landed in my hands this morning. They look a hell of a lot prettier than my face right now ๐Ÿ˜•. โ— โ— I hope Monday was kind to you all. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
TBT to 2015 โ— โ— Four months after this was taken, I was given 4 days to live. I was in hospital for 2months, slipped into a coma and my children were brought to hospital to say 'goodbye'. At this point I'd already had two resections but the disease was just rife. Every year since, I've endured the same fate and every time I've refused to accept that was the end for me. To this day, my gastro team have no idea how I survived. Stubbornness and my need to annoy people.....although I'll give the surgeons a bit of credit ๐Ÿ˜‚๐Ÿ˜‚ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐ŸŒž So, this happened ๐ŸŒž I had my first proper work out in 11 months, today! Not much of an achievement I hear you say! WRONG. Yet again, something that my surgeons had said would never happen again, I made happen. I do love it when someone underestimates me, time and time again. Right now, I'm feeling rather happy with myself ๐Ÿ’ช๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Before every achievement came a struggle. A struggle that made me feel like it was impossible to reach the goal and a struggle that made me feel incapable. With each struggle came my biggest fight and each fight ignited a spirit in me that I never knew existed. Living with chronic illnesses is tough, really tough but I'm grateful for the lessons it's taught me and the way it's shaped me into the person I am today. ๐Ÿ’ช๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
๐Ÿ’ฒ๐Ÿ’ฒOOTE๐Ÿ’ฒ๐Ÿ’ฒ โ— โ— Outfit of the evening is a bit of a global ensemble. Jeans are @dorothyperkins tall, the blouse I bought in Spain, the sandals are from Korea and the yes/no clutch bag is from an Italian designer. I found a Korean seller on Amazon UK, who supplies beautiful footwear. I find Asian footwear is a lot narrower than European, so fit me so much better. For someone so tall I have the most ridiculously small feet. Whoever designed me must have been high...... โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
Such an awesome evening with these babes @jemimaisobelgrant and @frannamstyle , laughed till my cheeks hurt. Love my gurlz so much. โคโคโค These nights are so few and far between, so it means so much more to us spoonies when we all manage to be 'well' at the same time. We did it ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
The Humira hangover is real. ๐Ÿ˜ง โ— But....on a brighter note, I get to spend this evening with my beautiful fellow spoonie @jemimaisobelgrant to help celebrate her birthday. ๐ŸŽˆ๐ŸŽ‚๐ŸŽ โ— Don't go out for 2 years, goes out twice in one week! Ah well โคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
๐Ÿ’™๐Ÿ’™OOTD๐Ÿ’™๐Ÿ’™ โ— โ— Woke up this morning, which was a plus, but felt like I'd swallowed a picket fence. Sore throat, stuffy nose and banging head....fabulous. I'm not doing my humira, I can't cope with the side effects of that on top of this. If I didn't have to go out today, believe me, I'd be in pj's and under a duvet. Every super hero has their down day ๐Ÿ˜• โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
These were literally my words in 2015, when my surgeon told me I had around 3 days to live! I can't even take my own death seriously! No one tells me when I'm popping off. โ— โ— 2000- tried and failed 2014 - nope 2015- wrong again 2016- ha, still here 2016- trying again are you! 2017- almost but...nope, again! 2018- do we really have to do this again.... IBD, YOU WILL NOT WIN โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
๐Ÿ’œGirl went to oot๐Ÿ’œ โ— โ— It was so nice to get dressed up a bit, do my hair and makeup and put on my favourite perfume (courtesy of Mr @leighbosworth , thank you๐Ÿ’™ ). โ— I have a banging headache and my stomach detests me but man, it was worth it. โ— Happy weekend all. Love & sunshine ๐Ÿ’›๐ŸŒž๐Ÿ’›๐ŸŒž๐Ÿ’›๐ŸŒž โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #ootd #whatbagladieswear #ostomyfashion
๐Ÿ’›๐ŸŽตThey call me yellow mellow๐ŸŽต๐Ÿ’› โ— Won't be getting run over today, that's for sure! Bonus! โ— This yellow leather jacket was an absolute bargain and I flipping love it. #tkmaxx you've done it again. I totally forgot I had this blouse, I bought it four years ago in #liverpool at #PullandBear . Jeans are my faves right now, the fit is just perfect. They're by #newlooktall and are Hallie model, which is also available in regular and petite. ๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’›๐Ÿ’› โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
The slow torture has well and truly begun. Starting to struggle with the bowel restriction now. Had an awful night with vomiting and cramping. Knowing exactly what is come, is not the nicest feeling but knowing that my surgeons won't do a thing surgically, until it's completely closed up, is pretty daunting. Year after year after year , the same thing happens, yet no one knows why and nothing stops it in its tracks. I'm so tired, yet the flame never goes out. I'll go through this, and yet again, I'll come out the other side. Once you find your fight, you have to keep hold of it. You have to believe in yourself and trust your ability to get through the really dark times. ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช โ— Much love my fellow warriors ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
Bonjour my little beauts, hope you've been behaving in my absence (I don't. I really don't). Sorry I've been quiet or sorry I'm back quite so soon, whichever you prefer; I've have a trip to Virus Ville and although I still feel positively crap, I'm dressed!! โ— Humira hangover + a viral infection + raging allergies + awful gut pain = a very quiet, sleepy Alix ๐Ÿ˜ง๐Ÿ˜ฉ๐Ÿ˜ท๐Ÿ˜ช๐Ÿ’ค๐Ÿ’ค๐Ÿ’ค I'm on the up though now and back to the normal, sarcastic ray of sunshine you all know and.....put up with. ๐ŸŒž๐Ÿ˜ˆ๐ŸŒž โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
Had a lovely day with my wee pal, his smiles make my day. ๐Ÿ’™๐Ÿ’™ Major, major fatigue this afternoon , I'm really struggling. Pretty sure it's the aftermath of the Humira. I've had some very peculiar 'episodes' today too, not at all sure where they've surfaced from but I'd be very happy if they did one. So my evening is consisting of a bath and a seriously early night. A very happy weekend eve to you all and sending out love and sunshine ๐Ÿ’›๐ŸŒž๐Ÿ’›๐ŸŒž๐Ÿ’›๐ŸŒž๐Ÿ’›๐ŸŒž๐Ÿ’›๐ŸŒž โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss
You know when someone asks how you're feeling and you just don't have any words to describe exactly how crap you feel, so you come out with a load of noise and no words? That's just happened. โ— I think "urrh, ooo, ugh, blugh, fffft" sums up today nicely ๐Ÿ˜ฉ โ— โ— #bowelrestriction #humpdayishumiraday #humira #humirahangover #madebythedevil #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #uniqueibd #liverfailure #thyroiddisease #osteoarthritis #spondyloarthritis #ibdawareness #ostomyawareness #ostomyreversal #chronicfatigue #chronicillness #invisableillness #invisibledisabilty #spoonie #thespoonielifechoseme #dontjudgeabookbyitscover #girlswithoutguts #tattooedchick #girlswithink #rockoutwithyourtatsout #inkedandawesome
To all my fellow IBD family and my beautiful friends, Thank you for helping me on my journey and giving me support and encouragement I needed. In return, I am here for you. I will support you and aide you in the same generous way you did for me. I am here to listen to you and make sure you stay on your journey forward, I will hold your hand and guide you, as you did with me. I am honored to have such an amazing group of followers, who understand my reasons for speaking up about IBD and invisible illnesses. I will continue to speak up, to educate and teach people about our plight and I will continue to make sure others know they're not alone in their fight. Stay strong my beautiful warriors, much love to you all ๐Ÿ’–๐Ÿ’ช๐Ÿ’™๐Ÿ’ช๐Ÿ’–๐Ÿ’ช๐Ÿ’™ โ— โ— #worldibdday #bowelrestriction #humpdayishumiraday #humira #humirahangover #madebythedevil #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #uniqueibd #liverfailure #thyroiddisease #osteoarthritis #spondyloarthritis #ibdawareness #ostomyawareness #ostomyreversal #chronicfatigue #chronicillness #invisableillness #invisibledisabilty #spoonie #thespoonielifechoseme #dontjudgeabookbyitscover #girlswithoutguts #tattooedchick #girlswithink #rockoutwithyourtatsout #inkedandawesome
As much as I love a good sunbathing session, this has to be the most uncomfortable position for me ever. Having had so many abdominal and upper gi surgeries, my belly is covered in thick scar tissue, which makes lying flat, really painful. However, my stubborn, vain ass spent a couple of hours like this because my front was brown and my back looked like it belonged to someone else. The outcome - I feel like I've been hit in the guts by a bull ๐Ÿƒ๐Ÿ‚๐Ÿƒ. Will I do it again? YES! ! โ— โ— Have a great Thursday you lovely lot, much love to each and every one of you ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #bowelrestriction #humpdayishumiraday #humira #humirahangover #madebythedevil #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #uniqueibd #liverfailure #thyroiddisease #osteoarthritis #spondyloarthritis #ibdawareness #ostomyawareness #ostomyreversal #chronicfatigue #chronicillness #invisableillness #invisibledisabilty #spoonie #thespoonielifechoseme #dontjudgeabookbyitscover #girlswithoutguts #tattooedchick #girlswithink #rockoutwithyourtatsout #inkedandawesome
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