#thespoonielifechoseme

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Do you know what rhymes with strep throat? Ice cream๐Ÿฆ๐Ÿฆ It has been a God send today. Still feel shocking but I was upright for a few hours. @leighbosworth risked his life today, coming to visit my germ riddled self.....because I didn't tell him ! I thought I'd save the news that I'm highly contagious and live dangerously ๐Ÿ˜ #tulips #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
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Got the lurgy ๐Ÿ˜ž Been a bit snotty for a couple of days, thought nothing about it, I have a ton of allergies, so I thought it must be that. WRONG. This morning I was welcomed by a mouth full of weeping ulcers, an extremely sore throat and a high temperature. Great ๐Ÿ˜– #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
This couldn't be more true ๐Ÿ‘Œ I never do anything by halves, its either all or nothing with me. I used to hate that about myself, that I couldn't do anything unless I was 100% in or 100% out! Its a rule that applies to every aspect of my personality and life.....and my illnesses. I just don't do middle ground and I have no idea why but as I approach yet another 32nd birthday (Ive had alot) , I realise that I'm actually really ok with that. I like who I am (for those who really know me, know that that is not something I say with ease) and I like the place I'm at right now. Nothing has changed within my personality and the way I do things; I still over love, over protect, over think and I most definitely over share, the only difference is now, is with whom I invest my time in and being kinder to myself. No longer do I over love people who don't give me a second thought, no longer do I protect those who would push me under a bus and no longer do I think about those who only want to cause me harm. I do however, give myself permission to have 0% days. I allow myself to have down days and not to be self critical when I dont feelable to take on the day's tasks. I no longer carry guilt, when I eject people from my life, who do not enrich my world in any way, shape or form and I no longer chastise myself, for occasionally putting myself first โค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
A very sweaty and make-up free selfie but oh my gosh, I feel so much better after a 15 minute holiday. It's amazing how a bit of sun on the old bod can make me feel so relaxed and stress free, only if it is for 15 minutes! Happy weekend you amazing bunch of humanoids. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Three doctors appointments in three days. ALL A SUCCESS! So happy with the outcome of all three. CRP is 4 which is amazing! Cdiff is negative which means I don't have a bug so yay! And my liver and kidneys are perfect! YAY! #spoonielife #spoonie #ostomate #ibdwarrior #crohnsdisease #livertransplant #psc #aih #stomabuddies #stoma #family #thespooniesisterhood #chronicallyill #chronicillnessawareness #thespoonielifechoseme
So yesterday I posted this beautiful bunch and asked people to tell me which four they thought were perfectly healthy and why! The results are: 1 person got 2 people correct. 5 people got 1 correct. 20 people got 0 correct. Not one person could tell me what they based their answers on, every person said it was a random guess. THIS was the sole purpose of this experiment. Four people out of nineteen are perfectly healthy, the rest live with chronic illness or illnesses. Every single day, we face prejudice from people, who tell us we don't look sick or we don't look disabled. This experiment shows, that you can not tell who lives with chronic illnesses just by looking at someone's face or body. Not all disabilities require a wheelchair or a walking frame, which is why they're called 'invisible illnesses'. But invisible or not, a disability is just that. It does not make our disabilities any less debilitating because you can't tell by looking at us. Twice last week, I was forced to defend myself, yet again, because of the ignorance of two complete strangers who decided to berate me about my rights! Apparently, I had no right to use a disabled toilet, despite the fact I hold a disabled toilet card and radar key and I have no right to park in a disabled parking bay, despite clearly displaying a blue badge. Every single day, someone living with chronic illness is forced into a situation, that is not only upsetting but embarrassing too, due to the ignorance and contempt of a stranger verbally bashing them, for not 'looking' disabled, not looking old enough to be disabled or looking too well to be disabled. It is not ok to call someone out based on what you see or what your perception of a disability is. It is upsetting, it is humiliating, it is traumatic, it is demeaning and it is wrong. NEVER judge a book by its cover. #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #butyoudontlooksick
#Repost @hazlenoot (@get_repost ) ใƒปใƒปใƒป Sorry I haven't posted in a while guys! Been hit really hard with a head cold and I've still got a lingering cough that is super frustrating and I've been prescribed an inhaler until it goes away. Been to pain clinic and they've changed up my meds from pregabalin to duluxotine and gabapentin but the good news is the hypersensitivity is almost gone! Bloody legendary! Still trying to get the rest of the pain under control, back to see them in a month with reviews of the new meds. Seeing gastro tomorrow about my output and mouth ulcers and then transplant clinic on Wednesday! Busy week for me. For now though I'm hanging out with @gemgemhamham / @me_and_mike_hannigan #spoonielife #spoonie #ostomate #ibdwarrior #crohnsdisease #livertransplant #psc #aih #stomabuddies #stoma #family #thespooniesisterhood #chronicallyill #chronicillnessawareness #thespoonielifechoseme #fatigue #sickasfrick #crohnie #crohnssupport #crohnsdisease awareness
Sorry I haven't posted in a while guys! Been hit really hard with a head cold and I've still got a lingering cough that is super frustrating and I've been prescribed an inhaler until it goes away. Been to pain clinic and they've changed up my meds from pregabalin to duluxotine and gabapentin but the good news is the hypersensitivity is almost gone! Bloody legendary! Still trying to get the rest of the pain under control, back to see them in a month with reviews of the new meds. Seeing gastro tomorrow about my output and mouth ulcers and then transplant clinic on Wednesday! Busy week for me. For now though I'm hanging out with @gemgemhamham / @me_and_mike_hannigan #spoonielife #spoonie #ostomate #ibdwarrior #crohnsdisease #livertransplant #psc #aih #stomabuddies #stoma #family #thespooniesisterhood #chronicallyill #chronicillnessawareness #thespoonielifechoseme #fatigue #sickasfrick
Bed is bae ๐Ÿ›โค I am having such a bad flare right now and it doesn't seem to be showing any signs of improving. I feel like building a forte around my belly so noone bumps it by accident. One accidental prod is going to be enough to send me into a full blown meltdown. This is not good ๐Ÿ˜” #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Today's mood โ˜น Had a grand total of zero hours sleep last night, thanks to the stricturing in my bowel blocking up completely. Was trying to nod off in a drug induces haze (prescribed drugs that is) at around 8am but again, my bowel had other ideas and I started vomiting instead. That is Thursday summed up! ๐Ÿ’ฉ๐Ÿ’ฉ๐Ÿ’ฉ๐Ÿ’ฉ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Day 2 of... 'lets do everything in one day '. Ive been thinking this morning, how crazy it is, that I'm in such a good mood right now, simply because I feel better. Don't worry, it wont last ๐Ÿ™„ This is the how it is for people living with chronic illnesses. We're not being melodramatic, drama queens/kings, attention seekers or whatever, by saying "it won't last".... it won't and that is how life is. For people with compromised immune systems, we don't simply catch a cold and get over it. Our immune systems are our worst nightmare, before we start adding viral infections and such. And every time we pick up a bug, we will usually pick up a secondary infection because our immune systemsjust dont function like a healthy persons. So it is almost like a miracle to feel well because for us, its very short lived. ๐Ÿ˜Œ And on that note, I wish you all a peaceful Tuesday. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Total spoonie logic. R.A in the wrist settled slightly after the injection (I shall not hold my breathe) and feeling loads better after the flu fog has cleared = DO EVERYTHING IN ONE DAY ๐Ÿค” โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† Took the baby to the vet today for her injections, she's fine, I'm totally traumatised ๐Ÿ˜ฅ. She has surgery Friday, I may need tranquillizing ๐Ÿ™€๐Ÿ˜ฟ๐Ÿ˜ฟ๐Ÿ˜ฟ๐Ÿ˜ฟ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Before and after the local anaesthetic wears off and the swelling increases ๐Ÿ™‚๐Ÿ˜•๐Ÿ˜’๐Ÿ˜–๐Ÿ˜ฉ Well wont that teach me to keep my mouth shut before a rheumatology appointment. "They won't do anything" she said. Stabbed me with a huge needle, he did ! โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† Ive had cortisone and steroid injected into the wrist joint and middle finger and my word, did it make me see stars! Ive had them in the past into my shoulders, hips, thumbs, elbows and spine but I've never experienced one as painful as today's. My pain threshold is incredible, so if I say it hurt, IT REALLY HURT. Im now behaving, for once and am resting in bed...with a fat hand.๐Ÿ– #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Look who humaned today ๐Ÿคฉ For the first time in three long weeks, I actually feel a bit more alive. Went shopping, had my nails done, came home and spent the afternoon cooking. I am officially part of the human race again ๐Ÿ˜ OOTD: Peplum tshirt by @find , jeans by @missguided tall, cardigan by @newlook and silk bow trainers by @puma. If you have mobility issues, these trainers are a dream. The laces aren't infact laces, they're elastic and dont need tieing at all. Bingo ๐Ÿ‘Œ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
I can't actually remember the last time I put on make up and clothes that weren't pjs. I am so over this flu now. This is my third week of chronic fatigue, swollen glands, high temperature, nausea & sickness, dizziness and fainting, sweating bucket loads, loss of appetite and a banging headache. ๐Ÿค’๐Ÿคข๐Ÿ˜ท I can't play host to this much longer, โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† On a brighter note, I hope you're all doing and Happy Monday to each and every one of you โคโค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Oh my days. This was two weeks ago and I didn't feel cracking back then but my lord, I look a billion miles away from from this right now. This flu just keeps on giving ๐Ÿค’๐Ÿคข๐Ÿ˜ท. Every time I think I'm getting a bit better, PLOT TWIST and downhill I go again. Just to add insult to injury, Ive lost my voice again ๐Ÿ™„ And that folks, is my Friday flu update ๐Ÿ˜ž๐Ÿ˜ท๐Ÿ’ค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
After years if being nagged at, I finally got round to getting a Medicare bracelet. This particular one was from Vnox Jewellery via Amazon and they do loads of different colours for men and women alike. Its engraved on both sides, which is why I went for a design that can be easily flipped over. I'll be back in the good books before I know it ๐Ÿ˜ #medicare #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
'Ello you lot. ๐Ÿ‘‹ Yes, I've been AWOL for a couple of weeks but you haven't gotten rid of me yet ๐Ÿ˜. Myself and the offspring have been plagued with the flu and an awful virus and it's knocked the lot of us for six ๐Ÿ˜ท๐Ÿ˜ท I just didn't have the energy to post anything, nor did I have anything of any interest to post, so a spot of time out was needed. ๐Ÿ’ค๐Ÿ’ค๐Ÿ’ค๐Ÿ’ค Anyhoo, I'm back and sending virtual hugs to anyone who needs one ((((())))) Much love โคโค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย #sinovitis #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Appointment at IBD Gastroenterology went better than expected. After a car crash of an appointment last time ( a registrar was so rude to me, they reduced me to tears, which resulted in me becoming phobic about going back), I saw a really lovely consultant, who was so kind and has put some provisions in place so that my follow up appointments run as smoothly as possible. My inflammation markers are very high and as I suspected, my last MRI showed that I've got severe stricturing again. The bowel hasn't closed up totally, we've got a bit more time before that occurs but the consultant wants to put a plan of action in place. Running some bloods tomorrow, got another MRI scan booked, xrays to do in the next week, then back to clinic to find out what's what.....until then, I shall remain fabulous ๐Ÿ˜๐Ÿคฉ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
START AS YOU MEAN TO GO ON!! Yes....at eighteen minutes past midnight, I did laundry. This is so typical of how my mind works. I was in bed, watching a movie, noticed the time, wanted to see new year in, with my Son, so went downstairs to join him. En route, I picked up the laundry coz....well, I was going downstairs....then this happened ๐Ÿ™„. #LittleMissPracticality I hope everyone had a fantastic night anyway and a very Happy New Year to you all ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
Last selfie of the year ( you'll be elated to know ๐Ÿคช) ๐ŸŽŠ๐ŸŽ‰๐ŸŽŠ๐ŸŽ‰ A VERY HAPPY NEW YEAR to each and every one of you. ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ I adore you all. Thankyou for being my company when Im house bound, thankyou for giving me encouragement when I felt couldn't move forward, thankyou for making me laugh when I hadn't smiled in days and thankyou, for being the amazing people you are. HAPPY NEW YEAR ๐Ÿฅ‚๐Ÿพ๐ŸŽŠ๐ŸŽถ๐ŸŽ‰๐Ÿคฉ๐ŸŽˆ๐Ÿธ๐Ÿ‡๐Ÿป๐Ÿท #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #rheumatoidarthritis ย  #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma
I'm done, I'm done......my body has had enough. I've hit 'the wall' and I'm on shut down. Every year, I always seem so shocked, at the amount of energy, xmas takes out of me. Every year, I tell myself that I'm going to take it easy and do I? Of course not....or I try to convince myself that I have!! ๐Ÿ™„๐Ÿ˜ž #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
HELLO my friends ๐Ÿ‘‹ Sorry I've been so quiet, I needed a bit of time away to get my head round things and my thoughts straight.....I shall explain.... During my visit to rheumatology, I had completely forgotten that phlebotomy managed to drag a thimble of blood out of me. I wasn't expecting to hear from them again, until they'd spoken to gastro. On Friday, I returned home, to be greeted by a formal looking letter, which turned out to be from my rheumatologist. About two minutes later, I found out that I was suffering with rheumatoid arthritis! As grateful as I am for a diagnosis because believe me, a diagnosis is not something I'm used to, I was totally bummed out by this revelation. I wasn't upset, I'm actually not sure how I felt about it really but I think I was just surprised. I knew something was very wrong but there's been something very wrong with my joints, since I was a young child, so I wasnt expecting....that!! Anyhoo, I'm back to my jovial self and ready to laugh about my fingers, slowly resembling knotted fairy lights! Like everything else, I will take it in my stride and laugh at my own misfortune ๐Ÿ˜. I hope you are all doing ok, I need to catch up with you all. A week without posting is a long time in instaworld! โคMuch loveโค #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #R .A
Homage to the last time I felt human. ๐Ÿ˜–๐Ÿคข๐Ÿ˜ฉ You know when you live with an illness or disease, and you get pretty good at knowing why your body behaves in a certain manner? You can go to see your Dr or consultant and say 'this, this and this is happening but I'm sure it's because of this' !! Well, that's not happening so much right now. I feel peculiar, weird, off, not right....and I can't put my finger on it at all. Ive no energy at all; none, I'm constantly nauseous, stomach distended and acting in a non typical manner for my disease, trouble sleeping, anxious and generally feeling 'plaaah' .......and I don't like it, I feel very out of control ๐Ÿค”๐Ÿค”๐Ÿค”๐Ÿค” #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
"Never judge a book by its cover"! This is something we are all guilty of doing, at some point or another. These photos were taken exactly 18 months apart. In one photo, I'm a size (UK) 6 to 8. In the other, I'm a size 12. So if I asked which picture I was ill in, your natural reaction, if you didn't know me; would be the second frame, right? The answer is, both!! Its so easy to jump to a conclusion, based only on what we see. I've heard it all, "You dont look disabled", "You're too young to be ill", "You don't look ill", "You're young enough to get rid of that"......and all these comments have been based on how I look, not the facts. Truth is, we all have stuff going on, we all have things that aren't visible or we hide well. Usually people who live with illnesses, are the professionals when it comes to hiding; we become masters of disguise. With this said, be kind, be patient and don't make assumptions based on how someone looks because you never know what that person is hiding from the world. ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
PLOT TWIST ๐Ÿคข๐Ÿคฎ๐Ÿ˜ท Well won't that teach me, for being cocky about feeling well during a flare!?. ๐Ÿ™„ I feel absolutely, positively disgusting today. The type of disgusting where you daren't move your head, incase it triggers another vomiting session. That's how disgusting I feel ๐Ÿคข๐Ÿคข๐Ÿคฎ Goodnight instaworld โคโค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
The wonderful thing about IBD, is how unpredictable it can be. Put it together with other illnesses and ailments and you've pretty much lost any form of control, you thought you had. For the past 11 months, my thyroid has been giving me the run around; its been impossible to get it stable. So one minute its overactive and weeks later its underactive. Anyone who suffers with thyroid disease knows how shocking an over/under active thyroid can make you feel, so for the best part of this year I've felt pretty 'blugh'....add surgery and flare ups to that, plus other diseases; you pretty much get the picture. ๐Ÿคข About a week ago, I suffered a bad bleed, which continued for a couple of days, then turned into a flare. Ive no appetite, when I do eat I'm sick, when I don't eat I'm nauseous, Ive dropped 8lb in weight in six days and I've got permanent reflux........ ....yet I've never felt so well!! WHAAAAAT ????? ๐Ÿค”๐Ÿคฆโ€โ™€๏ธ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
Did you even go shopping if you didn't take a lift selfie?? ๐Ÿ˜๐Ÿ˜ Certainly paying for it but had a fantastic Christmas shopping day with these two loves. Shout out to my beautiful bestie; heavily pregnant with a split pelvis, she trundled round like a trouper and despite clearly being in agony, she never complained once. Up most respect for my beautiful soul sister ๐Ÿ’ช๐Ÿ’–๐Ÿ’– It's amazing what a change of scenery can do, think it did us all good to get out and potter about. As a treat to myself, I found these gorgeous limited edition Puma kicks, at a bargain price....so, you know....had to get them ๐Ÿ˜‡๐Ÿ˜. #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedsickchick #girlswithoutguts #pma
I get to spend the day with my besties today and participate in a sport.....more commonly known, as 'shopping'. ๐Ÿ›๐Ÿ‘œ๐Ÿ‘—๐Ÿงฅ๐Ÿ‘š๐Ÿ‘ข๐Ÿ‘  This could get messy. ๐Ÿ’ฐ๐Ÿ’ฐ๐Ÿ’ฐ๐Ÿ’ฐ OOTD consists of an old favourite, #levi jacket๐Ÿ’™ Front tie, fine knit jumper from #newlook ๐Ÿ’š waxed, leather look jeans #newlooktall ๐Ÿงก and silver block heel boots #jasperconran โ—โ—โ—โ—โ—โ—โ— HAVE A BEAUTIFUL DAY, ALL #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedsickchick #girlswithoutguts #pma
OOTD Oh my goodness, I'm all for comfort but it was so nice to get out of decorating overalls for day. Might give myself this weekend to rest, then get cracking with the next project ๐Ÿ™„๐Ÿค”๐Ÿ˜’ Happy weekend everyone. Be good and if you can't be good, be careful ๐Ÿ˜‰๐Ÿ˜š #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
So this has been my main outfit for the past two weeks and the reason I've been quiet. Let me tell you, replastering and decorating a bathroom when you have calcified wrists, is NOT easy. But then, what kind of crazy idiot decides to decorate with calcified joints? That'll be me then ๐Ÿคช #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
๐Ÿค”DREAMS๐Ÿค” I noticed in my late teens, when opiates and I were first acquainted, that my dreams were becoming rather vivid. Fast forward a few years and a shed more opiates, my dreams are on a whole other level. They aren't just mental, they're totally bat shit crazy. I'm so grateful no one can see my dreams; I'm pretty sure padded cell would be my permanent home if they could ๐Ÿ˜œ๐Ÿคฏ๐Ÿคช โ— โ— #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
They say that everything happens for a reason. That there's a lesson to be learnt from everything that occurs in our lives. That from every negative, a positive can be find. Living with chronic illnesses has taught me some really positive and valuable life lessons and for that, I truly am grateful. I've had to learn, that sometimes, I may not be able to gain all the answers. Before the IBD and bone disorder really grabbed hold, I was highly strung; I wanted to know all the facts about everything or I couldn't settle mentally. I have two unique diseases and learning to live with this, was hugely based around the fact that I would never know all the facts. It's a learning process for everyone concerned. It's taught me patience and to slow down. This may amuse people who know me and anyone who has witnessed me driving; but it's true. It's also taught me not to sweat the small stuff. I've stopped worrying about things I have no control over. I don't let insignificant people bother or upset me. I am truly grateful for the little things. But most importantly, it's taught me what matters; what's really important. โ˜†โ˜†โ˜†โ˜† This is me and I am who I am because I'm ill and I like me; so again, for this, I'm grateful ๐Ÿ˜Š โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Nothing is as black and white as it appears. You only see the catalyst. You don't see the battles within. You don't see the pain, the smiles hide. You don't see the sadness behind the laughter. You don't see the tears that are cried in private. You don't see the destruction within the soul. You don't see the disease that's here to stay. โญโญโญโญ You also won't see that one person's cruel comment or uneducated opinion, could be enough to push someone too far. We all have a private battle but some are fighting private torture. โญโญโญโญ BE KIND OR BE QUIET. โญโญโญโญ #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
Caught in a smog that's deep inside, That broke me down until I cried. The pain beats within just like a heart, For a moment could we just part. You're chipping away at my inner peace, Just once I wish for a bit of relief. You dug in deep and spread out wide, But you'll never take away my pride. I live for the days the heaviness lifts, I briefly get back the person I've missed. This is my normal, my every day life, My broken body cuts like a knife. I dig so deep to remain strong, Each day is hard and feels so long. I won't give up, I'll soldier through, The daily battle that's me and you. โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
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