It’s here!!!! Tonight we will be holding our virtual pyjama party, #pjs4pendsey
to raise funds and awareness of the situation for children with Type 1 diabetes in the developing world. We hope you’re all gearing up, like the Amazing Amy and staff at the The Kings Head in New Buckingham, who will be working in their PJs tonight and are even invited everyone in the pub to join them!
What you need to do is simple- get your pjs on, text donate if you are feeling generous, and snap a selfie holding the text below. Change your profile photo, explain why you are supporting us, and spread on any groups, Twitter, Instagram etc. using the tags #pj4pendsey #insulin4all
Please encourage friends and family to take part. Teddies and pets welcome.
If you’d like us to share on our page, please Facebook messenger or email your photo to us. We would love as many photos as possible as we are going to make a compilation video of these.
Now it’s down to you guys to get your best PJs on, take a selfie, and come together to think of those who still don’t have access to affordable insulin. Looking forward to seeing you all- the team will be online from 5 😀
#insulin4all #t1d #t1dlookslikeme #diabetes #diabetes1 #gbdoc
Baby, pose for a picture 📷 ....OK mommy say no more👶🏻💛
(You can’t tell but I did my makeup blue for #Diabetes
Only had diabetes one month, felt like a pro: fairly steady, no major concerns.
Yesterday I had a bit of a cold starting...it feels like a blur now. Scary lows, wildly swinging highs, a little dip in the night and now my legs feel leaden and my chest feels like the cat is stood on it (he's not) .
Well that's taught me not to be arrogant with my type 1.
#type1warrior #type1 #t1dlookslikeme
Day 16: Your Motivation
Behind these three pictures is a sad girl, but I was happy in my body. I was healthy.
I was driven by hate and anger but at the same time was at a peak of healthiness and this was the leanest I was in my life.
I want to LOOK like this girl again, but with a totally different mindset and attitude. One of happy and driven by the fact that I want to live long and prosper (see what I did there) to be with my husband, family and friends.
I am working towards it. One day at a time. I got this. #diabetic #type1diabetic #t1dlookslikeme #t1d #happydiabeticchallenge #healthgoals
Today is a bit of a downer - The Diabetic Cost of Living... ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀ Pictured are all the diabetes supplies I have on stockpile right now. 🤗
I’ll admit it, I am probably in the upper echelon of Type 1 Diabetics in this world. I chose a year in which I have a cushy government job to get diabetes. Therefore, the cost of living for THIS diabetic as long as I can hold out in this job is nearly free (unless you count random things like a sharps container, alcohol pads, skintac for my CGM, low carb snacks and snacks for lows, bags to carry all my gear...) 💉🍬 I do take for granted how fortunate I am!! ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
BUT, I’ve gathered data from others and apparently: ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀
*50% of the 100 million people in this world who need insulin cannot access or afford it. Insulin is a necessity and should be free for everyone like it is for me 😞 #t1international
*In the U.S., the average cost of living can vary a ton depending on insurance or lack of for a Type 1 diabetic but I’ve seen $1000/month as an estimate. In some places that could be the same as your monthly mortgage or rent. FOR YOUR WHOLE LIFE. 😱
Somethings gotta change. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀ #girlmeetsinsulin #diabetesawarenessmonth #t1dlookslikeme #freestylelibre #imdiabetic #diabeticcostofliving #type1diabetes #happydiabeticchallenge
Day 16: an invisible condition
For today I thought I’d share a collection of photos of me and my invisible condition, doing things that people might think would be too challenging with Type 1 Diabetes: 1 speedboating in Cuba on my honeymoon; 2 completing the Parachute regiment 10 mile challenge at Catterick Garrison; 3 completing the Rat Race London; 4 hiking in the Peak District with my 8 week old daughter; 5 guide running the Scunthorpe Half Marathon for a running friend who is blind; 6 winning first place female in a duathlon; 7 graduating my PGCE with a special award for my work with children with special educational needs; 8 marrying my husband and best friend; 9 hiking in the French Alps with my family.
Although diabetes is always with me, it is often invisible and it will NEVER be an obstacle to fulfilling any of my dreams.
Also: I change my hair a lot 🤦🏻♀️ #type1family #diabetesawarenessmonth #bluenovember #t1dlookslikeme @t1d.leonor #type1challenge
Diabetes awareness day 15. Let's talk about how cool the body is. It can heal from some pretty major events and essentially regenerate. Here is my story about scar tissue. #T1D #t1dlookslikeme #omnipod #everydayreality
Sorry I've been M.I.A. for a few days. I've been totally under the weather and planning a surprise party for my daughters birthday plus just life, right? Anyway weeks like this remind me I'm human although I like to believe I'm a close relative of Wonder Woman lol.
Seriously learning how to listen and respond to my body allows for a much quicker recovery time. Duh right? Well not so much, as many of you know EVERYTHING effects your blood sugar. Being sick I really have to pay attention to all the fluctuations in my sugar levels and what was going on at the time to stay ahead of a handful of diabetes related issues that can occur.
Ok well warriors it's off to bed for me another busy day awaits.
#DIABETESWARRIOR #Diabadass #T1DLOOKSLIKEME #sugafreedee @Igotthis
Love these tiny humans with all my heart and more ❤
day 15 is all about costs. There’s the literal 💲cost💲but i also want to address the peace of mind #diabetes
takes from us sometimes every hour of every day. Then there’s the cost with every hospitalization, every bottle of #insulin
, the medicines for the complications, the hit my credit score takes every year due to unpaid medical debt. The CAR I could have bought when you add up all my hospital bills over the last ten years. The bills I have that those without diabetes don’t even have to address. According to the #AmericanDiabetesAssociation #PWD
(people w/ diabetes) pay over 30 billion dollars ANNUALLY just to stay alive. These are costs I/my parents have been paying since I was 9 years old. Some parents start paying for insulin when their kids are still in diapers. If this isn’t a cost you currently incur, perhaps think about a donation to @insulin4lifeglobal
, a non profit that gets insulin to those in need all over the world. The cost of this disease is real; it’s tangible && it hurts. #T1DlooksLikeThis
Day 15: SUPPORT
Greater Than One Challenge for National Diabetes Awareness Month
I have sooooo much to be thankful for in our journey with Type 1 Diabetes in relation to support and I honestly don’t know what I’d do without it!
To my Husband, THANK YOU! You’ve been my support and partner in this since day 1.
To all my mama’s of Type 1 kiddos, Thank you for your friendship, advice and kind hearts. I will support all of you with everything I’ve got and know you do the same.
My parents!! I wish that everyone had parents like mine. They are fully trained in Type 1 care, keep my son overnight and love Hayden to the moon and back along with my other children. If you ever want to know where I get my big heart from, you can thank them. They’ve always put family first. When I’m exhausted they help me. They watch the kids so steven and I can go away for weekends or just do date nights. I love them so much and hope I’m as loving as a parent as they were to me. DIABUDDIES: what a great support for my son. He needs them and I need him to have them. 💙💙 it’s made a big difference for Hayden.
And to the whole Type 1 community!!! Thank you for your support in our journey as a Type 1 family, as a company, as advocates. Your support keeps me even more fired up about raising awareness for Type 1 and gives me strength in knowing that my efforts are not in vain.
Support is crucial for all walks of life but when you throw in a chronic medical condition, support becomes even more important. We’ve all got to support each other 💙💙💙💙💙💙 #imgreaterthan #greaterthan #warrior #typeone #typeonediabetes #diabetes #type1warrior #JDRF #diabadass #ndam #diabeteshat #typeonemom #t1d #t1dlookslikeme #nevergiveup #findacure #t1 #t1diabetesawareness #outdoors #type1strong #typeonediabetic #type1warrior #carbcounter #bolus #strength #omnipod #insulin #dexcom #instadiabetes #awareness
ᴡʜᴇʀᴇ ᴛʜᴇ sᴋʏ
ᴛᴏᴜᴄʜᴇs ᴛʜᴇ sᴇᴀ 🌅
T1D goal... stay healthy and lean; it’s worth the effort.
Blood sugars weren’t the only thing droppin low tonight 🔥 💯 🛹 ❤️ 💉 #sk8ordie
Had a great time tonight celebrating the 2018 @jdrf_ride
season with our La Crosse area Honey Badgers! There were lots of laughs and stories shared, but also plenty of excitement for the upcoming 2019 Ride season🚴♀️🚴♂️
Diabetic Cost of Living - It is humbling to look in the butter compartment of my fridge and see insulin. It's necessary. And I'm grateful.
The out of pocket cost is upwards of $380 per bottle without insurance, and making sure our family has insurance coverage is our biggest worry in regular rotation. When job situations look dicey, my first concern is insurance. When there’s talk of storms that can potentially knock out power, my first concern is keeping my insulin safe. When I’m traveling, I bring backups of my backups, knowing I couldn’t survive more than a few days without insulin. The time I broke a bottle on my bathroom floor brought me to panic because that tiny bottle is required to ensure my existence.
The cost of living as a person with diabetes? It’s more than just what’s in your wallet. It’s about employment, insurance, access, circumstance, support ... an ineffective pancreas is one thing, but making sure you survive past diagnosis depends on so many factors; thinking about it makes me dizzy. But just like with diabetes itself, complacency is not an option. People die without access to insulin ... people right next door to YOU. We're all at risk. We're all vulnerable. It’s too real.
The cost keeps me up at night. The cost makes me call my congresspeople. The cost makes me advocate and share my story.
The price of complacency could be paid with our lives.
#happydiabeticchallenge #t1Dlookslikeme #T1D #diabetes #insulin
Day 15 of the #happydiabeticchallenge
and this one was a doozy to figure out so my mathematician husband had to help me out haha. Pictured is a list we created that gives up a sum of how much I pay in a year for diabetes supplies. Keep in mind that this doesn’t account for blood work up, glucagon kits, low blood sugar supplies, gas to get to and from doctors appointments or to pick up prescriptions, ER visits, or the time and energy I spend daily trying to navigate this disease. Another thing to keep in mind that this is the cost of my supplies AFTER my $1,500 deductible has been met which was the beginning of April this year and we are blessed to have a pretty good insurance plan but we also pay a lot for that as well. The cost of living with diabetes is clearly financially burdensome on top of all of the other emotional, mental and physical burdens that I’ve been talking about all month long. I really don’t have much else to say on this topic, I think that this list really speaks for itself.
#diabetesawarenessmonth #t1dlookslikeme #beyondtype1 #thisiswhatdiabeteslookslike #poweredbyinsulin #costofliving
Day 15: Diabetic Cost of Iiving
I could talk about the monetary cost of diabetes supplies but I'd rather talk about the time cost and emotional cost of diabetes.
I often don't even start eating until my family is halfway through their meal. I have to check my sugar, count carbs, and take insulin before I eat anything. I often have to stop working on a task in order to take care of myself or save my own life with a juice box. I have to plan ahead so I'll always have enough low supplies and back up pump sets on hand depending on what I'm doing.
Constantly taking care of myself and trying to keep my blood sugar balanced takes an emotional toll on my life. It mentally drains me and sometimes I have trouble thinking. Diabetes affects my moods much more often than people think. .
#nationaldiabetesawarenessmonth #leavenoonesbehind #diabetesawarenessmonth #t1d #t1dlookslikeme #type1diabetes
World Diabetes Day! Although I’m a day late, November is Diabetes awareness month. This is my diabetic. I’ve taken on a whole new role this last year by changing James’s sensor sites. It’s no easy task having to poke your hubby with needles, but neither is living day to day with this disease. I could never do what he has to endure. Words can’t express my gratitude for insurance, modern medicine, and god for giving me this guy. The numbers will only continue to climb. #weneedacure #t1d #t1dlookslikeme
Day 15: Supplies in Drawer/Closet. How fitting: I have a set of drawers in my closet that is dedicated solely to diabetes supplies. It’s pretty huge (Gary had originally gotten it for me as a temporary dresser of sorts when we first met because I kept doing laundry at his place as his washer and dryer didn’t require quarters) and has made me have to keep my shoes elsewhere, but it does keep me very organized. Blood sugar after supper is pretty good, considering we had roasted chicken legs and pasta with edamame pods, but I will need a little bit of sugar before bed. #t1dlookslikeme #type1diabetes #t1dawareness #diabetessupplies
day 15 - have you ever wondered what the top 10 most expensive liquids in the world are?
Scorpion venom, king cobra venom, LAD, horseshoe crab blood, Chanel no. 5, INSULIN.....
I’ll stop there. Because I don’t think you care too much that it’s more expensive than mercury, printer ink, GHA, or human blood..😉
The cost of a vial of insulin is over $300. What really grinds my gears, is that in 2002 it was ehhh.... $40.
What’s up with that? The formula hasn’t changed. They been making it the SAME way for 30+ years. Methods of synthesizing insulin have become BETTER. But prices have continued to go up.
If I were to use 3 vials of insulin a month, whether that’s rapid-acting or long-acting (or both?), that’s $900 a month. $10800 a year! And that’s just the insulin. Not all the other goodies like test strips, lancets, syringes, insulin pump or CGM supplies... 💸
Insulin can be a debilitating cost for those who are low-income or don’t have insurance. People die because they ration they’re insulin to cut costs, leaving their blood sugars at dangerously high levels. People go bankrupt because the cost of supplies is more than their income, and they still need housing, food, and other essentials.
I’m lucky to have insurance through my employer and access to healthcare. 50% of people in the world don’t have that. But I still met my annual deductible of $1500 in June, and have spent at least another $500 on supplies since to cover co-pays and co-insurance after hitting my deductible. So really, even with insurance, this shit ain’t cheap.
(Also say hey to Geoffrey 🦒 👋🏼)
#t1dlookslikeme #diabetesawarenessmonth #diabetesawareness #diabetes #diabetic #diabadass #diabeticproblems #type1diabetes #type1 #t1d #diabetessucks #diabeteslife #t1dlife #beyondtype1 #happydiabeticchallenge #greaterthan
Day 15: Diabetic Cost of Living
I have health insurance, therefor I am one of the lucky ones. I am able to afford my amazing medical supplies however, there are so many people out there who can’t say the same. Here are some prices to think about. With out insurance...
50 test strips: $52
Box of insulin pens: $540
1 vial of insulin: $95
10 infusion sets: $140
5 sensors: $553
Guardian Sensor: $1,000-1,400
670g Pump: $8,000
I am an advocate for universal health coverage. Insulin is not an option, it is a necessity that keeps me alive everyday. It makes me sick to think that people struggle to afford insulin.
#happydiabeticchallenge #type1diabetes #t1d #t1dlookslikeme #insulin
The one thing about dosing insulin, and going low, is that type one warriors can sometimes have a ferocious appetite! So ferocious you better move out of the way and get food into that belly as soon as possible!
Harrison has had a few "hangry" moments where he is so hungry that waiting for his levels to come down acceptably enough before eating is not even an option! It's usually on those mornings when he is woken up long before the sparrows... he's been playing and getting up to mischief that by 6am his little body is wanting to EAT NOW! At this point you better feed the beast or prepare to be eaten yourself. Those are the days that we roll with the punches, let him eat his fill and if we need to correct later with more insulin we make a plan!
Please feel free to ask us any questions - we love to teach people about what we are going through. It only equips you better if ever you have to go through the same with yourself, or one of your children!
• Day 15: Diabetic Cost of Living
People with Diabetes must inject insulin to survive. Y’all the diabetes supplies are expensive. But people living with diabetes also pay for their disease in terms of various needle points, uncomfortable injections sites, nights without sleep, days with blood sugars that are continuously high and low. Whatever the cost, we persist. —-
Omigosh, swimming lessons have started again and it means my Tuesdays & Thursdays have gotten a heck of a lot more crazy this month!🤯
Because of their #type1diabetes
, and the unpredictability of blood sugars during activities like swimming, I have to be present for their lessons.
While it's a scheduling inconvenience, it is a blessing in disguise as I've now been able to watch them progress throughout each grade! I just love seeing them look for me and send me a little wave to make sure I'm watching😉
The thing is, I know exactly how blessed I am to have a career that allows me the freedom + flexibility to be able to be there for my children in times like these.🙌
I still remember what it felt like to beg for time off work to be there for events like this. I also remember the times when I've had to tell my kids they couldn't do certain activities because, without Kyle or myself there, it wasn't safe for them to do.
As ANY kind of parent, it's so amazing to be able to be there for all of the little moments in our children's lives. But, even MORE so, as the parent of a child with additional needs, having the ability to still earn an income WHILE being able to be available for them is beyond words.💙
I feel so much gratitude, every single day, that I said yes to an opportunity I was SO skeptical and hesitant of; that I took that leap of faith and challenged myself to rise to the occasion; that I was able to find a way to make a career WHILE making a life.💕
because apparently I missed yesterday's post. Yesterday was Diabetes Day and I didn't get to do much for it. I made pies instead and had high blood sugar from taste testing batter.
As for day #15
for my support and cost of living. My support is a combo pack. Certain things with certain people and it works. James has definitely helped with my CGM and just about everything he could. .
My best friend and her kids are always there and she always considers what I have to do if she's making us food. She actually had gestational with her last pregnancy and got a little window into my finger pin cushion life. .
My uncle was the first diabetic I ever knew and albeit hasn't *always* been the best example I'm extremely grateful to have someone in the family understand and not nag. .
And finally, mi madre. My mama is there no matter what, making low carb treats and lunches and working out with me, and if I EVER need help paying for something she's right there. This goes hand in hand with the cost of living, too. Sometimes diabetes can get a bit expensive (duh). I'm so happy that @freestylelibre.me
came out because I would not be able to afford a CGM without them. Dexcom is so expensive if your insurance doesn't cover it and libre made it affordable for me to pay for without needing help. I've had a few different insurances since being diabetic and I've had to pay a solid 50% of my paycheck for insulin a month. That was the crappiest insurance I've ever had, but I can't imagine trying to survive without insurance. And it's made me a huge advocate for affordable health insurance for everyone, or at least affordable health care and medicine. .
#typeone #typenone #diabeticforlife #diabetic #diabuddy #diabetes #t1d #t1dlookslikeme #november #blue #highs #lows #insulin #insurance #freestyle #libre #bloodsugar #worlddiabetesday @im_greaterthan
Day 15 of the #projectbluenovember
challenge is all about what’s in your #supplisedrawer
? I have a backup #glucosemeter
, and #goldbond
diabetes lotion. This is THOUSANDS of dollars worth of supplise, and it doesn’t include the things I keep in my bag that I take with me everyday! #diabetesawareness #diabetesawarenessmonth #diabetes #type1diabetes #t1d #t1dlookslikeme #typeawesome #divabetic #diabadass
| Day 8: Favorite Diabetes Accessory •
I’m not sure you’d call it an accessory but I’m gonna go with it.. Nope, not the sticky patch, the CGM is hands-down my favorite diabetes doohickey!
Case in point: a couple days ago, while we had company I was busy fixing some lunch for them & my husband who was coming home for lunch too.
I hadn’t had any symptoms, no shakiness, no fatigue (beyond the norm!), no difficulty concentrating or conversing... NOTHING. Suddenly my CGM began to alert me to a low blood glucose... just under 60 (I had my low alert set to 60 at the time) What was odd was that it didn’t alert me to a rapid fall, so it must have been very slowly trending down until it dropped below my alert level. I grabbed a thin stack of Pringles 1) since they were close and 2) I thought, Okay, gonna eat soon, don’t treat too much. Next time it alerted, it combined with a rapid-fall alert. It was55 and double-arrows down. In a second, one of the guys visiting us came through the door, phone in hand (with hubby on other end) asking how I was, was I eating, did I know I was going low... it continued to drop as I treated continually while also completing lunch prep. I got more aggressive because it was still falling fast. It finally changed course after it hit 42 and I had not had the first symptom other than a flash of panic & I’m not sure that wasn’t more due to becoming aware how low it was/fast it was falling.
Without my CGM, I’d have not known until it was too late. This is why I detest that it’s a huge financial burden to buy these things. A years’ worth of CGM is around $3000 and that’s after insurance. I have to come up with half of that in one lump which is impossible for us. It’s by the grace of God, family loans or payment plans that I keep these & the anxiety is astronomical when I am close to running out. This should not be. •