#spoonie

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Feeling it today...ugh😒😴 Don't know how I used to take these steroids for months on end and deal with it, guess my age and the long term effects of this disease are catching up..after a month on oral steroids I'm loosing it, literally😜🤯 #spoonie #prednisoneproblems #chronicillness #crohns #ibd #autoimmune #nevergiveup #illness #invisibleillnesswarrior
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It’s a remicade day! Talked to Dr. K and everything is looking great! I’m so blessed to be where I am today. 😷💉🏥 • • • • • #hospital #remicade #surgery #iv #needle #crohns #crohnsdisease #ibd #spoonie #ibdwarrior #meditation
CONNECT. More leadership lessons from @markpollockexplorer at #ShapeEurope2018 : - Be a competitor, not a spectator. - Be a collaborator, not a soloist. #diversability . . [image description: 3 young women (including our founder Tiffany) are standing around Mark, who is a wheelchair user, posing for a photo.]
I cried last night because my clothes hurt and that felt ridiculous. I cried because there is no where I can go that can help me. I cried knowing that I am a young woman and before I got any assistance I would have to prove that I'm worthy of it; that my pain is real, that I am a Good Citizen, that I am rational and calm despite this irrational pain. Between the two kinds of suffering: bodily and institutional, I'd rather stay home. ID: The darkened background is a picture of my hands. Every single joint in them aches. White text over the centre of the picture reads: Facing widespread pain as a young adult. #chronicillness #invisibleillness #contestedillness #chronicfatigue #sleepdisorder #pcos #criticalanalysis #undiagnosed #invisibledisability #disability #disabilitystudies #socialwork #aop #change #changemakers #resistance #revolution #feminism #sociology #biopolitics #sick #sickgirlsclub #illness #spoonie #spoonielife #spoonieblogger #asianspoonie #WalangHiya
I call this one Face Full of Fluff, or Fatigue Face No1+1/3. Do i look more like Marx or Santa? #fluffy #pillow #fluffypillow #spoonie #fibromyalgia #santa #marx #fatigue #selfie #selfportrait #portrait #bedroomeyes #art #invisibledisability #interiordesigner #interiores #chronic
"Psychoanalysts' concern with ego psychology is sometimes attributed to its need to explain psychoses, which are accompanied by extreme regressions to earlier ego states." - Paul Roazen ** <-- The reason I go to a therapist. ** 🥄💜💙 #mom #wife #spoonie #chronicillness #chronicpain #spoonie #glbyAlly #lgbtAlly #NavyVet #Veteran #WomanVet #hypothyroidism #fibromyalgia #trigeminalneuralgia #ibs #gastroparesis #reactivearthritis #depression #anxiety #bipolar #ptsd #icare #endthestigma
#iweigh This is what I weigh but not in KG Is a campaign to show that we are all more than a number on the scale. We see pictures of what we “should” look like or what is classed as pretty /attractive however it can lead to insecurities. If you are happy then you are perfect. I certainly don’t fit the conventional ideal. I have big hips and big thighs. A supra pubic catheter, scars, tattoos, surgery on my bowels . I eat healthily and look after myself as best as I can with my box of medications to help and that’s all I care about. @i_weigh #iweigh #healthjourney #stronggirls #fitfam #spoonie #chronicallyill #healthandwellness #bodypositive #bodypositivity #suprapubiccatheter #catheterised #cystostomy #scars #boweldisease #bladderandbowel
Day 20 of the #SpoonShortageBookClub Photo Challenge- What would you do with unlimited spoons for a day? I would travel. A road trip round the highlands. I love exploring and I love driving, but I just don’t have it in me to drive long distances/for long periods of time. Need to get myself a chauffeur! 😂 . . . . . #travel #explore #landscape #scotland #bookclub #spoonie #spoonieproblems #spoonieswhoread #edsawareness #ehlersdanlossyndrome
⭐️NEW RECIPE POST!!!⭐️ . . Introducing my Quick-N-Easy Garlicky Dill Salmon & Veggie Sheet Pan Meal 😋 . . Sheet pan meals seem to be all the rage right now, and rightly so! They're easy, quick, use minimum kitchen tools/gadgets, and the clean up is a synch! . . I found some really fun veggies at my local @naturalgrocers to make this meal. Starburst squash, celeriac root, purple asparagus, and red beets. It made for a delicious and very nutrient dense dinner/lunch! But the real star of this dish is the salmon. If you haven't tried the brand @orcabayseafoods for your wild caught seafood needs, I cannot recommend them more! The creamy Garlicky Dill Sauce is AMAZING on the salmon and if you have extras it’s awesome on the veggies as well! . . I hope you enjoy this Quick-N-Easy Garlicky Dill Salmon Sheet Pan Meal! . . This recipe is Autoimmune Protocol friendly, Paleo, Primal, gluten free, Whole30, Can be Keto friendly, grain free, & Mito Food Plan friendly! . . . Healing, health, & happiness, 💜Robyn ______________________________________ #nutrition #nutritionist #food #crossfit #fitness #spoonie #health #healing #pregnant #wellness #rgrnutrition #pregnancy #aippaleo #recipe #naturalpregnancy #nevada #autoimmunewarrior #autoimmunedisease #aiprecipes #autoimmunprotocol #glutenfree #keto #paleo #primal #vegas #chronicillness #lasvegas #whole30 #healthyrecipe #healthyeating
Living a simple life helps you focus on the things that are really important. In modern day society there is so much distraction and constant pressure to have everything and be everything. Sometimes it’s good to take a step back and look at what’s really important. #simplelife #simpleliving #simplicity #minimalism #notjustsurviving
I've been close to tears several times today. I suffered thru work cause I cannot afford more time off at the hands of my condition. 8hrs of being so bloated I can hardly breathe. It actually hurts to breathe. 8hrs of crippling cramps that brought me to my knees. 8hrs of feeling like someone is boring thru my uterus, bowel and intestines. And at the end I get some more muscle relaxant and told to ride it out. Only 4 more days of agony till the weekend 😷🤒😭 . . . #endometriosis #chronicpain #endometriosisawareness #invisibleillness #adhesions #fuckmondays #homacidaluterus #chronicillness #notokay #endosucks #sickgirl #sickgirlsclub #fuckendo #spoonie #butyoudontlooksick
Throwback. I go back to work tomorrow so new beats will be resuming then 😁. An episode of Real Talk! If this isn't your cup of tea, then buh-bye and I'll see you on the next one. Moving along.. Welp I am finally done with all 3 of my doctors appts for the day. We started the day with a follow up at my neurologist. It ended in tears. Basically, based on the reaction of lack thereof of my whole head to the occipital nerve blocks, they really didn't do jack. I guess I was supposed to feel more relief. Which I guess is fine because I wasn't crazy about going down the path of going to pain management and getting my nerves ablated at this time anyway. Or having more needles shoved into my skull. But to hear another doctor say that there isn't much left he can do for me (but I will say he's very nice and said he will still see me regardless and do anything he can)..well it never stops being hard to hear. So I did shed a few tears after he left the room. To hear that I'm so broken..well it's just been weighing so hard on me. I follow up in 3 mths, in which time I will hopefully have gotten the Aimovig to try so there is still that. Next appt was chiropractor, nothing new there, lol. Lastly I went back to my cardiologist. I was unable to tolerate either beta blocker we tried to get my heart rate lower. We are going to try one more thing, Verapamil, a calcium channel blocker. I tried it once eons ago for migraine prevention, but I'll give it one more go. He says he wishes my heart rate would get lower. Don't have to see him until May so yay? I am so done being the Queen on the Island of Misfit Toys. I am going thru alot right now with med changes and life changes..so please bear with me. I have cried more the last week then in the last year or more. Back to work and a daily routine I go from a wasted, sickly vacation. Lots of love. Xoxo
Why try to fit in when there is a chance to be YOU?!? 🦓🦄 #iamawesome #beunique
Recently I looked in the mirror, and for the first time in my life I said "I look beautiful." I was smiling ear-to-ear. For me it was an absolute revelation! My family, friends, & husband have been telling me this for years, but I never accepted the compliment. I would nitpick every little detail apart about myself. Oh I was so mean too... I still have to make a conscious choice to give myself positive affirmations. My advice is to give yourself the gift of love. You are amazing, strong, and beautiful!! Love you all!#beautiful #beauty #loveyourself #family #strength #love #inspirational #peaceful #celebrate #depression #arthritis #arthritissucks #spoonie #psoriasis #psoriaticarthritissucks #cancer #healthandwellness #healthyliving #moms #nurselife
When you weigh close to 300 pounds you don’t really like full body photos 🤷🏻‍♀️ things pop up on my Facebook memories daily and I’ve noticed a trend, from 2014-2016 I have very few full body photos. • Summer 2015☀️, what a great summer we had. I mostly spent the summer covering up my feelings about my weight with vodka. I was the heaviest I’d ever been and I was miserable. Just a few months after this picture was taken I got my act together and stopped trying to hide the fact that I was living an unhealthy lifestyle. • Yesterday at the gym, amazing how things can change if you trust the process and you work hard! No more feeling terrible about myself and no more covering up not being happy with myself. It’s not easy but it’s absolutely worth it!! What are you waiting for? 🌈 . .. ... #iam1stphorm #duespaid #legionofboom #spoonie #thyroidwarrior #ketostrong
#dailydrawing 1) my plants being me joy 2)back on fire today with added electrical shocks 3)miss my dog #fibromyalgia #spoonielife #spoonie #doodle #dailydoodles
My boyfriend started calling me 'Tine plasticine' as a silly nickname since my joints are very stretchy and bendable like plasticine, plasticine + tine = plastitine, get it? 😎 •• #ehlersdanlossyndrome #eds #wheelchair #chronicillness #chronicpain #hypermobility #zebra #fighter #spoonie #edswarrior
NEWS FLASH ⚡ YOU DON'T OWE THE WORLD SHIT. . Let me just take this moment to remind everyone that social media is, for the majority, a highlight reel. We're scared to post the real shit because it's not necessarily 'like' worthy and it's considered boring, depressing, or embarrassing. Well, fuck that. You don't owe the world shit and you should be celebrated for who you are. Fat, thin, happy, depressed, healthy, sick, naked, posing, unfiltered, outspoken beautiful realness. . Today is a perfect example of how my conditions vary day to day and are totally unpredictable. Last night I was awake until 3am and today the pain in my hips has had me in tears. Along with a series of thunderclap headaches I am exhausted, dizzy, nauseas and fed up to say the least. This is me most of the time, but I hide it. Scared of rejection if I'm not 'normal.' Someone tell me this is all in my head. I fucking dare you . My close loves know that this Anna ⬆️⬆️⬆️ is the one they see more than any other. Being around those people is when I feel most liberated. Thank you for loving me and sticking with me, even when I'm totally shit company and raw as fuck. . To anyone reading this quietly relating, you are not alone. Please always remember that in order to make a highlight reel, there has to be a behind the scenes and outtakes. Be kind, always. ☮️ . #spoonie #spooniesisterhood #me #mecfs #cfs #hypothyroidism #prolactinoma #chroniccommunity #chronicillnesses #chronicfatigue #butyoudontlooksick #butyoudontlookill #myalgicencephalomyelitis #depression #mentalhealthwarrior #warrior #followme #followforfollow
When I am sick or in pain, I am still worthy of love ❤️ • This is a mantra that I use often. Perfect health is not a prerequisite for love. There are people in this world who will love you exactly as you are in this moment. You don’t have to change a thing. It’s just a matter of finding the right people! • If you are not experiencing this in your life right now, I would like to invite you to join my online yoga community called @spoonieyogatribe. You can follow on Instagram for free and interact with other people who know what it’s like to live with daily health struggles. Knowing that we aren’t alone in our pain can feel like medicine for the soul. • If you’d like to go even deeper, you can sign up to try one week of the monthly yoga membership for free. See how you like it. With your membership, you get access to exclusive yoga and meditation classes, and there are more opportunities to connect with me and the other members in a more private setting. I have been so impressed by the compassion and kindness of everyone in this community, and I would love for you to join us. In this community, we value self-acceptance over self-improvement. So come exactly as you are. You are enough. You are worthy. You are wanted. You are loved 🙏🏼❤️ • You can find out more about Spoonie Yoga Tribe at the link in my bio @sleepysantosha 👆🏼See if its a good fit for you, and let me know if you have any questions.
I was invited by @lifeoflittlethings and @everyday.essentials.with.jamie to take part in a new social media campaign raising awareness for chronic health conditions, chronic pain and mental health.⁣ ⁣ The #makeupandasmile campaign is meant to put a face to those who have chronic health conditions, especially those that are invisible, and to raise awareness that just because an individual looks well on the outside, appears to be having a good day, doesn't mean that they are not struggling within their body and mind.⁣ ⁣ A photo like this one only captures a single moment in my day, and it does not show you the intense pain or anxiety that I was struggling with that day. People who deal with chronic health challenges often get very good at downplaying or hiding our symptoms. We hide them because we don't want to make you feel uncomfortable, to avoid overly personal or invasive conversations, and sometimes we hide them because it's our way of coping with especially bad days.⁣ ⁣ Make-up and a smile can go a long way to changing ones appearance but sometimes they can be very deceiving. So, before you tell your disabled or chronically ill friend that they "don't look sick" or say "it's nice to see you feeling better", STOP and instead just ask how they are doing and offer your support. Chances are, if you see them looking especially great, in a pic or in person, it's a mask and he or she may be having a really bad day. Remember, a camera can capture a lot, but the most important details cannot be seen.⁣ ⁣ I’m tagging @ladyoflyme and @jaimetalks to join the campaign with a post of their personal experiences 🙌💛
Managed to be up and about today for a little while. Bloody shattered now. Nanny (mum) had the kids. Love my Moos always makes me smile. The second I open my bedroom door and she's stood there ... Not for a hug but to ask if I've got any sweets 😂 a girl after my own heart 😍. She also told me I looked pretty .. which is a rare compliment from children 🧡💜 . #makingpotions #inthegarden #love #unconditionallove #loveher #ginger #gingerspice #peircings #peircedwomen #spoonie #curlysue #moos #neice #family #famalam #gappy
RECOVERING from the busy week i’ve had. Something i’ve learnt is that i HAVE to take time for myself. After the busy week i’ve had and the achievements i’ve made, i’m in bed recovering. i new this would happen and i’m accepting the consequences, because it was all worth it. My sick days consist of sleep, netflix, meds and food. my whole day revolves around those things. days like this suck!! but i’ve learnt i can’t fight my body, i accept that i’m going to feel like a burnt piece of celery for a few day but i WILL start to feel better again. Pain always ends. so the only photo you’re all getting is my crumpled bed sheet, enjoy😉😂 #chronicillness #spoonie
#everycrohnieneedsacat like me - Cleo the Crohn's AdvoCAT 😺 🐾
Fml!!!! Just had to carry all this in from the car on my own. My back is now agony. It's so expensive to get food delivered that i cannot afford it, a minimum spend of £25 for a delivery and then a charge on top because its below £40 spend!!! So muggins here has to not only do the food shop pushing a trolley with her stick in the basket but then has to pack and carry everything on her right side as she has to use a stick on the left side to walk!!! Yeah cos this is great for a disabled single woman riddled with arthritis!!! Thanks very much @sainsburys @asda @tescofood @mrmorrisson thanks for contributing to my pain and making my disability worse!! Customers come first my big (sore) behined!!!! #disabledlife #disabled #disability #spoonie #spoonielife #pain #arthritis
Every been asked "How are you?" and wanted to reply honestly? ・・・ Terrible, Thanks for Asking's @noraborealis and I talked about the *terrible* (and the not-so) parts of my medical history in the episode titled "YOLO?", now available everywhere you get your podcasts. ・・・ #Repost @ttfapodcast ・・・ Leilani [holding her] ❤️ *yep, this happened! Ask me about it! #medx #stanfordmedicine #everyoneincluded #stanfordhealthcare #hearttransplant #donatelife #transplantlife #hearttransplantsurvivor #recycleyourself #organdonation #organdonor #medx #outliveyourself #livelifegivelife #liveon #chronicillness #chroniclife #spoonie #hearttransplantrecipient #pacemaker #medtronic #beanorgandonor #hypertrophiccardiomyopathy ♻️❤️
I have been told that having a chronic illness in a relationship is like nurturing a child - sometimes you have blind spots and your partner is tending to it, and sometimes your partner has blind spots and you are tending to it. It’s unruly at times, but you can grow closer from working as a team, and patience + compassion are at the heart of how you both approach it 💞 • • • #autoimmune #chronicillness #interstitialcystitis #IC #pelvicfloordysfunction #pfd #chronicpain #thatchronic #yoga #cbd #wellness #health #bestlifeproject #bodypositive #selfpractice #selflove #balance #mintandhoney #spoonie #spoonielife 🎨@thespooniesisterhood
✋ STOP! ✋ lets talk eye liner real quick. Are you a black liner girl or a white liner girl? Do you know what each liner does to your eyes? Do you see how lopsided her face looks. 😱 One eye has white liner on the water line, which makes her eyes look brighter and wider. The other eye has black liner on the water line, which closes her eye and makes it appear smaller. It even makes that whole side of her face look lower because her eye appears smaller. If you have naturally small eyes 👀 or you just want to brighten your eyes and make yourself look awake, white liner is the way to go❗ I ditched my black liner on my water line almost a year ago. And never looked back 💕 I now feel my face looks "tired" when I forget to put my white liner on. Everyone needs white ⬜ liner in their makeup bag arsenal. 😘 #crueltyfreecosmetics #whiteliner #confidence #turntiredtobright #makeuplovers #makeupwithacause #augustkudos #sahm #wahm #ilovemyjob #coffeeaddict #ificandoitsocanyou #watchmeorjoinme #dailychronicmigraine #clusterheadaches #hemiplegicmigraine #chiarimalformation #ehlersdanlossyndrome #amputee #spoonie #makinglifebeautiful
Nurse hacks! . Tendonitis is flaring this week. Been walking around work like the floor is made of hot stones! I think that's probably what has been irritating the restless leg syndrome 🙄 Eye masks doubled up as ice packs 👍 . #symptoms #millionsmissing #me #cfs #chroniccommunity #chronicfatigue #tendonitis #hypothyroidism #vn #vnlife #vetnurse #pusheen #myalgicencephalomyelitis #chronicillnesses #invisible #spooniesupport #spoonie #spoonsforlife #followforfollow #followme
When my M.E. is bad, my meditation time goes up. I can spend hours in meditation (lying down or propped up in bed) Focusing on breathing, Visualising healing, Listening to inner guidance, Releasing, surrendering, resting, grounding, opening to self love and compassion, journaling if I can, day dreaming even. Calming my mental and emotional state means my physical body can rest and heal deeper and quicker. I get frustrated when I can’t be productive, but I know I have down times to stop me over doing it, to stop and listen, it teaches me what aspects of my life I need to focus on, what I need to release (workaholic), to just re connect to myself in all ways, I have a big month in September, this downtime I’m suffering now is almost the universe saying rest now so you can carry out everything you need to next month. Reconnect and ground yourself in stillness and you’ll be supported and prepared for the month ahead. #millionsmissing #myalgicencephalomyelitis #cfswarrior #spoonie #meditation #yogainbed #zenliving #spooniewarrior #breathe #brainfog
One of my favorite combos, haven’t made his in too long 🔥whipped up a loaded sweet potato topped with coconut cream, drizzled in @sunbutter with grain free granola and fresh organic blueberries on top 🤤 Happy Monday Friends 💃🏻
Doing the yoga thing now 🦋 it really has helped with the tightness of my muscles. And it does wonders for my anxiety to just spend 30mins a day focusing on only my breathing and movements. I use the @downdogapp and I love it! What do you use?💜 #MyastheniaGravis #yoga #spoonie #chronicloveclub
so, today I met this great doctor who really understood my concern about hormones in correlation to pelvic pain. most importantly he helped me make a ’acute plan’. a way to let my body relax and in some way heal a little due to this central sensitization overload. let’s call this a bodily system collapse! also, I’m going to get a muscle tension ’survey’ from one of the physiotherapists in a near future. now project relaxation is in progress! #centralsensitization #ehlersdanlossyndrome #chronicpain #myofascialpainsyndrome #spoonie #painplan
So I had been letting my fear of being a "pushy" Christian keep me from doing this. But then I finally told myself to stop letting this fear tell me what to do! I wanted to offer short virtual Bible studies! So if you would like to join please know you never have to do anything or comment but I'd love to start a new community work this. The info on the one I have picked out first. The link will be in the comments. Oh and it's all free! #faithbeforefear #virtualbiblestudy #faith #momofboys #spoonie
👍🏼🐕💋 PSA: This is how real service dogs act when they run into each other even when one is in training (notice the only thing that the in training puppy does is stare at Colt once in the second video while checking out and the handler was busy and didn’t notice to correct it) in training doesn’t mean the dog is not 100% under control it means it’s now on the last step of its training to make sure it’s comfortable doing everything it already knows in the store, a real service dog in training will never be out of control. So nice when you actually see another real team, instead of a fake. This was a in training guide dog puppy with his puppy raisers. It’s actually rare to see a real team most people nowadays think service dogs are common because everyone claims to have one or thinks it’s cool to say they have one but they are actually not, they are very expensive so not everyone can afford one, even if they have the experience to train their own it’s still extremely expensive to be done right, Colt is 100% owner trained by me because I have the experience from training military k9’s but he is still $50,000 and not everyone with a disability even qualifies for one either. It’s a relief when you do see a real team, I have only seen a handful in person without intentionally meeting up with them. If you see a dog who is clearly not a service dog, barking, out of control, pooping, please report them to the manager of the store, by law even a dog claimed as a service dog or in training is not allowed to act that way, you will make it safer for real teams that rely on their dogs for life saving services. Have a great day ya’ll thanks for all your support. #ServiceDog #TBI #TraumaticBrainInjury #Fighter #IChooseJoy #YouTuber #Vlogger #TheLordIsMyStrength #IChooseJesus #Seizures #Survivor #HeroDog #RawFedDog #Blessed #DoNotDistractServiceDogs #Hypoglycemic #ChronicOvercomer #ICanDoAllThingsThroughChrist #HeIsGreaterThanI #ServiceDogColt #RealLifeDory #JustKeepSwimming #TrickDog #InvisibleDisability #Spoonie #Syncope #StruckDownButNotDestroyed #TonicClonicSeizures #ChronicPain #FearIsALiar
Lmao mom literally just told me “I just don’t think you try.” Like okay fuck off all my energy is currently going to staying awake and some what coherent #spoonie #spoonielife #spoonieproblems #spooniecommunity #spooniewarrior #chronicpain #chronicillness #chronicpainwarrior #chronicillnessawareness #fibrowarrior #ibs #asthma #chronicmigraines #oralallergysyndrome #mentalhealth #mentalillness #anxiety #depression #chronicfatigue #cfs
#mondaymotivation to... SMILE MORE 😉🙃😊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 📷: @split.toned
I am a Contradiction. capable but unmotivated, love being different, hate being misunderstood, impulsive long term planner. strange mix of super private and open book. rational yet unrealistic. great at giving advice, bad at following it. arrogant, but painfully aware of my flaws sure of myself, yet unassuming introverted extrovert, rigorous yet care-free, perpetual loner with tons of friends. energetic but lazy, sensitive, yet cold hearted gregarious yet studious, intelligent but spacey, personal, yet detached. unhealthy, yet understanding therapist, competitive mediator. The optimist who just wants to see the world burn. Where do I fit in? -@cholechapman . . #spoonie #authenticity #rain #sunshower #travel #travelinspiration #roadtrip #poetry #poems #vulnerability #upstatenewyork #naturephotography #naturelovers #trees #growth #spirituality #lifestylephotography #selfcare #selfdevelopment #smile #unapologetic #healing #energy #wellnessjourney #realshit #carefreeblackgirl #healthylifestyle #healthcoach #holistic #holistichealing
• Just a before & After • This is the other side of my kitchen first door cloak room second is where I store my cleaning & washing stuff I’ll de a video on my story one day. This was a few weeks ago me & my partner tag teamed the painting .. well I didn’t do much, now that it’s painted and it’s looking more nicer it’s quit motivating. . .So basically my pains have been coming on and off and is very manageable at the min, evenings are much worser 😥 but still waiting on my actual flare up is very nerve wrenching! .On a brighter note I absolutely love cleaning it’s such a good distraction mentally. I see such a difference in a day we’re I do nothing to the days I clean I’m 100% more positive about life, It probably sounds a bit silly to some people but it really is my escape 😊. I hate them Days where the pain is so debilitating it makes me seem like a failure but today I’m winning 😄 #endomum #endometriosis #endometriosiswarrior #mentalhealth #cleaning #cleanhome #cleaninghouse #spoontheory #spoonie
❤️ SALE!!!! ❤️ I am having a giant sale on all my art! 😍 I need help financing my kitchen renovation 😂 So every purchase is much appreciated!!! EVERYTHING is half of!!! And if you buy three or more I will send along a gift!!! Get all your gifts for the year 😉 You can see everything available in my highlights along with prices. Just pm me with your orders! 😘 • • #interiordesign #interior_design #inredning #inredningsinspo #inredningsinspiration #painting #supporthandmade #supportsmallbusiness #spoonie #artforsale #nordicdesign #scandihome #scandistyle #scandinaviandesign #thelittlethings #theartofslowliving #aquietstyle #flashesofdelight #seekthesimplicity #nothingisordinary #livethelittlethings #verilymoment #littlestoriesofmylife #darlingmovement #thatsdarling #shoe #shoeaddict #shoegasm #fashion
Apart from the 'Random facts' that I sometimes post, I very rarely talk about how Elhers Danlos Syndrome affects me or go into too much personal detail. However, I feel like a part of raising awareness is being open and honest from time to time on a personal level (don't worry, I won't make a habit of it😁) So, for roughly 4 months the pain and discomfort I have day to day has increased in certain places. This has now developed into restricted use in one of my hands. I'm positive this is temporary but it's still having a bigger impact on me than I had anticipated. The physical pain that comes with my EDS can sometimes be managed with a positive mindset, mindfulness, physical therapy and rest. Other times it can be painkillers, although I try to use them as a last resort, plus, they aren't always that effective. Then there is now, where none of these things are improving the condition and I just have to stay focused on not giving into the pain/discomfort. This isn't just about the physical pain, it is most definitely having an effect on my emotional well-being. It's a challenge but I have come so far with a different way of thinking, that I will never go back. It doesn't make it any less of a struggle through. So, that's me at the moment.....not all of me......just a snippet. #EDS #Zebra #Spoonie #ElhersDanlosSyndrome #Genetics #ChronicPain #ChronicCondition #chrinicfatigue #AwarenessRaising #Hypermobility #Mindset #StrongWomen #Mindfulness #Motivation #Positivity #Healthy #Genes #PainManagement #FitnessJourney #FitBlog #FitFam
This is what support and community can do. Through the cycling community I’ve been able to meet some pretty amazing humans. From the people that are willing to accommodate, wait, support or ride slowly with me...to the companies that understand any income I have goes into paying for medications and treatments that are not otherwise covered. Yeah my new gear from @onealracing looks pretty darn amazing, but the meaning behind it is what helps me push through the pain. Thank you to everyone who turned a very challenging week into one of the better weeks of my life. . . . . . . . . . . . . . #crankworx #explorebc #mtb #mtblife #mountainbike #mountainbiking #crankworxwhistler #spoonie #chronicpain #chronicillness #disability #remission #recovery #multiplesclerosis #myalgicencephalomyelitis #cbd #cannabis #medicalmarijuana #cannabiscommunity #medicalcannabis #bike #biking #femaleentrepreneur #businesswoman #cycling #cyclist #overcome #selfcare
I take a ton of notes in class and during sermons to help me pay attention to what's being taught. If my hands aren't busy, my mind will check out. While I have a stack of filled up notebooks, I rarely go back through them. This morning, while waiting for a conference call to start, I flipped open this one and it was so very relevant to my day today! While the passage is specifically speaking about wives and husbands, submitting to one another out of reference for Christ is something that all believers should practice. Am I truly seeking to do what's best for the other person? Am I seeking to be right? Or am I seeking that God be glorified? If you keep reading, be careful!! The concept that we are easier to love when we display the Fruit of the Spirit, will step on your toes -- or at least it did mine! Who am I to point a finger at someone else being difficult to love when I fail at most elements of Fruit of the Spirit a majority of the time. Welcome to the Monday reality check! 😂 #mondaymotivation #realitycheck #happymonday #fruitofthespirit
Sweet and savory egg loafs!! 8 Oz cream cheese, 8 tbsp butter, and 8 eggs all blended together. Savory loaf had @mccormickspice All Purpose Garlic and herb seasoning. The sweet loaf has pumpkin pie spice and @swervesweetie granular sweetener. I cannot WAIT to have some :) #eggloaf #ketofood #ketofoodideas #foodjournal #lchf #lowcarb #keto #ketodiet #ketolife #ketospoonie #ketospoonielife #ketolifestyle #ketoliving #ketolicious #ketofood #ketofoods #ketogeniclife #ketogenicliving #ketogenic #ketogenicdiet #ketogenicweightloss #ketogeniclifestyle #ketogenictransformation #ketogenicfoodsforweightloss #ketogenicfoods #spoonie #spoonielife #spoonie #spoonielife #chronicpain
If just for one minute you can get lost in your breath, you're already healing. Some days, I can only practice with my breath as my physical abilities vary greatly depending on the state of Lupus. Practicing the breath is still yoga 💜
😜🤣 The expression people make when they see a part time roller walk. ♿ Part of #dominating your #chroniclife is to resist allowing the ignorance of others from keeping you from utilizing the tools available to you in order to avoid further injury or pain. 👉Have you missed out on doing something or going somewhere just because you worried about being judged for having to use a #mobilityaid ?👇 📣My #eBook #makepainyourbitch is available at thedisableddiva.com or see link in bio.
#latepost from Saturday! Picture of me on rare occasion that I dress up and go out and socialize. Almost left early cause I wasn't feeling that great. But I took some meds and had a blast dancing the night away! #lupus #lupussle #chronicillness #spoonie #butyoudontlooksick #chronicpain #tachycardia #Anxiety #kidneydisease
We all know that having ME/CFS means we have to deal with loads of awful symptoms every day. By far, my most debilitating symptom is brainfog!! It has always been the most challenging for me and particularly frustrating as it’s so invisible! ✨ What do you find to be your most debilitating symptom? 👇🏻
Another blogpost up now! Link is in my bio!
A 1933 Spoon top made into a necklace. #spoon #art #spoonie #jewelry for my #therapy and purpose #like this one very much so #old #cool #looking #necklace #hot
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