And if I’m not the problem - there is no solution.
When we are constantly living in our problems, unable to see a way out, we are simply full of stress and stress triggers.
When we meditate and or practicing yoga, we allow stress to leave our body so that we can begin to live in the solution.
It can also be difficult to feel like there is a solution when we are around someone who cannot see past the stress in every situation.....
So - make sure you do your practice & surround yourself with people living in the solution as often as you can. 💙
One thing that is really hard as a BCBA is being always called to put out the fire. As a BCBA, I wish I was called to help train staff, build a rapport, create a structure and so on before all the inappropriate behaviors started to occur.
As BCBA’s I think we need to strive to spread the word about our field and offer trainings to schools districts so they know we can work on positive things also. #training #schooldistricts #teamwork
A U T I S M. How do you describe your child if they have a diagnosis? It’s a question I’ve been pondering since Big Bear got his a couple of weeks ago.
Do you say they are autistic or that they have autism? I’ve seen articles from people on both sides of this, mostly parents. Some don’t like the term autistic because it means they’re child is nothing more than their autism. Others don’t like to say have autism because they feel that autism is an intrinsic part of their child not something they happen to have.
Then I read an article by a 24-year-old who is on the spectrum and says he uses both terms to describe himself and never thought anything of it until he became aware of the controversy around the language.
National Autistic Society research on how to describe autism concluded that adults with autism prefer autistic.
I use both at the moment depending on the situation but I probably say has autism more - maybe because it’s new and his personality wasn’t defined by autism before so why should it be now? When Big Bear’s aware of being on the spectrum and able to make his own decision, I’ll be led by him. In the meantime, I’ve concluded that I’m likely to offend people whatever term I use. It’s a minefield!
So my poorly girl got no better and this morning we have ended up in hospital. She’s perked up after some more meds, but at the moment we are admitted overnight, however latest Dr said if she continues to improve we could get out today. CROSS YOUR FINGERS! 🤞😉
#specialneedsparenting #adrenalinsufficiency #hypopituitarism #warrior
Yesterday I went to the @theyardscotland
with Hannah and Esme to meet some lovely friends. The Yard is the most fantastic play centre in Edinburgh for children with disabilities and additional needs and it is just fantastic. If you haven’t been to visit, every Sunday is family fun day and all families are welcome! I throughly recommend it! While I was there I collected parent evaluations completed by the parents who came with their babies to the Infant Massage course I recently undertook there ❤️ It was so lovely to read their comments. ALL parents valued learning this beautiful skill with their babies: “I loved learning the massage techniques and how beneficial they are in terms of bonding and relaxation” “I learned about the things he likes and dislikes” “I learned when the best time is to massage my baby” and I really appreciated these comments too - “Lesley was very friendly, knowledgeable and welcoming, clear demo, lots of ideas, room for questions and tea and cake!” 😄 I feel truly blessed that the fantastic training I completed with the International Association of Infant Massage trains me to teach massage to babies and children with ASN up to age of 7. I learned this skill so I could practice it on my own little monkey and sharing it with other parents and children is a true joy 😍 This morning Hannah made an impromptu video about why she loves the Yard! Enjoy! And if you know any parents and children who would benefit from learning this skill please pass on my details - Lesley@fromacorntooak.uk #theyard #playcentre #infantmassage #iaim #asn #edinburgh #edinburghmums #edinburghdads #edinburghkids #downsyndrome #specialneedsparenting #specialneeds #babieslovemassage #nurture #bonding #labouroflove
Relish in micro moments across the day ❤️
Latepost dari #AsianParagames2018
🏸🏅🎽 Ini perdana gue nonton langsung event kompetisi olahraga internasional di GBK. Biasanya cukup streaming atau nonton TV aja, soalnya bayangin crowdnya udah gerah duluan. 😂
ini beda. Mumpung Indonesia tuan rumahnya. Pengen liat langsung dan ikut ngerasain semangat melampaui batas teman-teman #paraathlete
dengan disabilitas ini. Gue pengen ikut terinspirasi juga, recharge semangat dampingin Raffasya dengan terapi-terapinya.
Pas banget buibuk kece #SuperSpecialMom
mo pada nonton, walo kita sama-sama ga bisa lama-lama dan mentok jadwal terapi parabocah masing2, jadi bela belain dari jam 8 pagi udah pada standby di GBK 😂
Kita nonton beberapa match cabang olahraga bulutangkis. Trus kesannya gimana, Dan?
Kesannya, gue mah ambyaaarrrrr. Baru duduk aja terus tengok2kan sama @namiramonda
udah rembay rembay 😢 Gimana engga, #paraathlete
ini punya berbagai jenis keterbatasan. Buat bisa bertanding di #AsianParagames2018
ini, pasti mereka push they self over the limit banget, kita liatnya aja mikir, Kok bisa ya? Mereka latihannya gimana? Itu pasti pegel banget, pasti uncomfort banget. Pasti banyak stigma masyarakat yg underestimate mereka dengan kondisi mereka bisa bikin mereka down. Tapi kenyataanya mereka bisa lewatin itu semua dan membalikkan disability menjadi ability.
Sumpah, gue salut! Respect! Ikutan semangat!
Apalagi kemarin gw liat ada atlet yang kidal dan CP, behh gue langsung pelototin. Aslik anak CP juga bisa jadi atlit! Anak gue bisa juga dong!? Gue jadi semakin yakin, Raffasya akan bisa berprestasi dengan caranya sendiri, dan gue ngingetin diri sendiri, untuk gak pernah menyerah dengan Raffasya. Engga akan! .
Cr. 📷 : @ristyogalieh
🎥 Video ke 3 : @kharisma_aff
#specialneedsparenting #cerebralpalsy #spastik #braininjured #brainatrophy #parainspirasi #paraathlete #specialneedskids #specialneedsmom #GDD #globaldevelopmentdelay #globaldelaydevelopment #globaldelayeddevelopment #paraathlete #parainspirasi #asianparagames #asianparagames2018 @asianpg2018
Being a special needs parent means I’m always ready to stop and give her my undivided attention.
The distant glow of the monitor. My girl isn’t well and i have just got her down after extra meds at 2.30am. But there is no sleep for me, because her breathing is laboured and she will stir again soon. And I want to make sure I don’t miss a crisis and her past means I’m always going to worry...So I’m gonna watch the monitor and wait for the morning sun. When my warrior girl is up and having breakfast with her dad, when I can hear him reading her stories, then I might be able to sleep a little. ❤️
#specialneedsparenting #hypopituitarism #adrenalinsufficiency #latenightthoughts #nosleep #specialneedsmom
Over the years we’ve made small additions and adjustments to his room(and our house as a whole) to help curb his appetite for unauthorized interior decorating. https://buff.ly/2RRQsY1 ______________________________________________________________________________________________________________________________________________________ #autism #ADHD #sensoryprocessingdisorder #specialneedsparenting #parenting #DIY #decorating
Please take a soldier and place it somewhere that will remind you to pray for those who serve our country.
I love this so much. So often we forget to pray for those who have served or are currently serving.
#lasvegas #veteranwife #usmcspouse
The picture at the bottom was taken in July 2015. The picture at the top was from tonight. The bottom picture was the last time Justin & I went on a date night...over 3 years ago. Life has changed dramatically since that 2015 photo and our focus has been completely altered. However, God is always good and He is always right on time. Words can not express how beyond thankful we are, especially to the precious loved ones involved to make this weekend happen. Starting from our much beloved Sr. Pastors (who are truly family to us & such a real blessing in our lives) to my wonderful parents & siblings (who came by car & plane & adjusted their busy schedules) for this all to work out. We are indeed blessed by this unexpected (and very needed) weekend & grateful for the experience. 💗#JJBlessedWeekend #FromNoDateNightToADateWeekend #SpecialNeedsParenting #Thankful
Perpetual Visitations of Grief
I experienced a pang of grief this afternoon. I’m not sad. I’m not depressed. But as I thought of myself and my children and the glorious stages of life that they are in; for a moment, my heart ached.
It’s true.....Comparison IS a thief of joy and yet, as a human, I am aware..... Aware that my children arrive at their “stages” in their own times; and while other children may be moving through stages faster than mine.....mine arrive, in all their glory, at times that are perfect for them. But the perpetual visitations of grief that accompany the awareness of the differences between what’s mine and your’s are still awkward. And regardless of the love and joy and pride I have for mine, there are moments that steal your breath away as you come face to face with reality.......as you let go of preconceived ideals and dreams and embrace the incredible vastness of what you have and the wonder of it all. #specialneedsparenting #perpetualvisitationsofgrief #cachecreek
DS Awareness Month...Day 19!💙💛 .
Muscle tone is the state of muscle tension inside a muscle when it is at rest. It is controlled by the brain at an unconscious level and whether a child has low, high, or normal tone is determined at birth. .
Normal tone means that there is the right amount of “tension” inside the muscle at rest, and the muscle is inherently able to contract on command. Hypotonia, or low tone, means there is not enough tension in the muscle when it is at rest. The muscle may have a floppy feel to it, and there is a lack of control when it is used. Low tone is common in individuals with Down syndrome, which can affect postural control and stability, mobility, breathing, eating and speech. .
Keep in mind, muscle tone is on a continuum – so a person can have normal muscle tone that is a bit on the low side. .
Muscle tone is not the same as muscle strength. Strength is the muscle’s ability to actively contract and create a force to respond to resistance (such as pulling, pushing, lifting, etc).
While muscle tone cannot be changed, strength can be. Increasing muscle strength allows the body to compensate for low tone, and is often the focus of physical and occupational therapy in kids with Down syndrome.
#downsyndromeawareness #ocbuddywalk2018 #dsaoc #liamslegion #theluckyfew #downrightperfect #downrightawesome #specialneedsmom #specialneedsparenting #downsyndromeadvocate #downsyndromerocks #downsyndromelove
It is important to remember that things will not always go as you have planned. I went into a classroom today, with the goal of implementing a visual schedule (@teachloveautism
materials). However the Velcro would not stick to the wall, I tried the Velcro on painters tape, that didn’t work either. Luckily one of the teachers had a left over posted I was able to use on the wall for a quick fix. I will be creating something different for next week, but this worked great for today. #beingflexible #keeptrying #schoolconsulation
This picture absolutely warms my heart. This is my 6 year old nephew and godson Jamie-Keelan playing with Lorcan and making sure he was ok. Whilst I was away making Lorcan’s dinner I captured this beaut picture. A 6 year old engaging with Lorcan rubbing his hand and reassuring him. His first and best friend. His big cousin always looking after, loving and protecting him. ❤️
From the day we found out about Lexi’s diagnosis, I have been on a mission. A mission to find out everything I could about #criduchat
and what I could expect. I needed to be armed with information! I had been blindsided by her diagnosis and was not going to be surprised again! Well, I did learn a lot, but have been surprised everyday for 17 years now. I am surprised by her strength, by her determination, by her humor and how hard she loves, and I could go on and on! I was also surprised at how resilient her sisters were as well. I worried about not being able to love them all enough while on my new mission, not being able to make them feel seen, heard and loved enough. But what I didn’t realize was that they had also been given a mission and they took their roles seriously but with more love and compassion than I could have ever imagined. What began as a mission for us, turned out to be the best thing to ever happen to us. This mission turned us into a family that is so strongly connected, who love each other fiercely, and a tribe that can never be broken. So, accept your mission and know that it will lead you to exactly where you were meant to be! Xoxoxoxoxo
how to enjoy this bountiful and colorful season in MN. I’m so glad to have 4 solid hours of tube-free time so we can enjoy these things this year and not worry about someone yanking out his tube. Every bit of progress opens up our world. And it is all that much sweeter when you’ve had to wait so long for it. Also, #physicaltherapy
today in the corn pit totally counts, right? In fact, he sat up for a long time watching the other kids all around him. All it takes sometimes is the right motivation.
#specialneedsmom #hypotonia #arthrogryposis #tubielife #specialneedsparenting
Best way to start the weekend 😍
In case you haven’t noticed, Tommy is one for routines. He likes the predictability, the order, knowing how things are going to work.
There’s been some changes and disruption lately, some he’s struggled with, and some he’s coped really well with.
He has two new carers for a few hours a week, and he’s taken to them both brilliantly. He also goes to after school club on a Friday now, which he also loves.
The main challenge has come from the changeovers. It doesn’t matter who it is, me dropping him to his mum’s, one of his carer’s dropping him to me, he just refuses to let that person in the house. If it doesn’t happen instantly his heart pounds like it’s going to explode, he starts to shake, and just can’t process what’s going on.
He’s happy to do it when someone comes to pick him up, and they can stay as long as they want, but drop offs have to be instant and the other person made to leave.
Even when I take him to my parent’s house now, I used to have to sneak out whilst he’d be eating dinner, now he just wants me out of the door as soon as we arrive.
If we bump into someone who looks after him in the street (or ever looked after him) he immediately starts to scream, confused, thinking it means they’re taking him when they’re not supposed to be.
And that’s ok, it makes sense, it’s just something we have to figure out and work on. The more I think about it the more I have to admire just how well he does cope with all the upheaval he’s had in his life over the years.
So yesterday, and today he’s been read a social story about what his day is going to be like. How he’s going to go to club, then be picked up by his carer, then go in the car for food, then come home, and be brought in by her.
I made sure I was out of the house when they arrived and she brought him in instead. He raced around the house looking for me, but settled quickly and decided to play instead.
When I got home he made her leave the minute I arrived, but it was much better than last week. Small adaptions, and small steps of progress.
That’s what we have to do as parents. Make adaptions to account our kid’s needs, and try to make it work for everyone ❤️
Sometimes life just stinks. There’s no other way to say it. 😡
The kids are sick, which means you are too. 😷The car needs major repairs. 🚗 Hubby shipped out to leave everything to you, which is a chore under normal circumstances.🚢 But when it starts to rain cats and dogs, then it’s nearly impossible to deal with it all.😩 This is when you should call a friend or loved one and reminisce about good times until you start laughing. Or rent a rom-com. Or just start laughing at how absurd things are. 😆
Laughter truly is the best medicine. It can lift us out of the darkest moods, and give us back the power we lost when we worried too much.😁 Laugh. It’s good for you.😄