“Learning is uncomfortable because you’re carving pathways in your brain” - @juliacookonline
We just love this quote from our interview with Julia that released last week! 💕
This is so true. And notice how she didn’t say learning is “hard,” but that it is uncomfortable. We can think back to all those flash cards and late nights we had to endure through grad school, and agree that none of it was “comfortable.” But, it was all worth it!
Can you think of something you learned recently that made you uncomfortable? 🤔#speechiesideup #podcast #speechiepodcast
Special Education: behind the scenes of the parent training I did yesterday when I shared all about how I work with TEACHERS!
I love when parents get A-Ha moments about teachers and vice versa.
The best way to get on the same page about a child education is to understand where each other is coming from.
Special education doesn’t have to be over complicated. Building a child’s IEP can happen in a positive environment. However, it takes a lot of intentional teamwork to move forward through the messiness of the system.
#spedteacher #autismmom #specialneeds #downsyndrome #specialeducation
Those with Rett often times have a weakened immune system due to their genetic mutation. This may present as frequent and severe bouts of respiratory infection and pneumonia.
One thing we never really thought we had to always consider when taking Evie anywhere is whether or not sickness could be going around. The thing with our girl is that she has a more compromised immune system say, compared to her little brother Ellis, or a typical child her age.
A simple cold for Ellis may last four or five days, he powers through and bounces back in no time. If Evie catches a cold it hits her like a ton of bricks. If we cannot help it clear up quickly then it will settle in her chest for a month. The infection build-up in her lungs, and her inability to fight it off may lead to further complications such as pneumonia.
Due to her risk for further complications with even a simple cold, we often times have had to make the tough decision to stay away from certain social gatherings or events for the benefit of our girl. At times, we have found that making the decision to say “no” to certain situations can be met with some lack of understanding from family and friends, but for the most part we have gotten used to it by now. In the end, Evie’s health is our top priority and we will always do what is best for her.
Special night for Special children. Half priced admission.
Day 17 - "Promises made" (church)
In church a few weeks ago, we had a baptism. A child of a child raised in this same church. It reminded me of Caleb's baptism and the promises that were made eleven years ago - promises our congregation makes to help raise each child in the faith.
Sometimes, individuals with Down syndrome and other differences can find church to be a tough situation, struggling to find acceptance and inclusion in a place that should be the first place to find both. In my latest blog post over on The Toothbrush Pillow, I talk about these struggles and pose some questions about getting people with unique needs included. We have been fortunate in our church journey, but others have not. "I imagine that our faith denomination (Presbyterian) is not the only one that asks its members to participate in the bringing up of children and youth. .
.What does it really take to get a special needs ministry off the ground?
•Do churches really need to have a separate ministry program for people with extra challenges? Why can’t everyone just worship together?
•Who takes the lead? The parents? The church leaders? The congregation as a whole?
These are all questions that I’ve prayed over in our 11+ year journey. I’m sure circumstances are different for each church, for each person. Some might need just a few accommodations to be included; some might need more. The point is, churches need to DO THEM." Read more at "Abilities with a Twist": https://thetoothbrushpillow.com/blogs/abilities-with-a-twist/promises-made (link in my bio). Would love to hear your experiences too. #dsam2018 #calebscrew
💙💛 #downsyndromeawarenessmonth #igersjax #kidsofinstagram #church
No greater gift or opportunity than to support and assist parents of children with special needs by helping add some tools to their toolbox to support their children with special needs at home.
Feeling grateful that Friends of Zara is to be able to host and support so many families from across Asia and the Middle East with my Mentor Bonnie Brandes and the USA Qri Team. #qri #specialneedsjourney #grateful #fullheart #specialneeds #specialneedskids
My son was born the same day as I started with Highwire. He was born at 36 weeks, but was only 25 weeks developed (2 1/2 lb baby.) I never could have imagined the support, care, trust, and love that I have received from my Highwire family. Each day I make sure to give both of my families my all. No matter what the future brings my son's birthday and my work anniversary will always be the same. Be thankful for what you have, have faith, and be the best "you" that you can be.
A child with ASD may experience sensory overload due to crowds, loud noises that overload their senses into a meltdown.
Unfortunately, today Braxton was starting to get overwhelmed as we where lining up for the sky rail ( He wasn’t even at full hight yet) some rude old lady yelled “shut up! There is no need to yell like that!” on Braxtons face. I was at first shocked and then my anger as a parent kicked in and I replied with a simple “excuse me what did you just say?” And then she didn’t reply just rudely stared at us the whole time and then refused to ride in the sky cable cart with us ( thank god other wise it would of been very unfortunate for her) but it makes me so upset that the public can be so nasty to something so little. Yes meltdowns can be uncomfortable for you and loud but imagine us the parents. We deal with this day in day out. It doesn’t end but they are still amazing humans and we don’t treat them any less.
I just feel like If autism education and more inclusion programs started younger and at schools, the future generations will be able to successfully work and live side by side with ASD individuals without any of the drama we experienced today. Small steps and lead to massive achievements for an ASD friendly world 🌍 🙃✌🏻
successful people and unsuccessful people dislike the same things... successful people just do them anyway the choice is up to YOU!
***New Issue Published***
PARENTING KIDS WITH SPECIAL NEEDS
------------------------------------------- Family Mantra’s goal in this issue is to throw some light, bring some awareness and share what families who care for these children and who live with them everyday have to say about this. How do they come to terms with the fact that their child will never have a ‘normal’ life or be able to do things that other children can do? What questions do they struggle with?
You can subscribe to Family Mantra magazine in Print or Digital. http://familymantra.com/subscribe/
Print: Rs. 300 for a year
Digital: Rs. 150 for a year
#familymantramagazine #familymagazine #newissue #parenting #specialneeds #kidswithspecialneeds #awareness #downsyndromeawareness #downsyndrome #trisomy21 #strongfamilies #strongnation
Nanny Cam’s? Yay or Nay? We say Yay!
At NannyCentre we recommend the use of NannyCam’s. We also recommend that you let your caregivers know you have cameras in the house for legal and moral reasons. (You don’t say where). This helps to keep your caregivers in check, and also helps parents know exactly what the kids have been up to during the day.
We particularly love those with the audio and video option. You can sing/talk to your baby from wherever you are.
Swipe right➡️➡️ for some functions available on nannycams posted by nannycamreviews.com
#nannycams #caregivers #childcare #elderlycare #specialneeds #specialneedscare #sneakpeak
Just like that our holiday is over.. we have landed back in Australia and now spending some down time in Cairns!
Japan was everything I could imagine and I really couldn’t of asked for a better first overseas holiday for the kids especially Braxton ! I am so proud of him!
In a fast-paced world, we expect results immediately.⠀
Replies to text messages, meals, financial gain. We want everything yesterday.⠀
When we find that our child with special needs is progressing at a slow rate, it is difficult to keep the faith and to wait for things to happen in their own time.⠀
We take our child to therapy and attend one meeting after another in the hopes of helping him achieve the next goals. When we don't see results immediately, whether medically, physically, or cognitively, we can become discouraged and even start to doubt our role in this.⠀
Can I do more? Am I holding him back? Should I do this? Or that? Am I doing the right thing?⠀
We begin to feel like a failure as a parent, but our child's progress is not entirely our responsibility. We need to trust that he is doing his share, and so is God.⠀
Affirmations for Restoring Trust and Overcoming Parental Impatience:⠀
* Even though things are not progressing as quickly as I'd like them to, I am trusting the process.⠀
* My child is counting on me to trust the process.⠀
* I am patient.⠀
* My child expects me to be patient.⠀
* I allow things to transpire as they are meant to because I know there is growth in rest periods.⠀
* No matter what, I know I will be OK.⠀
* No matter what, my child will be OK.⠀
* No matter what, it will all be OK.
Pedimos alguma reflexão acerca desta imagem. Vivemos num país com uma política inclusiva excecional (ainda que tenhamos uma opinião contrária, a verdade é que a nossa legislação vai totalmente no sentido da convenção), mas o que assistimos de fato? E mais importante, o que defendemos? Qual das definições deverá ser a missão de todos aqueles que trabalham nesta área? Que pasmem-se, somos todos nós! Sem exceção! A inclusão é responsabilidade de toda a sociedade! #inclusion #inclusão #specialneeds #specialeducationneeds #educacaoespecial #education
🙌Oh... AND FREE CONCERT🙌
Let's do this!! Time is running out for a guaranteed race shirt
Run/walk/or skip the 5k and spend the day at our festival and free concert, Bonjovi and Foreigner tribute bands performing starting at 1230
Food, beer/wine, free pet adoptions*, vendors, kids corner and more. Bring a chair/ blanket and stay the day. See you soon ❤️
*with approved application #freepetadoptions #freeconcert #suwanee #5k #jonnyandxenafoundation #festival #animalrescue #specialneeds
Our brand new post and video is now live! Check out our link in the bio to see our unbelievable experiences at @iflygoldcoast...
seriously, you have to see it to believe it!.
Image description: Briana and Bella in blue iFly jumpsuits. Briana sits in her wheelchair and Bella bends down to her level. They are both smiling. The backdrop is iFly wallpaper. #accessiblebrisbane