🌈 The more you know… Or don’t
Awareness can save your life. ...
Ever wonder why I behave like I behave some times and on top of #MS
also have #EDS #Dysautonomia #mthfr
The estranged didn’t want to bother me and was trying to have me committed and/or heavily sedated on bullshit medication. #FuckThatShit
Thank you so much to this amazing woman who shares her story and thankfully is educating all of us at #Repost @striatedprism
Seeing how I'm in the midst of a MS relapse, I wanted to share some of what I live with with you.
These aren't all the symptoms I live with.
Headaches are usually daily and tremors and speech issues always.
Dizziness and vertigo come and go....
But when they come?
They dont leave for what seams like a lifetime.
This is what I'm currently experiencing with this one.
All my old symptoms heightened.
I just wanted to share what I'm currently going through....
And this is in the order that they struck this time.
I still smile,
I still laugh,
I still try to wake up and go about my day as best I can.
MS is no joke!
Ive had swallowing issues.
Choking on my own saliva, food and drinks.
I've aspirated into my own lungs twice (scary)
Vision problems like optic Neuritous arent fun.
Sexual difficulty (unable to climax/longer to climax/ desensitization) yea! No fun!
The list is long.
And no 2 people are alike but may have similar issues.
This is #multiplesclerosis
Sometimes called the #snowflakedisease
I try not to whine and cry about it.
It is part of my life now.
But some days its hard to keep going.
To keep fighting.
To want to live like this forever.
Because I don't!
Medicines can help.
I opted to stop taking all but one..
I started on 22 meds and went down to 3 then 1 then none. Now I'm back on 1 because I'd rather feel ok then scared constantly
Cannabis helped me get from those 22 meds to 1
And I'm so grateful and thankful every day.
A flare or relapse doesnt last forever....
But when it happens it feels like it will never go away,
We dont know if THIS TIME the damage will be permanent!
Its always a game of chan