When Brylee was 2 years old, she started walking funny, tripping over nothing, having night terrors, and her eyes had crossed in. She was taken to the children's hospital on March 6, 2013 where she had an MRI. The doctors were thinking that the problem was in her eyes and that the MRI would help them find it. The MRI was supposed to only take 30 minutes, but an hour later a doctor came out and told her family that their 2 ½ year old daughter had a brain tumor. Not just any brain tumor, DIPG (Diffuse Intrinsic Pontine Glioma). Brylee's family was told that she wouldn’t live 10 days after her diagnosis and that she would have a 5% chance of living 11 months after diagnosis. She had 6 weeks of radiation therapy and then started chemotherapy treatments. When she made 10 days after diagnosis, her doctor said that she wouldn’t live to her 3rd birthday in just a couple months. She continued to receive chemo and outlived this time frame as well.
An MRI in November 2013 revealed that the tumor was growing. Her doctor said that she would not make it to Christmas. After she lived to Christmas, the doctor said she wasn’t going to live to April 2014 when she would be in the 5% of patients who live 13 months after diagnosis. In April 2014, they found out Brylee’s tumor had grown to the size it was at diagnosis so she was put on hospice (medication to make her comfortable, but not to shrink the tumor or buy time). Through this whole battle, Brylee made a bucket list that included a trip to Disneyland, ladybug release, prom, Build-A-Bear Workshop, and more. Every single thing on her list was fulfilled.
On May 19th, 2014 at 6 am, Brylee started breathing differently. At about 2 pm she was unresponsive. At about 8:45 pm on May 19th, 2014, Brylee passed away after not breathing normally for 16 hours. She never made it to her 4th birthday, which was in just 2 days.
Facebook: Brylee in 5
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