•Invisible Illness Post•
-Skip to next post if I’m making you uncomfortable.-
— Somedays it’s so hard to prove to someone I am sick. I know I shouldn’t care but when you aren’t fighting for your body, you’re not helping your body. With my diseases people don’t understand because on the outside I look fine. What you don’t see is the missing clump of hair that fell out, the nails that are thin and white, the scars from so many IV pokes, that my bladder is bleeding, that I cough up blood on a daily basis or the pain. Here it is, no filter. This is Lupus red burning skin. That I was up till 4AM pacing because the pain in my legs were so bad I couldn’t sleep. The fact I was on the bathroom floor at 7:30 trying to relieve the pain. The massive amount of tears between being mad at my body and trying to be tough and hold in the pain and being like anyone other 26 year old girl to be normal.
Yes, this post is going to make you uncomfortable. No, I DO NOT want pity. I want people to see and understand sickness isn’t always on the outside.
I hope this post reminds you to be kind to others because you don’t know what they are battling internally. I have some really amazing friends that get me through the rough nights, will go do errands with me because I’m not strong enough to do it alone and for those people that believe me, you will never know how much that single text to see if I’m okay means.
I never imagined my life to turn out like this, but this is reality and I need to advocate for my body and others.
Lastly, spoonie friends/sisters you don’t know how much you make me feel okay that I’m broken. Reminding me to fight when I want to give up. •Today I hope you say a little pray to whoever you believe in and thank them for your body and how strong and beautiful it is.•
#everythinghurtsandimdying #everythingwasbeautifulandnothinghurt #spoonie #spooniesister #chronicillness #chronicpain #chronicallyill #chronicpainadvocate #chronicallyilladvocate #lupus #lupussle #ic #pots #fibro #fibromyalgia
Promptly after this picture I was on the floor of my ex roomies floor 😂
Chronic illness doesn’t care that I’m a pre med student trying to build my resume and gain clinical experience on the other side of things. Last night I had the pleasure of going to the college of medicine and listening to a panel of doctors speak about their profession. Recently I’ve been accepted into the Plexus program, a program that pairs me (an undergrad pre med student) with a current medical student at the USF Morsani College of Medicine. Through this program not only will I have one on one mentoring with an experienced med school student but I will also gain priority over others in shadowing opportunities and intern/externships. Being a pre med student isn’t just about taking all your Sciences and knowing anatomy and physiology like it’s the back of your hand. It requires you to be involved, take leadership roles, give back to your community, clinical hours (shadowing a physician) and extensive volunteer work whether it be clinical or for the community. Because med schools don’t want robots this allows pre med students to really become as wholesome as possible. With chronic illness it’s a little difficult to get into things as much as I would like especially with everything that’s going on right now. But I believe that the eye of the storm is near and I’ll have that little bit of calm before the storm of adjustment rolls in but I have faith that God will carry me through to the other side!
#premedstudent #premed #futuredoctor #medicalschool #chronicillness #chronicillnesswarrior #nothingsgonnaslowmedown #autoimmunedisease #livinglife #businesscasual #iih #intracranialhypertension #POTS
This is me and this is where im at:
My chaos doesn't define me, but i wanted to make this account as a sort of outlet to try organise my chaos whilst raising some awearness.
Mentally I've been up and down my whole life, been through a lot of things that arn't so ordinary. From being a carefree baby to sectioned under the mental health act and hospitalised for just over half a year. I have more than one diagnosis but maybe I'll talk about them another time.
Physically I come from a family with a history of conditions, like MS, Rheumatoid Arthritis and chrones. I have an informal diagnosis of Gastroparesis and Postrol Orthestatic Tachycardia Syndrome. However all this is still being investigated (or would be if my doctors were abit more proactive) I got referd to a gastroenterologist about a year ago and have just been refered to the cardiologist.
Im in my second year of collage in the UK and am studying Music and health&social care. My life revolves around music and life brings me great anxiety being away from my saxophone for more than a day.
My mum has mental health conditions and RA, My dad struggles with stress and works in air traffic control and My sister is going off to uni on Thursday ahhh! She's studying maths in york.
My friends are amazing and I could be were I am without them.
I'm told my style is very vintage and boho.
Im also a rather big animal lover and I dont mess with mother nature.
I like raising awareness and am trying to help in any way I can in a world that's struggling in quite a few ways, whilst trying to stay on my own two feet and supporting those around me.
So this is were im at in life/little introduction.
#mentalhealth #gastroparesis #pots #music #intro #vintage #spoonie #chronicillness #personalblog #warrior #gp
C’est reparti pour le pop-up store #bureaupatio
au lieu 37 à partir de lundi prochain
Superbe sélection de pots et de succulentes
This little chocolate nugget is so SWEET! 😍🐾🍫 -Lyra
I have been using the @headspace
app for around 2 weeks now and I have noticed some improvements and places where I know I'm capable of more. It has helped with my dissociation and brain fog and more than that it has helped me ebb the flow of intrusive thoughts. While I am still very much learning and my mind will 'chase cars', as the app suggests, it has become a healthier habit to take a moment and be present than to float through on autopilot, not remembering huge chunks of my day. Do any of you use this app? Do you meditate without assistance? How much experience do you have with meditating? If you have no experienve, I can tell you now it's not just sitting cross legged, repeating 'om' and thinking of nothing. It's about pulling yourself into your own life by grabbing tangibly with the mind at things around and within you. It's been fantastic so far and I can't wait to get further into this healthy practice of self care!! Appreciation to the masculine voiced person doing the voice guidance - he(?) is not an abrasive presence and it's almost like being guided by a friend! Maybe a feminine voice in the future would be good too, giving users of the app a choice between the two? This app offers more than just sit, close your eyes and breathe. They utilize visualizations in video clips to help you understand concepts on how to approach the mind - a HUGELY useful tool! With my pain levels and atrophy lately, this has been a wonderful beginning to a different way of thinking on my journey!
My VEGAN sweatshirt is from @veganatic_
and you can get 15% off when you use my code 'thehappyspoonie'! 🌻
#Mindfulness #MeditatingSpoonie #Dissociation #DissociativeDisorders #DreadedSpoonie #DreadJourney
#DreadHawk #DreadlockMohawk #POTS #MentalHealth #MentalHealthAwareness #EhlersDanlosSyndrome #Anxiety #PTSD #Atrophy #MuscularAtrophy #EDSAtrophy #VeganSpoonie #Vegan #VeganClothes #Veganatic
شتلات البطاط الأحمر تستخدم كمدادات للأحواض او الحديقة وليس للثمر ،،،، للاسعار او الاستفسار ٩٦٩١٢٤٤٤-٢٤٧٤٠١٤٠
وصلت حديثاً عدة انواع من شتلات الخضروات لدى شركة مشاتل الشاهين ،،،، للاستفسار او الاسعار ٩٩٤٤٨٠٢٢-٢٤٧٤٠١٤٠
Fresh off our CNC Router. Can you figure out the final planter shape? We are proud to fabricate and finish all our planters in house. We ain’t no middleman! #greentheorydesign #yvrdesign #idswest
You know it! Another new product coming soon. The latest trend for your babe available in all colors of the 🌈