#ostomyinspo

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Update- my CRP has come down to 30😮😮🎉🎉 still slightly raised but dropped dramatically, hopefully it'll stay down! Scheduled for an MRI scan in the next few days to hopefully find something and I may be able to go home if it's not done before Thursday so fingers crossed. I also managed to write 150 words of my first assignment, took me 4hrs because I'm constantly interrupted by something but it's a start. #crohnscolitis #crohns #crohnswarrior #crohnsfighter #crohnslife #crohnsandcolitis #crohnsawareness #spooniewarrior #spoonielife #spoonieproblems #ostomyblogger #ostomybag #ostomywarrior #ostomylife #ostomyinspo #ostomy #grateful #veterinarynursing #university #health #home #scan #hospital #improving #feelingbetter #crp #bloods #blogger #blog
Minimalism by Lo! 😍 Det slog mig idag att det är över ett år sedan jag fick "första" cancerdiagnosen! 😱 Beskedet var så surrealistiskt och hela dagen var som ett tomt vakuum samtidigt med sååå mycket tankar. Jag kunde inte ens gråta, inte förrän på natten när jag pratade med en kompis i telefon. Tankarna kring beskedet handlade främst om döden och rädslan över att behöva lämna främst min familj och alla vänner i förtid. Jag är inte ensam om tankarna vid ett cancerbesked och man inser hur skört livet är. Så här i efterhand har det mesta gått så bra trots allt med sjukhusbesök, behandlingar, undersökningar, operation och rehabilitering. Å kanske det beror på att jag slapp cytostatikabehandling. Tro för den skull inte att det har varit lätt. Det har varit och kommer att vara många jobbiga dagar framöver. Detta är min upplevelse och många andra har det så jäkla tufft. Mitt sätt att hantera allt detta är att jag ska försöka leva livet till fullo, så mycket som jag förmår! 😁 Dagen startade fint med vackert höstväder och tandläkarbesök ua.💪 Jag bjuder på fler höstiga bilder. 😉 Den sista bilden är ett vykort från vår vän Dohee, en koreansk student som bodde i Umeå i 2 år. Numera är hon hemma i Seoul igen. Tack så mycket Dohee @walk2theworld ! ❤ #memories #cancerdiagnos #yolo #seoul #friendsandfamily #hanriver #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
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When you wake up with a stomach ache and miss when a simple fart used to make you feel better. Sometimes it was all you needed right? That was back when I could trust a fart not to end in disaster! A big bubble in my gut these days means having to massage my tummy to try and work the gas through so it can come out when it's ready. My belly gets tender and it sometimes helps to pull my knees up to my chest (or as close to it as I can get!) to move the air through. . . I remember a magnet I once saw with the phrase 'I'm so happy I could just shit!' ... It's been a long time since doing a poo has made me happy, it used to cause so much pain, anguish and worry. But before all this kicked off I do remember how much better I used to feel after and now I get to hear my kids tell me in very raw detail how good doing a poo is! Boys 💙💙 . . #tummyache #bubbleguts #crohnsdisease #ileostomy #poop #morning #ostomyinspo #nocolonstillrollin
Hello Monday!👋 It ain't no sunshine here in Umeå, more like fifty shades of gray, l would say. 😁 Dagens status - tung i huvudet och trött som harmoniserar med vädret. Tur att den fina stomibuketten som Eva-Maria har målat lyser upp tillvaron. 🤩 #flowers #heart #badweather #workdonefortoday #morecoffee #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Be yourself... the world will adjust. And on the chance it doesn't, its the worlds loss. Life is too short, have fun, eat pies, do cartwheels, wear silly hats, sit quietly every now and then, poke out your tongue. Laugh! Be the best version of you 😍😍 . @Regran_ed from @gutlessandwonderful . #beyourself #havefun #funtimes #nocolonstillrollin #baglife #ostomyinspo #ibdsuperheroes #livefearless #bestversionofme #bestlife #dontholdback #ileostomy #crohnsdisease
Tack Bengt a.k.a Sokrates!😘 Tur att jag har min poop-påse när det är stängt på "lå-an". 😂 🤬 Irriterande nog så hamnade jag i soffan igen pga smärtor. Det "lustiga" är att jag tror att smärtan kommer från livmodern och inte från tarmen. Nu ska jag prova att inte knipöva alls, för att utesluta att värken kommer därifrån. Oavsett, så vet jag inte vad jag ska ta mig till när det kommer så här helt oanmält. 😤 Denna typ av smärta hade jag inte tidigare innan jag började med livmoderträningen. Tack och lov hjälper det med en morfintablett men det känns ju sådär att återgå till dem igen, nu när jag väl sluppit dem på många månader. Jaja, det är fan bara att bita ihop. Gaaahhhh! 💩🤬💩🤬 #paininthewomb #sofrustrating #viewfromthesofa #iwanttoprogress #fuckthisshit #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
My view for the next few days at least. Went to A+E today after 24hrs of agony. I was woken from the pain and was unable to move. Since then the pain has got worse, I'm struggling to walk, talk, cough without being in excruciating pain. I knew it wasn't my stoma because that was functioning fine. I thought maybe it could an ovarian cyst as I've had one of them before and the pain was similar but I had no other symptoms. I googled pancreatitis, twisted bowel, all sorts and my symptoms didn't add up to any condition. Since being at a+e Ive had an ECG, bloods (my CRP is 160 which is alarming, and my wbc count is 40 so also raised) a chest x-ray to check for perforation, a urine test which was fine and I've been given IV morphine and paracetamol for the pain so I can finally move around! I've been admitted to the acute medical ward. They're going to be giving me IV antibiotics and if I don't improve I'll be having an ultrasound scan on Monday. Currently eating my first meal of minestrone soup and veggie sausage casserole.. I hate hospital food and I've not had any since becoming a veggie so who knows what that'll be like.. 🙄 #crohnscolitis #crohns #crohnswarrior #crohnsfighter #crohnslife #crohnsandcolitis #crohnsawareness #ibdandme #ibd #ibdawareness #ibdwarrior #ostomybag #ostomyblogger #ostomywarrior #ostomyawareness #ostomylife #ostomyinspo #instacrohns #invisibleillnessawareness #inflammatoryboweldisease #invisibleillness #chronicallyill #chronicillness #hospitallife #morphine #pain #food #hospital #nurse #fml
Det har varit full fart idag med besök av mina kollegor från Uppsala och möten. Efter mycket sittande utan min sittkudde kom smärtan tillbaka.🤬 Så hej morfintablett igen. 😬 Nu tror jag att det onda kom från allt sittande istället. 🤔 Men så har jag haft en supertrevlig kväll med mina fd kollegor från Pediatrik med mycket prat, skratt och god mat. 😍 Min namne Anna Englund har gjort dagens motiv. ❤ #greatformercollegues #lovelyevening #pediatrics #pediatrik #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
LIVE chat tomorrow at 12pm PST. That’s either 3pm or 4pm EST and 8pm in the UK. Hope you can join in! Turn on notifications so you don’t miss my posts or live moments. See y’all tomo!. . #ostomate #ostomatelivefeed #ostomylife #colostomy #ileostomy #ostomyawareness #ostomywarrior #ostomyblogger #ostomyinspo #ostomy #hairloss #colonoscopy #odourcontrol #odorcontrol #ostomycanada #ostomyvancouver #bagbuddies #baglife
Tack fina Petra @petraamalmberg ❤ för ditt stomikonstverk! I love you too! 😘 Det gick ju finfint med XL på stomipåsen igår.👍 Ingen jättestor skillnad på storleken men tillräcklig (bild 3). Nattpåsen var ju tvungen att bli pimpad inför premiären. 😉 #pimpmystoma #nostomaairbag #greatdayatwork #painfuleveningbutbetternow #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
"Through hardship to the stars" Masterpiece av min barndomsvän Susanna @sussahell ! Ett väldigt passande citat. Tack! 😘❤ ••• Under en tid har jag vaknat upp med en stomi-airbag, fylld mest med luft. Ikväll ska jag prova en större stomipåse för att förebygga en nattlig 💩-katastrof som många stomipatienter tyvärr får uppleva. ••• #airbag #stomaairbag #greatquote #childhoodfriend #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Some of you may be shocked by this picture because I'm not all made up, or wearing anything fashionable lol, but life isn't always pretty and I wanted to point that out. One reason I love this picture is because despite the struggle I went through, I was still smiling (the anaesthetic and morphine probably also contributed😂😭). This was me. And that still is me, but I'm stronger, happier and I have full control of my life now. I used to post a lot about my bag and the fact that obstacles in life are blessings but I don't know why I haven't in so long. Life is full of surprises and no matter what, there is no way you can prepare for them, but you can control how you react to them. Life hasn't been easy and I'm not saying that for pity or for any kind of sympathy or attention, it's facts. Life has been tough but life only gets harder, so us as humans need to get stronger. I've decided I'm going to be keeping my bag permanently instead of getting the reversal due to several risks and I'm happy with my decision. If anyone has any questions or just needs to talk please know you have so many people ready to listen but make sure you pick the right people. There is a difference between actually caring, and simply being nosy. So, never back down and always remember that tough times don't last but tough people do. 💪🏼 - - - - - - - - - - #ostomyawareness #ostomyinspo #ostomybag #bowelconditions #time2talk #support #supportgroup #ostomy #ileostomy #ostomate #crohnesandcolitisuk #UlcerativeColitis #selfie #surgery #illness #health #nointestine #happy #content #strong #bestrong #juststrong
Pieces of peace in the sun's peace of mind. ❤ Art by Joanna @hardyhell. Tack! 😘 Idag har jag varit på samtalsstöd via företagshälsovården. Jag älskar't! 😍😂 Det är så himla härligt och inspirerande att få feedback på tankar och funderingar om livet. Alla som vill, borde få gå. 🙌 #shrinktime #ilovetheraphy #quotes #peaceinmind #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Around about a year ago all my problems began... I had my first hospital admission for 'period pains' (HAHA!). Looking back on how far I've came in a year and it's gone by so quickly! If you'd have told me last November that I'd be where I am today I'd have not believed you. An ileostomy, a truck load of steroids... And a few antidepressants later I'm healthier and happier than ever 👊💜 ... I'm glad my bags here to stay ... But I'm more than happy to see that moon head gone 😂😂😂 #ileostomy #stoma #stomabag #ostomyinspo #ostomy #ibd #crohns #crohnsdisease #crohnsandcolitis #steroids #health #moonhead
ÄÄÄÄNTLITEN så gick det att hoppa! 😁😁👊🏻👊🏻 Älskar att avsluta benpasset med att hoppa men benen har inte burit mig sen tarmen sprack i somras. Men i dag gick det!!! 😁😍 Whoop Whoop! 😁😁👊🏻👊🏻 #renlyckaraktigenom #träninggerresultat #träningsglädje #mittlivsomcancerpatient #stomi #ostomyinspo #ungcancer #fuckcancer #jagvilljagkanjagska #betterbodies
Tack Pär @parmalmberg för pannkaksreceptet! 😂👍 • We've been to the beautiful mountains of South of Lapland. The following pictures are from the trip back to Umeå. We passed Dikanäs where they have Hamreby, a legendary shop with "everything you need". The small village Malgovik had the Swedish record of coldness the year of 1941 with - 51 Celcius! ☃️ That's -59,8 Fahrenheit!!! 😱 And in the South of Lapland the signs of the villages are both in Swedish and in Sami. 👍 #swedishmountains #historyoflapland #sami #sapmi #trip #southoflapland #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Just change your diet they said... Just try 13 different meds and combos they said... Just drink clear liquids they said.... . . None of it worked. NONE. You know what worked, losing half my digestive tract and even then it’s not a cure and I could still get very sick again. And lose even more of it... . . . “UMA” and I are BFFs until the end. I have no regrets. I tried everything possible. Certainly, I pay very close attention to what I eat and all ingredients, but that doesn’t mean jack diddily squat. It helps dramatically and it decreases symptoms and I have way more energy, but my system is constantly in overdrive and fighting. . . . Life with Crohns (and IBD) is different for every single person as well. For example, I tried every single diet there was and every med possible to achieve remission. Autoimmune is just that...your body attacks itself. . . . Life with an ostomy is different for every single person. For example, No one pouching system works for everyone. And ones emotional experience is never the same. . . . I was put on this earth to provide hope to those that are in need and unite with everyone 💜 I am here to live this life to its fullest no matter how hard it gets. . . . . #crohnsdisease #ibdawareness #ostomy #stoma #ostomyfitness #crohnswarrior #ostomyinspo #feistyfitmom #ibd #uoaa #convatec #ostomyawareness #healthygut #guthealthmatters #digestivehealth #autoimmunewarrior
Going LIVE at 1pm PST, set your alarm! UK it’ll be 8pm, East Coast either 4 or 5pm depending where you are. . . My 1st LIVE feed and looking forward to connecting with fellow #ostomates and anyone learning about the #ostomylife ! Happy Saturday y’all! #ostomyinspo #colostomysurgery #ostomybag #colostomybag #ostomyawareness #colostomyawareness #ostomyblogger #ostomywarrior #colostomy #ileostomy #baglife #bagbuddies #ostomycanada #ostomyvancouver #ostomomatesunite
#throwbackthursday back to when I was at uni the 1st time age 18. Health wise was a pretty shitty time (all the puns intended) These were both taken in my 1st year. On the left is the start of me losing my hair at uni.. you can see the bald spot forming at the front. And on the right is when I was last on steroids, supporting a serious moonface. I spent a lot of uni in my room, hated going out the way I looked, couldn't drink a lot of alcohol because I'd suffer the next day and the lectures and placements left me so exhausted I slept a lot of the time. I lived with four other girls, I loved it but I always felt the one that got left out, the least favourite.. maybe because I couldn't do as much or I was a lot shyer and just a different person to who I am now. I always felt the others were closer to each other than me. My health contributed a lot to this and maybe it wasn't understood properly.. I know I wasn't very open about it at the time. In my 2nd year, my health got even worse. I was taking tacrolimus (an organ transplant drug) and really struggled with my placement. The staff were not supportive at all and most of the nurses were the least sympathetic people I'd ever met. I got pulled up for looking too tired and like I didn't want to be there. Yeah I'm exhausted but I'm doing my best.. maybe support me instead of telling me I yawn too much?! I ended up not making it through that placement and took a year out to have my surgery. I told the girls I lived with what was happening. I was able to go back for one 3rd year fresher's night about a month before my operation, it was a struggle and therefore couldn't go down for another night I had planned with them. That was the last I heard from them. Not one of them asked me how I was, how the operation went.. I spend everyday with these girls for two whole years, living and studying together and then just nothing..it was heartbreaking to go through because I thought I meant more to them than that. I still see them all meeting up regularly saying "miss living with these guys" and I always have the urge to write "hey remember me that other girl you lived with" 😂 I'm not bitter honest
Link in bio! #vlog 2 is posted! It’s fall here in #Vancouver and attempting to show you trees in my #neighbourhood in this shot. Great news today so had to share. Sending lots of love to all you amazing #ostomates out there. ❌⭕️❌⭕️ #winniethepouch #milestone #maitenance #ostomy #colostomy #ostomylife #colostomylife #ostomyhealing #ostomycare #ostomyinspo #colostomyawareness #ostomyawareness #ostomyvancouver #ostomycanada #xoxo #standuptocancer #su2c #fuckcancer #lifeaftercancer
BIG NEWS! Today my #ostomynurse & I decided I come in on an as needed basis. I’ve been going in regularly since surgery 8.5 months ago so stocked up on #supplies and will call in if needing help. I’ll miss seeing them all on the regular but glad #winniethepouch is stable! Life is good...celebrating a win today! #ostomate #ostomylife #colostomy #colostomysurgery #colostomylife #ostomyawareness #colostomyawareness #ostomyblogger #ostomywarrior #ostomyinspo #ostomysupplies #colostomysupplies #ostomyvancouver #ostomycanada
Today is my humira day 💪 Every week a little shot 😂 --- Donnerstag ist mein "Humiratag"! Beim nächsten Arztbesuch wird besprochen, ob es weiterhin notwendig ist, wöchentlich zu spritzen. --- Bin auch schon neugierig wie wir das "Spritzen Problem" für den Urlaub lösen. --- In diesem Sinne einen schönen Feiertag 🌻
Link in bio-hope you enjoy my 1st #youtube video! Just a little about me & what’s to come! ❌⭕️❌⭕️ #ostomate #ostomylife #winniethepouch #ostomy #colostomy #ostomyvlog #ostomyinspo #ostomyawareness #ostomywarrior #ostomyblogger #colostomyawareness #ostomycanada #ostomyvancouver
No makeup. No perfect shot. Just a gal who conquered swim class with her Ostomy. If you haven’t swam since becoming an #ostomate just know you’ll be ok. I love the water and #winniethepouch seems to do just fine. Plus I have 2 #hernias so the water is a great to workout and doesn’t hurt me any. #ostomylife #colostomy #colostomybag #ostomyawareness #colostomyawareness #ostomyfitness #ostomywarrior #ostomyinspo #ostomyvancouver #ostomycanada
Happy Halloween! 🎃 Jag fick en tjusig pumpapåse för att pryda magen med och fina presenter från Krakow av @brichis ! ❤ Nu bär det snart iväg till Åsele med buss. Håll tummarna att det inte blir "stoma overload" på vägen. 😉 #happyhalloween #halloween #busride #halloweenstoma #nostomaoverload #fishiestyle #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Winnie doesn’t show herself all that much. She prefers to be tucked in but seems there’s loads of posts of ppl showing their bag, so I jumped on the train ...pooo pooo! 🚂 #winniethepouch #ostomate #colostomybag #ostomylife #ostomyinspo #ostomyawareness #colostomylife #ostomywarrior #ostomypouch #colostomyforlife #ostomycanada #ostomyvancouver
Another #deepwateraquafit class complete. For any #ostomates who are worried about #swimming just know it’ll be fine. Wear Brava strips around adhesive just in case for reassurance. For me after such a big #surgery 8.5 months ago the water is the best place to exercise and the water resistance helps my aches & pains. And I ❤️ 🏊‍♀️ #ostomylife #colostomylife #colostomy #ostomybag #ostomywarrior #colostomybag #lifeaftercancer #ostomyinspo #ostomyawareness #colostomyawareness #ostomycanada #ostomyvancouver #cancergrad #standuptocancer #su2c
Snö! 😳🙄 Det ger förstås lite jullängtan. Gyn-onken tror att gårdagens smärtor berodde på överansträngning, i kombo, med knipövningar och rehab med vaginalstaven. Bra att veta att man inte får överarbeta sin träning. 😂 ••••••••• #snow #christmassoon #mykidsart #kawaii #kawaiiart #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Monday moods; since I had to increase my #prednisone dose, I feel stiffer and weaker...my musclemass is wasting away even if my appetite and energy levels are up. I really hate this drug, feels like I'm putting poision imto my body. My yoga practice is hard and painfull, but I'm keeping at it. No quitting the game💪🏼 🍁🍁🍁🍁🍁🍁🍁🍁🍁 . . . . . #keepmoving #yoga #yogachallenge #moveyourbody #neverquit #letsgo #ibdsuperheroes #ostomyinspo #ibdwarrior #ileostomy #havefun #motivate #inspire #positivemind #fitover40 #yogapractice #yogajourney #spoonie
The two photos on the right were taken just 24 hours apart (2 1/2 weeks ago) and the one on the left is me today. Bruised all over from cannulas and blood tests and the shots they give you in your tummy to stop blood clots. I was 60kg going in and two weeks in there I came out 58kg so glad I didn’t lose too much as I was vomiting and off my food for a week. Im home nearly a week from hospital, not doing too bad. Ache all over, Still tired and catching up on my sleep, as we all know how little we get when we’re in there, from staff coming into you early for OBs or meds’, beeping of machines or awake in pain. Im on a 6 week course of pred, happy days 🤣🤣and ive hospital appointments up until mid December😒😒. I’ll be glad when this year is over as it’s been a rough one. But glad I had my parents and my partner there to hold my hand. Just hope the last two months of the year are a lot better and can end on a high note. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself #ostomyinspo
Ok ostomates, what is your Monday mood? Today starts a new week and a new fresh start. Stay positive don’t panic and get after it. #goanywheredoanything #ostomylife @stealthbelt #ostomy #ostomybag #ostomyawareness #ostomyblogger #ostomyinspo
Idag startade morgonen med att plocka fram morfintabletterna. 😢 Av någon anledning fick jag fruktansvärda smärtor i livmodern, mot tarmen och trodde att jag var tvungen att åka till akuten. Så sjukt skumt. Tack och lov hjälpte tabletten. Dessa bakslag triggar förstås rädslan på olika sätt: vad händer med kroppen, varför beter den sig så, men även att det tar en sån jäkla tid att bli någorlunda "frisk". Efter en gråtskvätt, fina mess från vänner och telefonsamtal känns det helt ok just nu. ❤ Eller var det hajen på magen som Axel har målat, som gnagde i mig? 😱😂🦈 @petraamalmberg @parmalmberg •••••••••••••••••••••••••••••••• #haj #sharkattack #kidsart #painintheassliterally #niceweather #lifeaftercancer #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Not my best night of sleep unfortunately. I’m often asked if I 💩 while sleeping 💤 and I’d usually say no. However last night was a 3x kinda night. I was woken up with cramp type pains and #winniethepouch was full. I’m really trying to eat clean & healthy but find I have more output when I do. Tricky world as an #ostomate I tell ya, but try to remind myself things have been worse so be grateful that this struggle isn’t as bad as before. #ostomylife #colostomybag #ostomyproblems #ostomywarrior #colostomyforlife #ostomyinspo #lifeaftercancer #ostomycanada #ostomyvancouver #leftmyeyelineron
#Repost @gutlessandwonderful with @get_repost ・・・ Well, what a week! I've been quiet online since my 'warm' bath on Sunday, I don't even know where the days have gone. I can report that our yard is green and our water tanks are full. It's been a blessing. So, here's a little #whatbag post with my Friday mate #pinotgrigio ... cheers to the weekend everyone! I hope you have a good one!! . . #fridayvibes #friyay #wine #happyfriday #weekend #ileostomy #surprise #baglife #crohns #stomalife #nocolonstillrollin #ootd #ostomyinspo #invisibledisease #myibd @ostomyinspo
Yes, it's snow! 🙄 Det är klart att mysfaktorn blir högre men det är ju bara slutet av oktober. 🤪 Och så kom bakslaget efter gårdagen och smärtan gör sig påmind. ☹ Nu blir det soffhäng resten av dagen. Joanna har gjort denna ⭐påse! @hardyhell #stomabaginthesnow #stomipåseisnön #snowbag #pouchinthesnow #painintheassliterally #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Yup. That’s a harness that moments later I was hanging upside down in. Yup, I wanted to cry. “Why did you agree to do this?” “Why do you insist on holding on to your old life/self?” “You have no business being in a harness anymore” “Just this last time/job, no more!” These are only a few of the thoughts that ran through my mind at rehearsals this week. The others were even less kind revolving around my weight/body/less than-ness. For better or worse for the next 6 or so weeks, me and this harness are going to have to become friends. Send re -enforcements please 🤩🤣 #chronicillnesswarrior #jpouchlife #girlswithguts #ostomyinspo #nocolonstillrollin #gutlesswarrior
#winniethepouch & I went to deep water aqua fit class this AM. No makeup, no good hair...just exercise. The pool helps with any pains I have especially from my massive hernias. Goal is to go 2x week and get fitness back in to my life. #carly2conquercancer #ostomate #ostomylife #colostomy #colostomybag #lifeaftercancer #ostomyawareness #ostomywarrior #ostomycanada #ostomyvancouver #ostomyinspo #ilookalittlecrazyhere
Naturespam😁😆😁😆Can't get enough of sceenery like this😍😍 To bad it's cold and rainy or I could hang out here all day😍 #sandvedparken #sandnes #aftenbladet #aftenbladethøst #hiking #havefun #outdoors #liveauthentic #ibdsuperheroes #ostomyinspo #moments #motivate #inspire #natureshots #watershots #getoutandexplore #
How's the weather in New York today? @newyork @visit_newyork @_visit_newyork @newyorkermag @empirestatebldg I am calling from north of Sweden and today, we even had some snow falling. 😁 l❤ N.Y. Kan det vara @jess_i_can___ som har skapat stomikonstverket? 😉 Vad vore mer passande än Alicia Keys "Empire State of Mind" som themesong för dagens stomikonst? 💖 #newyork #newyorkweather #empirestatebuilding #newyorkpouch #newyorkstomipåse #empirestatbuildingstomi #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Once we accept our limits we go beyond them _A.Einstein
On my way to gyn-onken. Det är så "roligt" som det låter. 🤦‍♀️ För att det inte ska bli sammanväxt i livmodern, måste jag rehabilitera med en vaginalstav och östrogen, 2-3 ggr/veckan i ca 2 år. Det är inget som pratas öppet om, så mycket om kring #cancerbaksmällan och vilka besvär som kommer av strålning och operation. Men nu vet ni. Livet efter cancern. 💪 ••• Edit: Rehab minst varannan dag... Även knipövningar flera gånger om dagen. 😬 I övrigt ingen sammanväxt. Pjuh på den liksom. 🙄 Edit 2: Gynekologen gillade stomipåsen. Är det Bodil @killerkiwis som har gjort dagens? #cancerbaksmällan #rehabilitering #uterus #liveteftercancer #lifeaftercancer #eftercancern #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Dagens outfit - pingviner av Tyra! 🐧 Och ett lass kommer lastat från Strängäsgänget! 💖 Toppen med påfyllning av stomikonst! 🙌 ••••••••••••••••••••••••••••••••••• #newstomabags #kidsart #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #stomiliv #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Bra start på dagen! 💪🙌 Jag kunde i lugn och ro gå till IKSU en stund. Det känns så otroligt viktigt att få långsamt hitta tillbaka till styrkan i kroppen. Inte för att jag har varit någon supertränad person sedan tidigare men att hitta tillbaka även till glädjen som kommer av ett pass. Jag känner mig "friskare" när jag får tillfälle att träna, även om det inte går så fort framåt. 🐢 Så här borde man få starta alla dagar. 😁 Det är en gissning att @jess_i_can___ eller @vonwalter har skapat dagens stomikonst. 😍😘😜 #träninggerpositivenergi #ostomy #ostomyart #ostomyinspo #pouch #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Mother & Daugther Sunday😍 Had a blast hanging out with my daugther, hiking and sightseen. The rain and fog did not spoil our day😆 Lot's of laughs and playing around☺️🍂🍁☘️🍃😍 #sunday #hiking #hikingadventures #sightseeing #moments #memories #motherdaughter #family #nature #naturelovers #outdoors #utno #havefun #liveauthentic #ibdsuperheroes #ostomyinspo
#Peekaboo ! ... Instagram .v. reality...I changed it up today and used one of my sample Sensura Mio's with the sneaky sun roof panel so that I could keep an eye on my stoma. Why? It's been sore 😧 I know it's odd to say that when I've previously gone on about how my stoma has no nerve endings - therefore no feeling. Well the last 24hrs I've been feeling pain and discomfort each time some output passes. Not sure why either. I've had nothing out of the ordinary. Maybe not enough water? My output has been a bit thick at times in the last day, but not to the point where I'm worried about a blockage. My stoma isn't overly swollen, it's still cherry pink, I'm still getting regular output. Although it does feel as though something is irritated, internally. The Mio is also a softer, less rigid convex pouch than my regular bag so I thought it might help with the pressure on the skin around my stoma (because I prefer convex to a flat plate bag). Tonight it still feels tender and uncomfortable... I'll see how it goes overnight and in the next few days. One thing is for sure, my stoma and tummy troubles alway keep me guessing!! (and this close *pinches fingers together* to Doctor Googling my way to a diagnosis 😉) Time to put my phone down I think. Night all! 💜💜 . . #stomalife #stomawise #ostomyinspo #nocolonstillrollin #invisibledisease #baglife #ileostomy #coloplast #stoma #upsettummy #crohnsdisease #crohns
Vädret är lika grått som Coloplast stomipåse. 😜 Likväl som mitt mentala tillstånd. 😬 Vart är energin? Och vem har gjort dagens motiv? Sofia @beergmark eller Bodil @killerkiwis gissar jag. 🙈 Väldigt passande idag med sol, bad och palmer att längta bort till. 🏝🏖 Efter gårdagens otroligt lugna dag jobbar vi på att färdigställa rummen efter renoveringen. Lite i taget börjar det sakta återgå till vårt hem igen. #postreconstruction #construction #livinginginchaos #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #fightcoloncancer #coloncancer #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
Chibi (förkortning av chibisuke = "lillen"), även super deformed, är ett japanskt fackuttryck som är vanligt inom manga eller anime. En figur som blir kallad "chibi" brukar vara liten, och både huvud och ögon är överdrivet stora. Från Wikipedia. Min äldsta dotter Li älskar detta och ritar dem ofta. 😍 More to come. 😉🤩 #chibi #manga #anime #ostomy #ostomyart #ostomyinspo #coloncancer #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
I hosted a show last night that I started producing a few years before my colectomy @noholdsbarredvariety . This was the first show back since Feb 2017 and since my additional three J pouch Redo surgeries. *********** I had this shirt made to wear for the evening because of all of you. Because even if many people in the audience didn’t know what this meant, some did and I DID. Wearing this was my dedicated to all of you. ********** For years after my initial surgeries and colectomy I did my best to hide my struggles. I was afraid of what people would think, if it would impact me getting hired for gigs, I was worried about all the judgements. ********* Finding you all and witnessing you bravely share yourselves, opened my heart and gave me the courage to join you in sharing myself too. I’m eternally grateful for that, the people I have connected with and the direction it has given my life. ********** So NO COLON STILL HOSTIN means despite my health not being where I hope it will some day, I’m still gonna get up and keep doing what I love as much as I can. ******* This time last year I was back in surgery and recover. So...if you are reading this from a hospital bed, I see you. If you are struggling with recovery at any stage and are feeling hopeless, I’m with you. If you are having a day when you also get to do what you love despite it all, I’m celebrating with you. #chronicillnesswarrior #jpouchlife #girlswithguts #nocolonstillrollin #ostomyinspo #ulcerativecolitiswarrior #ibdcantstopme #ibdwarrior
Such a lovely Autumn day spent with my wee godson Noah at the Park!! Cutest baby ever!! He loved the fresh air and the swings...🌳🌹🍃 #inflammatoryboweldisease #ulcerativecolitis #crohns #invisibleillness #chronicillness #illeostomy #ostomates #hospital #nhs #coloplast #stoma #healthisyourwealth #2stomas #nocolonstillrollin #style #fashion #blogger #outfitinspo #ostomyinspo xxx
Ett gött överkroppspass avklarat! 👊🏻 Energin o lyckan är på topp! 😁 Lyckan över att kroppen är helt fantastisk! Den har fått gå igenom 36 st strålbehandlingar, 6 st cellgiftsbehandlingar, 2 st öppen buk operationer, 2 st tarmoperationer.. o ändå återhämtar den sig gång på gång! 👊🏻😁💪🏻 #träningsglädje #kroppenärfantastisk #icaniwill #mittlivsomcancerpatient #ostomyinspo #stomi #kolostomi #urostomi #fuckcancer #fighter #minvägtillnyamål #krigsärr
Well, what a week! I've been quiet online since my 'warm' bath on Sunday, I don't even know where the days have gone. I can report that our yard is green and our water tanks are full. It's been a blessing. So, here's a little #whatbag post with my Friday mate #pinotgrigio ... cheers to the weekend everyone! I hope you have a good one!! . . #fridayvibes #friyay #wine #happyfriday #weekend #ileostomy #surprise #baglife #crohns #stomalife #nocolonstillrollin #ootd #ostomyinspo #invisibledisease #myibd @ostomyinspo
Två solar till dagens stomikonst! 🌞 Vilken skillnad det gör att få tanka D-vitamin under några minuter. 😎 Idag har jag varit på två inspirerande föreläsningar. Den ena om Communication across Cultures och den andra om Strenght-based positive Developement. 💪 #positivethinking #culturalcommunication #communication #ostomy #ostomyart #ostomyinspo #ostomyawareness #ostomybag #ostomylife #ileostomy #stomabag #stoma #stomabagoftheday #stomafashion #stomi #stomikonst #stomikonstverk #stomipåse #dagensstomipåse #attlevamedstomi #attlevamedcancer #rectalcancer #rektalcancer #fuckcancer #fightcancer
I’m a double-bagger. I have not one but two #ostomies . My ostomies were the result of my #cervicalcancer metastasizing. I can do everything you can do; I am not limited to anything and my only barriers are the ones I stick to my body. Please don’t judge me or anyone else with an #ostomy . Photo by @petelaceymusic #moresunnydays #bagbitchesrock #cervivor #cervivorlife #cancersucks #liveyourbestlife #iamcervivor #cervivorambassador #cervivorstrong #worldostomyday #colostomy #ostomyinspo #urostomy #stoma #behappy @ostomyinspo #mountainfeedandfarmsupply #endtheSTIgma #mysurvivalstory
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