Day 95 - Sunday 20th January 2018
Today Uncle Sam and Auntie Vicky same to see me. They haven’t seen me for a little while and thought I had grown loads!
The doctors told Mummy and Daddy that hopefully we will be moved this week to a hospital closer to home. Their was a few things that needed to be sorted out with my Trachie and care but the new hospital are happy to have me.
Mummy and Daddy changed my ties together and was complimented by the nurses how all 3 of us work well together. When mummy and daddy stay calm so do I.
My groin is still swollen so the doctor had a look, they said they think it just fluid and will go but want to check this week with an ultrasound to rule out it being a hernia #trachbaby #nicu #miraclebaby #milosworld #mystory #trachie #micropreemie #24weeker #premature #milogallop #milosworld #nicubaby
This showed up on my timehop today! Curse you Facebook 😭😭😭 Ten points if you can guess who this is! #nicubaby
Little Reese having a much better day today even though he may be back on lights tomorrow. #nicubaby
"Hi I found your organization after my 26 weeker was gifted a swaddle4swaddle through the sweet pea project. I had to get her a personalized one as well. It seems small but when your little one isn't able to even wear clothes this was the only way I could 'dress her up'. Eventually she was able to wear it as a swaddle and not just a crib sheet in her isolate. I wanted to share a photo of one of your beautiful swaddles being used in the hospital setting for us mommas who aren't able to have the beautifully staged newborn photos.
Thanks for making this product and giving back!
💕 Alissa" .
Sweet Isabell is in a custom variation of our swaddle pattern 💐 "Fall Bouquet". We hope Alissa's touching letter helps you on this Monday morning! 🤗 Thank you for making a difference by ordering with Audrey's Bear.
1 swaddle purchased = 1 swaddle donated to the NICU 🏥 or a pediatric cancer center
Sometimes you see an article posted about "possible" struggles preemies may face after the NICU. Then theirs 1 or 2 people who comment, "False! I know several people who had preemies with no issues!" Ok, 1.That's amazing! 2.The article says "possible". And 3.Not everyone is that lucky. Moral of the story, don't negate what someone else has or is going through, just because you didn't. Be kind, always.💜
My sweet Fiona Evangeline snoozing all warm and comfy in her bed on this freezing day. I visited her on my lunch hour. She seems very peaceful & is probably more comfortable now that the big CPAP mask is off. (She’s still on the CPAP, but a smaller canula in her nose). She’s still our 🌟and doing well and holding at 2 lbs 9 oz, which her RN said was normal because they don’t want them fattening up too quickly. Just look at all that dark hair ♥️♥️♥️♥️ #nicubaby #preemie #nicustrong #love
Do moms ever get holidays off?
My mom game is strong y’all. This #momtaxi
is leaving outta the station for basketball & cheer. What gets dropped off, must get picked up, right??? ...the fury continues. Beep beep 🚘
This is why my workouts get done earlier in the day. If I don’t, the twins & their sport schedules take over. Aye aye aye! Here’s to outsmarting the planner ladies!
Would you ever consider working out in the morning?
What a special day to celebrate 4 months with this cutie. •
As we sit and snuggle on our day off, I think about all the time Vaughn has left in his life to learn about love, peace, privilege, understanding, and equity. And I pray we, as parents, can teach it to him, gracefully.
VT is almost 15 lbs and loves to smile, kick, talk, and jump. He is so close to rolling over and laughing. Yay for 4 months!! ✌🏻💙👶🏼
Embarazada de 17 semanas de #superPol
. No tenía ni idea aún de lo que me venía encima. Los quilos, los años y el sufrimiento te marcan y hacen que ahora me vea muy diferente a la de esta foto. La mirada aún era despreocupada y libre. Sí, yo también era de las que pensaban que las cosas malas sólo le pasan a los demás. Y cómo estaba de equivocada.
Unos meses más tarde nuestra vida dio un vuelco para siempre. Llegó Pol, me convertí en madre, descubrí una mujer en mi muy diferente. Fuerte, luchadora, optimista. Y aunque fue durísmimo no cambio por nada todo lo que viví
#atresiadeesofago #nicubaby #premmie #prematurebaby #esophagealatresia #prematuros #prematuro
سلام بعد پنج سال اقدام به بارداری کردم درست سر یک ماه سقط شد ودوباره سر یک ماه باردار شدم رفتم سونو گفتن که دوقلو بارداری ولی باید بری هشت هفته کامل شد دوباره برا سونو بیای که مطمعن بشیم چون فقط ساک حاملگی تشکیل شده بود من باورم نشد گفتم چون ما دوقلو زایی نداریم سر هشت هفته رفتم بعد از سونو گفت که بله دوقلو باردارین و قلب هر دو بچه تشکیل شده نمیدونستم خوشحال باشم یا نه دکتر م گفت چون دو تا سقط داشتم ووزنم بالا بود خیلی باید مراقب باشم واستراحت کامل داد وگفت اگر نیاز باشه باید سر کلاژ بشم، که خدارو شگر تونستم تا ۳۰ هفته خوب پیش برم درست سی هفتم بود دل وکمرم شدید در گرفت رفتم دکتر بعد معاینه گفت احتمال داره زایمان زودرس داشته باشی من استرس گرفتم دوباره گفت خیلی مراقب باش من سر سی ودوهفته دردم بدتر شد دکترم گفت باید سریع بستری بشی وقت زایمانته وبعداز یک با هر طریقی شده واشنا پیدا کردن تو بیمارستان بستری شدم وساعت یک ربع به دو ظهر پسرم با وزن ۲کیاو ودخترم با وزن ۱۹۸۰ به دنیا اومدن من رفتم ریکاوری و بعد به خاطر بالا بودن قندم ای سی یو وبچه ها دستگاه پنج روز دخترم بستری شد ۱۵ روز پسرم، من در کل این ۱۵ روز مثل دیوانه ها بودم چون واقعا حال پسرم بد بود ولی خدارو شکر الان هر دو بهترن دخترم با وزن ۱۳ کیلو وپسرم با وزن ۱۱ کیلو ۲۰ماهشونه.
#نارس #نوزادنارس #زایمان #نوزاد #زایمان_زودرس #نوزاد_زودرس #بیمارستان #معجزه #امید #earlybaby #baby #nicu #nicubaby #hospital
How things change in a matter of seconds in our life.... Christi is doing better keep you’re kids bundled up it’s the 🤒 season
Day 89 Friday July 24, 2015
We are starting to get a bit anxious. Could she be coming home tomorrow? We are keeping our fingers crossed [and making sure she takes all of her feeds so she’ll gain weight ;)] Doctors are so proud of her progress and so are we! They took her oxygen saturation probe off (the ET light), so now she only has 3 leads which tell us her heart rate and respiratory rate.
Aubrey’s primary nurse, Melissa, was back tonight, which we couldn’t be more happy about. I don’t believe we’ve talked much about primary nurses- its when we, or the nurse, chooses to be with Aubrey every time they work. Melissa has been our night time primary and John when she isn’t there. Her primary nurses followed her from level 3 to level 2, they know her struggle, and just how far along she’s come, so they share our excitement and joy that the journey is close to an end. This was especially exciting tonight as we anxiously weighed Aubrey. While we’ve always liked weigh in time- this time was different. This weigh in will determine whether she comes home tomorrow, or whether we will have to start over with our 48 hours of weight gain. As we all held our breath Melissa put Aubrey on the scale and…
She gained weight! It was only about 15 grams, but a gain is a gain! We are going home tomorrow!!!! #excited #nicubaby #sleepingbaby
Day 86 Tuesday July 21, 2015
Weight: 4 lbs 12.29 oz
This morning came the greatest surprise! Because she has taken 6 bottles completely, the doctor said she is pulling her feeding tube and is increasing her to 8 out of 8 bottles! She said that if things go smoothly, she could possibly be discharged by the weekend!! I can’t tell you how stunned, frightened, and elated I was in that moment!
Being without a feeding tube means that her vitamins that she gets twice a day, and her MCT oil that she gets with every feed will have to be mixed into her bottle, which we know she doesn’t like, but we are hopeful that she’ll will get use to the taste and won’t have a problem with it.
Before being discharged there are several things that have to be completed first, one of which is an MRI of her brain. Preemies usually under the gestation age of 30 weeks at birth automatically qualify to receive an MRI prior to discharge. It is to check the areas of the brain which may have been deprived of oxygen, to help identify if there may be developmental issues later in life, or to identify issues related to brain bleeds. Here is a picture of Aubrey being wheeled back to her MRI.. #mri #babymri #nicu #nicubaby #preemie
Idag har tjejerna varit en stund på förskolan. Imorgon är det dags ”på riktigt” då jag börjar jobba. Känns som en del av livet tar slut nu och som om en ny del börjar!
Tycker det är svårt att få bra bilder nu, även om det inte är mörkt så är det ett konstigt ljus - så svårt att redigera! Men se hur snygga leokläder som tjejerna har fått hem i samarbete med @revedealina.
Tjejernas hårband, Ellas t-shirt och Inez leggings är därifrån ❥
Day 70 Sunday July 05, 2015
Weight: 3 lbs 9.84 oz
Aubrey had a very rough morning. Her nurse, John, had to do a blow by, which is similar to bagging, but let intense, to give her an oxygen boost. It seems as if her reflux has worsened. She had a big day with her feeds being given over less time and with her bed laying flat as opposed to elevated, and possibly withdrawing from caffeine, so it isn’t too clear what is the cause of the increase of reflux but it is definitely effecting not only her breathing but she also is very reluctant to take her bottles. She didn’t take much at all of her first bottle, maybe 2ML, and only took 6ML for the afternoon bottle. Doctor Freys decided to put her back at two hour feeds and to elevate her bed, but only during feeds. It is very difficult to see her in pain and to hear the reflux in the back of her nose and throat when she’s trying to breath, but I know this is just one more hurdle she has to grow out of – its a preemie thing.
You may have noticed the mark on Aubrey’s forehead that looks bruise like. It is a scar from an IV infiltrate.This is where the IV catheter slides out of the vein and IV fluid is then infused into the tissues instead of the vein. Aubrey, like any preemie, has very small veins and finding a viable one was found to be a difficult task on many occasions. We hope that it will heal over time and as she grows it will become smaller and less noticeable, but we consider ourselves lucky that this is the only preemie scar we’ve sustained up to this point! #nicu #nicubaby #miracle #miraclebaby
I can FINALLY tell you all my amazingly great news
On Thursday night I became an aunt again to this tiny little fighter. He had a rough start that scared us all but he has made a miraculous recovery over the last few days
He has the cutest little face, 10 perfect fingers, 10 long adorable toes, and the same eyes my whole family has
I’m totally in love with this little boy
I also appreciate all of your prayers and kind words even when you didn’t know what was going on. You are all so amazing and supportive. 😍😍 #auntlifeisthebestlife #nephew #nicubaby #littlebaby #littlefighter #liveagoodlife #mommyblogger
This right here is one of the amazing baby doctors that pulled our little Hunter through is first few hurdles in life, Dr Deena Patel at Chelsea and Westminster Hospital! Hunter had his first developmental apt today and it made us realize just how far he’s come in 16 (short) weeks!
1.96kg ➡️ 4.73kg
43cm ➡️ 57cm
Big blue eyes that watch our every move
Mornings filled with smiles and giggles
Bins full of nappies
Washing baskets full of tiny socks
And hearts full of happiness
A million thank yous to all the doctors, NICU nurses and midwives at C&W @chelwestft
who helped grow our #32weeker
into the little bruiser he is today!
#chelseaandwestminsterhospital #cwhospital #preemiebaby #preemie #rainbowbaby #pcospregnancy #nicubaby #nhs
Day 62 Saturday June 27, 2015
Weight: 3lbs 2.79 oz
Aubrey is 2 months old today!
Doctor Freys said Aubrey is doing very well and we should be proud of her. Tomorrow is going to be a big day for her so they aren’t going to make any changes today, just let her rest. Tomorrow they are going to change her feeds from continuous feeds to feeding over a two hour period and having one hour without (bolus feeding). This will allow her to start feeling the hungry sensation and promote bottle/breastfeeding. We may attempt this on Monday. #2monthsold #nicubaby #nicu
Day 32 Thursday May 28, 2015
Weight: 2 lbs 5.03 oz
Baby girl has had quite a few Brady’s this morning. They took a complete blood count and an X-ray which showed that she had fluid in her lungs (most likely caused by her PDA) which could be causing the difficulty in breathing. They are going to give her diuretics, one through an IV (one that is still existing -thankfully) and two others through her OG tube in her mouth. This will try the fluid in her lungs and may help with the PDA.
After lunch They had gotten the results from the blood work taken this morning. There was a sign on the door that read CAUTION and a new box next to her room which contained gowns, masks, gloves, and more. I’m not sure if I was in shock and couldn’t comprehend much in that moment or the nurse didn’t explain it very well, but I asked the nurse to please call the doctor in. Doctor Tidwell came in and explained that the results showed that Aubrey has mature white blood cells, but no baby white blood cells, meaning her body is not producing them. She said this could be a side effect of one of the medications she was on, which is now discontinued, but because she is not producing any white blood cells she has a heightened potential to catch infections or germs, and not be able to fight it off. Every person that enters the room must dress fully in a gown, mask, and gloves to protect her from any germs and infection. Doctor Tidwell said that if she shows any symptom of illness every NICU doctor has been order to immediately begin antibiotics. They have ordered another CBC late tonight and in the morning to monitor the blood count levels. #pda #nicu #nicubaby
Excuse me while I just fall in love... #preemie
Once in Miami it was determined that I had respiratory failure due to meconium aspiration and pulmonary hypertension. I was placed on ECMO(a heart/lung bypass machine)shortly after my arrival to Nicklaus Children’s Hospital. The ECMO machine gave my heart and lungs a chance to heal and get stronger while it did all the work for me. My mom was scared when she came in the room and saw all the machines and medications keeping me alive, but she never left my side. #warriorbaby #ECMObaby #ECMOsurvivor #teamkaylie #kaylierenee #nicubaby #niculife