#mylifewithfibromyalgia

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*Warning Rant ahead* I am feeling very frustrated and I am just so tired. I watched my nephew for a few hours today and my brother wants me to do it again tomorrow. They are going to need him watched 4 times a week for months. I told him if I'm going to be his go to babysitter then he will have to pay me a small fee for my time. He was a jerk about it. He thinks just because I don't work that means that my life is unimportant. Just because I don't work that means that I don't do anything in life. Well I am waging a war every day. It takes everything I have just to get up in the morning and I know this extra will make my life and health harder but I shouldn't be paid for that. It would be one thing if they were barely making it but they throw away money everyday and yet I shouldn't be paid for my time and energy that I use to watch his kid. I just want to scream at him. He wants to use me. I wish I could show him for just one day what I go through on the daily. Screw him and his closed minded attitude. I will not be used and I don't care if he disagrees with that. This is my life and I will use it the way I need to. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
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I had to wake up early to babysit my 4 yr old nephew. I found out last minute last night so I didn't have time to wake up early the day before so I could go to sleep early last night so I only laid in bed for about 3 hours and hot about 4 hours of sleep so that was fun. I am completely exhausted. She also gave him sugar before she left him in my care so he was bouncing off the walls. I may have to institute a no sugar before I babysit rule lol #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
With chronic illness you not only have the mental pain to deal with but also the physical pain. And it sucks that sometimes people don't respect how strong we are and it feels like we can't talk about what we are feeling or share our struggles because people don't understand. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
People need to understand this. My sister my mom and I all have fibro and even though we are related our Fibromyalgia is each very different. So just because someone you know has fibro and lives a certain way doesn't mean that everybody with Fibro can live the same way. We are living our best life's the only way we know how. Respect that. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Today is a particularly tough day for me. I'm not sure why. I am in so much pain. I could barely walk back from the bathroom because I had random shooting pain in my knee and ankle. Literally every step brought me to tear. And now I'm laying in bed literally where I fell and am scared to move for fear of more pain. I am breathing deep and trying not to lose it and have an emotional breakdown but it is tough today let me tell you. I'm not here to complain or seeking attention, I just thought I'd share my hard days in hopes that it helps someone know they aren't alone. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
I try to look at life this way but it gets so hard sometimes. I want to see the beauty in life but sometimes it is one of the toughest parts of my day. But I will continue to trudge through the dark to have the light. That's my lot in life but I am a fighter and I will survive. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Today is a rough day. Everything hurts. Every movement makes me cringe. I have a headache and my ibs is acting up. Honestly I am a total mess and I just want yo curl into a ball and cry for a few hours...or days but I'll get through it I know I will. I just thought I'd share so if you're having a rough time you're not alone and you will get through it too. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
I hate that there's so much judgment for people with Chronic illness. They have no idea of the battle that goes on everyday inside us about what we're capable of. I did a lot yesterday after Friday being such a bad day for me. I did regret it later though. I way over did. Lol Do you ever get judgement like this? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Here is some of my happiness. I don't have a lot of things that you're supposed to have. In terms of husband or kids. My life just hasn't taken me there yet. But I try not to focus on what I don't have but instead focus on what I do have. I am generally a pretty bright side person which can be kind of hard with the life I live with my Illnesses. Today I woke up and these darlings both wanted attention and that just made me so happy. Sometimes it's the little things and just taking the time to experience them and remember that happiness is everywhere you just have to take the time and find it. What is something in your life that makes you feel genuinely happy and blessed? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Yesterday was definitely a bad day for me. Everything was a fight for me. Before I went to bed I needed to go get some water and just the thought of it made me wanna cry. It just seemed like too much. I did it though. It may seem like such a small thing but for me being in the bad place I was in it was huge. Sometimes it's the small stuff that means the most. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
This is how I feel today. I literally feel like I'm falling apart and can't keep it together. I am on the verge of tears and in serious pain. I could barely sleep last night because I was in so much pain. I just feel done with life today. How are you guys doing today? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Right now I have a random pain in my foot to the point I can barely walk on it...I'm not sure why or what caused it. It could go away in a few mins or a few hours or even a few days...it's too soon to tell. I love this game of pain roulette I play on a daily basis. It's so fun. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Acceptance is not weakness. Admitting my hardships and accepting them for the most part is a form of strength. I know how hard life if for me all the time so when I am able to accomplish something it's huge. I try my best to be positive about my situation but that doesn't mean pretending I'm not ill, it means accepting it and still making the best even through hardship. Don't let anyone steal your sunshine. Only you know what your capable of and what you're not. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
I wish I could make healthy people understand the privilege they have by not being sick everyday. They think we are lucky when we can't work but we also miss out on so much because we can't physically do everything we want to. I hate being left out but I have to be because I'm disabled. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
I try to look on the bright side of things as often as I can. I try to focus on the good things like my neices and nephews. They make me smile on a daily basis. Also I read a lot and I love it and I love to write so I try to do that when I'm feeling ok. What do you do to help make you happy when you are having a bad day? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
Bodybuilding against cancer... Een evenement wat vandaag plaatsvindt in @sport_arena_eindhoven !! Swipe to see de flyer! Jij kan hier bij zijn! Entree? Een donatie!!! Ik ben er!!! Mede om te doneren (je kunt ook doneren door geld over te maken!!) én wie wil er nu niet een poseerles van @musclesandmuffins en @anke.ermers ?? Ik dus écht wel 😍🤩 Oooooo by the way...mijn post gelezen gisteren?? Werkelijk ik heb mega spierpijn in mijn buik van het lachen!! Ik zal je zeggen dat letterlijk de tranen over mijn wangen rolden..maar binnenkort daar meer over in een blog 😁 #bodybuilding #goeddoelactie #fitfamnl #microinfluencer #bikinifitness #donatie #poseerles #fitness #weightlifting #journeytofit #health #dutch #dutchblogger #dutchfitness #fitnessandhealth #journeytofit #mylife #willpower #mindset #guestblogger #fitnessandfibromyalgia #fitwithfibromyalgia #mylifewithfibromyalgia #myway #fibrofighter #fibrowarrior #inspiration #motivation
I was this hermit yesterday. My head's a little better today. But now I think I might have a cold. It's been coming on for a few days but I thought it was allergies. I think that's what caused the headache. I think my body was aware of it before my mind had caught up lol Chronic illnesses are so fun. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior #butyoudontlooksick #spoonies_united #exhausted #exhaustion #fatigue #pain
That's the problem with chronic illnesses they seem to keep getting worse. It's to the point that sometimes when someone asks how I'm doing that I just say fine because I don't know what else to say. I can't always say ok just tired which is my usual reply, cuz I'm tired all the time these days. Do you ever just tell people around you what they want to hear because your tired of the pat answer you usually give but and you know that's still the only way you know how describe your current state? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
I have to agree sometimes lol my current pcp is a moron and apparently anything that I've ever been told by any other doctor ever is wrong and he is totally right. At least that's what he told me when he disagreed with what I said from other doctors. Have you ever had an experience like this with a doctor? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior  #doctors #medical
This is a blog I posted a bit ago. I had a doctor who didn't listen to me at all and it really annoyed me so I wrote this letter to doctors. Here's the link. https://booklver88.wordpress.com/2018/06/29/a-note-to-doctors-from-a-chronically-ill-patient/ #fibro #fibromyalgia #doctors #health #medical #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
I think I like the dark lip on me. I think it totally matches the dead look I have going on with my pale skin and horrible dark circles that are totally natural by the way. All you have to do is start collecting Chronic Illnesses like moi lol #lookingonthebrightside #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
Unfortantely that's how it goes sometimes. The thing people don't seem to understand is that we can sometimes push ourselves but we usually regret it a lot the next day and sometimes for multiple days after. So we have to weigh whether it's worth the risk of worse days to come. It's all hard choices. Do you feel that way at times? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
I didn't cause my illnesses. I like to believe I was chosen for this life because I'm strong enough to handle it most days. This is the hand I was dealt and I do y best to live my life the only way I know how. Never be ashamed of the things you can't control just live your best life. #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
Sometimes I wish it was possible for someone to experience my life for even a day. Just so they could understand how tough my life really is. I think I handle myself the best way I can and I try not to let the judgement of others affect my life but I still find myself wanting to defend myself and my life choices. It sucks and I really hate that I feel that way. Do you guys still find yourself feeling that way? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
I had the worst bout of insomnia than I've had in a long time. Because I have a hard time sleeping I take an over the counter sleeping med that really helps me sleep better. But last night I laid in bed for over 7 hours off and on without even a doze to show for it. So I am extra exhausted today. Does insomnia hit you hard? What do you do to help combat it? #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior  #insomnia
Sometimes you forget how lucky you really are. I look around and see others my age....with kids, their own place married, good job etc and think I've got nothing and am a complete diaster as is my life. Then today my partner offers to come over and cook a roast for my parents and me, and it means so much to us as well. #grateful #lucky #SundayRoast #RoastChicken #fibromyalgia #MyLifeWithFibromyalgia
That's so true. Unfortantely even though a lot of people around us don't understand, we have to live our lives the best way we can. Take time for yourself and don't let anyone else tell you you're doing it wrong. You know your Illness you live with it. Do what you have to to get through each day. You've got this. #staystrong #yourearockstar #youreawarrior #fibro #fibromyalgia #hypothyroidism #diabetes #spoons #spoonies #spoonielife #spoonieproblems  #chronicpain #chronicillness   #mylifewithfibromyalgia #myfibrolife #fibro #flaringup #flaring #migraines #butyoudontlooksick #chronicillnesswarrior #invisibleillness #spooniestrong #chronicpainwarrior #fibroflare #fibrowarrior #chronicallyill #invisibleillness #migraine #chronicillnesswarrior #chronicpainwarrior
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