#myastheniagravis

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Thank you to @doodootube for saving Boy from my stench! Check out their stinkin’ cool nose saver !!!🤭💨 • • • #stinky #stinkydog #dog #dogwalk #dogwalker #digsofinstagram #puppy #bandana #blue #smiles #sun #fall #grass #garden #megaesophagus #myastheniagravis #aboyandhisdog
because togetherness does not prevent us from always fighting against Myasthenia Gravis ... remember God is always with us😇 "always include Allah in your every step, then Allah will help you in all your affairs"-amanda- #myastheniagravis #myastheniagraviswarrior #myastheniagravisindonesia Fighting😎
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#TransformationTuesday 🗣I am not nearly where I want to be physically...but I am not where I was a few months ago! The wheelchair in the back is my motivation; I don’t ever want to be confined to one again😢 By the way... I didn’t “bop it down” a notch😜 #NewLevel 💪🏽 #KeepPushing #TheComeBack • “Fear not, for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand.’” ‭‭Isaiah‬ ‭41:10‬ ‭NKJV‬‬
My beautiful Grecian Princess is at it again! @legsandsmiles Shelena is wearing by ice Blue Grecian dress , did I say wearing? I meant killing them cause the Slayage is real! ASC NYFW 2018. Photographer TBA Brevity Team : ASC Dress by me @nanalolacouture #upandcomingdesigner #dontsleep #myastheniagravis #voguemagazine #watchme #blackgirlmagic #blackrunwaymodel #rarediseases #metropolitanpavilion
Saying hello to an old friend who make a miraculous recovery years ago #pictureaday #whoremembersher #nutmeg #oldfriend #myastheniagravis #intensivecare #vetlife #sept18 #dogsofinstagram
A lot of ppl downplay yoga but I find it super challenging. You’d think sitting is easy but simple poses highlight where there’s work to be done. I can’t wait for the day I won’t need to use the blocks for support and my knees are closer to the ground. 🧘🏾‍♀️🧘🏾‍♀️🧡⠀ ⠀ Do you do yoga? How’d you learn via apps or taking classes or just figuring it out on your own? Any tips for a newbie? ⠀ ⠀ #iswaswillbe #iswaswillbeblog #autoimmunedisease #autoimmunediseaseawareness #haveyouheardofmg #myastheniagravis #livingwithmg #musclefatiguesyndrome #chronicmusclefatigue #chronicillness #chronicallyill #invisibleillness #spoonies #migraines #lupus #crohnsdisease #endometriosis #psoriasis #trynewthings #yoganewbie
Blurry photo but definitely not from the speed of running 😂 15x200m with jog recovery today #myastheniagravis #myaware #earlymorningworkout
Down Dog, Downward Facing Dog, or Adho Mukha Svanasana, are all names of one of vinyasa yoga's most fundamental poses. Please check out this week's #modificationmonday and post your own Down Dogs with #soulstrongpose . ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🐕Down Dog w/Knees Bent -never be afraid to bend your knees! -shift the hips high & press through the palms to your down dog -then walk the feet a little wider on the mat, bend the knees & see if you can become a little longer through the spine -this will help if you find yourself rounding through the shoulder & upper back instead of elongating in your down dog. length & strength, baby! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🐕Down Dog w/Blocks & a Strap -you don't HAVE to use both of these, you can always use one -soft blocks under the wrists can take some of the pressure off of the wrists by bringing the ground closer to you -spread the palms wide & engage to press the hips high -bringing the floor closer helps you elongate the spine -the strap wrapped just above the elbows can help you feel what it's like to engage through the arms & upper back ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🐕Down Dog @ the Wall -helpful in keeping all pressure off the wrists & shoulders -find a plank at the wall, planting the palms -then walk feet back until you find a 90' angle, hinging at the hips to find a long, flat back -engage your core & gaze slightly towards your navel ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🐕Down Dog w/a Chair -clasp the chair in a spot that feels secure -when you begin to walk your feet back, make sure this clasp allows you to find a long spine -mimic down dog by hinging at the hips & pressing the chair away from you to bring your hips high ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #soulstrongyoga #soulstrongpose #breatheinthemoment #spoonieyoga #spooniewarrior #yogaforall #roundrocktx #myastheniagravis #spoonieyogatribe #chronicillnesswarrior #accessibleyoga #chairyoga
Not the most exciting way to spend my morning but at the least the view is 👌👌#immunoglobulin Thanks blood donors for this precious gift 😘#Epworth #donateblood #neuromusculardisease #myastheniagravis #opprep
Yr mot ansiktet, vind i håret, gledestårer langs kinnene, tomme gater i natten og følelsen av endorfiner som gjør hele kroppen levende. 4,5 minutt med jogging i strekk ute å hverken spy eller bli lam kan få kroppen til å føle nettopp det. Gleden av å mestre, det er en god følelse når ting ikke har gått på skinner på en stund. Jeg blir kanskje aldri den samme, men jeg nyter virkelig de små seierne i livet. 🙏🏼 #MGwontstopme
Thank you @myastheniaorg for sharing my story, I’ve come a long way and i will keep climbing, reaching and loving xx 😬💜 #autoimmunedisease #myastheniagravis #warriors #reachingout 🦋🦋🦋🦋
1st Sprint in years... . Was moping around feeling a bit sorry for myself on Saturday afternoon before deciding to get out and do some sprints randomly. . I really enjoyed it! It’s difficult to explain how we take things for granted and to be able to run flat out again is an unreal experience. Something so simple. . My legs haven’t been this stiff since my old boys hockey match in 2016. Just like then, it was well worth it. I’m sure it will take me less than 2 weeks to recover from this one luckily 😉 . #meds #free #gravesdisease #thyroidproblems #autoimmunedisease #hyperactive #thyroid #faith #patience #longterm #success #myastheniagravis #myasthenia #autoimmune #hospital #nutrition #healthylifestyle #run #sprint #recovery #100m
Hi my name is Sharmayne from Birmingham UK and I’m 37 years old. I was diagnosed with Myasthenia Gravis on March 26th, 2017. I am a professional dancer & teacher of the Arts and prior to my diagnosis I ran a performing arts school but under the circumstances can no longer deliver practical activities. After battling 10 months before being diagnosed I experienced severe symptoms such as, double vision, loss of balance to the point of falling over, and difficulty with breathing, not being able to swallow or chew and project my vocals. It’s like my body turned into a 200 year old women in 0.5 seconds. I was put straight onto medication, IVIG and steroid treatment I was admitted into the hospital for two weeks after experiencing a “crisis.” During this healing period, I am also doing what I can to ease the disease through alternative methods and understanding how my body is trying to work now. My life has changed forever, Maybe in some ways for the better. We all reach a point in our lives where we just need to STOP. Myasthenia Gravis has most certainly taught me how to appreciate every waking breathe. During the recovery period I have been researching and trying out changes in my diet such as, juicing, wheat free, organic foods and vegetables but still living a life at balance and allowing myself treats. Coming from an energetic background of weight training, jogging and dance I have had to look into alternative methods of training, Hatha yoga, gentle swimming and nature walks. Hatha Yoga for me makes me feel alive, it relieves the tightness and weakness I experience around my neck, it allows me to feel strong and helps with days of stress and anxiety. I have come a long way since March 2018 taking more steps forwards but I understand I still have a long road. I am ready for the challenge and learning and growing through this experience every day. Reaching out and connecting with all of you, is a priority to me. We are not alone we can beat this together. #MGStrong #MyastheniaGravis #MGMotivationMonday #Chronicillness #balance #workoutroutine #yoga #positivethinking #stayactive #MotivationMonday
THIS SATURDAY!!! Please join me in walking for a cure! There is still time to join my walk team and/or make a donation! Check out my bio for more info! Swipe ⬅️ to learn more about Myasthenia Gravis (MG). #FindACure #MyastheniaGravis #ComeWalkWithMe #WalkForACure #WalkForMe #Repost #MGcantStopMe #GodIsGreater #IssaSwipe #Resilient #ToughCookie
Quem vê nem imagina os "perrengues" que passa pra ir trabalhar, pra correr atrás das coisas.. Tenho diagnóstico de #miasteniagravis a quase 6 anos... Nesses 6 anos aprendi muito, mas vou mentir se não dizer que SOFRI muito mais... É sofrido, o preconceito é sofrido, as pessoas dizerem que vc está estranha, pq não sorri? O que foi com seu olho? Td é sofrido.. Mas também tem seus dias bons, vc aprende a valorizar os dias bons melhor que qualquer um, pq a miastenia ela vai e volta então vc sabe como é viver o céu e o inferno em menos de um dia às vezes... O que eu digo e posso PRESCREVER pra você é só NÃO DESISTA... Quando alcançamos algo, n é só uma vitória, é considerado uma vitória tripla no meio das adversidades da vida que já não é fácil... Pra quem não sabe tenho minha própria empresa (Abri a 1 ano) sigam meu trabalho @emporiovaidade Meu insta @mailagabryella #miastenia #myastheniagravis #myasthenia #neurologia #neuromuscular #neurologista #medico #medicina #neuro #paralisia #smile #sorriso #setembro #setembroamarelo
Latest upload on my YouTube channel YouTube.com/pamsworld #dallasshooting #groceryhaul #youtuber #myastheniagravis https://youtu.be/610FV2zAdP0
Myasthenia Gravis girls and guys progress can be incredibly slow sometimes! One of the things that has helped me is making myself move everyday, some days I genuinely feel exhausted/fatigued but I will still do some light yoga/stretching to keep my muscles moving stretching and growing. I was in previous year told that that would make my mg worse, but 10 years in and I’m proof that’s not always the case. I genuinely wish that all mg sufferers can find a place of fitness and strength that lets them live the life they want to! #tonedbyashybines #myastheniagravis #cronicfatigue #progress #fitness #gym
This has been one of the hardest thing I’ve actually had to deal with during the 10 years I’ve had Myasthenia Gravis. People have a hard time accepting things when they can’t see them. Not that I’m complaining one of the best thing is the fact that I still look healthy and well. However there have been many time when I’m incredibly fatigued and unable to do or perform a specific task or job and people would judge me when I ask for help or need a longer break than others, and it was incredibly frustrating and depressing for me. I genuinely felt like I had to prove to them I was sick. And I should (and anyone else with an inviable illness) NEVER have to prove how sick we are! It has trained me to have tougher skin and not to let people’s judgment bother me especially when they are uneducated in my illness. #myastheniagravis #cronicfatigue #understanding #accepting #fatigue #truth
6 week’s since my #gallbladdereviction and I’m finally feeling ok enough to get moving. Just a short easy treadmill walk today to see how my body responded. I’ll try again tomorrow! #takingcareofmama #autoimmunewarrior #myastheniagravis #hashimotos #bamr
Prepping your meals makes it easier to eat healthy and stay on track.... post workout meal one rye toast with turkey egg and one tablespoon of guacamole. #healthylifestyle #myastheniagravis #fitmuslimah #postworkoutmeal
Progress is little positive steps... 9th June Parkrun was 5km in 23:06 and feeling cooked. 17th September 5km easy run in 23:05 at 5:00am today. Getting there...slowly. #myastheniagravis #running #myaware #parkrun
One of my favorite artists and friend, @purevile , made me a bunch of incredible eyepatches and I'm absolutely in love with them! If you don't know Wren or his work, you're severely missing out!
A MIASTENIA NÃO VAI PARAR NINGUÉM! Parabéns @jacksonsantos013 @saraprainha @escolariviera toda a equipe, e parabéns guerreiro Assis! Estamos juntos nessa luta!❤️🙏🏻🌊💪🏻 Teremos muitas sessões pela frente! @endmuscledisease #Repost @escolariviera (@get_repost ) ・・・ Hoje teve aula de surf adaptado com nosso brother Assis César ! A ESR atua há 20 anos com surf adaptado, oferecendo suporte de profissionais que garantem diversão com segurança, hoje o responsável foi o coach ESR @jaksonsantos013 com apoio do estagiário José Augusto da EEFEU #surfadaptado #20anos #surfparatodos #escoladesurfdariviera #escolaripcurlriviera #miasteniagravis #myastheniagravis #mgcantstopus
Not everything is #blackandwhite Happy belated #aniversary #2yearanniversary #2years to the one #diagnosis that completely changed my entire life #myastheniagravis . In both #positive and #negative ways #september15 #2016 I heard 2 words I had only heard once before in the hospital when I was being monitored for brain tumor cause no one could explain my months of nonstop double vision, migraines, and droopy eyelid. I got out the hospital and days later was diagnosed by my PCP. Who then referred me to a Neuro who I had already seen at the hospital and days later he confirmed the diagnosis with his own tests results. He spoke to me very frank but with compassion. Saying this was a VERY #raredisease and it could have been just this one time thing or it could get worst only time would tell.... I miss my Nuero, sadly he has moved to another state now, I mean I see a great team now too, and mainly thanks to him, but this man went above and beyond and NEVER played when it came to my well being. #doctorsthatcare #myastheniagravissucks #myastheniagraviswontstopme #myastheniagraviswarrior #myastheniagravis #mybodyistired #mgcantstopus #prednisonesucks #anxietysucks #willkeepfighting #stillpushing #strongereveryday #stillfighting #strongerbytheday #stillprocessing #learningprocess
Just a repost pic from 2016. Really geared towards my MG friends. Especially those who maintain a level of activity. I have had a few periods since being diagnosed with Myasthenia Gravis that required me to stop lifting. Never did I notice any amount of atrophy. However I stopped lifting 5 weeks ago prior to a surgery 3 weeks ago. The amount of atrophy in my arms and legs is ridiculous this time. Example before surgery most my 2 x shirts had tight arms now my xl are loose. There is no way I would wear shorts right now with the amount of loss in my legs. Anyone have knowledge of studies correlating the association of atrophy with stopped physical activity in MG patients? I am curious also if the affect aging has on this being a few months off of 53. Also there was a 4 week period of being off TRT. This again in the past had no affect. #myastheniagravis #myastheniagravisawareness #myastheniagraviswarrior #myastheniagraviswontstopme #mgcantstopme #musclemovementfoundation @bd078912
For my RA and MG friends or even those with osteoarthritis, these resistance loops are seriously the bomb! They are a great way to get one heck of a leg/butt workout in, even when your knees are ankles are swollen/painful. I have trouble with free weights and typical squats at times so I needed an alternative to not skip leg day. Also, they can be used for tricep/bicep and back exercises if you aren’t quite up to using weights yet. They are used often in 80 day obsession and there’s even free workout videos you can find on YouTube. Ive found them to be very easy on the joints. Not a bad deal for 10 bucks! Don’t be afraid to start somewhere! . . . .#rheumatoidarthritiswarrior #myastheniagravis #autoimmunediseasewarrior #spooniestrong #spoonies #80dayobsession #resistancebandsworkout #resistanceloops #resistanceloopsarenojoke #resistanceloopbands
Been sent to face the naughty wall 😋... 👼🏻I don’t mind throwing myself up into a handstand in the middle of a room but get me to walk backwards up a wall and I shit myself.. weird... panics now over, i have overcome the fear that my arms can’t hold me this way. I am slaying this muscle and autoimmune disease lark💪🏻💪🏻 #train #gymnastics #findingmyself #line #linedrills #gst #gymsession #gym #sohogymwaterloo #sohogyms #london #myastheniagravis #lupus #arthritis #myosotis #snowflake #fear #overcome #health #life #live #laugh #love #fitness #handstand #practice #yoga #upsidedown
Sunday Routines: . My chosen Sunday routine is getting a coffee after church and then heading to the gym. . That’s what I like to do. . Perfect Sunday morning or what? . @just_botha and @trent_lucas09 used to join, but this life isn’t for everyone. That’s why it’s my life and my choice. . #sunday #morning #routine #church #coffee #gym #life #mylife #mychoice #bliss
New upload...HOW MANY PEOPLE DO IT TAKE?!?! YouTube.com/pamsworld https://youtu.be/h8oLcaff04c #myastheniagravis #autoimmunedisease #chronicillness #ivig #Youtuber
This week and last week's columns! Things have been bad, busy and brilliant all in one. With every hurdle I just realise how thankful I am to be alive. Conquer this week! You're a queen/king👑 #myastheniagravis
i have an appointment this Friday and i’m really scared that i won’t be at a good enough weight and my doctor will admit me again.. let’s hope that doesn’t happen. i’m 63kg (138lbs) at the moment and i want to be at least 65kg (143lbs) or 66kg (145lbs). i don’t want a repeat of this hospital stay. ever. #cf #cysticfibrosis #myastheniagravis #gtube #anorexianerviosa #anorexiafighter
Great arm workout yesterday! I was able to use 8lb weights, hold some planks and not fall in my face! It may not seem a big deal to some but last year at this time brushing my daughters hair was hard and lifting 2 lb weights was a struggle. So I’ll take it! #myastheniagravis #autoimmunediseasewarrior #spooniestrong #rheumatoidarthritis #rheumatoidarthritiswarrior #autoimmunewarrior #autoimmunediseasessuck
“If you’ve been following along for a while you already know that one of my most hated limitations of having MG is that I had to quit exercising.” This past month I committed to easing my way back into the gym... want to know how it went? Read it now on the blog. Link in bio #iswaswillbe #iswaswillbeblog #myastheniagravis #mgcantstopme #chronicfatiguesyndrome #chronicfatigue #chronicallyill #chronicillness #invisibleillness #autoimmunedisease #muscleweakness #mgawareness #butyoudontloolsick #selfcare #SelfCareSeptember #selflove #fitness
How does a myasthenic snowflake ❄️ go to a play without her pirate granny eyepatch? Thanks to a support group sister who taught me to place a circle of translucent tape on one lens to resolve my double vision & allow some peripheral vision. Worked like a charm once I got the circle positioned & much more comfortable. I don’t know how pirates cope with the patches all the time. I am still a pirate granny though, tending to pillage gardens at random. #eyepatchesareitchy #MyastheniaGravis #simpleideas #doublevision #diplopia
Today my motivation was low. We all get days like this so I decided to purposefully run in different directions and routes to any of my regular runs. 48 minutes later and I’ve crossed parks, run canal tow paths, country lanes (and a little road to get there). Passed geese, rabbits, ducks, cows and dogs. Sometimes their a little joy in just ‘following you nose’ and seeing where you end up. #myastheniagravis #myaware #running #urbanwildlife
The difference is healthy eating and working out consistently, most of all enjoy the process... #alhamdulillah #fitmuslimah #healthylifestyle #weightlosstransformation #myastheniagravis
Myasthenia Gravis is no joke! Gotta roll with good and bad days! No exercise today and getting to bed early. Self care is important! Back at it tomorrow! #myastheniagravis #myastheniagraviswarrior #spooniesunite #autoimmunedisease #autoimmunediseasewarrior #spooniestrong #myastheniastrong #spoonies #spooniesupport
If working out wasn’t hard enough, trying to film yourself really adds another dimension. . Multiple takes means more reps and adds to the fatigue. . I’ve enjoyed getting into video, and it’s been nice to wrestle with something that isn’t health related or work. It’s a hobby that I want to develop. . I’m not doing it just for the gram, but to be able to tell my story in full and try and show that recovery and health is possible. Because knowing it was possible allowed me to believe and that’s where I started. So hopefully at the end of it, my story can allow others to believe. . The more elaborate, the more powerful it will be. . 📷: @micaela_gillespie . #meds #free #gravesdisease #thyroidproblems #autoimmunedisease #hyperactive #thyroid #faith #patience #longterm #success #myastheniagravis #myasthenia #autoimmune #hospital #recovery #nutrition #healthylifestyle #film #documentary #iphone
I love it when mom remembers my pillows. 🐶💜 Oh yeah, also.... ITS MY BIRTHDAY!! I’m 6 years old today! Spent the day in the car and getting checked out. We will party when we we get home (and by that I mean we will probably nap some more) . . . #dogsofinstagram #megaesophagus #megae #dogswithmegaesophagus #uprightcaninebrigade #specialneedsdog #specialneedspup #puppylove #MyastheniaGravis
Girlfriend is a pro at giving the puppy dog eyes and looking super cute when I’m eating something she wants 💁🏼‍♀️ #carrots #sharingiscaring #toocute #puppydogeyes #specialneedsdog #megaesophagus #myastheniagravis #adoptdontshop #rescuedog
Even though it’s a long drive for us, we wouldn’t want to go anywhere but @brightcarevethospital. The whole staff is so nice and Dr. Gorgi is amazing and so very helpful! 🐶💜 Thank you BrightCare! See you next time! . . . #veterinaryneurology #veterinaryneurologist #dogsofinstagram #megaesophagus #megae #dogswithmegaesophagus #uprightcaninebrigade #specialneedsdog #specialneedspup #puppylove #MyastheniaGravis
Keď použijem nejaký ten makeup a nejaký ten filter plus nemá myastenicka tvár 😂 makeup +špirála @lilylolouk rúž+obočie+rozjasnovač @milanicosmetics lak @100percentpuresk oči @bhcosmetics... Všetko #crueltyfreekozmetika 🐰#myastheniagravis #myself #veget #vegangirl #mgawareness #crueltyfreemakeup #blondhair #endmuscledisease #prednizonehighlife #idemsisvoje #kedtoidemusisist #mgcantstopme
Hey, Cutie, wanna ride ???🦔🐶😎🚙 Bandana from @toothandhoney • • • What’s your ride?!? Answer down below!! 🚗⬇️🚙⬇️🚗⬇️🚙⬇️🚗⬇️🚙⬇️ #ride #car #cars #whip #honda #hondapilot #vroom #michigan #bandana #dogsandcars #megaesophagus #myastheniagravis #hedgiethehedgedog #aboyandhisdog #cutie #motorcity #detroit
Enerverende en confronterende dag bij het spierziekte congres Nederland in Veldhoven. Veel info en grote opkomst. Heftig maar zeer interessant. #myasthenia #spierziektennederland #myastheniagravis
When the emotion of others drive you to achieve. Regardless you’ll let’s have fear. Don’t let it engulf you. #sitatheadoftable #leadfromfront #squat #strength #relativestrength #mg #myastheniagravis #shutupandtry
I tak sobie siedze i myślę... że 3 lata temu nie chciałam tu wjezdzac z powodu lęków #sobota #góra #biokovo #widoki #motywacja #myastheniagravis #miasteniczka #miastenia #wdrodzeposzczescie #podroz #emocje #zycie #kochamzycie #akceptacja #pokora
One of the experiences I had when I first started struggling with Myasthenia was trying to hide all the things I was struggling with. It’s easy to say ask for help but harder to do in practice. Asking for help to button a shirt, fasten a tie, open a bottle are all things I had to do to manage at times in my life. I’ve come a long way with good medical support but the shadow of Myasthenia is always with me. It’s on days like today when I just couldn’t run due to fatigue that I remind myself how far I have come and how blessed I am to be able to try this running thing again. #myastheniagravis #myaware #running #mentalhealth
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