National Down Syndrome Awareness Month 💙💛💪🏼
If you didn’t know, let me remind you as my son reminds me every single day.. he was a 🤴🏻KING 👑 in his past life‼️royalty for sure‼️🤦🏻♀️🤣
I have had 4 different types of potty seats and chairs & THE only 1️⃣ that he is willing to sit on is a CUSHIONED WHITE 1️⃣..
I wish I was kidding... 😝
He’s gone at school both #1
️⃣ & #2
We are still working on him sitting at 🏡....BUT when I bought this seat for him, he literally kissed the 📦 package! 😘
The below was from last year, (day18-19), but fits perfectly...
👏. So, with that said, we celebrated day 18 and 19 #downsyndromeawarenessmonth
with remembering being told you'd be lucky if your child would ever be able to use the bathroom on his own..ever..he/she would never be able to be with their peers and live a 'normal' life. I was turning 40 at the time and I yet knew anyone who lived a 'normal' life.. 'what does that even mean', was my immediate reply... this was the same day I muttered some other things to the genetic counselor & walked out...
I was obsessed with 'Over The Rainbow' acoustic version while pregnant, even before Desi's Down Syndrome diagnosis. I lived my life while focusing towards dreams and making the best life I could for myself. I learned at a very young age to Never allow any ONE person to define you or your abilities. It is something I continue to remind myself of and what I'm passionate about to instill in Desi.
Yes, D is not there yet, but being aware of when it's happening along with the concept of it is huge. Some of Desi's peers are already potty trained and some are still on the verge, and others who are just getting started. Yes, there are many people with Down Syndrome who may not be able to use the restroom on their own, but this is true for typical people as well. One of my last words about potty training to the genetic counselor was potty training will not define my child on his abilities in life...& whether Desi gets there or not, my statement 5 years ago still holds true today... #chromosomesdontdefineus
#dontlimitme #dontminimizeme #dschildrendeservelife #morealikethandifferent #itsjustpoop