Does anyone else’s kid do acrobatic sleeping 🤸♂️💤 like Emma does? She moves around so bad that sometimes her pull-up leaks out from her BACK! Then she keeps sleeping on her wet and cold PJ and that’s how she gets sick 😷 She also HATES blanket and it doesn’t matter how many times I tell her to keep it on. As soon as I walk out the door, she throws it out to the floor.
So, as soon as I saw the Sesame Street sleeping bag at @crateandkids
website, I had to give a try. It’s the only way I could think of keeping her stay somewhat still + keeping her blanket in the crib.
Tonight is the day #3
and so far so good!! She’s SUPER excited to sleep with Abby (I’m surprised that she chose Abby tho. I thought she was gonna go for Elmo for sure. I had to ask her 100 times to make sure🤣🤣) Hope this is the end of my battle against her wet PJ!!! #nomoresickkidsplease
寝相が悪すぎてオムツが横漏れ通り越して背中から漏れるので、思い切ってセサミストリートの寝袋購入。ブランケットも完全拒否なのでどうかと心配してたけど、一応ちゃんと袋に収まって寝てくれてます。オムツが漏れる度に風邪を引くので、これで改善しますように👏 #アビー選んで #ちょっとビックリ #エルモ選ぶと思ったよ
#downsyndrome #rockingtheextrachromosome #downsyndromecutie #MoreAlikeThanDifferent #4yearsold #toddlerlife #lifeisbetterwithyou #theluckyfew #ダウン症 #チーム21 #21トリソミー #4歳女の子 #アメリカ生活 #海外子育て #子供のいる暮らし
They party late in LA last night! Got home after midnight and still went to school on time 👍🏻 Swipe left and see the he last photo, I think I saw them as couple in 11 years. @_denisevollmer_
Today 3 seconds of happy tears out weighed all the sad tears I’ve cried this week.
I want to share a story. But before I do, just know this week was overwhelming for me. Lately, I’ve been stressing over perfection, at my job, in my side business, with my new book, and in my relationship. I kept convincing myself I was falling short in all these areas. I didn’t feel I was enough.
Today, as I was about to start senior group at the hospital, a client of mine ran up to me, frantically, in tears. I was ready to defuse the situation, or redirect as usual. But then, she threw her arms around me. I didn’t hug back, because thats not something we are supposed to do.
Tears still streaming, she said “you saved me. Before your group yesterday, I thought I had nothing to live for, but you showed me all of things that are worth living for. And I just needed to thank you. My husband even said I sounded different on the phone. That’s because I know life is worth it. Thank you.”
I hugged her back. Tight. And I cried with her. Only for 3 seconds. But, I’ll remember those 3 seconds forever.
In my year working in mental health, this was the first person who directly told me I saved their life. But I didn’t, God did. Somehow, he lead me to lead all of these beautiful humans of his. And for that I am forever grateful. 💛
Who you are is important.
What you do is important. Please know this, today & forever.
Well for the last week and half either Maddie, myself or both of us have been sick and we’ve had her MRI ticking closer and closer - she has a semi-routine MRI scheduled for tomorrow and we’ve been praying we would both be healthy enough to go through with the test as it’s an 8 months wait list if we need to reschedule.
Sure enough she woke up in fine spirits & awesome health today and off we go tomorrow morning 💃🏻... here’s to hoping when she wakes up tomorrow she doesn’t disown me for making her fast 🤦🏼♀️
Clayton came home from school earlier this week and informed us a younger kid called Kirill a monster on the bus. My gut knotted and heart ached. Kirill can hear and understands plenty. I want so badly to protect him from mean comments from other kids, but I know I can’t. Please friends, be intentional with your children and encourage them to have friends of all abilities...so they won’t make ***hole comments about people with disabilities being monsters. Don’t wait until they go to school to expose them to a diverse group of friends. You know, like we should have as adults. It is 100% up to us as parents to teach our children kindness and inclusion and model it in our own relationships. #inclusion #kindness #kindnessmatters #morealikethandifferent #theluckyfew
Today marks 12 days before Christmas! We want to encourage our #WOWForce
, their families, and our friends to think beyond materials this year. To focus on being present rather than presents! Here are 12 acts of kindness, encouragement, and love that will make hearts merry much more than what a gift could do. These acts are easy to do, some you could even text! Share your acts using #WOW12daysofGiving
My favorite clips from our little trip to Disneyland earlier this month. It was such a happy day ✨🏰💜 #vloglife
You asked for more exercises, so we just keep coming in 🔥 with new ones for you to try! Here's another fun core exercise for you to try at home 💪
💥PARTNER MEDICINE BALL TWISTS💥
1️⃣Stand back to back with your partner.
2️⃣Begin twisting with the ball, keeping feet planted firmly into the ground.
3️⃣Twist until you and your partner are close enough to hand the ball off.
4️⃣Twist the opposite direction to receive hand off from your partner on the other side.
Think all people with Down syndrome can't work? Have relationships? Live on their own? THINK AGAIN 💙 Like if you stand for disability advocacy! #laurasgreetings
We haven’t been able to do much since our babe has been sick with a yucky cold. She missed her bestie’s birthday party, among other things. We have a super busy and fun weekend ahead, and I’d like to ask for tons of prayers for her. I just want her super healthy!!! Thank you and happy #friyay
Greyson really hates me messing wit his face; clean up after meal time, wiping his nose, looking for teeth— all of it is going to be a ‘no’ for him. So last night while I was trying to clean up his nose as he lay in my lap and he was performing his normal hysterics, I was shocked when I saw 4 teeth coming in! We knew about two of the four because I discovered those in a similar manner a couple of weeks ago. Delayed dentition is common in children with DS but Greyson case seemed extremely late. We ruled out thyroid dysfunction recently and have been patiently waiting for these buggers to appear! We would have never known he was actively teething as he’s been acting like his normal self but we’re so happy this kid is finally getting some teeth. He has no idea how much his eating game is about to change 😂
One of the strategies we were taught early on to promote speech was to expect just a sound and then build on that.
We worked it into our every day routine. When Miles wanted to be picked up he would need to say "uh" we would then follow up with "up" or "up please". Same with "more". We first started with the sign, then we expected "mmmm". Looking back on it I'm so grateful for our SLP. Who guided us with these strategies.
#321roadtrip #igotitdown #firstwords
It’s a rainy day and I really haven’t been feeling very well.
So while hanging out indoors I decided to try and be productive by sorting through some of our closets for clothes to donate.
The girls thought they would help 😂 #santaselves
Mom tip: if you break a cookie in half they think they are getting 2 cookies 😉
If you’re familiar with the story, “Rudolph, the Red-Nosed Reindeer,” then you know there’s a King. Joshua was the King. They had a dress rehearsal earlier in the day. He dressed up in his Sunday best for that, because they were also singing to a group of senior adults. Then, tonight, before we left for the actual program, he came downstairs wearing jeans. I said, “Mrs. Sherrie said no jeans.” And he said, “that was for today, not tonight.” 😑 And, ya know, I could’ve argued with him, but it would’ve made us late...and, at the end of my life, I’d be wishing for those minutes back. #notdyinonthatmountain
Also, at the last minute, he apparently decided his BATHROBE FROM HOME would be a nice addition to his costume. #immapickmybattles #myjoshuagiraffe #nothingdownaboutit #morealikethandifferent #lrprtr
So we have had a rough few week with the girls , especially this little one she been full of cold and so congested! When you have DS it’s very common to have small Nasal passages mean you can become congested quick easy, and this is the case for Harper! When she has a cold she really does not like it as it effects her breathing and feeding so When we was sent the @nosiboo_babycare
it could not have come at a better time for us, it has help us out so much and is so much better than a manual one we had, so hopefully now we can have a cold free Christmas #nosiboo #nosiboobabycare
Since Wesley’s surgery, we have a ton of new people following our journey so I thought I would do a brief introduction of Wesley and our family. Adam (Dad) is a police officer and I am a RN. We have two cat daughters who you don’t see much of anymore, but they were our first babies. Wesley was born premature at 30 weeks and 6 days with complications from fetal hydrops and a reverse flow umbilical cord. His chances of survival were less than 3%. After 76 long days in the NICU, we came home to a very different life. I knew at 20 weeks pregnant that Wesley would have Down Syndrome. However, most of our daily struggles I relate to prematurity and fetal hydrops. Wesley is on oxygen for pulmonary hypertension. He did have an ASD complicating that, but it is now repaired 👏 He is 100% fed through a mic-key button because of aspiration issues while in the NICU. He will eat baby food and drink water out of a cup for pleasure, but he is still learning! We currently see three therapists a week: feeding therapy, physical therapy, and developmental therapy. I share his story for several reasons. 1. Because he’s so freaking cute! 2. To meet other special needs moms. 3. To educate! Our life is not typical, and I want those around us to understand why. 4. To give hope to other moms that are where I was at 20 weeks pregnant. .
I’m so glad you’ve come across our page and are following our journey. I hope Wesley’s sweet smile will brighten your day as much as it does mine ☀️
#raisingwesley #nothingdownaboutit #downsyndrome #downsyndromelove #upsyndrome #theluckyfew #trisomy21 #joyinthelittlethings #downsyndromemom #homiewithanextrachromie #nothingdownabouthim #celebratethelittlethings #tubiebaby #o2crew #wesleystevenpost #iamable #morealikethandifferent #t21 #t21love #chdwarrior #chdawareness
When mom and the therapist talk too much 😂😴
💦 WATER 101💦
Did you know that water is the largest component of the body (representing 45-70% of a person's body weight) and affects athletic performance more than any other nutrient? Water is essential for normal cellular function and thermal regulation. With a fluid loss of as little as 3% of your body weight, dehydration will begin to affect your performance by straining your cardiovascular system and impair your ability to dissipate heat.
However, on average, we only replace about two-thirds of the water that we sweat out during exercise. Here are some simple guidelines to make sure that you stay adequately hydrated.
1️⃣Aim to drink 2.5 liters of water a day. If you live an active lifestyle, aim for 1 gallon of water a day.
2️⃣Before exercising, consume at least 1 pint of water 2 hours prior.
3️⃣Bring a water bottle to your workout and keep it near you at all times. Try to drink 6-8 ounces of water every minutes during your workout.
4️⃣Weight yourself before and after your workout. For every pound lost, drink 1 pint of water.