Let’s talk about fibroids also known as leiomyomas or myomas. Fibroids are benign tumors comprised of the uterine muscle and connective tissue in the uterus. Up to 80% of women have fibroids, however, only a small percentage will have symptoms.
Uterine fibroids refer to the overgrowth of muscle cells within the uterine wall. These tumors, which are noncancerous, may result in heavy, painful, or irregular periods and local pressure symptoms such as difficult defecation, frequent urination, and pain in the lower back.
Treatment for fibroids include medications, surgery (including hysterectomy), and embolization methods. Pelvic floor muscle dysfunction and chronic pelvic pain syndrome can be triggered by uterine fibroids and patients may present with these conditions and symptoms. With the varying levels of pain a uterine fibroid can cause this brings a large amount of undue stress and tension to the region. Fibroids are often left untreated so patients are suffering from undiagnosed pain. This uncertainty of the pain brings additional pain and stress. Throughout this time and potential surgery, the body is trying to compensate for all this pain which can bring on other musculoskeletal conditions like chronic pelvic pain syndrome. I try to help relieve the pelvic floor dysfunction symptoms for patients who prefer to avoid surgical removal of fibroids.
#fibroids #fibroidsawareness #fibroid #pelvicpain #pelvicfloordysfunction #pelvicfloor #pelvicfloorhealth #womenshealth #gyn #pelvis #gynsurgery #medstudent #obgyn #pmr #nyc #docsofinsta #docsoftheday #womeninmedicine #womeninmed #momdoc #pelvicpt #pelvicphysicaltherapy #nycdoctor #endometriosis #adenomyosis #interstitialcystitis #vaginismus #dyspareunia #browngirlmagic #browngirlsinstem
🍲 Homemade chicken soup - Just what the doctor ordered today!
My head has been all over the place today as I contemplate a doctor's appt that I had yesterday. It was with an expert in the field of chronic bladder conditions, which is really hard to find, so I was feeling very cautiously optimistic going into it. After talking with her, I feel a little (very) overwhelmed because some of the tools she says are essential to solving this kind of thing are tools I didn't want to have to resort to, and in some ways contrary to all of the personal growth I've done over the past two years. But then again, she's well-known in the field and I'm still dealing with these problems two years later. Maybe I've learned how to manage them, but they haven't gone anywhere. Amidst all the confusion, I have this bible verse popping into my head "be still and know that I am God." I tried to honor this by making myself a nourishing lunch and removing all devices as I was eating my meal, just trying to relax in the quiet. I don't have my game plan figured out yet but I know that if I trust in God and in my own knowledge and abilities to heal myself, and finally my body's innate desire to heal, I will get there at some point. Sending strength and hope to my fellow chronic illness sufferers today, and of course always open to receiving some, too 😊
Everything What If.
Every Disappointment. -
And start again!
The following post is extremely personal, but I felt the need to share because over the past few months, I feel like I have been beraded with questions regarding things that can be deeply painful to process. It is 4 am, and Ive been up since 2. Im in pain. I suffer from a chronic pain disorder. One that is extremely sensitive and invisible to the eye. Its called Interstitial Cystitis. The past 4 years have been difficult to say the least. I was misdiagnosed numerous times, been to 4 specialists, endured a 6 month long clinical trial ( that didn’t help) , been rushed to the ER numerous times only to be placed in a corner and forgotten about because my pain ( in their eyes) wasn’t severe enough. I have had doctors tell me that my pain is in my head ( without running proper diagnostics) had doctors want to start from scratch each time just simply because my own verbal history wasn’t enough proof that something was terribly wrong.... even tho I have a long paper trail of tests and so on and so forth. My worst days are in a fetal position unable to get off the floor... unable to turn the knob of the bathtub faucet in which a bath might give me temporary relief. Those days have left me sobbing in my husband’s arms scared that I might never find relief, never be able to conceive, never be able to carry a child because the pain that already consumes me might just be too much to bare to carry to full term. I want to be a mother so badly.. and being asked time and time again... when will it be my turn can be so unbearable to even process. This is why I haven’t become pregnant yet. This is why most weekends are spent at home in bed... in pain ... suffering in silence ... with only my husband to lean on and provide the best support that he possibly can. He is a saint. He has literally picked me off of the floor when I simply cannot stand.
I felt the need to explain, because my passions of blogging have taken a back seat. My spurts of energy are few and far in between but I have to focus on getting better. Yes there are days, I can pull myself together and feel pretty on the outside but almost always... I feel the complete opposite on the inside. Cont. below...
I was nominated by the lovely @kikibeelife
(And if you’re not following her, fix that right now, because she’s amazing!) to share 5 fun facts about myself. •
1 I wrote my first ‘book’ when I was in the second grade. Shockingly, it wasn’t a best seller. (😂 Can you believe?!) But I was bit by the writing bug and writing/publishing a book has been my dream ever since. •
2 I still have a major soft spot for 90s and early 2000s britpop. B*Witched, @billiepiper
, S Club 7, and of course @five__official
- my OG baes. My lifetime BFF Nicole @cole527
and I are thinking of making a trip across the pond to see them in concert. Because, why not? •
3 My middle name is Grace. If you know me, you will understand why this is hilarious. Y’all, I’m about as graceful as a bull in a ball gown. •
4 I text and type exactly how I talk. If you know me or watch my stories (when I make them, because I kinda hate myself on video), I very much speak the same way- to the point people have often mentioned it to me! So, what you see is what you get. Sorry bout that. 😬 I say y’all A LOT.
5 I love office supplies. I buy new pens at least once a week because I ‘need’ them. But they’re SO fun! I still love to write handwritten notes and I still use a paper calendar. *gasp* @paper_mate_inkjoy
is my faaaaave!
Thank you for nominating me, @kikibeelife
! I want to nominate @shakeitcalli
to tell us five fun things about themselves! If you’re not following them, make sure you change that! By the way, you can score this cute dress from @shopbourbonandrye
#spoonies #spoonieblogger #chronicallyill #fibromyalgia #interstitialcystitis #endometriosis #chronicpain #invisibleillness #chronicallyfabulous #nashville #nashvillegram #bloggergirl #ontheblog #bloggervibes #quotestagram #bloglife #blogpassionproject #communityovercompetition #pursuepretty #pursuewhatislovely #calledtobecreative #creativelifehappylife #darlingmovement #seekthesimplicity #feelfreefeed #theeverygirl #lovelysquares
IC flareup or nah? ⛲️🤦🏽♀️ Fixed Wave, Linda Stark, 2011. Spotted at Made in LA at Hammer Museum
✔️✔️✔️ Guess what⁉️. No hip or shoulder pain🚫 Also, 40 mins of cardio core with only 1 modifier!! 💪🤸
This is Interstitial Cystitis awareness month. When I tried to explain what the pain felt like I would tell people that it felt like I had a ball of razors or knives suspended in my pelvis and with any small movement it felt like I’d get sliced. It was a true nightmare. It’s a condition that is quite prevalent but many have never heard of. I was bedridden due to excruciating pain for almost 3 years. I couldn’t care for my son. I couldn’t even care for myself. I developed severe pelvic floor dysfunction, severe depression and anxiety. There are millions that suffer from this still. I was one of the lucky ones that found relief with the Interstim implant. But many are not as lucky. Thinking of living my life with this condition is really terrifying. iC has a high suicide rate. There really is not adequate treatment for it, and that’s unacceptable. If you have IC or any type of bladder pain, or have questions about the Interstim implant, please message me! I would love to help! 😘💔🙏🏻 #interstitialcystitis #interstitialcystitisawareness #ic #pelvicfloordysfunction #pfd #chronicpain #chronicillness #pelvicpain #bladderpain #pain #disability
Today has been a day of introspection and, to my great (and very welcome) surprise, not much pain. But as I flipped through Instagram to catch up I saw this sweatshirt and the quote really hit home! I was thinking the other day about my happy place – soaking up the rays of the warm, bright sun ☀️ (total sun worshipper – I may be part reptile🦎), fresh air mixed with fresh cut grass🌱, hay bales or cow pastures off in the distance🐄 and that feeling of home, comfort, happiness, relaxation, and never ending possibility that comes with it. Do you notice a relation between your symptoms and the time you spend outside connecting with nature? Do you think it is the relaxation it provides, or simply connecting to the world again? I don’t know if it’s the Vitamin D, the fresh air, or the look of pure bliss on my puppy’s face when he lays in the grass 🐶 (why don’t they have a black lab emoji, right?!) that make me feel just innately happy – but I’ll take it. That moment of forgetting about my problems is an awe-inspiring and incredibly awesome, if fleeting, moment. Realizing that the world is so much bigger and better than what we’re bombarded with every day really gives it some perspective. And then the lingering thought…wouldn’t the world be a better place if more people connected with nature each day? Maybe that’s part of our problem, we forget what it feels like!
If you like this quote or connect with my thoughts, share your comments /ideas/feelings below and tag a friend who might enjoy it, too! Let’s try to get as many smiles and “happy place” visits in the world as we can today!
Sweatshirt by @wholesomeculture
Available in organic cotton! ♥️ 🐝 🌲 🌳 🌊
#healthy #vegetarian #plantbased #organic #eatclean #glutenfree #cleaneating #health #love #smoothie #coconut #fruitbowl #fruit
#ic #interstitialcystitis #pbs #painfulbladdersyndrome #awareness #relax #relaxation #outdoors #nature #connect #disconnect #pasture #cow #Repost @get_repost
I feel I had a better appointment today than I’ve had in awhile, which was good. We are aggressively working on my stabilization. Today, I was glad to have my requests met to see the actual doctor and had an open ear with him. No arguments. Just civil conversation. I’ll know more once I receive my write-up in the mail, but I now have a new condition involving my central nervous system. No idea what it’s called, but it had a ridiculously long name. Although it’s pretty clear that Lyme, babesia, and bartonella have caused most of the damage, we did cover all the bases. He knew I had a histamine problem before I even showed him my rashes (which I’ve had for.. 13 years?), and prescribed 4 antihistamines to stabilize me. In addition, I am trying lowest dose butrans patch, hoping it will help with withdrawals on top of all the illness. My blood cell counts look good as far as I know. My cortisol levels were very elevated (duh) but he was actually glad that they weren’t low bc of adrenals. I have high copper levels as well. I really hope the butrans kills two birds with one stone. It’s kind of my only hope. He described how 90% of my pain is a result of a very faulty, very inflamed and confused central nervous system. So my brain did it all essentially. After Lyme tried to take it over. He noticed my EDS without me saying anything as my shoulders kept popping out of place, and made some conclusions there. He prescribed me some meds for my seizures (which I don’t have often anymore, but in case. My brain is always misfiring in odd scary ways). Otherwise, I’ve got to start back up these same neurotropics. I asked if I was going to be okay, and his honest answer was “I don’t know, but one day at a time”. I may not have the motivation, but this is my life. I have to try. #lymedisease #babesia #bartonella #centralnervoussystem #autonomicdysfunction #pots #lyme #lymeawareness #drjemsek #antibiotics #chronicillness #health #chronicpain #chronicfatigue #interstitialcystitis #inflammation #neurosurgery #brainonfire
Recovery update. I’ve never actually done one of these. It’s not really my jam but I know it’s helpful for people to see what’s possible so here we go:
Symptoms I no longer have after 2 years of healing:
4.Chronic Fatigue Syndrome
5.Multiple chemical sensitivity
16.EBV, babesia, bartonella
18.Multiple food and histamine intolerance and IBS
Not bad..... :)Ha.
Things I am still working on. And this is cool. I didn’t get sick overnight. The physical and emotional layers continue to unwind and I don’t resent that or wish it away. Progress, not perfection
1)Mold sensitivity - I’m still hugely mold sensitive. And still nightshade sensitive
2)Clearing and healing my liver - it has a significant way to go and affects me still
4)Skin/fascia damage on my legs
3)Back/hip pain from scoliosis, so ongoing care
4)Tiredness in waves - It was my primary symptom so one of my deepest teachers
5)Introversion - random to include but important. When the world feels too much I still sometimes curl up and shut off. Not that being alone is bad. I am naturally introverted so this is just me. But it’s still a little out of balance. Having breathable boundaries to let enough in; is what’s important for me. I continue to work on this
What I have gained from this two years...... A depth of gratitude for life that has created a veil of beauty over my eyes that can never be removed. Deep trust and love for myself. A sense of what ever comes next is ok. That I am and I have enough. I’m devoted to my life and also at peace with what ever the future is. That may sound morbid but it’s just an acceptance of my impermanence and commitment to my presence. I love life with a ferocity that is breathtaking. It isn’t easy. I struggle still, I cry, I have very tough times and I don’t always know what the f*** I’m doing. None of the above has been linear. But I don’t resent these challenges. They are meant for me. Here’s to the next 2 years :)
I often get asked, what is pelvic physical therapy like? I have gone and can share what my experience. Back story, I have two kids and I would have some stress incontinence when I would work out. I didn’t even realize right after I had my kids, it was only when I wanted to be more active. It took me many years to admit that I needed to fix the issue despite being a pelvic pain doctor! ( we are the worst patients!) _____
I went to a place that had only 1 pelvic physical therapist, mostly to avoid running into my patients. I was in a private room. We talked about my history, including all things about bowels, bladder and sex. She asked me questions about any pain and my periods. I had already filled out an extensive history so mostly reviewed this with her.
Then she did a physical examination, external and internal. Externally evaluating my spine, pelvis for rotation, alignment, tenderness, and then she did an internal examination of my muscles. She asked me to do few exercises while she was using her finger internally to see how fast I could contract my pelvic floor muscles. She also used a biofeedback machine ( using pads on my external muscles) to see my muscles at rest.
She taught me some exercises to do. Each person is different so they would be different depending on your exam findings. She showed me how to breath in sync with my pelvic floor. Was it invasive? A little but I got over it pretty quick. Did it hurt? No. I was going for strengthening after having two kids via natural deliveries. So my plan was different then someone going for a tight pelvic floor.
Share your experience of pelvic physical therapy!
#nycdoctor #pelvichealth #womenshealth #womenempowerment #endometriosis #vulvadynia #pelvicfloordysfunction #pgad #interstitialcystitis #constipation
#invisibleillness #futureisfemale #strongwomen #pelvicfloorpt #pelvicfloor #endopatient #endowarriors #endocommunity #stressincontinence #nyc #doctor #nycdoc #physician #paindoc #nycphysician #manhattan #stylishdoc #somedoc #pmg
💓We must take care of ourselves... it’s up to us to have good health. It took me 40 years to understand this. I used to think that the only thing I could control was my weight. I thought that everything else was decided by my doctors, medications, genes & aging.
Since my family had this or that diagnosis...I would too. And my body was going to show the wear & tear of aging & there was nothing I could do to make that better.
All of my previous notions were so wrong!🤯
We can write our own health stories. I’m so glad that this is true!
Take care of yourself! There’s only ONE of you! And you’re loved & needed!💕💕💕
Eat right, take quality supplements when needed, drink organic herbal teas for MANY health benefits, use essential oils to also provide many health benefits. Say no to toxins, sugar, GMOs, alcohol, tobacco...you know where I’m going here! 😄 Say YES to spending time in nature, a great diet/lifestyle, feeling your best you NOW, & having wonderful elder (senior) years because we did all we could to live healthfully. 💓👍🎉 #chronicillness #chronicpain #takecareofyou #endometriosis #hypothyroidism #hypertension #diabetes #cancer #interstitialcystitis #fibromyalgia #healthylifestyle #gethealthythenaturalway #thevegancru
One of my most surprising discoveries during my health journey is that I don't do well with caffeine... at all! Surprising because I used to drink coffee multiple times a day when I worked in marketing, sometimes just to get out of the office for a minute. Now that I live in Sweden, fika (taking a coffee break) is such a big part of the culture, and it can be hard to find fun caffeine-free drinks to try. So I decided to branch out to matcha, which is green tea so it's slightly caffeinated, but not anywhere near coffee. Well, first of all, it was delicious, and second of all, holy caffeine Batman! Luckily I didn't get jittery but I DID feel like I was on speed. You guys, the amount of caffeine in a matcha latte is basically equivalent to tripping for me 😂😂 I was on fire, the whole afternoon I was coming up with new business ideas and blog posts, i don't think my boyfriend has seen me with this much energy in a long time! So long story short, probably don't want to be tripping every day, but for those who do well with caffeine but are looking for a lower-caf alternative, give matcha a try! And #interstitialcystitis
peeps, it felt ok with my bladder. Yippee! 💚 #holisticwellness #wellnessjourney #holisticlifestyle #nourishyourself #wellnessblogger #wellnessblog #guthealth #leakygut #nourishyourbody #foodheals #healyourgut #foodismedicine #cleaneating #healthyfood #hälsosammat #hälsosamt #nyttigt #nutrition #ntp #näring #chronicillness #chronicillnesswarrior #kronisksjukdom #interstitialcystitis #painfulbladder #greenfood #matcha #fika
We've all felt a little incompetent, insufficient, overexposed, helpless, unlovable, terrified, defective, unfit and unsung at times. And deep down, for whatever reason, you might even think you deserve to. Because why else would you be feeling that way. Like the world is laughing at you.-
I promise you it's not.
It’s important to expect nothing, to take every experience, including the negative ones, as merely steps on the path, & to proceed. •