#interstitialcystitis

51,952 posts

Loading...
Let’s talk about fibroids also known as leiomyomas or myomas. Fibroids are benign tumors comprised of the uterine muscle and connective tissue in the uterus. Up to 80% of women have fibroids, however, only a small percentage will have symptoms. ____ Uterine fibroids refer to the overgrowth of muscle cells within the uterine wall. These tumors, which are noncancerous, may result in heavy, painful, or irregular periods and local pressure symptoms such as difficult defecation, frequent urination, and pain in the lower back. ____ Treatment for fibroids include medications, surgery (including hysterectomy), and embolization methods. Pelvic floor muscle dysfunction and chronic pelvic pain syndrome can be triggered by uterine fibroids and patients may present with these conditions and symptoms. With the varying levels of pain a uterine fibroid can cause this brings a large amount of undue stress and tension to the region. Fibroids are often left untreated so patients are suffering from undiagnosed pain. This uncertainty of the pain brings additional pain and stress. Throughout this time and potential surgery, the body is trying to compensate for all this pain which can bring on other musculoskeletal conditions like chronic pelvic pain syndrome. I try to help relieve the pelvic floor dysfunction symptoms for patients who prefer to avoid surgical removal of fibroids. ____ #fibroids #fibroidsawareness #fibroid #pelvicpain #pelvicfloordysfunction #pelvicfloor #pelvicfloorhealth #womenshealth #gyn #pelvis #gynsurgery #medstudent #obgyn #pmr #nyc #docsofinsta #docsoftheday #womeninmedicine #womeninmed #momdoc #pelvicpt #pelvicphysicaltherapy #nycdoctor #endometriosis #adenomyosis #interstitialcystitis #vaginismus #dyspareunia #browngirlmagic #browngirlsinstem
🍲 Homemade chicken soup - Just what the doctor ordered today! My head has been all over the place today as I contemplate a doctor's appt that I had yesterday. It was with an expert in the field of chronic bladder conditions, which is really hard to find, so I was feeling very cautiously optimistic going into it. After talking with her, I feel a little (very) overwhelmed because some of the tools she says are essential to solving this kind of thing are tools I didn't want to have to resort to, and in some ways contrary to all of the personal growth I've done over the past two years. But then again, she's well-known in the field and I'm still dealing with these problems two years later. Maybe I've learned how to manage them, but they haven't gone anywhere. Amidst all the confusion, I have this bible verse popping into my head "be still and know that I am God." I tried to honor this by making myself a nourishing lunch and removing all devices as I was eating my meal, just trying to relax in the quiet. I don't have my game plan figured out yet but I know that if I trust in God and in my own knowledge and abilities to heal myself, and finally my body's innate desire to heal, I will get there at some point. Sending strength and hope to my fellow chronic illness sufferers today, and of course always open to receiving some, too 😊
Loading...
I personally love to laugh and love watching anything funny. It really helps when your IC is acting up, give it a try! #laughyourselfwell #comedy #funny #interstitialcystitis #ic #uti #relax #bladder #biofilm #chronicpain #professormalonelee #ruthkriz #cystitis #icbigsister
_ • Every Excuse. Every Mistake. Everything What If. Every Almost. Every Failure. Every Disappointment. - • And start again!
Good morning! 🤗 Just had my super alkalising cup of Moringa tea, and as you can see I only use about a 1/4 of a teaspoon. When I was suffering with IC I used to drink this to soothe my bladder, and now that I've become accustomed to the taste, I find it really refreshing and actually enjoy drinking a few cups a day. ADUNA MORINGA green superleaf powder is 100% organic. It's rich in Iron and contains: Calcium, Protein, Vitamin A, E and K. This truly is a great food supplement to take. Try it and see for yourself! 😊 ----- #interstitialcystitis #colostrum #bladderinfection #bladder #bladderproblems #painfulbladdersyndrome #painfulbladder #endometriosis #pelvicadhesions #moringa #moringaoleifera #ibs #inflammatoryboweldisease #diverticulitis #medicine #constipation #detox #alkaline #alkalinediet #healthyfood #glutenfree #god #christian #jesus #bible #vegan #vegetarian #plantbased #healthandwellness #wellbeing
The following post is extremely personal, but I felt the need to share because over the past few months, I feel like I have been beraded with questions regarding things that can be deeply painful to process. It is 4 am, and Ive been up since 2. Im in pain. I suffer from a chronic pain disorder. One that is extremely sensitive and invisible to the eye. Its called Interstitial Cystitis. The past 4 years have been difficult to say the least. I was misdiagnosed numerous times, been to 4 specialists, endured a 6 month long clinical trial ( that didn’t help) , been rushed to the ER numerous times only to be placed in a corner and forgotten about because my pain ( in their eyes) wasn’t severe enough. I have had doctors tell me that my pain is in my head ( without running proper diagnostics) had doctors want to start from scratch each time just simply because my own verbal history wasn’t enough proof that something was terribly wrong.... even tho I have a long paper trail of tests and so on and so forth. My worst days are in a fetal position unable to get off the floor... unable to turn the knob of the bathtub faucet in which a bath might give me temporary relief. Those days have left me sobbing in my husband’s arms scared that I might never find relief, never be able to conceive, never be able to carry a child because the pain that already consumes me might just be too much to bare to carry to full term. I want to be a mother so badly.. and being asked time and time again... when will it be my turn can be so unbearable to even process. This is why I haven’t become pregnant yet. This is why most weekends are spent at home in bed... in pain ... suffering in silence ... with only my husband to lean on and provide the best support that he possibly can. He is a saint. He has literally picked me off of the floor when I simply cannot stand. I felt the need to explain, because my passions of blogging have taken a back seat. My spurts of energy are few and far in between but I have to focus on getting better. Yes there are days, I can pull myself together and feel pretty on the outside but almost always... I feel the complete opposite on the inside. Cont. below...
As we welcome in the coming days of fall, it's a perfect time to share one of my favorite cold weather meals: soup! This delicious sweet potato and carrot soup with coconut milk is healthy, IC friendly, and vegan! #Repost @itsahealthylifestyle (@get_repost ) ・・・ Autumn and soup galore!! 😋 if you can't see in the dark, after this meal you sure will be (note* not scientifically proven 😂). Sweet potato and carrot soup with coconut milk! So so good, both warm, filling and incredibly nutritious! * RECIPE ON MY BLOG* You should definitely try it! I also tested this new olive oil based spread from @zeta.nu (not sponsored!). It doesn't have that typical creamy taste that vegan spread does (duhhh...),but i like that this spread is based on oil and no palm oil! Don't fear healthy fats, they are incredibly important for a healthy body and mind! (I have a post about healthy fats and the importance of them for anyone interested in reading!) 🌱🌱What are some your favourite soups?🌱🌱 #interstitialcystitis #icdiet #diet #foodie #fall #autumn #soup #chronicillness #spoonie #endo #endowarrior #vegan #veganlunch #vegancommunity #meatfree #dairyfree #poweredbyplants #realrecovery # #foodlovers #gloobyfood #veganskmat #nutrition #tasty #plantpowered #buzzfeedtasty #health #vegannutrition
What #purehappiness looks like. Yesterday night my poor girl was in pain. But thanks to my incredible BAH family she is back to her old self! #angel #catsofinstagram #14yearsyoung #seniorpetsofig #furbaby #mykidshavepaws #purrmachine #bubbies #bubbiescat #rescued #sheltercat #loveatfirstsight #interstitialcystitis #hillscd
New post! Three tips I wish I learned sooner! 😫 Good info for people with comorbid conditions too. Link in bio. #EDS #POTS #fibromyalgia #interstitialcystitis #mecfs #chronicillness #disability #MCAS #mastcelldisease #allergies #ibs #anxiety #PMDD
The other night was probably one of the best nights of this year,as far as letting shit go and moving tf on.His Video Will be out in a few weeks.Im glad i got to help you even if it was small @fadedbreezie I am glad I was able to help myself as well.Its not vain,I'm honest ugh I just can not wait to get back to my pre sickness body,you have no idea how triggering it is to want to go back to eating disorder ways but I guess I just accept what is for now and still keep moving places. #latepost #wednesdays #mood #lasvegas #realshit #reallife #route91 #route91harvest #route91survivor #film #1yearanniversary #stillinit #upclose #myworld #postop #invisibleillness #ic #interstitialcystitis #kidneydisease #edrecovery #art #girl #dyslexic #artist #color #mylife
I was nominated by the lovely @kikibeelife (And if you’re not following her, fix that right now, because she’s amazing!) to share 5 fun facts about myself. • • 1 I wrote my first ‘book’ when I was in the second grade. Shockingly, it wasn’t a best seller. (😂 Can you believe?!) But I was bit by the writing bug and writing/publishing a book has been my dream ever since. • • 2 I still have a major soft spot for 90s and early 2000s britpop. B*Witched, @billiepiper , S Club 7, and of course @five__official - my OG baes. My lifetime BFF Nicole @cole527 and I are thinking of making a trip across the pond to see them in concert. Because, why not? • • 3 My middle name is Grace. If you know me, you will understand why this is hilarious. Y’all, I’m about as graceful as a bull in a ball gown. • • 4 I text and type exactly how I talk. If you know me or watch my stories (when I make them, because I kinda hate myself on video), I very much speak the same way- to the point people have often mentioned it to me! So, what you see is what you get. Sorry bout that. 😬 I say y’all A LOT. • • 5 I love office supplies. I buy new pens at least once a week because I ‘need’ them. But they’re SO fun! I still love to write handwritten notes and I still use a paper calendar. *gasp* @paper_mate_inkjoy is my faaaaave! • • Thank you for nominating me, @kikibeelife ! I want to nominate @shakeitcalli , @nathalytanner , @malarykae , @kloscarson and @creatingthecarters to tell us five fun things about themselves! If you’re not following them, make sure you change that! By the way, you can score this cute dress from @shopbourbonandrye !! • • • • #spoonies #spoonieblogger #chronicallyill #fibromyalgia #interstitialcystitis #endometriosis #chronicpain #invisibleillness #chronicallyfabulous #nashville #nashvillegram #bloggergirl #ontheblog #bloggervibes #quotestagram #bloglife #blogpassionproject #communityovercompetition #pursuepretty #pursuewhatislovely #calledtobecreative #creativelifehappylife #darlingmovement #seekthesimplicity #feelfreefeed #theeverygirl #lovelysquares
Actually I found out today squats are good for your pelvic floor. Some of us have tight pelvic muscles that need stretched not tightened with a kegel. Had my first pelvic floor PT session today and it was amazing. She really knows what she is doing and is passionate about her work. #endometriosis #interstitialcystitis #pelvicfloordysfunction #pfpt #surmeno #pcos #pelvicpain
IC flareup or nah? ⛲️🤦🏽‍♀️ Fixed Wave, Linda Stark, 2011. Spotted at Made in LA at Hammer Museum
✔️✔️✔️ Guess what⁉️. No hip or shoulder pain🚫 Also, 40 mins of cardio core with only 1 modifier!! 💪🤸
This is Interstitial Cystitis awareness month. When I tried to explain what the pain felt like I would tell people that it felt like I had a ball of razors or knives suspended in my pelvis and with any small movement it felt like I’d get sliced. It was a true nightmare. It’s a condition that is quite prevalent but many have never heard of. I was bedridden due to excruciating pain for almost 3 years. I couldn’t care for my son. I couldn’t even care for myself. I developed severe pelvic floor dysfunction, severe depression and anxiety. There are millions that suffer from this still. I was one of the lucky ones that found relief with the Interstim implant. But many are not as lucky. Thinking of living my life with this condition is really terrifying. iC has a high suicide rate. There really is not adequate treatment for it, and that’s unacceptable. If you have IC or any type of bladder pain, or have questions about the Interstim implant, please message me! I would love to help! 😘💔🙏🏻 #interstitialcystitis #interstitialcystitisawareness #ic #pelvicfloordysfunction #pfd #chronicpain #chronicillness #pelvicpain #bladderpain #pain #disability
New chapter of living with IC (interstitial cystitis) say hello to my new friend Mr. Catheter..no complaints though..thankful just to see another day #ic #interstitialcystitis #irritablebladdersyndrome #blessed #thankful #faith #strength #trustingingod #breakthrough #icsucks #imcomingouttathisvictorious #youdontknowmystory #momof2 #hiswife #daughter #sister #friend
As I continue to start my day (even though it's a necessary rest day), I need to remember how important my character is. ▪ Not just my character, but how important it is to keep following our Lord Jesus Christ as I go throughout my day. Because THAT is what will matter at both 1.the end of my day, and 2.the end of my life when I stand before God and give account of how I have lived. . . . #ChronicIllness #ChronicPain #Fibro #Dysautonomia #POTS #NCS #PTSD #Depression #Anxiety #PCOS #InterstitialCystitis #TrigeminalNeuralgia #FaithBlogger #ChristianBlogger #Christian #Faith
September is #icawarenessmonth I have lived with Interstitial Cystitis since May 2004. Not a day goes by that my bladder doesn’t remind me of this. I live in a great deal of pain and live with many other horrible symptoms as well. This illness has robbed me of a lot, but my faith and trust is in God, so I keep on going. 🙏🏻#interstitialcystitis patients unite together each #september to tell our stories and bring awareness to this miserable #chronicillness #ICwarrior #IC #spoonie #chronicpain #unite #Godisincontrol #faith #bladderprobs #hope #awareness #pain #butyoulookfine #imnot #invisibleillness #disabled #fibrowarrior #christian #Godisgood #westandtogether #chronicillnesswarrior
Today has been a day of introspection and, to my great (and very welcome) surprise, not much pain. But as I flipped through Instagram to catch up I saw this sweatshirt and the quote really hit home! I was thinking the other day about my happy place – soaking up the rays of the warm, bright sun ☀️ (total sun worshipper – I may be part reptile🦎), fresh air mixed with fresh cut grass🌱, hay bales or cow pastures off in the distance🐄 and that feeling of home, comfort, happiness, relaxation, and never ending possibility that comes with it. Do you notice a relation between your symptoms and the time you spend outside connecting with nature? Do you think it is the relaxation it provides, or simply connecting to the world again? I don’t know if it’s the Vitamin D, the fresh air, or the look of pure bliss on my puppy’s face when he lays in the grass 🐶 (why don’t they have a black lab emoji, right?!) that make me feel just innately happy – but I’ll take it. That moment of forgetting about my problems is an awe-inspiring and incredibly awesome, if fleeting, moment. Realizing that the world is so much bigger and better than what we’re bombarded with every day really gives it some perspective. And then the lingering thought…wouldn’t the world be a better place if more people connected with nature each day? Maybe that’s part of our problem, we forget what it feels like! If you like this quote or connect with my thoughts, share your comments /ideas/feelings below and tag a friend who might enjoy it, too! Let’s try to get as many smiles and “happy place” visits in the world as we can today! ... Sweatshirt by @wholesomeculture Available in organic cotton! ♥️ 🐝 🌲 🌳 🌊 #healthy #vegetarian #plantbased #organic #eatclean #glutenfree #cleaneating #health #love #smoothie #coconut #fruitbowl #fruit #ic #interstitialcystitis #pbs #painfulbladdersyndrome #awareness #relax #relaxation #outdoors #nature #connect #disconnect #pasture #cow #Repost @get_repost
I feel I had a better appointment today than I’ve had in awhile, which was good. We are aggressively working on my stabilization. Today, I was glad to have my requests met to see the actual doctor and had an open ear with him. No arguments. Just civil conversation. I’ll know more once I receive my write-up in the mail, but I now have a new condition involving my central nervous system. No idea what it’s called, but it had a ridiculously long name. Although it’s pretty clear that Lyme, babesia, and bartonella have caused most of the damage, we did cover all the bases. He knew I had a histamine problem before I even showed him my rashes (which I’ve had for.. 13 years?), and prescribed 4 antihistamines to stabilize me. In addition, I am trying lowest dose butrans patch, hoping it will help with withdrawals on top of all the illness. My blood cell counts look good as far as I know. My cortisol levels were very elevated (duh) but he was actually glad that they weren’t low bc of adrenals. I have high copper levels as well. I really hope the butrans kills two birds with one stone. It’s kind of my only hope. He described how 90% of my pain is a result of a very faulty, very inflamed and confused central nervous system. So my brain did it all essentially. After Lyme tried to take it over. He noticed my EDS without me saying anything as my shoulders kept popping out of place, and made some conclusions there. He prescribed me some meds for my seizures (which I don’t have often anymore, but in case. My brain is always misfiring in odd scary ways). Otherwise, I’ve got to start back up these same neurotropics. I asked if I was going to be okay, and his honest answer was “I don’t know, but one day at a time”. I may not have the motivation, but this is my life. I have to try. #lymedisease #babesia #bartonella #centralnervoussystem #autonomicdysfunction #pots #lyme #lymeawareness #drjemsek #antibiotics #chronicillness #health #chronicpain #chronicfatigue #interstitialcystitis #inflammation #neurosurgery #brainonfire
🌅Somedays you just have to create your own sunshine. Empower yourself to make a change in your life and celebrate what is. Happiness is our choice and there is always something to celebrate.🌅 . . . . . #happiness #motivation #staystrong #Painfulsex #painfulintercourse #pelvicfloor #vaginaldilators #pelvicpain #endowarriers #Icwarrior #Icsisters #dilators #VaginalPain #PelvicFloor #Painfulsex #Vaginismus #Dyspareunia #Vestibulodynia #VaginalAtrophy #VaginalAgenesis #Vulvodynia #endometriosis #interstitialcystitis #endossage
Did you know your wall is a prop? I'm just hanging out here and breathing: feeling my breath and my body. Feels wonderful! Come work with me via zoom. First session is always free! Check out my link in the bio. #itsallyoga #yoga #yogaofinstagram #pelvichealth #pelvicpain #interstitialcystitis #icwarrior #spoonie #spoonielife #invisibleillness #ankylosingspondylitis #fibromyalgia #pelvicfloor
#ICChallenge #InterstitialCystitis #IC #SeptemberAwarenessMonth Day 19 - Q: Have you ever experienced Ableism? A: I don’t think so. I think ppl would have to believe your sick first b4 they could discriminate, lol. #PainSucks #ICSucks #EDSSucks #SeptemberAwareness #Awareness #TealAwarenessRibbon #Teal #IWearTealForMeAndMyCysters #PelvicPain #PainfulBladderSyndrome #PelvicFloor #FindACure
Ever have days when you wished you had just stayed in bed? That’s me today. First, a completely confusing stomach reaction. 🤢No idea what I ate that has caused an issue but I was all ready to leave this morning and then had to stay home for several hours before it sorted itself out. Next, caught in rain storm ⛈ , which I was wholly unprepared for. Then, bumped into someone I REALLY didn’t want to. And especially not when I have barely slept for weeks and certainly wasn’t looking my best. Also it seems as though I am shadow banned - thanks IG 😡 BUT then I had an interesting conversation with Alicia from @thedizzycook - spoonie friends are so helpful! Plus I finished my questions for an interview that will be on her website later this week - I’ll keep you posted. And got some other work done. So the day turned around. There’s always a glimmer of light on the darkest days. Sometimes you have to look for it more than others. But it’s always there. Even if it’s hidden in the shadows. Hope you didn’t have to search too hard for the light today ❤️. . #fibromyalgia #fibro #pots #eds #ehlersdanlossyndrome #hypermobility #posturalorthostatictachycardiasyndrome #potsie #dysautonomia #migraine #chronicmigraine #vestibularmigraine #headache #chronicheadache #vertigo #dizzy #raynauds #ic #interstitialcystitis #mcas #mcad #mastcellactivationdisorder #kewgardens #ibs #chronicillness
If you're not in a state that allows medical marijuana, CBD has so many benefits too and is very helpful with chronic inflammation! I urge you to find a reputable company to help cope with chronic pain and inflammation in your body. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ IT doesn't just mask the pain, it heals it.⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I've witnessed it myself. I use every single day and it is so helpful for GI symptoms, skin rashes, burns, cuts, and sores. You name it, it heals and helps so much! ⠀⠀⠀⠀⠀⠀ #lupuslifehacks - use this to show us your best life hack for lupus!⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #CBD #medicalmarijuanaadvocate #medicalmarijuanapatient #lupus #IBS #interstitialcystitisawareness #interstitialcystitis #lupustreatment #naturaltreatment #healthier #safetreatment #learnsomethingnew #educate #lupuslife #chronicpainmanagement #chronicallysick
Thanks to @thedanaparish for providing a lovely cover quote! Full quote will be inside the book, and is on my website (www . GreenChairPictures . Com) Just submitted my Final Approval on my manuscript to @blackrosewriting. Next step: sales & marketing department for pricing & final cover design modifications. Still on track for a December 13, 2018 release date! “I Cannot Play With You” is a Lyme disease murder mystery in the chick lit style. Protagonist is a 50-year-old-ish woman experiencing the many odd & confusing symptoms of Lyme, co-infections, & autoimmune disorders. Yep: #writewhatyouknow #thankful #lymedisease #lymediseaseawareness #lyme #fibromyalgia #bartonella #babesia #interstitialcystitis #ic #murdermystery #chicklit #novel #amwriting #amediting #amresearching the next novel in the series #icannotplaywithyou #blackrosewriting
Recovery update. I’ve never actually done one of these. It’s not really my jam but I know it’s helpful for people to see what’s possible so here we go: * Symptoms I no longer have after 2 years of healing: * 1.Fibromyalgia 2.Rheumatoid arthritis 3.Interstitial cystitis 4.Chronic Fatigue Syndrome 5.Multiple chemical sensitivity 6.Depression 7.Anxiety 8.Suicidal ideation 9.PTSD 10.Hair loss 11.TMJ 12.POTS 13.Lyme disease 14.Insomnia 15.Tremors 16.EBV, babesia, bartonella 17.Neuropathic pain 18.Multiple food and histamine intolerance and IBS 19.Cognitive decline ******** Not bad..... :)Ha. * Things I am still working on. And this is cool. I didn’t get sick overnight. The physical and emotional layers continue to unwind and I don’t resent that or wish it away. Progress, not perfection *********** 1)Mold sensitivity - I’m still hugely mold sensitive. And still nightshade sensitive 2)Clearing and healing my liver - it has a significant way to go and affects me still 4)Skin/fascia damage on my legs 3)Back/hip pain from scoliosis, so ongoing care 4)Tiredness in waves - It was my primary symptom so one of my deepest teachers 5)Introversion - random to include but important. When the world feels too much I still sometimes curl up and shut off. Not that being alone is bad. I am naturally introverted so this is just me. But it’s still a little out of balance. Having breathable boundaries to let enough in; is what’s important for me. I continue to work on this ***** What I have gained from this two years...... A depth of gratitude for life that has created a veil of beauty over my eyes that can never be removed. Deep trust and love for myself. A sense of what ever comes next is ok. That I am and I have enough. I’m devoted to my life and also at peace with what ever the future is. That may sound morbid but it’s just an acceptance of my impermanence and commitment to my presence. I love life with a ferocity that is breathtaking. It isn’t easy. I struggle still, I cry, I have very tough times and I don’t always know what the f*** I’m doing. None of the above has been linear. But I don’t resent these challenges. They are meant for me. Here’s to the next 2 years :)
Before... and After 🤣😂🤣 . It may not always be pretty, but it’s always, always, always worth it!!! . I want a body I’m proud of! I want to feel confident! I want to love the life I’m living and be here for a long time to enjoy it!💗 . If you’re ready for a change, a 2️⃣1️⃣ day challenge may be just the thing you need! Come join us in the Fit Chicks Family for FREE and get motivated today! Link to join us in my bio! 😘 . . . . . . #beforeandafterweightloss #beforeandafterworkout #workingonme #workingonmyfitness #workingonmygoals #brunettesdoitbetter #fallhairstyles #fitchick #fitchicksrock #fitchicks #catmomproblems #carolinagirl #sweatyhairdontcare #motivatedaf #morningmotivation #sweatfest #bodyunderconstruction #mealplan #mealplanbabes #mealplanmagic #21daychallenge #interstitialcystitis #intermittentfasting #anxietyrelief
I often get asked, what is pelvic physical therapy like? I have gone and can share what my experience. Back story, I have two kids and I would have some stress incontinence when I would work out. I didn’t even realize right after I had my kids, it was only when I wanted to be more active. It took me many years to admit that I needed to fix the issue despite being a pelvic pain doctor! ( we are the worst patients!) _____ I went to a place that had only 1 pelvic physical therapist, mostly to avoid running into my patients. I was in a private room. We talked about my history, including all things about bowels, bladder and sex. She asked me questions about any pain and my periods. I had already filled out an extensive history so mostly reviewed this with her. _____ Then she did a physical examination, external and internal. Externally evaluating my spine, pelvis for rotation, alignment, tenderness, and then she did an internal examination of my muscles. She asked me to do few exercises while she was using her finger internally to see how fast I could contract my pelvic floor muscles. She also used a biofeedback machine ( using pads on my external muscles) to see my muscles at rest. ____ She taught me some exercises to do. Each person is different so they would be different depending on your exam findings. She showed me how to breath in sync with my pelvic floor. Was it invasive? A little but I got over it pretty quick. Did it hurt? No. I was going for strengthening after having two kids via natural deliveries. So my plan was different then someone going for a tight pelvic floor. ____ Share your experience of pelvic physical therapy! ____ #nycdoctor #pelvichealth #womenshealth #womenempowerment #endometriosis #vulvadynia #pelvicfloordysfunction #pgad #interstitialcystitis #constipation sibo #urinaryfrequency #invisibleillness #futureisfemale #strongwomen #pelvicfloorpt #pelvicfloor #endopatient #endowarriors #endocommunity #stressincontinence #nyc #doctor #nycdoc #physician #paindoc #nycphysician #manhattan #stylishdoc #somedoc #pmg
💓We must take care of ourselves... it’s up to us to have good health. It took me 40 years to understand this. I used to think that the only thing I could control was my weight. I thought that everything else was decided by my doctors, medications, genes & aging. Since my family had this or that diagnosis...I would too. And my body was going to show the wear & tear of aging & there was nothing I could do to make that better. All of my previous notions were so wrong!🤯 We can write our own health stories. I’m so glad that this is true! Take care of yourself! There’s only ONE of you! And you’re loved & needed!💕💕💕 Eat right, take quality supplements when needed, drink organic herbal teas for MANY health benefits, use essential oils to also provide many health benefits. Say no to toxins, sugar, GMOs, alcohol, tobacco...you know where I’m going here! 😄 Say YES to spending time in nature, a great diet/lifestyle, feeling your best you NOW, & having wonderful elder (senior) years because we did all we could to live healthfully. 💓👍🎉 #chronicillness #chronicpain #takecareofyou #endometriosis #hypothyroidism #hypertension #diabetes #cancer #interstitialcystitis #fibromyalgia #healthylifestyle #gethealthythenaturalway #thevegancru
Today I switched to new hair products @morroccomethod Since I changed to a plant based lifestyle almost 4 years ago it has been an ongoing learning process & one thing I've learned is companies claim their products are "plant based" & "natural" etc but there are actually chemicals in the ingredients. A huge part of my detox has been hair loss from being so heavily medicated and consuming the SAD diet for so many years...so I'm looking forward to fuller, healthier and longer hair with MM products, raw vegan diet, my herbs from @robertmorsend and following the Lunar chart ✨🌿💇🏼‍♀️🚿 #healthyhairjourney #morroccomethod #regenerativedetoxification #deeptissuecleanse #detoxification #cellulargeneration #juicefasting #rawvegan #crueltyfreeliving #vegan #healing #naturalhealing #naturopathy #systemicacidosis #godisforus #itiswell #cellularbotanicals #veganchristian #endometriosis #interstitialcystitis #adenomyosis #ibs #thyroidhealing #pelvicfloordysfunction #iamhealed
Sometimes I push through pain and do too much, until my body makes me stop. This is never good. Now I'm paying for all the days I've pushed through and acted normal and healthy. My body is quickly reminding me I'm not normal or healthy. 😔 #ic #interstitialcystitis #chronicpain #chronicallyill #laryngitis #sicklife #mybodyhatesme
One of my most surprising discoveries during my health journey is that I don't do well with caffeine... at all! Surprising because I used to drink coffee multiple times a day when I worked in marketing, sometimes just to get out of the office for a minute. Now that I live in Sweden, fika (taking a coffee break) is such a big part of the culture, and it can be hard to find fun caffeine-free drinks to try. So I decided to branch out to matcha, which is green tea so it's slightly caffeinated, but not anywhere near coffee. Well, first of all, it was delicious, and second of all, holy caffeine Batman! Luckily I didn't get jittery but I DID feel like I was on speed. You guys, the amount of caffeine in a matcha latte is basically equivalent to tripping for me 😂😂 I was on fire, the whole afternoon I was coming up with new business ideas and blog posts, i don't think my boyfriend has seen me with this much energy in a long time! So long story short, probably don't want to be tripping every day, but for those who do well with caffeine but are looking for a lower-caf alternative, give matcha a try! And #interstitialcystitis peeps, it felt ok with my bladder. Yippee! 💚 #holisticwellness #wellnessjourney #holisticlifestyle #nourishyourself #wellnessblogger #wellnessblog #guthealth #leakygut #nourishyourbody #foodheals #healyourgut #foodismedicine #cleaneating #healthyfood #hälsosammat #hälsosamt #nyttigt #nutrition #ntp #näring #chronicillness #chronicillnesswarrior #kronisksjukdom #interstitialcystitis #painfulbladder #greenfood #matcha #fika
I am officially done in today. I can't even fake a happy face. I'm trying so hard to push through the pain and fatigue and grow my stamina and strength but it's not easy after months of being bed bound. I managed to go out yesterday which I thought would be nice but it made me feel so unwell and down about myself that I cried all the way home. I then felt so sick and exhausted from the amount I did (not alot). My temperature went crazy and I was either freezing or boiling, sickness, fatigue, headache etc. Is this PEM? Will it get easier with time? #PEM #postexertionalmalaise #endowarrior #endo #depression #selfcare #endosister #adeno #adenomyosis #chronicpain #endometriosis #chronicillness #bladderpain #fibromyalgia #fibro #anxiety #chronicallyill #painfulbladdersyndrome #interstitialcystitis #invisibleillness #butyoudontlooksick #surgeryrecovery #surgery
We've all felt a little incompetent, insufficient, overexposed, helpless, unlovable, terrified, defective, unfit and unsung at times. And deep down, for whatever reason, you might even think you deserve to. Because why else would you be feeling that way. Like the world is laughing at you.- • I promise you it's not.
4:15 AM EST. Laying in bed listening to The 1975. I'm letting it guide me through the pain so I can try and sleep...i have so much to do and not enough time to do it. But I can't do any of it unless my eyes agree to stay closed. So tired of hurting. #spoonie #spoonielife #ehlersdanlossyndrome #ehlersdanlos #myedshurts #fibromyalgia #dysautonomia #interstitialcystitis #arthritis #hipdysplasia #hipfai #chronicmigraines #headache #stomachache #nausea #cantsleep #chronicpain #chronicillness #the1975 #mattyhealy #love
On my way back home from #arizona , I had to stop and get my favorite treat: pickle pear cactus honey. This stuff is seriously delicious and very IC friendly! #interstitialcystitis #ic #icwarrior #icdiet #chronicillness #endowarrior #endo #endostrong #spoonie #spoonielife #broken #shopping #az #azlife #phoenix #vacation #traveltuesday #trackandfield #cactus
IC Awareness Month Fact #8 : your side needs to know! Do not suffer in silence. If you are experiencing symptoms, your doctor may have answers or can refer you to a specialist who can find them. #interstitialcystitis #ic #icwarrior #icdiet #bladderpain #bladderpainsyndrome #bladderhealth #pelvicfloor #pelvicpain #chronicillness #chronicpain #pain #endowarrior #endo #spoonie #spoonielife #sick #doctor #urology #ask #research #tellthem #cure #healthy
UUUGGHHH this is so lame! I finally think I have the willpower to change my diet in order to reduce inflammation and flares... But the diets of my 2 biggest issues tend to contradict each other! 😣 I looked into keto and Candida diets for the she reasons and now I'm just ALL CONFUSED!! SOMEBODY PLZ HELP!! * * * * * * #interstitialcystitis #icdiet #icwarrior #interstitialcystitisdiet #arthritis #arthritisdiet #antiinflammatorydiet #antiinflammatory #antiinflammatoryfoods #keto #ketodiet #candida #candidadiet #nutrition #nutritionist #soconfused #overwhelmed
Interstitial cystitis is a very painful condition and there is NO CURE. It is not a condition you hear about every day but needs awareness. #IC #interstitialcystitis #teal #awareness .
September is interstitial cystitis awareness month. ❤ Hope for a cure. #ic #interstitialcystitis
Today was tough, but that doesn't mean tomorrow will be--- that's the best thing about "tomorrow"s, they have potential. I'll try again tomorrow, and until then I have my cat snuggled up with me to keep me company . . . . . . . . . . . #cat #cats_of_instagram #encouragement #RareDiseaseWarrior #ChronicIllness #ChronicIllnesses #ChronicallyIll #ChronicPain #Spoonie #EhlersDanlosSyndrome #EDS #Hypermobility #Gastroparesis #PosturalOrthostaticTachycardiaSyndrome #POTS #CeliacDisease #Celiac #Glutenfree #Fibromyalgia #Fibro #PeriodicLimbMovementDisorder #IC #InterstitialCystitis
Self Care Is Not Selfish,even when your self esteem is lacking just saying.Do that shit anyways.Yeah it's been a few weeks since I got Surgery it has been real.So in The Summer I did get off Supplement and went raw it was cool minus my organs didn't really know how to act.So I got some of the same effects people get when they get refeeding syndrome.In my stomach area im still waiting for it to drop to normal and add random ass flaring and swelling it's been a wild ride down memory lane I wish wasn't real. #postop #invisibleillness #kidneydisease #ic #interstitialcystitis #spoonielife #recovery #honestyhour #refeeding #plantbased #itsnoteasy #hardday #lush #handmade #selfcare #selflove #bathbombs #bubblebars #upclose #myworld Thank You to @lushcosmetics You have the best employees ever.Haha especially dealing with me,because I'm extra🤦Plus the stuff I went for they were out of stock.Its ok they helped me pick some other stuff I wasn't really interested in,but will also treat me good.
Health update: my brother was very recently diagnosed with Type 1 diabetes. It is recommended I get tested as well. His diagnosis means my risk is 1 out of 10 of also having it. I get tested next week. Other: I am expending a lot of energy on the social facets of my life lately. I want to find/create a sturdy foundation going in to the more dreary months of the year. What better season to do that? Not just Autumn, but truthfully, in my life. I am ready for close-knit connections. I am open for the vulnerability required to show my true colors and find a like-minded community. I am excited to have friends in my life who bring out the best in me, who teach me new things and help me to grow. I have waited a long time and worked incredibly hard to create my village and I can confidently say that it's finally happening. I want to continue to put my energy where it belongs. Into my home, marriage, raising my kids, and into deeply meaningful and unconditional bonds with people deserving of that side of me. I, too, deserve this gift ✨❤✨ #chronicpain #chronicillness #fibromyalgia #fibro #ocularmigraines #chronicheadaches #interstitialcystitis #ibs #pmdd #hormoneimbalance #invisibleillness #spoonie #spoonielife #spooniefamily #spooniecommunity #anxiety #gad #generalizedanxietydisorder #ptsd #depression #insomnia #insomniac #existentialism #existentialist #highlysensitiveperson #hsp #highlysensitive #empath #empathetic #introvert
It’s important to expect nothing, to take every experience, including the negative ones, as merely steps on the path, & to proceed. • •Ram Dass🎗💛🎗
next page →