#ileostomylife

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Today’s #ostomyfashionfriday has been sent into me by the lovely @adventuresofmummumandjake. This her 2 year old son Jake, who is also an ostomate. Both Jake and his Mum share a condition called #hirschsprungsdisease and her page is to spread awareness also, so why not give her a follow! He’s spent most of his life in hospital but is the best he’s ever been right now. Thank you so much for sending me this photo he’s a credit to you and so cute. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself
I’ve ran out of photos for my #ostomyfashionfriday entries, so any ostomate male or female want to send me photos of their outfit of the day feel free to DM me and ill feature it on my page here every Friday. I’ve had a great response over the last few months and I’d love to have more of you take part if you’d like to. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself
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❄️🌞 it’s snowing here today, so i wanted to remind myself of the summer. #tbt // This picture was taken at a festival and my bag was so full, I thought it was going to pop at any time. With no bathroom around, I couldn’t do much but keep pulling at my shirt.😆 Luckily, I always able to finish enjoying the festival without any accidents. // But today! Let me tell you about today. My bag just opened up all on its own and spilled everywhere! I mean everywhere! We even had to buy a new rug.🤦🏽‍♀️ // Good news is, this incident got me up bright and early, and I had a pretty productive day. 😁😁😁 // Has this ever happened to you? Let me know. 👇🏽 // 📸: @djleibro#happybaglife #nocolonstillrollin #ostomyblogger #ostomate #ostomylife #ulcerativecolitisawareness #crohns #spoonie #stoma #ileostomy #ileostomybag #ileostomylife #ulcerativecolitisfighter #spoonielife #spooniewarrior #ostomates #ibd #positivevibes #ostomyart #getyourbellyout #chronicillness #crohnsdisease #ibdgang #ostomy #ostomyawareness #ostomybag #illu #creative #illustrator
We also talked about the possibility of me having endometriosis. I thought I had symptoms of a failing mesh, so I went to a gynecologyst. They said it could be the mesh, so gave me a prestap injection to start menopause and my symptoms stopped. Another gynecologyst said i didn't qualify for the tests for endometriosis because I will have so much scar tissue, but I could have it. They have the same symptoms. So I don't know what to do when I'm no longer allowed prestap. Hormone replacement therapy has a time limit. . The last thing we talked about was the cause of my prolapse, did she have any idea why it started. She did, apparently she found that out when I first got diagnosed with the prolapse. I remember the testing but I don't remember diagnosis (this was 13 years ago and I've lived a lot since then). My mum got most of the information anyway, not me. According to her tests I have a connective tissue disorder. She can't say which one but prolapse is a big symptom of erhlos danlos syndrome. Sorry if I've spelt it wrong. I don't really know much about connective tissue disorder, but from what I've read it seems to explain an awful lot about my life. An awful lot. I finally have a path I can go down to explain why my body has always been so hellish. But I'm also scared, I have enough diagnosis. Prolapse, telescoping colon, colon paralysis, leaukimia, avascular necrosis, peripheral neuropathy, slipped discs, low muscle tone, low blood pressure, asthma....do I really want another one. Another one that can't be cured. Will it just add another complication to my complicated case. Or will I actually get help now. I don't know any more. My mind is boggled. Really boggled. I'm trying to distract myself with crocheting and playing video games with Stu but Its not helping. All this information is just spinning in my head!!!! #chronicpainsurvivor #chronicillness #chronicpain #prolapseaware #prolapse #prolapseawareness #transvaginalmesh #ileostomylife #colorectalsurgery #strong #surviving #survivor #mystory #diagnosis #nervedamage #peripheralneuropathy #nervessuckass #nervessuck #canmybodyjuststop
7 years ago vs today. Looking back then to how I am now is strange, I was younger for a start😂, I was single, I was working and had no stoma. Now I’m in a relationship, I’m older lol, I’ve my stoma and happy for it, but not working, and that’s fine, I will do things in my own time and when my body is able to. Right now I’ve to listen to it and take care of myself. As the saying goes your health is your wealth. life has had it’s ups and downs, good and bad days, days where I thought I wouldn’t make it through as I was so tired and drained from things both mentally and physically. But I think all of this has made me the woman I am today, I’m a lot stronger, confident, positive and happier than I was. Life has got better for me despite all that’s happened and I can’t wait to see what the next 7 years has in store. #throwbackthursday #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself
So today I had a very strange appointment. Most of my appointments end in another referal and the same old "sorry there's nothing we can do to help you, your too complicated." Very very rarely I get a terrifying life altering diagnosis. Today I kind of had both. And I'm still shook from the experience. . I saw a doctor today who was the same doctor I had when I first got my prolapse at 13 years old. She performed 4 surgeries on me and they all failed. I've had 2 more surgeries since then, the stoma I am fine with but the mesh I have holding the prolapse up causes me issues. So I've been trying to find someone who can help with the mesh, but not the surgeon who did it. I ended up back at my first doctor. She had a look at me and examined me and found that I have nerve damage which is causing a lot of my pain. She said my mesh is absolutely fine (thank goodness) but that nerve damage is definitely causing me issues. So she is sending me back to the surgeon I don't like but promises I won't see her for consultation unless I need surgery. Hopefully steroid injections should be enough. . It's so exhausting and draining going from one to the next and explaining it all over and over again. I really need to make flash cards!!! But!! At least I got a solid answer. I now have another wonderful diagnosis to add to the list. Damaged butt nerves. Wonderful!! Thats not all though, she suggested i may have two other things. See my next post.... #chronicpainsurvivor #chronicillness #chronicpain #prolapseaware #prolapse #prolapseawareness #transvaginalmesh #ileostomylife #colorectalsurgery #strong #surviving #survivor #mystory #diagnosis #nervedamage #peripheralneuropathy #nervessuckass #nervessuck #canmybodyjuststop
Haven't posted for a few days as I'm struggling and don't know what to say. The black dog has reared its ugly head and I just want to hibernate 🙄 #blackdogdepression #depressionsucks #anxietysucks #ileostomyissues #ileostomylife #stomalife #spoonieissues #spooniestruggles #spoonieproblems #uc #uclife #blackdog
Get up, and show up. ✨ Your body will thank you in return. 💪🏻 . #fitandhealthyvibes 🙌🏻 #goalstrongAF 💪🏻
Noch eine Woche.... .... in 7 Tagen is mein OP-Termin. Ich hab so viele Prospekte und Infos mitbekommen, aber außer an diesem Tag im Krankenhaus, außer in dieser einen Stunde (in der auch das anders Stoma-Bild entstand), hab ich mich nich mehr damit befasst. Ich hab’s mal versucht.... aber ich kann nich. Es fällt mir so schwer. So unheimlich schwer... 😒😕😞 . . . . . . . . #colitisulcerosa #colitis #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #cu #uc #mc #ibd #ced #morbuschron #autoimmune #autoimmunedisease #autoimmuneillness #autoimmunewarrior #stoma #ileostomyawareness #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #illness #chronicallyill #chronicillness #chronicallysick #invisibleillness #invisibleillnessawareness #invisibleillnesses #invisibleillnesswarrior
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Reading this it felt like it was wrote for me, I love this article worth a read @themightysite “If I’m having a good day and I want to document it through pictures and post it, I’m instantly looked at as a faker. Because how can someone have that much pain and still go out and have fun? If I’m undergoing a surgery, etc.,and I post a picture asking for positive thoughts, I’m looked at as an attention-seeker. How is that fair? All you’re seeing is a Facebook post. You don’t see me the 99 percent of the time. You don’t see me with bags under my eyes from the lack of sleep I’ve gotten. You don’t see me clinging to my stomach at 2:00 in the morning repeating over and over “please stop the pain, please stop it.” You don’t see me, you don’t know all I go through. Just because you can’t see my actual illness does not mean it’s not real. Because it is.” https://themighty.com/2017/09/endometriosis-not-apologizing-for-good-days/ #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself
Let us learn a lesson from Pippi Langstrumpf 💜 --- Pippi Langstrumpf war eines meiner Lieblingssendungen von damals! Selbstvertrauen! Mut! Leichtigkeit! Humor! Grips! Alles in Einem 🤗 Lass uns auch in schwierigen Situation ein bisschen wie Pippi Langstrumpf sein 😎
“You do what you can for as long as you can and when you finally can’t, you do the next best thing. You back up, but you don’t give up.” - Chuck Yeager —————— Of course it’s tough, of course it’s going to make you dig deep, you’re going to want to give up. You’ll have obstacles, but you stay focused. Keep going. ✨ —————— Seriously- 4 and a half months ago, I came out of major surgery. Took my recovery well, but so badly wanted to get into a fit lifestyle routine, again. I was told to start with only 1lb weights- I’m like what’s the point. Lol. Then told, ok go have fun with cardio. But I do not think they knew what I was up to, I think they were speaking in terms of a elliptical. 🤣 sorry bud- no. anyway, I did take it a little easy with a dance workout form, (because hubs wanted me to take it easy) - but it wasn’t a walk either!! 😅 then went for 💦💦 InsanityMax30, because I knew I could do it. I figured I’d modify what I need to, and go for it. And now, a week and half left. ———————— Moral of the story, you can do anything, just stick it out and you’ll see. Adjust your plan, not your goals. ✨💪🏻
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Hi everyone, This is my other photo from the calendar my sweet friend made. Here I’m a flower girl for the month April, my fathers birth month. Haha that was a total coincidence. The calendar is now for sale!! But this is only for my Dutch followers. All the profits from this calendar goes to charity!! Voor mijn Nederlandse volgers. Je kan de kalender kopen op de site van de Endometriose stichting. #nocolonstillrollin #ileostoma #ileostomy #ileostomylife #ileostomygirl #ileostomyfit #crohns #crohnsdisease #crohnswarrior #ibd #ibdawareness #ibdwarrior #fibromyalgia #fibrostrong #fibrowarrior #rheumatoidarthritis #chronicillness #chronicfatigue #chronicpain #staypositive #stillbreathing #positivevibes #positivethinking #kickass #chronicloveclub #ibdsuperheroes
I'm going to do a little blog about intimacy on the website, so I would just like some feed back if possible about people's feelings about it with an #ostomy #ostomyintimacy #stoma #stomaawareness #ileostomylife #ostomyissues
Bag? What bag? 😎 Love these shoes @palladium_boots 💓 Mittwoch 🍾😍 die Woche ist bald wieder geschafft und der Urlaub kommt immer näher 🤗 25 days to go 😍 --- !Werbung durch Verlinkung!
Oooooohhhh witchy woman.....
Kindness always wins! #worldkindnessday ❤️ • Your body is listening to everything your mind says, so make sure to be gentle. I know we can be extra hard on ourselves when battling IBD, but just remember you’re trying your best! • #happybaglife #nocolonstillrollin #ulcerativecolitis #ostomate #invisibleillness #ulcerativecolitisawareness #crohns #spoonie #stoma #ostomymodel #ostomyblogger #ileostomybag #ostomylife #ileostomylife #ulcerativecolitisfighter #spooniewarrior #ostomates #ibd #positivevibes #jpouch #jpouchlife #crohnsdisease #ibdgang #ostomy #ostomyawareness #ostomybag #ostomyfashion #spooniesisterhood
When you not only have one of the best stoma nurses (in my case two) and utterly amazing company contacts that are able to get you out of a bind! I literally had one bag left before my delivery was due. I had got in touch with @peakmedical2010 to see if they could tide me over and of course like the stars they are sent me a sample back of the bags I use - Ileomate oval convex. My stoma nurse also brought me some boxes to the training session with the aim to prevent this from happening again. As my hospital is linked to Dansac and I know my skin can tolerate the Novalife I just prefer the Ileomate, she also brought me a box of the Novalife TRE that I haven't tried before. #stomacarenurse #ostomycompany #ostomyadvocate #ileomate #novalife #peakmedical #dansac #ileostomy #ileostomylife
Maybe try replacing, “I have to workout”, or “I should start working out”, with- saying, “I GET to workout!” ————————— Some people don’t like working out, some do. The ones that do it regardless if they like it or not, don’t regret it. Because some- honestly can’t, whiling wishing they could, some can, but won’t, because whatever their excuses are. ————————— Move your body, because you can, sweat, dance, do yoga- whatever just enjoy being able to! Our bodies are pretty amazing, although we must take care of them to keep going.
T B P r o b l e m s Today six years ago 🍂 Auch damals beim Studium hatte ich übrigens große Probleme wegen der Colitis... Ich hab aber versucht mir nichts anmerken zu lassen. Und ich hab versucht es zu vertuschen. Und ich hab mir damit noch mehr Probleme gemacht! Ich hab zb wenn ich daheim krank im Bett lag Bilder aus besseren Zeiten gepostet, damit nach außen der Schein gewahrt wird, dass alles gut, dass alles normal und wie immer is. Das hat mir viele Probleme eingebracht, denn natürlich sah es für Kommilitonen und Kollegen so aus, als wäre ich gar nich krank und hätte nur keine Lust auf’s Studium bzw. komm dann mit dummen Ausreden an und komm damit bei den Dozenten auch noch durch... Denn angesehen hat man es mir ja auch nich. Aber so is das, mit unsichtbaren Krankheiten.... . . . . . . . . . #study #student #colitisulcerosa #colitis #ulcerativecolitis #ulcerativecolitisfighter #ulcerativecolitisawareness #cu #uc #mc #ibd #ced #morbuschron #autoimmune #autoimmunedisease #autoimmuneillness #autoimmunewarrior #stoma #ileostomyawareness #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #illness #chronicallyill #chronicillness #chronicallysick #invisibleillness #invisibleillnessawareness #invisibleillnesses #invisibleillnesswarrior
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Not the worst view from the hospital in #oxford Day 4 post #ileostomy op and I am finally eating food (6 days of not eating and I’ll eat anything!) I’ve changed my bag myself and have been walking up and down the corridors like a weirdo. Anything to get home soon!
Looking at this First photo does make me sad. I miss my scar and bag free tummy and I know It won’t look like that anymore. But I know I’ve been through so much and last night my partner did remind me that my bag and op saved my life. If I didn’t have that I wouldn’t be here, I wouldn’t be able to go out and do things. I know some days we all get down about how things used to be. But I’m forever grateful for my gastro and colorectal team for saving my life. I know I still have had a few bumps this year being a tough one and down the line my bag will be made permanent. But I know with all the love and support of family, friends and my partner I can get through it. Having my bag has given me a second chance at life, yes my tummy may not look perfect but I’m proud of my scars. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself
It's my birthday. A year with many downs and a little bit ups. #ileostomy #ileostomylife #ostomy
@Regran_ed from @lisakateostomate - Life for someone with IBD like myself isn’t just about how it effects you physically. The mental side to it and how it can effect you on a day to day basis plays a big roll to so many of us. Some like me may not be able to work or go out and do everyday things and that can get me down I won’t lie. I miss being able to do stuff but my body is so important and when I need to rest I’ve to listen to it and not push myself or feel bad for things out of my control, the trauma of having surgeries and so many hospital admissions and check ups can get on top of you. It really isn’t easy and I find having this page and sharing my journey with you all therapeutic in some way. I’m not ashamed to say I do suffer badly with anxiety and panic attack’s I think it steamed from the beginning of my illness at such a young age and the fear of hospitals and just being sick. It’s hard to explain to someone who doesn’t have this illness how you feel or what’s going on. I vent here as it helps me, but I have my family, fellow ibd sufferers and my partner who also has got crohns too, that support network for me means more to me than anything in this whole world. Remember you’re never alone in this journey, whether you’re only newly diagnosed or someone who has this illness years. We all need someone to be there for us and someone we can open up to. As always my inbox is always open to anyone who ever needs to talk about anything IBD, ostomy or fistula related. I know I’m not a doctor but I can offer advice how things are for me and how I’ve dealt with it all. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness ##bodyconfidence #loveyourself
“You either get bitter or you get better. It’s that simple. You either take what has been dealt to you and allow it to make you a better person, or you allow it to tear you down. The choice does not belong to fate, it belongs to you.” – Josh Shipp . @Regran_ed from @my_ileostomy_life . #nocolonstillrollin #ileostoma #ileostomy #ileostomylife #ileostomygirl #ileostomyfit #crohns #crohnsdisease #crohnswarrior #ibd #ibdawareness #ibdwarrior #fibromyalgia #fibrostrong #fibrowarrior #rheumatoidarthritis #chronicillness #chronicfatigue #chronicpain #staypositive #stillbreathing #positivevibes #positivethinking #kickass #chronicloveclub #ibdsuperheroes
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
“Yoga is a dance between control and surrender- between pushing and letting go- when to push and when to let go becomes part of the creative process, part of the open ended exploration of your being.” —————————— Yoga is a way to freedom. It is the perfect balance of holding on and letting go.
I haven’t been as active on here but recently, I started taking Benadryl whenever I felt like the area around my stoma would get super itchy. I have found that this is a lifesaver. On the downside, it knocks me out until 8 in the morning but hey, I get a goodnight of sleep. And another awesome thing is that my hair is feeling more fuller. And I can now make a small ponytail that actually feels like I have a full head of hair. #ileostomy #ileostomybag #ileostomylife #ileostomyawareness #ileostomygirl #lifeafterileostomy #nocolon #nocolonstillrollin #whatbag
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Clear your mind of can’t. . If you keep doubting yourself, or coming up with reasons it can’t be done, you will not achieve what you have been wanting or would like to be. ——————— A clear vision, backed by a structural plan, gives you a tremendous feeling of confidence and personal power. ✨ ——————— We become what we think about. Chose what’s important to you, and make it work. Stay consistent in your path. Consistency is key, where you’ll see magic happen.
Nothing like being stuck outside hoping to get into @thelastlegofficial with a newfound disability (it’s even funnier now I have one) and being just behind the last two to get in! Oh well priority tickets I am waiting for you 😊😊😊 Silver lining we went and had a lovely bottle of red instead! Not quite like watching @adamhillscomedy but a good substitute. #invisibledisability #newperspective #stomalife #mystomastory #thelastleg #ileostomy #ileostomylife #betterlucknexttime
#aboutlastnight , first time out in about a month, Date night with my man. Have to say I had an amazing night and felt great to get dressed up, it’s been a busy and exhausting few weeks with hospital stays and visits every week. But I felt “normal” for once and went out for a meal and forgot about all that for a few hours. My black off the shoulder top is old stock from @primark , animal print skirt is recent stock from @quizclothing , it’s high waisted and so comfy, not a bag in sight, red wedges are old stock from @primark. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #bodyconfidence #loveyourself
This cute illustration by @stacieswift has kept me focused this week and helped me to keep going even though I’ve been exhausted. I’ve been on an ASIST course which is basically a suicide first aid course. I learnt such a lot and it will definitely improve my practice at work and I hope I’ll be able to help someone in the future but it totally wiped me out. Fatigue, for me, is one of the most frustrating parts of having an ostomy and I’ll need to rest as much as possible this weekend #asist #asistsuicideprevention #cpd #suicideprevention #mentalhealth #ileostomy #ileostomylife #chronicfatigue
On the wall with pictures of all the employees. I hate this picture of myself because I have a fat face on it. #ileostomy #ileostomylife #ostomy
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
Hi everyone, In September I had the opportunity to be part of a great initiative of a good friend of mine @ostomy_stomatique . She had a big wish to make a calendar to raise money for charity with only ostomates wearing her self made ostomy covers. And she did it!! With 10 other ostomates I modeled for this calendar and I’m so proud! It turned out so beautiful 😍. For the Dutch people: de kalender is te koop vanaf 13 november via de site van de endometriose stichting. Hij kost 15 euro excl. verzendkosten en alle opbrengsten gaan naar het goede doel. 💛💜 #nocolonstillrollin #ileostoma #ileostomy #ileostomylife #ileostomygirl #ileostomyfit #crohns #crohnsdisease #crohnswarrior #ibd #ibdawareness #ibdwarrior #fibromyalgia #fibrostrong #fibrowarrior #rheumatoidarthritis #chronicillness #chronicfatigue #chronicpain #staypositive #stillbreathing #positivevibes #positivethinking #kickass #chronicloveclub #ibdsuperheroeslaunch
{sUccess} depends on the second letter. 🙌🏻💪🏻✨ . #selfgrowth #itstartswithyou #myjourney
Back at it again; at my favorite yearly conference. This time with Stoma Stan! 💩 So excited to learn and network with this educational community. Already got free ostomy supplies from/ made friends with the Coloplast rep 🤣 #ileostomylife #crohnsbattle #stomastan #crohnswarrior #lovemystoma #lookatmenow #coloplast #freestufffriday
Today’s #ostomyfashionfriday entry is sent into me by the stunning @chloemeade93. Chloe has recently just become an ostomate and can I just say I think she’s rocking this jumpsuit and looking gorgeous as ever. If I didn’t know Chloe personally I wouldn’t have known she had a bag. You can wear what ever you like and feel comfy in when you’ve an ostomy, as you can see Chloe looks great. So proud of you and thank you for sharing your photo😘😘jumpsuit is from @newlook loving the print as it’s so on trend right now. Link below if you want to buy one too. https://www.newlook.com/uk/womens/clothing/playsuits-jumpsuits/petite-brown-leopard-print-wrap-culotte-jumpsuit/p/599192429?comp=Browse #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood #therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself
Because it’s been a while, since I picked some up! 💁🏻‍♀️ . Always exciting having new #fitnessclothing
Ostomy bag covers £5 each All fully lined 100% cotton Any custom orders or requests, send me a message Free UK shipping Worldwide shipping £4 If your interested, you can buy them directly from me here just send me a message 😊 ~ ~ ~ ~ ~ #chronesdisease #ostomate #ostomy #ostomysupplies #colostomybag #ostomybag #ostomybagswag #ostomybagcover #ostomycover #stomacover #stoma #nocolonstillrollin #girlswithguts #chrones #stomabagcovers #ostomates #spoonie #myostomystory #ileostomywarrior #ileostomybag #stomalife #ostomylife #ileostomylife #stomafashion #ostomyfashion #ileostomyfashion #stomabag #colostomyfashion #getyourbagout #baglady
At least I’m organizing #ileostomyawareness #ileostomylife #ocdproblems can’t wait till I can get kid of this!!!
Getting really #tired of this !!! #fcancer #ileostomy #ileostomylife #ileostomybag Today woke up stood up blow out. NOT A GOOD WAY TO START THE DAY
P1/3 We have been speaking to #nurses this week in #Falmouth and have an appointment in #Truro next week to #recce a nurse specialist, to firstly speak about #mybagandI2019 and then discuss dates for interviews! More to follow! Sequence taken by📷 @harv_jm #stomauk #stoma #colostomy #colostomyuk #ileostomy #ileostomylife #ileostomybag #ileostomylove #ostomylife #ostomy #ostomyawareness #ostomyfashion #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #ibd #nocolonstillrollin #documentary #doc #production #director #wearestory #storyschoolfalmouth
P2/3 We have been speaking to #nurses this week in #Falmouth and have an appointment in #Truro next week to #recce a nurse specialist, to firstly speak about #mybagandI2019 and then discuss dates for interviews! More to follow! Sequence taken by 📷 @harv_jm #stomauk #stoma #colostomy #colostomyuk #ileostomy #ileostomylife #ileostomybag #ileostomylove #ostomylife #ostomy #ostomyawareness #ostomyfashion #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #ibd #nocolonstillrollin #documentary #doc #production #director #wearestory #storyschoolfalmouth
P3/3 We have been speaking to #nurses this week in #Falmouth and have an appointment in #Truro next week to #recce a nurse specialist, to firstly speak about #mybagandI2019 and then discuss dates for interviews! More to follow! Sequence taken by 📷 @harv_jm #stomauk #stoma #colostomy #colostomyuk #ileostomy #ileostomylife #ileostomybag #ileostomylove #ostomylife #ostomy #ostomyawareness #ostomyfashion #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #ibd #nocolonstillrollin #documentary #doc #production #director #wearestory #storyschoolfalmouth
It really has been a busy few weeks! Introducing one of our first contributors we have interviewed so far along our journey. Introducing Elliot. Elliot is at the beginning of his journey and we shall be filming his progress over the next few months. #stomauk #stoma #colostomy #colostomyuk #ileostomy #ileostomylife #ileostomybag #ileostomylove #ostomylife #ostomy #ostomyawareness #ostomyfashion #ostomate #ostomywarrior #bagforlife #crohns #crohnsdisease #nocolonstillrollin #documentary #doc #film #production #director #wearestory #storyschoolfalmouth
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