#hearthero

19,578 posts

Loading...
This is my buddy, Tatum. Her and I are both "Heart Heroes", born with congenital heart defects (CHD). Unfortunately, Tatum's start to life was more challenging than mine. But now, this girl is strong, crushing goals, and living life beyond expectations. (Oh, and she's a pretty great little gymnast too 🤸🏼‍♀️) ----- Today, @eric.cohen3 and I joined other Heart Heroes and their families at the Superhero Heart Run to raise money for CHD. It was an afternoon well spent. #GetOutsideTheBox #UseYourFitness #CHD #HeartHero
Loading...
“Humor will save you” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
“Humor will save you” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
We had a blast at the @luriechildrens 2nd Annual CCU BBQ! We even got to see our all-time favorite nurse, Jade! ☺️ #nursesaremyheroes #ccubbq #luriechildrens #hearthero #chd #chdawareness #conqueringchd #heartwarrior #chdwarrior #dilv
Heart can understand what are mind can't..
So, Henley threw up this morning during her 7am feeding and her tube came out too 🤦🏻‍♀️ Luckily, we got the tube out and off her face pretty quickly and she calmed down right away. Then she drank some more from the bottle, took a nap, had some play time and I put a new tube in. I hate putting the tube in because Henley screams and cries but Kraig made me do it because he’s out of town so much and I need to get more confident with it. The process was quick, I got it in without any problems, and a few minutes later, Henley was fine. The rest of the day was great and she had lots of time to play with daddy. One of the main reasons we love the weekends... daddy daughter time 😍😍 . .💜💜💜 . . . . . . #henleylorenbeebe #babygirlbeebe #heartcondition #midmuscularvsd #phoenixchildrenshospital #hearthole #chd #congenitialheartdefect #henleysheart #henleylorensheart #readmyblog #lessthanonepercent #heartsurgery #ngtube #feedingtube #giproblems #1in100 #heartwarrior #hearthero #bravelittlewarrior #momlife #newmom #heartstrong #momstrong #invisibledisease #invisiblewarrior #heartcatheterization #openheartsurgery #tubeissues
Dawson Case YOU ARE MY HERO ♥️ Born with a broken heart he is a fighter. #heartwarrior #hearthero #heartwalk2018 #intermountainhealinghearts #fighter #1in100 #chdawareness #getaware #tga #pacemaker #hesmine
265/365 Our beautiful daughter getting ready for homecoming tonight! Paul would have been such a handsome date! ❤👨‍👩‍👧‍👦💃 #chdwarrior #chdawareness #chd #chdwise #paulismyheartwarrior #hearthero #chdaware #heartwarrior #pcha #chddiagnosis #TOF #tetrologyoffallot #pchaohio #chdadvocacy #chdfamily #chdfunding #chdfight #chdmom #chddad #heartmom #heartdad #chdcare4life #chdaware
THANK YOU to everyone who came out to our Marin County Heart Walk today! The future is bright with Heart Heroes like you! What were your favorite parts of Heart Walk? Share them with us by including the hashtag #NorthBayHasHeart in your posts. Thank you to our local Healthy for Good sponsor @kpthrive ! . . . #HeartWalkWeekend #Heartwalking #HeartWalk #fitness #bewell #hearthero #healthyforgood #hearthealth #heartdisease #stroke
❤️ this little ballerina! Mommy and Me Ballet. #saturdaymorning #mommyandme #littleballerina
Henley had her follow up appointment this morning. Kraig and I were able to ask lots of questions and it’s been decided that Henley will have open heart surgery sometime soon, probably Oct. or Nov. depending on the surgeons schedule. Hopefully this one surgery will be all she needs, but there is a chance she’ll need more. After the surgery, Henley will be in the hospital for 1-2 weeks and will be recovering at home for another 5-7 weeks. We really appreciate how thoughtful and generous you all have been. Kraig and I are so fortunate in so many ways. I’ve been able to take a leave of absence and stay home with our baby girl and we have a very strong support system with our amazing family and wonderful friends. Plus, Henley is the light of our lives. We just love her so much. . 💜💜💜 . . . . . . #henleylorenbeebe #babygirlbeebe #heartcondition #midmuscularvsd #phoenixchildrenshospital #hearthole #chd #congenitialheartdefect #henleysheart #henleylorensheart #readmyblog #lessthanonepercent #heartsurgery #ngtube #feedingtube #giproblems #1in100 #heartwarrior #hearthero #bravelittlewarrior #momlife #newmom #heartstrong #momstrong #invisibledisease #invisiblewarrior #heartcatheterization #openheartsurgery
Lydia was a brave girl at the cardiologist today! Everything looks great. ❤️ #Godisgood #thankful #hearthero #chdwarrior #chdawareness #chd #heartwarrior
“I was so lost in trying to create something I didn't care about that I just ended up playing in the sand rather than building a castle.” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
“I was so lost in trying to create something I didn't care about that I just ended up playing in the sand rather than building a castle.” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
3 days left to snag this cute hooded tee perfect for the cooler fall weather. Other colors and designs available- head on over to Etsy to check it out. #chdawareness #heartwarrior #1in100 #hearthero
Sydney rocked her yearly appointment last month. She insisted on removing all the EKG stickers herself and is an echocardiogram pro. I’m so proud of my little super hero. Her heart continues to look great and we don’t have to go back for another year! Blessed is an understatement ❤️
“Just believe in yourself. The worst thing that can happen is... actually there is no worse thing that can happen. You succeed the MOMENT you believe. ” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
“Just believe in yourself. The worst thing that can happen is... actually there is no worse thing that can happen. You succeed the MOMENT you believe. ” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
On March 27, 2018 my beautiful daughter, Henley Loren was born. She was absolutely perfect except for the congenital heart defect she was born with. Even though this has made her life extremely difficult, and she’s faced more battles than most adults, it hasn’t stopped her from being a spunky, stubborn, adorable little girl with an amazing personality. I got my red AWARE necklace for her and every other baby born with CHD, which is less than 1% if newborns. The company @awarecauses has created a necklace for almost every cause you can think of and donates 10% of every necklace sold to a nonprofit organization to help with research, prevention, and awareness for that specific cause. In addition, they have also agreed to create a fundraiser for my daughter Henley! You can purchase any AWARE necklace you want and if you use the special promo code ⭐️ henleysheart ⭐️ you’ll get 10% off your necklace and $10 will be put into a fund for Henley. Check out their website now and get a necklace for the cause that means the most to you. . 💜💜💜 . . . . . . #henleylorenbeebe #babygirlbeebe #heartcondition #midmuscularvsd #phoenixchildrenshospital #hearthole #chd #congenitialheartdefect #henleysheart #henleylorensheart #readmyblog #lessthanonepercent #heartsurgery #ngtube #feedingtube #giproblems #1in100 #heartwarrior #hearthero #bravelittlewarrior #momlife #newmom #heartstrong #momstrong #invisibledisease #invisiblewarrior #heartcatheterization #awarecauses
Andy had his cardiologist appt this morning.. He was such a big boy & the first appt with NO tears! 😃 Dr. Kuebler said his heart looks great but his next appt in Feb, we'll start to discuss his last surgery of the 3 OHS which will be next spring/summer.. But as for now, he's doing great!! Breaks my heart although its necessary.. 😢❤💙 #chd #chdawareness #hlhs #hearthero #miraclebaby #mybigboy
With more snow in the forecast, we hope all of our CHS families have some warm and cozy plans for this upcoming weekend ☕️ #chs #hearthero #pediatricheartdefects #yeg #congenitalheartdefect #chd #1in100 #chdawareness #heart #stollerykids #coffeelover
A huge thank you to #HeartHero Lauren Johnson who volunteered her time to take some professional photos at our CHUF tent at this year’s #GreatNorthRun they’re amazing and I’m sure you’ll all agree! Thank you so much Lauren ❤️😊 #GNR #GNR4CHUF #TeamCHUF
As the race for Governor heats up here in Oregon I keep seeing ads on tv that make @oregongovbrown Governor Brown seem like she doesn’t support kids....well this is a totally AMAZING example of how she has supported me by sharing my ❤️story & by protecting my rights to have the healthcare I need for life....this is a pic she sent me in a thank you card & she re-created the pic on the tag that was on my Nike Doernbecher Freestyle gear!!!!!! If I was old enough to vote guess who would have my vote??!! #jacobsheartstory #governorkatebrown #nike #doernbecher #justbeamazing #chd #chdsurvivor #coarctationoftheaorta #hearthero #chdwarrior #1in110 #checkyourbp #oregon
I worked at the beach this summer, and our family got to live the beach dream life all summer. Isaiah is still on the waiting list for a heart transplant, and we're heading back to the city soon, uncertain about things, but with plans to fill our fall with as much love, magic, and pumpkins as we can remembering what a gift each day truly is. #lifeisbeautiful #lifeisgood #chdawareness #chdwarrior #heartwarrior #hearthero #zipperclub #bebrave #bytheshore #beachlife
A very special guest helped the @gobarnstormers wrap up their final Fit Friday game of the season last week. Heart warrior Xavier threw out the first pitch and even helped with some announcing in the press box. Thank you to Xavier and his family for their support of our Heart Walk and advocacy initiatives over the years, and thank you to the Barnstormers for supporting our Life is Why We Give campaign this season. More photos at www.facebook.com/ahalancasterpa. #LancasterHeartWalk #LifeIsWhy #WeGive #Lancaster #LancasterPa #HeartHero
Feeding struggles!!! Argh!! So, possibly a bit of a boring one for most, but I thought I'd put this out there for all the heart/ds parents struggling with feeding. I've been on a long hunt for the "holy grail" of bottles- very slow flow BUT easy to drink from. Hazel has caused me endless stress with feeding. She will cough and choke on anything but newborn flow, and sometimes even newborn, and gets very tired. We've tried literally dozens of different brands, flows,teats, whatever. Some were ok but none were the solution I ordered a Minbie, not really expecting much to be different, but she's taken to it (I use the extra slow teat and side lying position), I haven't had to split her feeds today, she seems way more comfortable and so far has less wind and (dare I say it) NO vomit! The teat, I think, is designed to build up breastfeeding coordination, which is great for working on weak mouth tone in kids with ds and later on, verbal communication. Anyway, I'm rambling, but just in case anyone else is searching and feeling a bit hopeless, this one works really well! I'm not being paid for this (I wish!!!) but I am a fan. #bottlefeeding #minbie #minbiebottle #theholygrail #downsydrome #feedingdifficulties #ds #chd #heartbabies #bottlerecommendation #vsd #asd #avsd #tof #heartwarrior #hearthero #heartmum #heartdad #upsyndrome #thisworks #fingerscrossed #nothingdownaboutit #theluckyfew #t21 #hazel #babyhazel #babybottle
Today was a great day 👐 Today Albie got the longest break that he has got from cardiology appointments... SIX WHOLE MONTHS and he does not need to see his cardiologist again until March 2019 .....this was just amazing news for us and the news that I was hoping to hear today!!😍 His cardiologist Dr Franklin also told us that he could not be in any better place.... that he is in the best condition that he can be in... just music to our ears❤😭 Today in the waiting room we watched some families with young babies some as young as 2 weeks old starting out their journey with congenital heart disease and with Crumlin and I can only wish that people got some encouragement and hope from looking at Albie and how amazing well he is doing😍 . . . . #hrhs #heartwarrior #heartkids #hypoplasticrightheartsyndrome #chd #chdawareness #zipperclub #singleventricle #dilv #tga #coa #pda #albieslittlebrokenheart #postfontan #albiesautism #autism #autisminireland #superman #superalbie #hearthero #openheartsurgery #ohs
New blog post is up! All about the heart catheterization surgery, the results, and Henley’s recovery so far. Henley is so strong and such a trooper. She’s doing well and has her moments of playtime and smiles, but she’s also still struggling and has been extra fussy, has thrown up a few times, wakes up a lot in the night from being uncomfortable, and has many bruises from all the IV pokes and catheter puncture sites. It’s so hard for me to watch my baby girl go through this and this was the “easy” surgery. We have a much bigger, harder surgery coming up. We go back to the hospital Friday to meet with the heart surgeon and learn about which surgery we’ll do next. From the catheterization the dr saw that Henley has one really large hole between her ventricles and her left ventricle is working 4 times as hard as her right ventricle, which means there’s a lot of extra blood being pumped into Henley’s lungs. The dr is shocked at how well Henley has been managing with her heart condition. We’re just hoping and praying her heart gets fixed soon and she can start to get better. She brings so much love and joy to our lives. . 💜💜💜 . . . . . . #henleylorenbeebe #babygirlbeebe #heartcondition #midmuscularvsd #phoenixchildrenshospital #hearthole #chd #congenitialheartdefect #henleysheart #henleylorensheart #readmyblog #lessthanonepercent #heartsurgery #ngtube #feedingtube #giproblems #1in100 #heartwarrior #hearthero #bravelittlewarrior #momlife #newmom #heartstrong #momstrong #invisibledisease #invisiblewarrior #heartcatheterization #ourlittlelove #onesurgerydown
“The moment I believed I could be what I always wanted to be, was the moment I started to become what I always wanted to be.” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
“The moment I believed I could be what I always wanted to be, was the moment I started to become what I always wanted to be.” New #blog LINK IN THE BIO! ❤️🔥👊 •••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••• #barnesandnoble #WhyIWantToHugTheWholeWorld #ChoiceAndTriumph #HeartHero #Success #Dream #Dreamer #speaker #coach #author #writer #blog #LA #Pittsburgh #412 #book #write #thecraveneffect #podcast
I need to know If this is mutual Before I go And get way too involved I want you bad Can you reciprocate? No, I don't want to have to leave But half of you is not enough for me @shawnmendes It’s the jam my dudes ✌🏻
It's not #tbt but it's definitely a #throwback from NWA Fashion Week Spring '14 after my first time on a runway❤ Sponsored by: @mercedesbenzusa NWAFW Fall '18 starts tomorrow night! Get your tickets at Nwafw.com/tickets 📸: @jpforreal Dress: @windsorstore #NWAFW #model #bentonvillear #blackginger #naturalredhead #mercedes #benz #runway #strokehero #strokesurvivor #advocate #hearthero #heartsurvivor #dailyrecord
Taking care of yourself... Mind, Body and soul is Important. I start each day drinking my Healthy Nutrition shake taking care of my body and fitness workout for at least 30 min each day.... and for my soul I find peace in helping others, and my faith 💕🙏🏻🌎 What do you do each day to Care for YOURSELF?#selfcare #healthybody #strongmoms #hearthero #massachusetts #mrsmassachusettsinternational2018 #faith #godsplan #charity #love #peaceofmind #mindset #goalsetting #HeartToHeart #americanheartassociation #worldheartday2018 #goredforwomen #worldheartfoundation #internationalpageants #heartfailuresurvivor ❤️ #cancersucks #cancersurvivor #breastcancerawareness #cardiacarrest #cprawareness #powerinprayer #knowledgeispower #bestversionofme
Use discount code HEARTHERO at checkout on any of our #Popsicle #Sleeves at Mama B for Me and help my son raise money for the American Heart Association @american_heart . Visit Mama B for Me on #Etsy (link in profile) today! Thank you! #mamabforme
His smile just lights up a room and his heart fills the room with love! ❤💪😍 #TeamAJ #HeartHero #chdWarrior #Love #GodsPlan #Grateful #GodIsGood
Use discount code HEARTHERO at checkout on any of our #Popsicle #Sleeves at Mama B for Me and help my son raise money for the American Heart Association. Visit Mama B for Me on #Etsy (link in profile) today! Thank you! #mamabforme
Con mi cuchara listo para comer algo...🥄 . Gracias @fotoscharrasoficial 📸
Cleaning out storage & came across this. It's been YEARS!! We made this keepsake board while Jay was in the hospital. The pictures are from his 2nd of 4 open heart surgeries. The PICC lines really got me.. going on 10 years since his last 💔 #CHD #survivor #hearthero #myhero #teamj @jayco314 @elco_gymnast @crabbyj69
September 29th What Promise will you make to yourself To live heart healthy? Healthy Nutrition, Exercise 30 min a day, 4 times a week and decrease the stress in your life. Get your heart risk factors and discuss it with your general Physician. Make a promise to yourself in September 29th on World Heart Day to live a healthy year in 2019 and in the future #heartdisease #HealthyEating #WorldHeartDay #strongmoms #hearthero #50andfabulous #massachusetts #americanheartassociation #mrsmassachusettsintl2018 #heartfailuresurvivor #cancersurvivor #shakeology #cleanhealthyeating #knowledgeispower #HeartToHeart #internationalpageants #livestrong #weightlosstransformation #platformawareness
September 29th What will you promise to do to Live a healthy Life? Know your numbers, dont be one of the statistics because you didnt take the time to invest in YOUR Life!!! Self care, Knowledge and Action is all you need to do to live a heart healthy life for yourself, and your loved ones. Make a Promise ...For MY Heart, For YOUR Heart and For All Of US #worldheartday2018 photo by Lisa @wildsidephotography #americanheartassociation #cancersurvivor #worldheartfoundation #mrsmassachusettsinternational2018 #heartfailuresurvivor ❤️ #heartawareness #afibawareness #statistics #cardiacarrest #cprcertified #communityservice #platform #bestversionofme #transformationtuesday #250poundslost #internationalpageants #hearthero #goredforwomen #massachusetts #breastcancersurvivor #cancersucks #empoweringwomen #shareforshare #live #marriedmybff #strongmoms #militarymom #50andfabulous #godsplan
Did you know that 8 babies are born with a heart condition in Australia every day! There is no known cure! Congenital heart disease is the most common birth abnormality, affecting 1 in every 100 babies! Heart kids provides life-long support for heart kids & their families! Every dollar counts & when @charley_ollie announced these beautiful bows for sale with $3 from every bow going to heart kids we immediately sent a DM to buy one! It is such a great cause and very near and dear to my heart as a couple of our closest friends have their very own Heart Hero and we love & adore little Huxy and would do anything to help not only him but every other child in his situation! Huxley is a true Hero! His strength and determination amazes me! Get behind this great cause & grab your little one a bow ❤️💙 . . . #heartkids #heartkidsaustralia #supportheartkids #donatenow #buyabow #charleyandollie #teamcharleyandollie #bows 🎀 #bowheadband #aussie_kids #huxley #hero #hearthero #truehero #strength #aussiehero #myheart ❤️ #ourhero #toddlerfashionista #babystylista #prettypretty #headbandbaby #stylebaby #babygotstyle #meltsmyheart ❤️ #heartkids #heartkidsaustralia
Amber celebrates her final look with her Macy’s glam squad! #gored #goredrva #makeover #rva #rvafashion #hearthero #heartsurvivor
We cleaned out our toys this morning and came across this little rattle. Such a simple item that evokes huge emotions for me. Most parents might see this toy and see just another fancy baby toy that is supposed to make your child a genius. Maybe it might remind a parent of their child’s sweet baby phase and when they would hoped that toy in their little hand and play for hours. 👶 * For me, this toy was with us since day 1. It went with us for every cardiologist appointment where we would try to entertain a screaming, terrified new born getting an EKG. It went with us to the several ER visits when our baby would have to get poked and prodded and X-rayed (is that a term 🤷‍♀️). It went with him to the Cardiac icu when he looked like a zombie with tubes and wires coming out of him and his eyes looked so vacant and scared at the same time. My husband would shake it so hard trying to distract our screaming and scared child and it would make the worst sound ever. It would literally drive me nuts but we would do anything to try and soothe our poor baby. * Today I was torn between wanting to throw it out because it represents such a sad and scary time and wanting to hold onto it forever because it also represents how far we have all come. Can you guess which one I chose???? • • • #chdsucks #hearthero #jacobstrong #hartstrong #boymom #myhero #rattle #somanyemotions #growinguptoofast
It’s been a long day for everyone, especially Henley, but we’re on our way home. Henley’s procedure went really well, she spent about 6 hours in recovery, and has a few incision sites covered in bandaids, but she’s doing great. We go back to the hospital Friday to consult with the surgeon about our next step. Hopefully she’ll sleep well tonight and have a good day tomorrow. Thank you for all the positive thoughts and prayers. . 💜💜💜 . . . . . . #henleylorenbeebe #babygirlbeebe #heartcondition #midmuscularvsd #phoenixchildrenshospital #hearthole #chd #congenitialheartdefect #henleysheart #henleylorensheart #readmyblog #lessthanonepercent #heartsurgery #ngtube #feedingtube #giproblems #1in100 #heartwarrior #hearthero #bravelittlewarrior #momlife #newmom #heartstrong #momstrong #invisibledisease #invisiblewarrior #heartcatheterization
next page →