#girlswithoutguts

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Happy world ostomy day! Obviously I can't let today slip by without a picture! 2 years ago I have no idea what an ostomy was, now I know that is can be a lifesaver! Stevie the Stoma has saved my life, I know I wouldn't have been here if it wasn't for Stevie and I will be forever grateful! Now my mission is to raise positive awareness and share all my experiences with everyone to make it less taboo! (Excuse the tired eyes, late night with plenty of dancing has that affect, but I still love Stevie!) ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #chronicalillness #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #worldostomyday #raiseawareness #ibdsuperheroes #ibdwarrior #crohns #bodypositive #loveyourself
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#Repost @lifeocharlotte with @get_repost ใƒปใƒปใƒป It's Friday, I've had a tough week but the working week is over and I'm off to drink some wine with friends! So obviously a silly photoshoot had to happen! I am totally in love with my new @primark jeans! They are brilliant! And come on #whatbag !!! Have a great Friday everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #baglady #ostomybag #ostomylife #ostamate #getyourbellyout #crohnsandcolitis #ibdsuperheroes #ibdwarrior #stoma #ostomy #ostomates #happy #friday #ootd #fighter #sillyme
It's Friday, I've had a tough week but the working week is over and I'm off to drink some wine with friends! So obviously a silly photoshoot had to happen! I am totally in love with my new @primark jeans! They are brilliant! And come on #whatbag !!! Have a great Friday everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #baglady #ostomybag #ostomylife #ostamate #getyourbellyout #crohnsandcolitis #ibdsuperheroes #ibdwarrior #stoma #ostomy #ostomates #happy #friday #ootd #fighter #sillyme
๐Ÿค”DREAMS๐Ÿค” I noticed in my late teens, when opiates and I were first acquainted, that my dreams were becoming rather vivid. Fast forward a few years and a shed more opiates, my dreams are on a whole other level. They aren't just mental, they're totally bat shit crazy. I'm so grateful no one can see my dreams; I'm pretty sure padded cell would be my permanent home if they could ๐Ÿ˜œ๐Ÿคฏ๐Ÿคช โ— โ— #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Absolutely exhausted and feeling pretty crap but I am finally on my favourite spot on the floor at home with my mum! ๐Ÿ’ž my body is aching like God knows what but wedding time tomorrow so best rest up, so excited for it! ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #chronicalillness #ibd #crohnsandcolitis #colitis #tired #baglady #exhausted #ibdsuperheroes #ibdwarrior #mumsfloor #homeiswheretheheartis
Regrann from @lifeocharlotte - The joys of back problems! I have done my back out a few times now before surgery and have always used a corset as support. It's a bikers corset and always feels amazing. This week I did my back out for the first time since surgery and I wasn't sure if I'd be able to use my beloved corset due to Stevie the Stoma as the corset sits tight and hard around that a full area, but I couldn't work without it so I just had to try it and hope for the best. And guess what, it worked! I am so grateful that I could use my corset despite my ostomy. Thanks to being able to wear it I have been able to work but also get better! ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #crohnsandcolitis #colitis #fighter #ostomates #ostomatelife #chronicalillness #strongwomen #ostomate #corset #badback #backproblems #ostomyawareness #bagwhatbag #whatbag #workingwoman #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #foundry #hardwork #ostomyproblems
The joys of back problems! I have done my back out a few times now before surgery and have always used a corset as support. It's a bikers corset and always feels amazing. This week I did my back out for the first time since surgery and I wasn't sure if I'd be able to use my beloved corset due to Stevie the Stoma as the corset sits tight and hard around that a full area, but I couldn't work without it so I just had to try it and hope for the best. And guess what, it worked! I am so grateful that I could use my corset despite my ostomy. Thanks to being able to wear it I have been able to work but also get better! ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #crohnsandcolitis #colitis #fighter #ostomates #ostomatelife #chronicalillness #strongwomen #ostomate #corset #badback #backproblems #ostomyawareness #bagwhatbag #whatbag #workingwoman #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #foundry #hardwork #ostomyproblems
Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! ๐Ÿ˜‚ so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! ๐Ÿ˜™ ~ Regrann from @lifeocharlotte #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
#Repost @lifeocharlotte with @get_repost ใƒปใƒปใƒป Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! ๐Ÿ˜‚ so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! ๐Ÿ˜‚ so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
They say that everything happens for a reason. That there's a lesson to be learnt from everything that occurs in our lives. That from every negative, a positive can be find. Living with chronic illnesses has taught me some really positive and valuable life lessons and for that, I truly am grateful. I've had to learn, that sometimes, I may not be able to gain all the answers. Before the IBD and bone disorder really grabbed hold, I was highly strung; I wanted to know all the facts about everything or I couldn't settle mentally. I have two unique diseases and learning to live with this, was hugely based around the fact that I would never know all the facts. It's a learning process for everyone concerned. It's taught me patience and to slow down. This may amuse people who know me and anyone who has witnessed me driving; but it's true. It's also taught me not to sweat the small stuff. I've stopped worrying about things I have no control over. I don't let insignificant people bother or upset me. I am truly grateful for the little things. But most importantly, it's taught me what matters; what's really important. โ˜†โ˜†โ˜†โ˜† This is me and I am who I am because I'm ill and I like me; so again, for this, I'm grateful ๐Ÿ˜Š โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
I love hotel rooms with lots of bathroom space, it makes bag changing sooooooooooo much easier!!! ๐Ÿ’ช I'm outside of Stockholm today (well yesterday and today) for a bit of a training course/update thing. As some of you know I'm part of Ilco (Swedens association for people with bowl diseases and various ostomies) support group. Ilco has set up a telephone support line for people to call anonymously with any questions and thoughts and I can be found on the other end. I really enjoy being able to be there for others in similar situations and try to help them the way I wish I could have had help! So I'm exhausted after the weeks work but I'm getting so much from this anyway! ๐Ÿ’ช Happy Saturday everyone! ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #chronicalillness #crohns #bowldisease #ileostomy #ostomy #colostomy #stoma #ostomyawareness #ostomybag #ostomylife #ostamate #bagchange #ostomates #support #supportnetwork #volunteer #ilco
Nothing is as black and white as it appears. You only see the catalyst. You don't see the battles within. You don't see the pain, the smiles hide. You don't see the sadness behind the laughter. You don't see the tears that are cried in private. You don't see the destruction within the soul. You don't see the disease that's here to stay. โญโญโญโญ You also won't see that one person's cruel comment or uneducated opinion, could be enough to push someone too far. We all have a private battle but some are fighting private torture. โญโญโญโญ BE KIND OR BE QUIET. โญโญโญโญ #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
Got my stoma supplies delivery the other week and realised that I'd got the wrong bag, I checked and it turned out that I got the wrong prescription. I know it doesn't look like it's a big difference size wise but they really do feel different! Of course I'm using them anyway, but my God I do NOT like the maxi bags! They rub against my leg and are just way too big and bulky for my liking! I've called my nurse and now have a new delivery on the way with the right size bags, but in the mean time I'll have to carry on with these. Anyone else ever get the wrong bags? Which size do you prefer? And yes, I am in my pj's already, home from work, showered and straight into these for the rest of the evening! ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #chronicalillness #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #coloplast #sensuramio #baglady #baglife #whatbag #pjlife
Caught in a smog that's deep inside, That broke me down until I cried. The pain beats within just like a heart, For a moment could we just part. You're chipping away at my inner peace, Just once I wish for a bit of relief. You dug in deep and spread out wide, But you'll never take away my pride. I live for the days the heaviness lifts, I briefly get back the person I've missed. This is my normal, my every day life, My broken body cuts like a knife. I dig so deep to remain strong, Each day is hard and feels so long. I won't give up, I'll soldier through, The daily battle that's me and you. โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
๐Ÿ”ดFELLOW FIBROMY'GODTHATHURTS'ALGIA FOLLOWEES๐Ÿ”ด I need to pick your brains, if I may. So, is this the deal? I have one day of normal routine activity, then am left with excruciating joint pain, total exhaustion and rendered totally useless for the next two days?? Is this it? Does it get better than this? Does it normally come in peaks and troughs of tiredness and pain? What causes you to flare, other than being alive?? I'm really interested to hear your experiences with fibromyalgia and any tips you may have. Much love to you all โคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Good evening you lovely bunch of humanoids โคโค โ— โ— After a day of hospital appointments, I can safely say, that I am more than happy to be sat on my butt. โ— Anyone else have those hospital appointments, that don't feel like hospital appointments because you've known your consultant/surgeon for that long, it feels like you're going to see a friend for a quick chat?? I swear, we spoke about everything but what I went for ๐Ÿ˜‚. It dawned on me today though; I've seen more of my surgeons than I have my closest friends over the past few years. Really need to change that. โ— I do hope you are all doing OK and today has been gentle to you. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Throw back Thursday.....trying to remember the last time I actually slept. Had exactly zero minutes sleep last night ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ Made the oldest mistake in the book....I laid down on the sofa. Swiftly stood up again and I'm now going to play with some electrical machinery. What could possibly go wrong ๐Ÿ˜† โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
So..... The arthritic flare that I thought I was having, turned out not to be an arthritic flare. After the pain got to a level where I could have happily have swallowed a live granade, I thought I'd better see my Dr. I know I am a bit silly at times, I try to rationalise symptoms, by connecting them to the illnesses I already have but something was telling me that this wasn't the arthritis, however I had, experienced then pain, swelling and discomfort before. I spent a long time with the Dr and had a bucket load of bloods done and have since been diagnosed with fibromyalgia. Everything totally makes sense now and a few questions have been answered; which is not something that often happens to me AT ALL. Even though I don't feel better physically, I almost feel relieved. A diagnosis is not something I'm used to getting, it's always "well we've never seen that before" but it appears this time, I ticked all the right boxes. ๐Ÿ˜Š๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Back at work after a few weeks of holiday and of feeling crap. It's boiling and I'm still not 100% but will I ever be? Plenty to do at work and quite a few exciting projects on the go! Follows us on @maialekonstgjuteri to check out what I'm doing at work! ๐Ÿ˜Š๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #crohnsandcolitis #colitis #tired #baglady #exhausted #workingwoman #foundry #dirtyjob #grafter #maiale #hardworking
Our day at 'It's a knock out' for Johnny's stag! And I didn't let my stoma stop me! I took part in every task no matter how tough, and I managed it! Just made sure to wear my @comfizz support wear under my very good training trousers to make sure Stevie was held in place good! Didn't feel anything or get any problems from this day either! Bonus! What a great and fun day! Go team "The used Johnny's" ๐Ÿ’ช ~ #lifeocharlotte #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #nothingsgonnastopme #stoma #stomi #ostomy #strongwomen #ostomate #chronicalillness #holiday #travelling #travels #itsaknockout #stagdoo #stagdo #tokengirl #greatweekend
Sometimes my body just says no and this week seems to have been a big no week. Today my body is aching, my back is killing me and I just feel exhausted. Getting out of bed is a struggle. But my lovely little Olga is here giving me lots of love and affection, and it's hard not to smile when she is this sweet to me. During the week it's been a mixture of headaches, exhaustion, feeling sick and having to force myself to eat and feeling up and down. At times like this all I can do is listen to my body and try to be nice to myself, and drink plenty of water, as always! Now let's see if I at least can wake up a bit! ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #tired #baglady #exhausted #meandmycat #olga #olgacat #catlove #hiddenillness #youlookfine #lookafteryourself #listentoyourbody #painfulbody #exhausted #selflove #cleanhair #smile #smilethroughthepain
Sorry I've been quiet, just been loving the summer a bit much! Will eventually share some holiday pics but for now here are some pics of me in what have been my 2 favourite summer dresses so far! It's amazing what a bit of sun can do! I love being all brown and sun kissed! I feel more relaxed and happy this way! And hey, #whatbag ?! I can even wear cute summer dresses without Stevie the Stoma being an attention seeker! ๐ŸŒž ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #crohnsandcolitis #colitis #fighter #ostomates #ostomatelife #chronicalillness #happy #lovelife #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #brightcolours #cutedress #cutedresses #summertime #summerdress #summer #summerlover #summergirl #bagwhatbag
Hi you gorgeous bunch ๐Ÿ’–๐Ÿ’™ โ— โ— Sorry for my absence, I'm having a bit of a rough time at the moment, that's taken me by surprise somewhat. I'm having the worst arthritic flare I have ever had and it's pretty much rendered me useless. All I can put it down to, is the sudden change in weather we've had. My arthritis has always been worse in damp conditions, more so than the cold but this has just floored me. I've virtually lost the use of both my hands and arms, so typing has become incredibly difficult. So im trying to catch up with you guys as often as I can & I'm liking your pictures in my heart for now. โ— I've had a few frantic messages over the last few days, so I thought I'd better let you know what's going on. โ— If anyone needs me, just dm as you have been doing and I'll get back to you ASAP. I'm trying to carry on as normally as possible but losing the use of my arms and hands is a new one , even for me. โ— Much love to you all ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
โฌ…โฌ…โฌ…โฌ…THROW BACK THURSDAY to 1985. This photo brings back so many memories for me. It was taken in Perpignan, France, whilst doing my PADI training. One very clear memory, is of my Dad, who took the photo....eventually. He spend half an hour laughing at the fact my wetsuit was baggy!! We'd been in France over a month at this point and during that time, I had one hell of a growth spurt. On returning home, I went back to school and a week later, I dislocated my left patella for the first time. This was the first moment that I found out I had a bone disorder, that effected every joint in my body. I was told that I'd be a cripple by the end of 30 and all I remember is thinking "that's not happening ". And it didn't. Don't get me wrong, it's been difficult, it's still difficult but I think this was the definitive moment I got a fire in my belly and an urge to fight. ๐Ÿ’ชโคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’ซ๐Ÿ’ซBusy Busy Busy ๐Ÿ’ซ๐Ÿ’ซ Just about to have my nails did ๐Ÿ’….......at least I can sit down for half an hour. โ—โ—โ— Insomnia is back with a vengeance, managed an entire 2hrs sleep last night, before the alarm screamed at me. Definitely on autopilot today....just hope she knows how to drive ๐Ÿ˜จ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
When the sun hits your mirror and makes it look like you live in a hovel. (I'm decorating). ๐Ÿ’Ÿ๐Ÿ’ŸOOTD๐Ÿ’Ÿ๐Ÿ’Ÿ Dress an absolute bargain from Newlook. The material is actually really thick, so would definitely be perfect for spring and summer. It's currently ยฃ8 but sizes are sparse. It also comes up VERY small, I've had to go up two dress sizes, just to get it over my fat ass.....either that, or I'm totally in denial about my dress size ๐Ÿ˜•. I do love it though, it's very comfortable and I think it looks pretty ๐Ÿ’–๐Ÿ’– โ—โ—โ—โ— Happy Monday instafam, much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ—โ—โ—โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Shamelessly stolen from @cheerfulcrohnie. This did tickle me. We've all had it....."eat more veg, have you tried fibre, it's your lifestyle, you need to believe in God, cut out meat, infact go vegan, try organic it helped my ingrowing toenail, try juicing anything that's green, camomile tea is great for that thing I've never heard of....' we've heard them all. ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ I'll leave this here whilst I pop off and twist my arthritic bones into a 'crouching artichoke'!! โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’Ÿ๐Ÿ’™OOTD๐Ÿ’™๐Ÿ’Ÿ โ— โ— Oh, how I love this dress. This was a firm favourite when I had Stanley stoma, the material is a more rigid cotton & it hangs really well. The pattern deflects from any extra lumpage and bumpage, caused by an 'active bag'. It's not skin tight but neither does it hang like sack. The sandals, I've had for years but they match so well. The ultimate girly girl today ๐Ÿ’–๐Ÿ’– โ— โ— Have a wonderful day everyone ๐Ÿ˜˜๐Ÿ˜˜ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Love the skin you're in! Take time to enjoy where you are! A few weeks ago I enjoyed an evening by the sea with wine watching the sunset, one of the amazing things with living in Malmรถ is having this on your doorstep! And yes, I was out and proud with Stevie the Stoma and didn't notice anyone looking twice either! ๐Ÿ’ž๐Ÿ’ช๐ŸŒž ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #whatbag #happy #stomabag #crohnsandcolitis #colitis #ostomy #getyourbellyout #getyourbagout #lovelife #strongwomen #summerinmalmรถ #makethemostofit #bodypositive #loveyourself #selflove #lovetheskinyourein
Just got back from the hospital, visiting my stepdad. Bumped into one of my gastro nurses whilst I was there and she cried! Not because I bumped into her ๐Ÿ˜‰!! She said it was the first time in years, she'd seen me at a healthy weight, tanned and looking so well. It's amazing isn't it, that we can be feeling so rotten in ourselves but a comment like that can make us feel great. I don't think she'll ever know how welcome that was today. ๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
You should never wish away time but my lord, I'll be glad to see the back of this week. Sleep would be good too. How can you be so mentally and physically tired, yet stay awake all night? It's crazy. Anyone free to knock me clean out this evening, feel free to pop round and use what means you see fit. Oh and I've got three splinters, so if you could get those out of my finger whilst I'm unconscious, that would be great too. Help yourself to tea and biscuits ๐Ÿ˜„โ˜•๐Ÿช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Mandatory toilet selfie @ St James'. How are you all my gorgeous bunch of instabeauts? ? โ— Sorry I've been so quiet, I've got pneumonia again and I've had a bit of family business to attend to; we're a pretty poorly family at the moment ๐Ÿ˜”. Hoping you're all doing well and staying strong. Much love as always ๐Ÿ’‹๐Ÿ’‹๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Yesterday I had the luxury of going out for a lovely ride on the lovely 'Sockan', an icelandic horse, with my cousin and her lovely 'Mirre'. Sockan looks tiny cos Emma took the picture while she was on Mirre but he isn't quite as small as he looks in that pic. But it was soooo nice! Just coming out in the nature, with calmness all around. What a way to recharge the batteries! A beautiful summer evening over the fields, in the forest and through the village. Such a contrast to my everyday life in the city and with work! I cannot wait for next time! ๐Ÿ’ž๐Ÿ’ž๐Ÿ’ž I love the fact that Stevie the Stoma isn't stopping me from doing things I love, so don't think getting an ostomy has to be the end of those things ๐Ÿ’ž๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #crohnsandcolitis #colitis #ostomy #summerevenings #icelandichorse #icelandic #islandshรคst #horseriding #soulfood #recharging #stillme #nothingsgonnastopme #stoma
Another very hot day done, sweaty and exhausted! I can't seem to drink enough, and I really can't wait for my electrolytes to come, I think I'm in need of them if this heat carries on, specially when I'm at work! Clearly I've been cuddling with the overhead crane a bit too much today too, but I got pretty cool "tattoos" from it, let's just hope I can wash the oil away! Thank God it's Friday and time for the weekend! ๐ŸŒž๐ŸŒป ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #tgif #tgifridays #ileostomy #workingwoman #foundry #dirtyjob #grafter #overheadcrane #exhausted #weekend
The many faces of an over heating C! I don't even know how many degrees it is out today but it is soooo HOT, and on top of that we cast today too so it's even hotter in here despite the door being open!! I am melting away!!! Days like this I love my water bottle so much! It's mega important to drink plenty and eat more salt, and it's even more so for us with an ileostomy! So I hope you're all drinking plenty! ๐Ÿ˜€ ๐ŸŒž Loving this summer weather tho! ๐ŸŒž๐ŸŒž ๐ŸŒž how's the weather where you are today? ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #baglady #ostomybag #ostomylife #ostamate #raiseawareness #chronicalillness #ibd #crohnsandcolitis #colitis #hot #summer #foundry #melting #stoma #workingwoman #happy #water
Despite feeling like the leading star from The Living Dead, I went and had my hair did ๐Ÿ˜Š. โ— This is the first time in two years, I've let anyone near my hair. After being left devastated, when a combination of Prednisone steroids and deficiencies caused my hair to snap at the root and fall out, I couldn't even stand a brush being put through it without panic, fear and anxiety setting in. โ— โ— I really feel like I've hit another milestone today. I know it feels like we never catch a break when living with chronic illnesses but today I think I may just have to high five myself ๐Ÿ‘‹ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Hey lovely people โค๐Ÿ‘‹โค๐Ÿ‘‹โค๐Ÿ‘‹ โ— โ— Sorry I've been quiet, I've picked up a hum dinger of a virus. Little bonus for my offspring though, I've completely lost my voice. I've got a hefty course of antibiotics to treat laryngitis, sinusitis, chest and throat infection....because I can't just pick up one bug! โ— โ— SO, here are some pictures of my gorgeous new shoes that landed in my hands this morning. They look a hell of a lot prettier than my face right now ๐Ÿ˜•. โ— โ— I hope Monday was kind to you all. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
On our way to this year's Midsummer party! Bit chilly today so had to wear trousers instead of a dress but I'm still summery! And Stevie is totally in the midsummer mood! And come on, #whatbag ? ๐Ÿ˜‰๐Ÿ˜„ Happy midsummer everyone! ๐ŸŒป Glad midsommar! ๐Ÿ’ž ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #ibdawareness #crohnsandcolitis #colitis #ostomy #strongwomen #ostomate #getyourbagout #getyourbellyout #decoratedbag #stoma #happy #colourful #midsummer #traditions #midsommar #celebrations
Today we had a midsummer lunch celebrations at work before the big thing tomorrow! It was such a lovely get together with plenty of food, beer, a cheeky snaps and a few songs. A lovely break in the day before a 3 day weekend! To celebrate midsummer I also decided to wear my most colourful work clothes ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #whatbag #workingwoman #workclothes #colourful #liftmeup #happy #workfriends #celebrations #artists #myjobisbetterthanyours #midsommar #midsummer #traditions #holiday
TBT to 2015 โ— โ— Four months after this was taken, I was given 4 days to live. I was in hospital for 2months, slipped into a coma and my children were brought to hospital to say 'goodbye'. At this point I'd already had two resections but the disease was just rife. Every year since, I've endured the same fate and every time I've refused to accept that was the end for me. To this day, my gastro team have no idea how I survived. Stubbornness and my need to annoy people.....although I'll give the surgeons a bit of credit ๐Ÿ˜‚๐Ÿ˜‚ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
I was definitely in need of new work trousers and I absolutely Love these blues ones that I got! I did get some black too but these are my favourite! And last week as a "treat" after surviving the dentist I got myself 3 new colourful scarfs for work too! It was about time as I realised the one I had is one I've had for 4 years and it isn't even cotton! Bring on being more colourful at work! Now I just need some more colourful tshirts too! ๐Ÿ˜„ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #whatbag #workingwoman #workclothes #colourful #liftmeup #newclothes #foundry #blue #bluetrousers #colourfulscarfs #scarfs #upgrade #update
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