#girlswithoutguts

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Writing Christmas cards has been a challenge this year, I've been able to do most things with my left hand but I'm definitely not upto left handed handwriting as yet. ๐Ÿ—ณโœ’๐Ÿ“ฎ Good news is, theres been a significant improvement with the movement of my arms, since the steroid shot; got a long way to go but an improvement is an improvement. The pain is still up there but its early days still and I remain optimistic. It's just a shame that everything that seems to give me a bit of relief, is a short term solution. I'll take what I can though, even if it's just a short break, I can live with that ๐Ÿ™‚. Have a great Sunday you lovely lot. Much love ๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’– #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
After five months of being in bloody agony and deeming my right arm useless, with my left closely following behind, my 'emergency' appointment with rheumatology finally arrived yesterday. Before I say anything else, I just want to say a huge 'thankyou' to one of my closest and best friends @leighbosworth , for not only being my taxi driver but for always being there for me. Thankyou Albert, you're worth your weight in gold ๐ŸŒท๐ŸŒท๐ŸŒท๐ŸŒท๐ŸŒท So back to me ๐Ÿ˜œ๐Ÿ˜ After a very thorough and lengthy consultation, it would appear that I have another autoimmune disease, which has a direct link to my bowel disease. For years upon years, I've suspected that my congenital bone disorder was connected to the IBD, yet no one has ever joined the dots. I can't tell you how relieved I am, knowing that someone has finally agreed and acknowledged the connection. As a short term solution and to buy the consultants some time to discuss a long term plan with gastro, they gave me a very strong steroid injection, that will reach every joint in my body and hopefully, reduce inflammation and help with the pain. Already this morning, the swelling has reduced but as with all steroids, its gets worse before it gets better and I feel like I've been run over....again and again. All in all, I'm very happy with the way the consultation went and I definitely have a sense of relief. On that note, I wish you a gentle but fabulous weekend and as always 'much love' ๐Ÿ’™๐Ÿ’– #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia ย  #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
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Homage to the last time I felt human. ๐Ÿ˜–๐Ÿคข๐Ÿ˜ฉ You know when you live with an illness or disease, and you get pretty good at knowing why your body behaves in a certain manner? You can go to see your Dr or consultant and say 'this, this and this is happening but I'm sure it's because of this' !! Well, that's not happening so much right now. I feel peculiar, weird, off, not right....and I can't put my finger on it at all. Ive no energy at all; none, I'm constantly nauseous, stomach distended and acting in a non typical manner for my disease, trouble sleeping, anxious and generally feeling 'plaaah' .......and I don't like it, I feel very out of control ๐Ÿค”๐Ÿค”๐Ÿค”๐Ÿค” #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
"Never judge a book by its cover"! This is something we are all guilty of doing, at some point or another. These photos were taken exactly 18 months apart. In one photo, I'm a size (UK) 6 to 8. In the other, I'm a size 12. So if I asked which picture I was ill in, your natural reaction, if you didn't know me; would be the second frame, right? The answer is, both!! Its so easy to jump to a conclusion, based only on what we see. I've heard it all, "You dont look disabled", "You're too young to be ill", "You don't look ill", "You're young enough to get rid of that"......and all these comments have been based on how I look, not the facts. Truth is, we all have stuff going on, we all have things that aren't visible or we hide well. Usually people who live with illnesses, are the professionals when it comes to hiding; we become masters of disguise. With this said, be kind, be patient and don't make assumptions based on how someone looks because you never know what that person is hiding from the world. ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
PLOT TWIST ๐Ÿคข๐Ÿคฎ๐Ÿ˜ท Well won't that teach me, for being cocky about feeling well during a flare!?. ๐Ÿ™„ I feel absolutely, positively disgusting today. The type of disgusting where you daren't move your head, incase it triggers another vomiting session. That's how disgusting I feel ๐Ÿคข๐Ÿคข๐Ÿคฎ Goodnight instaworld โคโค #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
The wonderful thing about IBD, is how unpredictable it can be. Put it together with other illnesses and ailments and you've pretty much lost any form of control, you thought you had. For the past 11 months, my thyroid has been giving me the run around; its been impossible to get it stable. So one minute its overactive and weeks later its underactive. Anyone who suffers with thyroid disease knows how shocking an over/under active thyroid can make you feel, so for the best part of this year I've felt pretty 'blugh'....add surgery and flare ups to that, plus other diseases; you pretty much get the picture. ๐Ÿคข About a week ago, I suffered a bad bleed, which continued for a couple of days, then turned into a flare. Ive no appetite, when I do eat I'm sick, when I don't eat I'm nauseous, Ive dropped 8lb in weight in six days and I've got permanent reflux........ ....yet I've never felt so well!! WHAAAAAT ????? ๐Ÿค”๐Ÿคฆโ€โ™€๏ธ #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #pma #mentalstrength #fighting
Did you even go shopping if you didn't take a lift selfie?? ๐Ÿ˜๐Ÿ˜ Certainly paying for it but had a fantastic Christmas shopping day with these two loves. Shout out to my beautiful bestie; heavily pregnant with a split pelvis, she trundled round like a trouper and despite clearly being in agony, she never complained once. Up most respect for my beautiful soul sister ๐Ÿ’ช๐Ÿ’–๐Ÿ’– It's amazing what a change of scenery can do, think it did us all good to get out and potter about. As a treat to myself, I found these gorgeous limited edition Puma kicks, at a bargain price....so, you know....had to get them ๐Ÿ˜‡๐Ÿ˜. #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedsickchick #girlswithoutguts #pma
I get to spend the day with my besties today and participate in a sport.....more commonly known, as 'shopping'. ๐Ÿ›๐Ÿ‘œ๐Ÿ‘—๐Ÿงฅ๐Ÿ‘š๐Ÿ‘ข๐Ÿ‘  This could get messy. ๐Ÿ’ฐ๐Ÿ’ฐ๐Ÿ’ฐ๐Ÿ’ฐ OOTD consists of an old favourite, #levi jacket๐Ÿ’™ Front tie, fine knit jumper from #newlook ๐Ÿ’š waxed, leather look jeans #newlooktall ๐Ÿงก and silver block heel boots #jasperconran โ—โ—โ—โ—โ—โ—โ— HAVE A BEAUTIFUL DAY, ALL #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedsickchick #girlswithoutguts #pma
How #UlcerativeColitis & #ChronicIllness Helped Me To Hike A Mountain #NewPost #OnTheBlog ๐Ÿ’ซ Going into this, I didnโ€™t know what to expect. Iโ€™d been hiking in the past, but it was a smooth waterfall hike and took no time at all. It honestly was disappointing when Iโ€™d finished. โ€“ This hike was in many ways different. Soon after we began, the trail became more and more challenging. โ€“ Becoming steeper with every step we took. What was once a clear and defined path soon became questions of โ€œwhich way should we go?โ€ or โ€œis this rock sturdy enough to hold my weight?โ€ This all stemmed from a simple suggestion. A simple morning text to get a group of girls up and active from a very dear friend became one of the most challenging things Iโ€™d ever done in my life. This in many ways reminded me of My Journey Getting Diagnosed. I had no idea of what was happening to my body. What stemmed from a โ€œtummy ache,โ€ quickly became something much more serious. A threat to my body. Facing obstacle after obstacle, just trying to get a clear diagnosis proved to be more challenging than living with symptoms. I didnโ€™t know what to expect. Iโ€™d been sick before, but never like this. Even after being diagnosed, I was still confused and left to wonder, โ€œwhatโ€™s nextโ€ or โ€œhow can I overcome . (finish reading | #LinkInBio )
Early morning blood tests, I wish I was allowed to follow the tiny blue steps into the kids blood test section but apparently I'm not a child anymore they keep telling me, but I'm sure they're wrong! I have so much going on at the minute, my body is sort of back lashing and I've been trying to balance a flare as well so I thought it was best to get my blood checked out to make sure there isn't anything urgent floating around... It's funny to think about how just a few years ago I was terrified of needles and blood tests, and now it's like nothing, OK maybe not nothing, I still don't like it, and they sometimes can't find them but I'm at least not as nervous as I have been! The amount of fears I've not had a choice but to deal with over the last few years is crazy really... ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #crohnsandcolitis #colitis #tired #chronicalillness #ibd #autoimmunedesease #autoimmuneillness #ostomy #ostomates #ostomatelife #ibdsuperheroes #ibdwarrior #bloodtests #fearless #fear #hospital #darkmornings #stillachildatheart
OOTD Oh my goodness, I'm all for comfort but it was so nice to get out of decorating overalls for day. Might give myself this weekend to rest, then get cracking with the next project ๐Ÿ™„๐Ÿค”๐Ÿ˜’ Happy weekend everyone. Be good and if you can't be good, be careful ๐Ÿ˜‰๐Ÿ˜š #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
So this has been my main outfit for the past two weeks and the reason I've been quiet. Let me tell you, replastering and decorating a bathroom when you have calcified wrists, is NOT easy. But then, what kind of crazy idiot decides to decorate with calcified joints? That'll be me then ๐Ÿคช #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ikickmyownbutt #jointcalcification
Happy world ostomy day! Obviously I can't let today slip by without a picture! 2 years ago I have no idea what an ostomy was, now I know that is can be a lifesaver! Stevie the Stoma has saved my life, I know I wouldn't have been here if it wasn't for Stevie and I will be forever grateful! Now my mission is to raise positive awareness and share all my experiences with everyone to make it less taboo! (Excuse the tired eyes, late night with plenty of dancing has that affect, but I still love Stevie!) ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #chronicalillness #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #worldostomyday #raiseawareness #ibdsuperheroes #ibdwarrior #crohns #bodypositive #loveyourself
#Repost @lifeocharlotte with @get_repost ใƒปใƒปใƒป It's Friday, I've had a tough week but the working week is over and I'm off to drink some wine with friends! So obviously a silly photoshoot had to happen! I am totally in love with my new @primark jeans! They are brilliant! And come on #whatbag !!! Have a great Friday everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #baglady #ostomybag #ostomylife #ostamate #getyourbellyout #crohnsandcolitis #ibdsuperheroes #ibdwarrior #stoma #ostomy #ostomates #happy #friday #ootd #fighter #sillyme
It's Friday, I've had a tough week but the working week is over and I'm off to drink some wine with friends! So obviously a silly photoshoot had to happen! I am totally in love with my new @primark jeans! They are brilliant! And come on #whatbag !!! Have a great Friday everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #bagwhatbag #baglady #ostomybag #ostomylife #ostamate #getyourbellyout #crohnsandcolitis #ibdsuperheroes #ibdwarrior #stoma #ostomy #ostomates #happy #friday #ootd #fighter #sillyme
๐Ÿค”DREAMS๐Ÿค” I noticed in my late teens, when opiates and I were first acquainted, that my dreams were becoming rather vivid. Fast forward a few years and a shed more opiates, my dreams are on a whole other level. They aren't just mental, they're totally bat shit crazy. I'm so grateful no one can see my dreams; I'm pretty sure padded cell would be my permanent home if they could ๐Ÿ˜œ๐Ÿคฏ๐Ÿคช โ— โ— #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Absolutely exhausted and feeling pretty crap but I am finally on my favourite spot on the floor at home with my mum! ๐Ÿ’ž my body is aching like God knows what but wedding time tomorrow so best rest up, so excited for it! ๐Ÿ’ƒ๐Ÿ’ƒ๐Ÿ’ƒ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #sillyselfie #chronicalillness #ibd #crohnsandcolitis #colitis #tired #baglady #exhausted #ibdsuperheroes #ibdwarrior #mumsfloor #homeiswheretheheartis
Regrann from @lifeocharlotte - The joys of back problems! I have done my back out a few times now before surgery and have always used a corset as support. It's a bikers corset and always feels amazing. This week I did my back out for the first time since surgery and I wasn't sure if I'd be able to use my beloved corset due to Stevie the Stoma as the corset sits tight and hard around that a full area, but I couldn't work without it so I just had to try it and hope for the best. And guess what, it worked! I am so grateful that I could use my corset despite my ostomy. Thanks to being able to wear it I have been able to work but also get better! ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #crohnsandcolitis #colitis #fighter #ostomates #ostomatelife #chronicalillness #strongwomen #ostomate #corset #badback #backproblems #ostomyawareness #bagwhatbag #whatbag #workingwoman #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #foundry #hardwork #ostomyproblems
The joys of back problems! I have done my back out a few times now before surgery and have always used a corset as support. It's a bikers corset and always feels amazing. This week I did my back out for the first time since surgery and I wasn't sure if I'd be able to use my beloved corset due to Stevie the Stoma as the corset sits tight and hard around that a full area, but I couldn't work without it so I just had to try it and hope for the best. And guess what, it worked! I am so grateful that I could use my corset despite my ostomy. Thanks to being able to wear it I have been able to work but also get better! ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #crohnsandcolitis #colitis #fighter #ostomates #ostomatelife #chronicalillness #strongwomen #ostomate #corset #badback #backproblems #ostomyawareness #bagwhatbag #whatbag #workingwoman #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #foundry #hardwork #ostomyproblems
Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! ๐Ÿ˜‚ so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! ๐Ÿ˜™ ~ Regrann from @lifeocharlotte #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
#Repost @lifeocharlotte with @get_repost ใƒปใƒปใƒป Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! ๐Ÿ˜‚ so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
Good morning from this sleepy head over here! 3 days back at work and my body feels like I've done the ironman race! Yesterday I went to bed at the amazing time of 8.30 (after struggling to stay up this late) and slept for 10 hours (ish, the standard 3 wakes ups)! I could just keep sleeping it feels like but maybe I'm a bit too loyal and I've got up so I can go to work. As you can maybe see, I'm wearing a different bag, that's because halfway through the night I woke up because my bag was itching like mad, it was itching so bad that it was itching in my dream! ๐Ÿ˜‚ so nice little midnight bag change into a Salts Aloe vera, I also put some Aloe vera gel on my skin and let that soak in before putting the bag on, and guess what, I've woken up and it isn't itching! Yay! I love little tricks like that when they actually help! Right, I best try to get myself partly functioning so I can go to work...have a great day everyone! ๐Ÿ˜™ ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #ostomylife #ibdsuperheroes #ibdwarrior #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #strongwomen #chronicalillness #exhausted #goodmorning #pjs #ulcerousecolitis #colitis
They say that everything happens for a reason. That there's a lesson to be learnt from everything that occurs in our lives. That from every negative, a positive can be find. Living with chronic illnesses has taught me some really positive and valuable life lessons and for that, I truly am grateful. I've had to learn, that sometimes, I may not be able to gain all the answers. Before the IBD and bone disorder really grabbed hold, I was highly strung; I wanted to know all the facts about everything or I couldn't settle mentally. I have two unique diseases and learning to live with this, was hugely based around the fact that I would never know all the facts. It's a learning process for everyone concerned. It's taught me patience and to slow down. This may amuse people who know me and anyone who has witnessed me driving; but it's true. It's also taught me not to sweat the small stuff. I've stopped worrying about things I have no control over. I don't let insignificant people bother or upset me. I am truly grateful for the little things. But most importantly, it's taught me what matters; what's really important. โ˜†โ˜†โ˜†โ˜† This is me and I am who I am because I'm ill and I like me; so again, for this, I'm grateful ๐Ÿ˜Š โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
I love hotel rooms with lots of bathroom space, it makes bag changing sooooooooooo much easier!!! ๐Ÿ’ช I'm outside of Stockholm today (well yesterday and today) for a bit of a training course/update thing. As some of you know I'm part of Ilco (Swedens association for people with bowl diseases and various ostomies) support group. Ilco has set up a telephone support line for people to call anonymously with any questions and thoughts and I can be found on the other end. I really enjoy being able to be there for others in similar situations and try to help them the way I wish I could have had help! So I'm exhausted after the weeks work but I'm getting so much from this anyway! ๐Ÿ’ช Happy Saturday everyone! ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #chronicalillness #crohns #bowldisease #ileostomy #ostomy #colostomy #stoma #ostomyawareness #ostomybag #ostomylife #ostamate #bagchange #ostomates #support #supportnetwork #volunteer #ilco
Nothing is as black and white as it appears. You only see the catalyst. You don't see the battles within. You don't see the pain, the smiles hide. You don't see the sadness behind the laughter. You don't see the tears that are cried in private. You don't see the destruction within the soul. You don't see the disease that's here to stay. โญโญโญโญ You also won't see that one person's cruel comment or uneducated opinion, could be enough to push someone too far. We all have a private battle but some are fighting private torture. โญโญโญโญ BE KIND OR BE QUIET. โญโญโญโญ #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
Got my stoma supplies delivery the other week and realised that I'd got the wrong bag, I checked and it turned out that I got the wrong prescription. I know it doesn't look like it's a big difference size wise but they really do feel different! Of course I'm using them anyway, but my God I do NOT like the maxi bags! They rub against my leg and are just way too big and bulky for my liking! I've called my nurse and now have a new delivery on the way with the right size bags, but in the mean time I'll have to carry on with these. Anyone else ever get the wrong bags? Which size do you prefer? And yes, I am in my pj's already, home from work, showered and straight into these for the rest of the evening! ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #chronicalillness #stoma #ostomy #ostomates #ostomatelife #ostamate #stomabag #ostomyawareness #ostomybag #coloplast #sensuramio #baglady #baglife #whatbag #pjlife
Caught in a smog that's deep inside, That broke me down until I cried. The pain beats within just like a heart, For a moment could we just part. You're chipping away at my inner peace, Just once I wish for a bit of relief. You dug in deep and spread out wide, But you'll never take away my pride. I live for the days the heaviness lifts, I briefly get back the person I've missed. This is my normal, my every day life, My broken body cuts like a knife. I dig so deep to remain strong, Each day is hard and feels so long. I won't give up, I'll soldier through, The daily battle that's me and you. โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜†โ˜† #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts #ibdwarrior #warrior #chronicbattle
๐Ÿ”ดFELLOW FIBROMY'GODTHATHURTS'ALGIA FOLLOWEES๐Ÿ”ด I need to pick your brains, if I may. So, is this the deal? I have one day of normal routine activity, then am left with excruciating joint pain, total exhaustion and rendered totally useless for the next two days?? Is this it? Does it get better than this? Does it normally come in peaks and troughs of tiredness and pain? What causes you to flare, other than being alive?? I'm really interested to hear your experiences with fibromyalgia and any tips you may have. Much love to you all โคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Good evening you lovely bunch of humanoids โคโค โ— โ— After a day of hospital appointments, I can safely say, that I am more than happy to be sat on my butt. โ— Anyone else have those hospital appointments, that don't feel like hospital appointments because you've known your consultant/surgeon for that long, it feels like you're going to see a friend for a quick chat?? I swear, we spoke about everything but what I went for ๐Ÿ˜‚. It dawned on me today though; I've seen more of my surgeons than I have my closest friends over the past few years. Really need to change that. โ— I do hope you are all doing OK and today has been gentle to you. Much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Throw back Thursday.....trying to remember the last time I actually slept. Had exactly zero minutes sleep last night ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ Made the oldest mistake in the book....I laid down on the sofa. Swiftly stood up again and I'm now going to play with some electrical machinery. What could possibly go wrong ๐Ÿ˜† โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
So..... The arthritic flare that I thought I was having, turned out not to be an arthritic flare. After the pain got to a level where I could have happily have swallowed a live granade, I thought I'd better see my Dr. I know I am a bit silly at times, I try to rationalise symptoms, by connecting them to the illnesses I already have but something was telling me that this wasn't the arthritis, however I had, experienced then pain, swelling and discomfort before. I spent a long time with the Dr and had a bucket load of bloods done and have since been diagnosed with fibromyalgia. Everything totally makes sense now and a few questions have been answered; which is not something that often happens to me AT ALL. Even though I don't feel better physically, I almost feel relieved. A diagnosis is not something I'm used to getting, it's always "well we've never seen that before" but it appears this time, I ticked all the right boxes. ๐Ÿ˜Š๐Ÿ’ช โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #fibromyalgia #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #girlswithoutguts
Back at work after a few weeks of holiday and of feeling crap. It's boiling and I'm still not 100% but will I ever be? Plenty to do at work and quite a few exciting projects on the go! Follows us on @maialekonstgjuteri to check out what I'm doing at work! ๐Ÿ˜Š๐Ÿ’ช ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #crohnsandcolitis #colitis #tired #baglady #exhausted #workingwoman #foundry #dirtyjob #grafter #maiale #hardworking
Our day at 'It's a knock out' for Johnny's stag! And I didn't let my stoma stop me! I took part in every task no matter how tough, and I managed it! Just made sure to wear my @comfizz support wear under my very good training trousers to make sure Stevie was held in place good! Didn't feel anything or get any problems from this day either! Bonus! What a great and fun day! Go team "The used Johnny's" ๐Ÿ’ช ~ #lifeocharlotte #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #stillme #nothingsgonnastopme #stoma #stomi #ostomy #strongwomen #ostomate #chronicalillness #holiday #travelling #travels #itsaknockout #stagdoo #stagdo #tokengirl #greatweekend
Sometimes my body just says no and this week seems to have been a big no week. Today my body is aching, my back is killing me and I just feel exhausted. Getting out of bed is a struggle. But my lovely little Olga is here giving me lots of love and affection, and it's hard not to smile when she is this sweet to me. During the week it's been a mixture of headaches, exhaustion, feeling sick and having to force myself to eat and feeling up and down. At times like this all I can do is listen to my body and try to be nice to myself, and drink plenty of water, as always! Now let's see if I at least can wake up a bit! ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #fighter #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #crohnsandcolitis #colitis #tired #baglady #exhausted #meandmycat #olga #olgacat #catlove #hiddenillness #youlookfine #lookafteryourself #listentoyourbody #painfulbody #exhausted #selflove #cleanhair #smile #smilethroughthepain
Sorry I've been quiet, just been loving the summer a bit much! Will eventually share some holiday pics but for now here are some pics of me in what have been my 2 favourite summer dresses so far! It's amazing what a bit of sun can do! I love being all brown and sun kissed! I feel more relaxed and happy this way! And hey, #whatbag ?! I can even wear cute summer dresses without Stevie the Stoma being an attention seeker! ๐ŸŒž ~ #lifeocharlotte #ulcerousecolitis #invisibleillness #nocolonstillrollin #ileostomy #ibdfighter #stoma #ostomy #crohnsandcolitis #colitis #fighter #ostomates #ostomatelife #chronicalillness #happy #lovelife #girlswithstomas #girlswithoutguts #girlswithguts #getyourbellyout #brightcolours #cutedress #cutedresses #summertime #summerdress #summer #summerlover #summergirl #bagwhatbag
Hi you gorgeous bunch ๐Ÿ’–๐Ÿ’™ โ— โ— Sorry for my absence, I'm having a bit of a rough time at the moment, that's taken me by surprise somewhat. I'm having the worst arthritic flare I have ever had and it's pretty much rendered me useless. All I can put it down to, is the sudden change in weather we've had. My arthritis has always been worse in damp conditions, more so than the cold but this has just floored me. I've virtually lost the use of both my hands and arms, so typing has become incredibly difficult. So im trying to catch up with you guys as often as I can & I'm liking your pictures in my heart for now. โ— I've had a few frantic messages over the last few days, so I thought I'd better let you know what's going on. โ— If anyone needs me, just dm as you have been doing and I'll get back to you ASAP. I'm trying to carry on as normally as possible but losing the use of my arms and hands is a new one , even for me. โ— Much love to you all ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
โฌ…โฌ…โฌ…โฌ…THROW BACK THURSDAY to 1985. This photo brings back so many memories for me. It was taken in Perpignan, France, whilst doing my PADI training. One very clear memory, is of my Dad, who took the photo....eventually. He spend half an hour laughing at the fact my wetsuit was baggy!! We'd been in France over a month at this point and during that time, I had one hell of a growth spurt. On returning home, I went back to school and a week later, I dislocated my left patella for the first time. This was the first moment that I found out I had a bone disorder, that effected every joint in my body. I was told that I'd be a cripple by the end of 30 and all I remember is thinking "that's not happening ". And it didn't. Don't get me wrong, it's been difficult, it's still difficult but I think this was the definitive moment I got a fire in my belly and an urge to fight. ๐Ÿ’ชโคโค โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’ซ๐Ÿ’ซBusy Busy Busy ๐Ÿ’ซ๐Ÿ’ซ Just about to have my nails did ๐Ÿ’….......at least I can sit down for half an hour. โ—โ—โ— Insomnia is back with a vengeance, managed an entire 2hrs sleep last night, before the alarm screamed at me. Definitely on autopilot today....just hope she knows how to drive ๐Ÿ˜จ โ— โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
When the sun hits your mirror and makes it look like you live in a hovel. (I'm decorating). ๐Ÿ’Ÿ๐Ÿ’ŸOOTD๐Ÿ’Ÿ๐Ÿ’Ÿ Dress an absolute bargain from Newlook. The material is actually really thick, so would definitely be perfect for spring and summer. It's currently ยฃ8 but sizes are sparse. It also comes up VERY small, I've had to go up two dress sizes, just to get it over my fat ass.....either that, or I'm totally in denial about my dress size ๐Ÿ˜•. I do love it though, it's very comfortable and I think it looks pretty ๐Ÿ’–๐Ÿ’– โ—โ—โ—โ— Happy Monday instafam, much love ๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™๐Ÿ’–๐Ÿ’™ โ—โ—โ—โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
Shamelessly stolen from @cheerfulcrohnie. This did tickle me. We've all had it....."eat more veg, have you tried fibre, it's your lifestyle, you need to believe in God, cut out meat, infact go vegan, try organic it helped my ingrowing toenail, try juicing anything that's green, camomile tea is great for that thing I've never heard of....' we've heard them all. ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ๐Ÿ˜ฉ I'll leave this here whilst I pop off and twist my arthritic bones into a 'crouching artichoke'!! โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
๐Ÿ’Ÿ๐Ÿ’™OOTD๐Ÿ’™๐Ÿ’Ÿ โ— โ— Oh, how I love this dress. This was a firm favourite when I had Stanley stoma, the material is a more rigid cotton & it hangs really well. The pattern deflects from any extra lumpage and bumpage, caused by an 'active bag'. It's not skin tight but neither does it hang like sack. The sandals, I've had for years but they match so well. The ultimate girly girl today ๐Ÿ’–๐Ÿ’– โ— โ— Have a wonderful day everyone ๐Ÿ˜˜๐Ÿ˜˜ โ— โ— #ibd #ibdwarrior #inflammatoryboweldisease #autoimmunedisease #thyroiddisease #osteoarthritis #spondyloarthritis #uniquedisease #uniqueibd #chronicillness #chronicdiseases #chronicfatigue #spoonie #thespoonielifechoseme #ibdawareness #ostomy #ostomyreversal #ostomyawareness #onceabagladyalwaysabaglady #butyoudontlooksick #dontjudgeabookbyitscover #nocolonnoproblem #nocolonstillrollin #gutlessglamourpuss #inkedandawesome #inkedsickchick #tattoos #girlswithoutguts #girlswithink #inkedup
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