#eds

358,240 posts

Loading...
Loading...
"You can't cosplay with a feeding tube." It's something I've heard over and over again. That my portrayal of the character will never be accurate as long as I have to carry my backpack everywhere. Funny, how people who have never been in my position feel entitled to comment on it. I want to thank my biggest inspirations who continue to make me want to push myself and cosplay despite everything. @amber_kohaku_chan @_putrid @peachyfizzing @peachie.wav @louistato . . . . . . . . . . . . . . #dia #diamond #photography #instagood #cosplay #cosplaygirl #diy #makeuptutorial #beauty #dysautonomia #potsie #eds #ehlersdanlossyndrome #ibd #writingprompts #writersofinstagram #cutegirl #crohns #anxiety #bopo #bodypositive #loveyourself #styleblogger #anime #animegirls #otaku #queer #disability #awareness
I think I definitely failed my quiz today in bio, whoops. I also saw a cute boy at A&W. I should make business cards that say “hi, I’m Dylan, I think you’re cute but I’m too anxious to actually tell you that, here’s my Instagram if you want to talk ;)”. Just give them to random cute people I see • • Image description: First slide: How to make queer spaces more accessible to autistic people. Allies to all spaces where you want to be inclusive to NDs, particularly autistics and people with SPD. By Chrysanthe Tan. 2nd slide: be aware of sensory environments when planning events or choosing locations. Volume levels, scents, lighting, temperature. 3rd slide: provide as many details as possible. Not knowing a schedule or complete list of activities and resources can prevent autistic people from feeling safe enough to attend an event. Provide details on parking and public transit, the cost of the event, types of food available and the appropriate dress code. Mention whether your space will be sensory-friendly, and if there will be gender-neutral and wheelchair-accessible restrooms, as well as available and accessible seating. If providing a lot of detail doesn’t work for the invitation, include a link to read more details on a separate page. 4th slide: provide language and communication aids. When screening a video, turn on closed captions with no questions asked. Many autistic people have trouble processing auditory language. Consider providing name tags – some autistic people struggle with reading and recognizing faces. 5th slide: check in with us to see how we’re doing. It’s best to ask specific questions to draw us more easily into the conversation. Instead of ‘how are you?’ or ‘are you okay?’ try, ‘is the volume too loud?’ or ‘is it too cold in here?’ • • • • • #chronicpain #pain #fibro #fms #fibromyalgia #eds #ehlersdanlossyndrome #ehlersdanlos #chronicfatigue #chronicfatiguesyndrome #cfs #spoonie #spooniememe #cpunk #cripplepunk #arthritis #endometriosis #endometriosisawareness #caneuser #cane #wheelchair #wheelchairuser #mobilityaid #mobilityaids #disability #disabled #invisibledisability #invisibleillness
I sit on a stool at the stove while i cook ( BEAT THAT HEART) and doof sits right beside me most of the time #cardiacalertdog #servicedog #medicalalertdog #servicedogsofinstagram #servicedogsofig #workingdogs #pots #EDS #EhlersDanlosSyndrome #potssyndrome #chronicillness #spoonie #disabled #goodboy
Made a new friend 🦓 ⬇️⬇️⬇️⬇️⬇️⬇️⬇️⬇️ Why the Zebra?? "People with the Ehlers-Danlos syndromes and hypermobile spectrum disorders (HSD) often identify themselves as zebras. Medical students have been taught for decades that, “When you hear hoofbeats behind you, don’t expect to see a zebra.” In other words, look for the more common and usual, not the surprising, diagnosis. But many of us spend years pursuing a diagnosis for disorders that aren’t well known. Or aren’t expected in someone who looks normal, or is too young to have so many problems, or too old. Or even, what we might have is considered too rare for anybody to be diagnosed with it. So the zebra became our symbol to mean, “Sometimes when you hear hoofbeats, it really is a zebra.” Ehlers-Danlos syndromes are unexpected because they’re rare. Hypermobile spectrum disorders are common, but are unexpected because they remain misdiagnosed or under-diagnosed. When you see a zebra, you know it’s a zebra—but no two zebras have identical stripes just as no two people with an Ehlers-Danlos syndrome or HSD are identical. We have different symptoms, different types, different experiences—and we are all working towards a time when a medical professional immediately recognizes someone with an Ehlers-Danlos syndrome or HSD. A group of zebras is called a dazzle. We are a community of individual zebras, we are stronger together, and we dazzle." https://www.ehlers-danlos.com/why-the-zebra/ #hEDS #EDS #EhlersDanlos #hypermobileEDS #EhlersDanlosSyndrome #hypermobile #HSD #Zebra
Happy weekend! 🤗 since this whole “I’m going to share my story & help make the invisible ➡️ visible” thing I’ve started, I don’t always know what to share. What would help other zebras? What would help loved ones of zebras? What would help the poor person who stumbled across this accidentally to understand? As I put on my lounge clothes after taking my daughter & her friend to the movies (I want a dragon), I couldn’t help but laugh at the memory I had when pulling out this shirt my mom got for me. I don’t normally wear message tees, except at home... but one morning, I tried to get dressed to take my kiddo to school & a stabbing pain in my shoulder almost made me vomit & completely immobilized me. I went to the doc in my “silent scream for coffee” tee, embarrassed that my shoulder was locked up & I was basically out in public in pjs. At least the nurses got a laugh. The last surgery on that shoulder was 13 years prior. For about 6 years, I struggled through with cortisone shots. Surgery 21 happened about a month later. That tee was “the moment.” One of my hip surgeries, the cause listed on the paperwork was “stepping out of a rabbit cage.” 🤣🙈👀 of course, all these issues are present daily, but there’s usually a “that’s it! I’m DONE!” moment. The pics of the knee, surprisingly did NOT end in my 11th knee surgery. In the middle of the night, I tripped on my dark, 25lb cat & splatted on the ground (I highly recommend motion night lights at ground level!). Thought I’d shattered my kneecap. But, 6 weeks of continued bruising & discoloration, & it healed. For about a year, I’ve been waffling back & forth about what’s next. Right hip? Right wrist? Which can hold out longer? Will there be a “stupid moment” that decides for me? How do other zebras prioritize what gets fixed when you’re dealing with a “lemon” and EVERYTHING needs to be fixed? 🤔 #ehlersdanlos #ehlersdanlossyndrome #eds #chronicpain #chronicillness #chronicpainwarriors #zebrastrong #fightlikeazebra #edsawareness #invisibleillnessawareness #invisibleillnesses #ayawnisasilentscreamforcoffee #bendynotbreakable #livingwithchronicillness #livingwithchronicpain #fighteveryday #selfcare #beyourbestyou
#eds P110 eyebrow tattoo tint
#eds P80 pair
I saw this saying and it really hit home for me today. Ian went home after lunch yesterday because sometimes the pain is just too much for him. But yesterday he wanted to go to Wrestling practice and be with friends and smile and laugh like nothing bothered him. This morning was hard one so Vinny spent some great time just having some son and father bonding. Ian suffers from pain and aches daily and knows that each crazy thing he does might cause pain later but it won't ever stop him. This kid walks in to every room and smiles so big that people are just drawn to him. He is a kindergartener with more girls friends than he can keep straight! The stuff he smiles through and takes on like it is nothing is amazing he is such a super hero. #edslife #eds #edsmom #edspain #edsboy #edssucks #bodyhurt #ian #boymomlife #boymom #momblogger #momlife #momboylife #momboy #strangth #pain #strong #kids #superhero #smile #powerful
500 follower! yay lol, i dont know why i’m excited about that 😂💗 - • • • 📸: @joshluskphotography @eatonvilledancestudio - • • • #like #explore #viral #dancer #alwaysdancing #dancephotoshoot #photoshoot #photography #dancephotography #joshluskphotography #eds #eatonvilledancestudio #hyalya #hyalyaambassador #callulah #callulanco #features #dancefeatures #dcfeatureme #dancecrewfeature #relevetothetop #rtttfeatures #dancersofinstagram #dancerpose #dance #dance - • • • follow me!! 💗 @erinlynneanderson follow my studio!! 💗 @eatonvilledancestudio DONT FORGET TO USE MY PROMO CODE!! ErinL15 FOR 15% OFF YOUR PURCHASE (LINK IN BIO) 💗💗💗
Meet 8 year old Ali, She is 8. She relapsed with; acute lymphoblastic leukemia (ALL). But today we got to bring a smile to her face. 🎗️ . . . . #chronicillness #carepackage #carebox #spooniesinneed #spoonies #childhoodcancer #celebratelife #carepackages #careboxes #donate #givingback #giveback #donations #servicedog #SDiT #POTS #MCAS #EDS
#Repost @ehlers.danlos ・・・ Many types of stripes join together to form our Ehlers-Danlos syndromes dazzle. This month, we will explore each of the unique, distinct types of Ehlers-Danlos syndromes.⁣ ⁣ Learn more about the different types of EDS at the link in bio⁣ ⁣ #EhlersDanlos #ChronicPain #hypermobile #hypermobility #EhlersDanlosSyndromes #pain #EDS #EDSAwareness #ChronicIllness #Spoonie #ZebraStrong #DazzleTogether #Zebra #vEDS
Some training and errands with Boomer today! After working through some fears he handled it really well. I'm slowly upping his task and PA work to see where and what he's at. I've also found out that he loves a clicker! So we just started working with that, too. (2/22/2019)
#eds P550
This man has been carrying me since day one 💕these past few days have been hard as I can’t keep anything down, but I am so thankful that I am able to trial this med at home rather than in the hospital (thank you Jesus for home IV fluids!) Thank you Jared for always carrying me through the storms my body creates, and for always facing each new challenge by my side. I love you 💛 #wedding #overthethreshold #marriagegoals 📸: @ashleygreenphotography #livingthechronicillnesslife #livingthevow #amnesiawontwin #spoonie #finallyamrs #marriedlife . . . #rsd #crps #rsdcrps #rsdcrpsawareness #rsdcrps4acure #eds #ehlersdanlos #ehlersdanlossyndrome #edstype3 #dysautonomia #pots #potsie #lifestyle #lifestyleblog #blogger #blog #happiness
To everyone who didn’t get everything they needed this week, there is always another chance 🌌💙
Cbd/Cannabis Butter available now for #fibromyalgia and #chronicpain these make for a great #massage we also have sales on our salves!! #cbd #cannabis #eds #indica #pain #organic #spoonie #spoonielife #allnatural #arthritis #chamomile #herbalife #herb #hippie #butter #essentialoils #hemp
🔅 Arzola’s story will be featured on @akronchildrens blogs and social media for Rare Disease Day on February 28th. Read about how we became #zebrastrong and our plans to raise awareness + support a community of Zebras!!!! Our little warrior is truly amazing🔅 Her strength, courage, and never wavering spirit is so admirable + inspiring. #ZolasZebras 💜🦓 ⭐️ Be Strong and Courageous. ⭐️ Joshua 1:9 #ehlersdanlosawareness #hypermobility #eds #heds #veds #awareness #warrior #courage #rarediseaseday #ehlersdanlossyndrome #ehlersdanlos @ehlers.danlos #instainfluencer #iginfluencer #faith
I got home from a crappy day at work and Squirrel is waiting for me because she flipped over all their houses 🤦‍♀️🙄
Did a bunch of errands yesterday which left me sore and exhausted physically. Plus both my hips decided to sublux. With a heavy heart and broken body I’m cuddling my friends favorite book she let me borrow last month. Today i feel like I’ve run out of spoons.. but no worries, i can always find more! . . . #selfie #booklover #grief #griefsucks #imissyou #eds #ehlersdanlossyndrome #jointhypermobilitysyndrome #hypermobilityspectrumdisorder #hsd #heds #edstype3 #purplehair #fairyhair #articfoxhaircolor #dyehard #spoonie #spoonielife #imoutofspoons #blog #personalblog #cutegirls #iloveyou #chronicpain #chronicillness #zebrastrong #dazzletogether #pain #edsawareness
⭐️⭐️It's here! The LAST day of BOGO week! They saved the best for last! ⭐️⭐️ . ✨Today's feature is a part of my daily routine. ⚖️ Balance to help ground me for my day & 🛀🏻Serenity to help ease stresses, as well as help calm me down before bedtime. 😌✨ . 👶🏼👧🏽For children, dilution ratios change, as well as for your fur babies. 🐶🐱Read all instructions before use. . 📚There are many other uses and guides to these blends. I would love to personally assist you in your wellness journey by providing more information & help you attain your goals. 👩🏻‍🏫 . 👉🏼Thank you to my new wholesale members & Wellness Advocates that signed up this week. What an amazing step you're taking into Natural Solutions for yourself and your family.👨‍👩‍👧 Talk to you soon! . And Happy Go Texan Day! . . . . . #HealthyHouston #Cypress #Katy #Spring #theWoodlands #Pasadena #Sugarland #Pearland #Galveston #Texas #Fibromyalgia #ChronicPain #Neuropathy #Spoonie #Yoga #EDS #AutoImmuneDisorder #Gym #Exercise #Doctor #Chiropractor #Realtor #Natural #Wellness #flu #AlternativeTherapy #EmotionalWellness #HelpOthers #LoveYourself #essentialpalette
@vegan.pole.dancer teaching me Crucifix
AUJOURD'HUI LE PERFECTO ✔️✔️✔️✔️ . (22/02/2019) 🏆⚽🏆 . Safe . Milan AC (1,43)✔️ West Ham (1,77)✔️ . Fun . ASSE ou nul (1,32)✔️ Lille Strasbourg "+1,5" (1,38)✔️ FC Porto (1,44)✔️ . Ultra fun . Buteur Piatek Milan AC (1,61)✔️ . #pronostic #parionssport #unibet #betclic #beautiful #football #smile #style #life #friends #sport #art #follow #followme #happy #instagood #ligue1 #seriea #eds #champion #likeforlikes #winamax #zebet #rmcsport #rmc #beinsports #canalplus #france #stadedefrance #tag
This abstract painting I created is called “Beautifully Broken”. Imperfectly perfect, she is beautifully broken. Sometimes being chronically ill, we stop seeing the beauty that is still within us and around us. We are so consumed with pain and the loss of the person we once were, we forget that broken doesn’t mean the beauty is gone. We just might have to look harder to see it. You ARE beautiful despite your illness. #chronicpainwarrior #chronicillness #hiddenillnesses #motivationalquotes #spoonie #eds #gastroparesis #youarebeautiful #healthjourney #creativebeyondchronic #findingbeauty #invisibleillness #perfectlyimperfect #ehlersdanlossyndrome
It can be hard managing fresh produce for the small critters so I've started making grated fruit and veggie mixes to freeze. The left one is apple, strawberries, and blueberries and the right one is squash, zucchini, carrot, and broccoli. I freeze them in ice cube trays and we just thaw them as needed. It's so much easier than relying on just fresh or substituting dehydrated blends. And the critters really like it, too! . Also to make these I just brought my supplies and ingredients to my bed. The weather has been killing me today and made being upright very uncomfortable, so I made it my way! Just sat in bed watching Netflix while grating the produce into a bowl, then mixed everything and stuffed the trays. It still took all my spoons but at least I didn't make myself worse by doing it in the kitchen. Always adapting! . . #spoonie #spoonielife #chronicallyill #mastcell #POTs #potsie #eds #edszebra #ehlersdanlos #ehlersdanlossyndrome #chronicpain #ehlersdanlostype3 #edstype3 #hypermobileehlersdanlos #migraines #hypermobileeds #fibromyalgia #chronicfatiguesyndrome #chronicfatigue #ehlersdanloszebra #chronicmigraines #gastroparesis #dysautonomia #disabled #mcas #crittercare
PCOS makes me hate my periods. I have >20 little cysts on each ovary and while I am ‘blessed’ to have light bleeding, the clots that I pass make up for the rest of it. I get the worst blood pooling in my legs laying down which is relieved by standing and it is the complete opposite to when I’m off my period - I get blood pooling when I stand. I faint a heap, I donk my head a few times, I faint some more and I vomit up whatever I’ve eaten. I have no current relief because my body is highly sensitive to hormone medication we’ve tried the pill, implanon and recently the NuvaRing - none have worked and my GP discussed my options with a gynaecologist and the NuvaRing was my last option. #pcos #polycysticovariansyndrome #gastroparesis #dysautonomiaawareness #autoimmunedisease #endometriosis #chronsdisease #pots #potssyndrome #dysautonomia #lupus #fibromyalgia #ehlersdanlossyndrome #eds #hypermobility
Mental health is so important. Living with pain 24/7 is really hard, and for many people hard to belive. And NO, it's not in your head. It's a neurologicaldisease and your Bain is constantly sending pain signals to all your affected or weak parts. Evil illness, and society knows nothing about it. #mindfulness #mentalhealth #anxiety #ptsd #hypervigilance #fibromyalgia #fibromyalgiaawareness #fibrowarrior #instagood #love #selflove #follow #eds #ehlerddanlos #followforsupport #migraines #motivation #photography #quotes #men #women #butyoudontlooksick #strong #fighter
Atenção no mapa do nosso evento, e entrada não vai ser pelo lado do abacatão, sim pelo lado da avenida que dá acesso ao bairro do icui. #blocoinjecaoeletronik #eds #djlife #carnavaleletrônico #blocoinjeçãoeletronik2019 #veminjeção #carnaval #cultura #djlife #carnavaleletrônico #blocoinjeçãoeletronik2019
Hello everyone!!🙂 A package has been received by @bobbyrobertson8436 daughter Abigail 😊💕She loves her care package!!💗I’m so glad I can spread joy & happiness throughout the chronic illness community with my care packages!! I love what I do!!🙂💗💕#chronicwarriorboxes #chronicillness #chronicillnessbox #carepackage #carepackages #spreadhappiness #giveback #sicklife #illness #gofundme #gofundmedonations #donations #donationsneeded #donationsaccepted #invisibleillnessawareness #invisibleillness #nonprofit #cysticfibrosis #copd #cancer #lupus #pulmonaryfibrosis #asthma #pcd #donation #chronicillnesswarrior #chronicillnesswarriors #givingback #pots #eds
does anyone else ever think of the times they weren’t ill (or at least their illness hadn’t caught up to them yet)? i miss the days of waking up and being fully rested. 😴
Hello everyone!!🙂 A package has been received by Heather @capey4245 💕She loves her care package!!💗I’m so glad I can spread joy & happiness throughout the chronic illness community with my care packages!! I love what I do!!🙂💗💕#chronicwarriorboxes #chronicillness #chronicillnessbox #carepackage #carepackages #spreadhappiness #giveback #sicklife #illness #gofundme #gofundmedonations #donations #donationsneeded #donationsaccepted #invisibleillnessawareness #invisibleillness #nonprofit #cysticfibrosis #copd #cancer #lupus #pulmonaryfibrosis #asthma #pcd #donation #chronicillnesswarrior #chronicillnesswarriors #givingback #pots #eds
A while back my lovely friend @hedgehugs.cat had to say goodbye to her beloved Asha kitty. There is nothing anyone can do to ease the loss of a beloved pet...but I painted this little canvas of Asha in the hopes that it would bring some beautiful memories. It was such a privilege to get to know and love Asha from afar and I like to imagine she's visiting with some of my angel babies. Maybe somewhere out there there's a little black kitty playing chase with a little chunky sugar glider. ❤️❤️❤️ . . #spoonie #spoonielife #chronicallyill #mastcell #POTs #potsie #eds #edszebra #ehlersdanlos #ehlersdanlossyndrome #chronicpain #ehlersdanlostype3 #edstype3 #hypermobileehlersdanlos #migraines #hypermobileeds #fibromyalgia #chronicfatiguesyndrome #chronicfatigue #ehlersdanloszebra #chronicmigraines #gastroparesis #dysautonomia #disabled #mcas #ashacatdesigns
When you finally find a diagnosis for a seemingly mysterious and undiagnosbale set of extreme symptoms which require me to carry an epi-pen, but have no known cause. Thanks instagram and @digestingthefacts for helping me figure out what several emergency room visits and easily a dozen medical professionals couldn't. That makes twice this year I've self diagnosed what no one else could. Do I get a fucking medal? Or just another slew of medications. Also, sometimes there are no triggers and #idiopathicmastcellactivation syndrome is just like a ghost hanging out in the shadows waiting to show up without any warning. Awesome. #wheresmyhonorarymedicaldegree Reposted from @digestingthefacts - Mast cell triggers can vary widely and change suddenly. Avoiding triggers entirely is pretty much impossible, so treatment includes using medications to prevent reactions and treat symptoms while avoiding as many triggers as possible. . . . . . . . #mastcellactivationdisorder #mcas #mastcell #raredisease #mastocytosis #anaphylaxis #chronicillness #chronicpain #chronicfatigue #spoonie #invisibleillness #dysautonomia #POTS #gastroparesis #tubie #feedingtube #zebrastrong #disabled #ehlersdanlossyndrome #ehlersdanlos #EDS - #regrann
Hello everyone!!🙂 A package has been received by Carissa @my_sidekick_sadie 💕She loves her care package!!💗I’m so glad I can spread joy & happiness throughout the chronic illness community with my care packages!! I love what I do!!🙂💗💕#chronicwarriorboxes #chronicillness #chronicillnessbox #carepackage #carepackages #spreadhappiness #giveback #sicklife #illness #gofundme #gofundmedonations #donations #donationsneeded #donationsaccepted #invisibleillnessawareness #invisibleillness #nonprofit #cysticfibrosis #copd #cancer #lupus #pulmonaryfibrosis #asthma #pcd #donation #chronicillnesswarrior #chronicillnesswarriors #givingback #pots #eds
En Distracom también somos comercializadores industriales certificados por el Ministerio de Minas y Energía. Gracias a nuestra capacidad logística y flota especializada, nos adaptamos fácilmente a las necesidades de su operación. Para mayor información escríbenos en: https://www.distracom.com.co/contactenos/ 💪🏢⛽🚛🚚🚙🚖🚛🚕🚛⛽ . . . . . #Distracom #Servicios #EDS #Calidad #Combustibles #Colombia #Camión #Transportador #Tractomulas #Clientes
It's been a very confusing rollercoaster lately. • • Cardio referred me to someone about lyme, but when I called to talk to them about everything I've been dealing with the last few years the doctor outright told me its highly likely that its systemic lupus rather than lyme. I laughed it off and agreed to make an appointment anyways but then I stopped to research lupus and I'm in awe that we've never touched the topic of it even with my horrible immune system and million and one other problems. I hit every single mark for it from the rash and fatigue to the ulcers and chest pain. • • I'm hopeful that maybe, just maybe, this might be the cause to everything else we've been dealing with over the years. I know there's no cure, no real treatment, but after years of struggling and being told it's all in my head, I looking forward to knowing what's really going on 🙏
#facetofacefriday 380lbs to 220lbs. also these are both bathroom selfies haha. on my before pic that’s Thorin sitting on my shoulder lmao he can’t really perch like that on them anymore because they’ve gotten smaller. 🤷🏼‍♂️ sorry not sorry Thorin kitty! at least he fits in my lap now instead! 🖤 - - - #extremeweightloss #weightlosstransformation #weightloss #weightlossjourney #beforeandafter #beforeandafterweightloss #bariatricsurgery #bariatricsleeve #bariatriclife #bariatricsupport #vsg #vsgbeforeandafter #vsgtransformation #vsgsurgery #verticalsleevegastrectomy #150poundsdown #100poundsdown #100lbsdown #eds #ehlersdanlossyndrome #potssyndrome #spoonie #chronicillness #chronicpain #genderfluid #genderqueer
Meet Nora, she is almost 3 (April 2nd). In June of 2018, she was diagnosed with ETMR (a rare & aggressive pediatric brain cancer). And today we brought a smile to face with a package. 🎗️ . . . #chronicillness #carepackage #carebox #spooniesinneed #spoonies #childhoodcancer #celebratelife #carepackages #careboxes #donate #givingback #giveback #donations #servicedog #SDiT #POTS #MCAS #EDS
My life in animation... 🤦 #lowspoons #queersofinstagram #eds #autoimmune
Keeping it real. What's the point of trying to encourage and inspire if you're not honest? The face of exhaustion and feeling hopeless. The chronic life is HARD. And no, that's no self pity, it's self acceptance. Always needing to work on the shame and guilt. And feeling the loneliness. There are times for counting your blessings and seeing the bright side. And there are these times. Be kind 💖 #spoonies #chronicfatigue #chronicpain #chronicillness #energylimitingchroniccondition #energyimpairment #hypermobilityspectrumdisorder #hypermobilitysyndrome #eds #ehlersdanlos #exhausted #shame #momguilt #guilt #feelinglow #anxiety #depression #lonely #selfcare #selfacceptance #kindness #begentle #love #feelings #emotions
Did a little something today while I was bored. First time ever using watercolour paint so be kind 😂 #vscocam #vsco #ehlersdanlos #ehlersdanlossyndrome #chronicillness #Spoonie #eds #pain #greenwitch #witch #book #journal #herbs #oregano #watercolour #fingertattoo
Huge thank you @tummydrops for donating to my care packages!! I am so happy I found this company because they seem so wonderful!! Their products seem amazing for upset stomachs and their packaging is so nice!!! I can’t wait to keep the tummies of my recipients happy with tummy drops!! 💙 - #newaccount #followforfollowback #chronicillness #terminalillness #carepackage #care #happy #share #apply #happythought #nonprofit #helping #help #joy #donate #chronicpain #eds #warrior #🦓 #box #package #health #comfort #support #pots #positivity #helpinghand #donation #thankful #thankyou
In our chronic illness community we often use the term Spoon, Spoonies. So for those that not understand or are not related with the Spoon Theory, Spoonie concept: The spoon theory is a way of describing the experience of chronic illness and its limitations using a metaphor. The spoon theory is used to explain the reduced amount of mental and physical energy available for activities of living and productive tasks that may result from disability or chronic illness. #dysautonomia #pots #potsie #autonomicdysfunction #posturalorthostatictachycardiasyndrome #EDS #ehlersdanlossyndrome #hEDS #zebrastrong #hypermobility #mastcellactivationsyndrome #mcas #ibs #migraines #vestibularmigraines #intractablemigraine #basilarmigraines #chronicmigraine #chronicfatiguesyndrome #cfs #anxiety #spoonie #chronicillness #invisibleillness #chronicwarriors #chronicpain #rheumatoidarthritis #spoontheory
So far today has been a much needed self care day! I dyed my hair (I know it’s bad for my hair, but it needed to be touched up) and Elex shaved the sides of my head for me. I’m feeling good (and anxious for MRI results which will probably take a few days 😭)
H got creative this afternoon with her toys. She wanted to make a ball run, so we got her pyramid out and away she went!! He loved the sound it made. . . Inspiration taken from @rascals_and_rainbows Thanx Sheila 😁 . . . #happymehappyyou #homeeducation #unschooler #waldorf #montessori #colourfultoys #mycolourfulkids #ourcolourfulkids #letthemplay #letkidsbekids #openendedplay #openendedtoys #woodentoys #learningthroughplay #grimmswoodentoys #asd #specialkids #kidswithneeds #eds
Some training with Boomer at Staples (pictured), Fred Meyer, and Petco from the other day working on our PA manners and tasking. Short trips, probably an hour total, but he did it with a happy and relaxed tail and did great and recovered super well when he was startled by a couple of loud bangs and people dropping stuff and crashing their cart right next to us, he jumped up and out of the way because it startled him then immediately recovered and waited for me to direct him back where I wanted him-- 100% acceptable with me. Especially since I've been slacking with training, he totally rocked it with his tasking and PA in general. However, the 6 adults in line in front of us oogling over the "puppy" to the point that the pharmacy techs had to half yell at the customers to get their attention away from Boomer..who was just sitting at my feet and was focused on my face. I am finding our big lettered @patienceandlove143 "SERVICE DOG IN TRAINING" cape vest is keeping people from distracting or otherwise interfering with our training, for the most part and it's very clear and eligible and we absolutely love it! (2/6/2019)
My health hasn't been doing well, I've had a massive increase in seizures we are trying to figure out. I apologize for not being very active on IG. I don't have much energy and I'm so exhausted. Thankful for my pups ❤️
next page →