⚕Medical Update ⚕
I spent 5 days in the hospital again for my #spinalCSFleak
. Literally 1 day before I was in the hospital, I was feeling better and was able to do an awesome photoshoot in Burbank for @themightysite.
I was able to drive there and had almost 5 hours of upright time that day.
The next day, I drove to my #painmanagement
appointment at @cedarssinai
and about half way there, I felt my low pressure headache come back. By the time I arrived at my appt, my heart rate was 124bpm at rest, and I started showing some of the #dysautonomia
signs (tremors/involuntary movements, severe brain fog, sweating) that are caused by my brainstem getting compressed when my CSF pressure drops. ---
This time, it happened so fast that the blood vessels in my right eye burst because they didn't have time to adjust to the pressure change (2nd pic).
-- While I was in the hospital, I had another #ketamine
infusion and made friends with one of the nurses after we discovered that we went to the same concert in December (#trancefamily
My amazing hubby stayed with me day and night to help take care of me. Before my procedure we even got to have a coffee date outside in the plaza! 💜☕💏 #besthusbandever
-- While they did the 7th blood patch to try to stop the CSF leak, my doctor accidentally went too far with the needle 💉 and made another hole in my dura (the membrane that holds the spinal fluid). I lost even more CSF as a result and they had to inject over 30 cc of blood to try to stop that new leak. The #headache
from this was super intense, so they did #acupuncture
to relieve some of the pain the next day. --
I also got to meet with the surgeon, who said that if this patch doesn't hold as long as the last one (29 glorious days), then we will need to do #spinesurgery
again. I'm relieved to have a gameplan in place and I am happy to be home and recovering again. 💜🏡💜