#clusterseizures

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It’s been rough these past few days. Keylo has had cluster seziures since Friday. He had a total of 17 seizures between Friday-Sunday morning. He’s been one day clear of them, however he’s not fully recovered. He’s getting back to the dog I know, but I think being heavily medicated to stop the seizures has him out of whack too. #poordoggy #poordog #clusterseizures #seizures #canineseizures #epilepsy #dogepilepsy #seizuressuck #dogmom #epilepticdog #epileptic
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The love this girl has for her dog 💙🐾 Mason has been diagnosed with #idiopathicepilepsy and #clusterseizures we've tried multiple medications and none seem to be helping. Seeing how strong this little girl is and how much comfort she provides Mason is what keeps me going and pushing to do whatever it takes to get him better! #agirlandherdog #rescuedog #rescuepup #epilepticdog #angellmemorialhospital #retrievermix #houndmix #blackmouthcurmix #blackmouthyellowcur
I feel like I’m constantly on here and blogging about the unpredictability of epilepsy. I’m always saying that tomorrow isn’t guaranteed and any moment can be a medical emergency. • This was me a few weeks back, living my best life with the little sis. At the time, I was thankful to be with her. I didn’t forget for a second all the times I’ve almost not been in her life, all the near-misses that epilepsy has offered me. • And a few days later I got the flu. • • That sounds like a non-event, right? Because it is for most people. Nothing to report. Something you’ll get over in a few days. Except, it’s not like that for me. My brain is too fragile for flu, for fever. • • After a lovely few months with only fortnightly episodes, thanks to my brush with the flu, epilepsy visited its full wrath on me again on Monday. • • So, so many back-to-back violent seizures, an ambulance ride and four emergency doses. A reminder of what epilepsy has gifted me and how rapidly my health can decline. • Since then, I’ve still been having the occasional seizure, but for now the intensity has dissipated. • • In a few days, I’m sure I’ll be feeling much better. I’ll go back to living my best life. I’ll be grateful for every joyful moment I get. But I’ll do so understanding I cannot take it for granted, knowing always there will be a next time.
Well after an incredibly long and sleepless night/morning Felix is finally home after an ER visit due to #clusterseizures . #canineepilepsy sucks. Thank god @clintkubanvmd and @all_we_know_of_heaven were there to help. These guys are amazing at what they do!
I’ve made it down the stairs on my own! Mom still had to keep me steady with the handle on my @petsafe harness, but she didn’t have to use the rear lift harness to carry me at all. Guess she needs to head back to the gym since she won’t be counting carrying a 62 pound dog as her daily exercise! She’s trying to time our trips so that I’m doing stairs before a dose of meds, when the last dose is wearing off and I’m a bit steadier on my feet. But sometimes, when a guy’s gotta go, a guy’s gotta go! So there may be a few more lifts down while I continue to adjust to seizure meds. THANK YOU again to everyone who donated or shared our GoFundMe and everyone who sent positive healing energy and messages. I’m getting better 💪. #thankyou #gratitude . . . . . . . . #dogseizures #dogepilepsy #clusterseizures #seizures #gofundme #gsd #sheprador #shepradorable #sactowndogs #sacramento #rescuedog #rescuedogsofinstagram #rescuedismyfavoritebreed #adoptdontshop #ilovemydog #mydogiscutest #KobichaBoy
My first and only cluster seizure was after my last (last ever according to mum - funnily enough...) vaccination 🤔 #canineepilepsywarrior #doyourresearch #vaccinetruth #dogumentary #clusterseizures
#Repost @esmith5988 with @get_repost ・・・ Hi friends, it's been a very rough few days as my beloved dog Kobicha has suffered from cluster seizures and had to be hospitalized for two days. After his first seizure, the hope was that he either wouldn't have another or he would have regular seizures every few months. Unfortunately, the escalation to cluster seizures makes this an entirely different situation. His seizures are incredibly horrible to watch, he sometimes starts with a focal seizure but always goes into a full seizure, all of what you expect from a seizure include losing control of his bladder and bowels. Afterwards, he is blind and extremely disoriented. He's now been seizure free since 11ish on Friday night (yay!) but adjusting to his new medication is an intense process. It makes him extremely sedate, anxious, and he has a lot of trouble walking and maneuvering at all. This will be a lifelong health challenge. While I have money saved up for emergencies for him, he blew through that in one day. Unfortunately, any medical costs for his pre-existing condition would not be covered by pet insurance so we can't go that route either (Obamacare for pets, please!!). I don't want to ask you all to help, but I'm putting my ego to the side and prioritizing his health. Recouping some of the costs from the last few days and cutting costs in other areas of my life will make it feasible for me to manage the next time he has a cluster that requires hospitalization (because unfortunately, there will be a next time). Please consider donating or sharing to his GoFundMe (link is in my bio). And even if you can't donate, please send healing energy his way! Sweet Kobicha Boy should not being go through this traumatic process. He is a light, and  all who know me know that I love him dearly (I mean, he has own insta, ha). We have a long road ahead of us and I'm taking it hour by hour while we get through the adjustment period with these meds and then adjust to our new normal. Thank you all for reading and considering donating or sharing! Love to sweet Kobicha Boy. @kobichathesheprador
Waking up to #tonicclonicseizures #clusterseizures #corticaldysplasia #rescuemedicine #midazolam This is my daughter @corasgram and this is a typical tonic/tonic clonic seizure for her. I hate all her seizures but clusters are the worst. You feel helpless watching your child have one seizure after another. Her seizures usually last 1 min to 1 min 30 sec and her clusters usually go on for over an hour after rescue meds. Countdown to surgery... You can see more videos of her seizures on our youtube channel http://www.youtube.com/c/SeizeCDCorticalDysplasia
I spy with my little eye ... The dog whisperer watching the cluster seizure dog. #clusterseizures #bostonterrier #birchbungalow
Please hold Bella close in your hearts. She will miss yet another day at her special needs school today. It’s been an incredibly tough night filled with so many nocturnal seizures and Bella is absolutely exhausted. Here’s hoping today is a restful day for the poor girl. This is just too much, far too often. She needs her equipment, the same equipment the National Disability Insurance Agency keep denying my poor sweet girl. Bella’s brain seriously needs a break from the constant neurological trauma. #bellathebrave #epilepsy #seizures #chroniccondition #neurologicaldisorder #nocturnalseizures #clusterseizures #cosleeping #floorsleeping #reality #thischilddeservesdignity #disabilityrights #disabilityawareness #medicallyfragilewarrior #specialeducation #kcnq2 #pcdh19 #specialneedsparenting
❤️❤️❤️TODAY WE ARE FEATURING @PETER_PARKER_15 on all 3 MAIN POSTS !! PLEASE SEND YOUR LOVE AS HE IS FEELING BETTER TODAY ❤️❤️❤️ 🙏 🙏 🙏 “Above all, don’t lose hope...” -Life of Pi ☄️🙏❤️ ▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️ I’m trying my best to recover....maybe I just need some more time. 😔🙏 ▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️ #slowrecovery #pleasegetbetter #theclimb #keepmoving #keepclimbing #keepthefaith #ivegotthis #pleasedontgo #stayforever #staystrong #staystrongpeterparker #peterstrong #woofpackbros #glamsquadcrew #unitedpawsgroup #kyounodachs #kyounowanko #todayswanko #seizure #clusterseizures #clusterseizuressuck #clusterseizure #seizures #seizuressuck #diggitysausageblanket #weeklyfluff #dailybarker
“Above all, don’t lose hope...” -Life of Pi ☄️🙏❤️ ▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️ I’m trying my best to recover....maybe I just need some more time. 😔🙏 ▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️▪️ #slowrecovery #pleasegetbetter #theclimb #keepmoving #keepclimbing #keepthefaith #ivegotthis #pleasedontgo #stayforever #staystrong #staystrongpeterparker #peterstrong #woofpackbros #glamsquadcrew #unitedpawsgroup #kyounodachs #kyounowanko #todayswanko #seizure #clusterseizures #clusterseizuressuck #clusterseizure #seizures #seizuressuck #diggitysausageblanket #weeklyfluff #dailybarker
I got stay at home with mom last night. They adjusted my medication and are talking about sending blood work to Auburn University to see what the next step should be. - #dogsofinstagram #chiuahuasofinstagram #sleepypuppy #dogsonbeds #dogbed #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex
I had to go to the vet again. 😔 I had 3 seizures in one day due to my epilepsy. I’m hoping they can give me something to make them less frequent. ❤️ My mom is feeling pretty down about it. I even think she was crying but she wouldn’t let me see it 💔 - #dogsofinstagram #chiuahuasofinstagram #sleepypuppy #dogsonbeds #dogbed #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex
It’s been a rough and busy year. I haven’t been able to post or be active here. I apologize for only posting because I need something. ••••••••••••••••••••••••••••••••••••••••• I just wanted to see if anyone would be able to put this guy in your thoughts??? ••••••••••••••••••••••••••••••••••••••••• He is currently at the Neurologist/ER center. He’s had some pretty bad tonic clonic/Grand Mal seizures since Wednesday. He had a seizure a couple hours after he got there, but they were able to stop it quickly through his IV. He’s been stable today and they were able to take a spinal tap and MRI. His current medication plan has not been working. He is on 500 mg of Keppra and 97.8 mg of phenobarbital twice a day. I also add in CBD oil twice daily as well. He never had an issue with cluster seizures until this year. Hopefully the MRI and spinal tap will help to confirm that he has idiopathic epilepsy and not some other issue. Once we know for sure, we can find the best treatment and try other medications. The neurologist said that his phenobarbital levels are quite low considering the dose he is on. He is about 66 lbs and just turned 5 on May 28th. Both procedures were done earlier today. The neurologist also said that his MRI looked good, but just wanted a radiologist’s second opinion to confirm his results. He also said that his spinal tap results should be back tonight or tomorrow morning. I’ll update once I know more. •••••••••••••••••••••••••••••••••••••••••• As for Lola, she definitely misses her brother and wonders were he is at. On the other hand she is enjoying having a disturbance free “hunting” time in the backyard. Although, she would prefer her brother here. I’ve been keeping her pretty busy to keep her mind off of her brother. She has never taken interest in herself in a mirror until today! #gsp #gspoftheday #gusthegsp #germanshorthairedpointer #epilepsyawareness #epilepsy #tonicclonicseizures #clusterseizures #iflmdog #iflmdogs #lolathegsp #gusandlola #thepointerstwins #issavideo #💜
When mom was working on her Master’s Degree, I would sit on her lap like this and make sure she was on task. Thank goodness I was there. She would have never graduated if it wasn’t for my help. - #dogsofinstagram #chiuahuasofinstagram #sleepypuppy #dogsonbeds #dogbed #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex
Not even an hour after after I last posted Bella, unfortunately went into a prolonged Tonic clonic seizure which was the first of many seizures in a pretty nasty seizure cluster. Several doses of emergency rescue medications later, an appointment booked with the paediatrician and a call to the local GP. Bella did have a break from seizures of around 4 hours thanks to rescue medications but, unfortunately the seizure cluster has returned. We’ve had less than 30 minutes broken sleep in total over the past two nights and counting, due to seizures, brain irritability and neurological challenges affecting Bella. I truly hope this beautiful brave girl catches a real break one day. She doesn’t deserve to live this way, this is no life for a child. Please hold Bella close in your hearts this weekend. #bellathebrave #medicallycomplex #medicallyfragile #epilepsywarrior #epilepticencephalopathy #pcdh19 #kcnq2 #scn9a #seizures #statusepilepticus #rescuemeds #clusterseizures #dystonia #pcdh19epilepsy #epilepsyawareness #nolifeforachild #chronicillness
It’s been almost 3 months since my last epileptic seizure. I’m a lucky pup! #cbdworks #cbdoil #cbdisolate #canineepilepsy #williethedog #greatpyrenees #australianshepherd #clusterseizures #canabidiol #hemp
Heather has been having cluster seizures even though she's on meds and we've tried different things to help her. Rolo and Stache aren't seizure-free but they're not as bad as she is, so I tend not to focus on them. Their sister now lives in the UK and has started on a new drug which has been very good for her, so I asked the vets to try and get it for my three. They started the meds this week but I guess we are still trying to figure out their right dosage. I had to rush both Heather and Rolo to the vets, they always seem to have their crazy episodes on my days off. They're home now and seem okay, but I'm so worried that we haven't found the right mix yet. It is very stressful to see them go through this. I have a growing fear of losing them before their time because of this. Fortunately their blood tests show that their organs are still functioning okay. I know that a lot of people make a decision when the quality of life of their dog deteriorates. For now, it's just my quality of life, so we're good 😂. Just in case anyone wants to help us all out a bit, do let me know. Turns out, this process is pretty expensive. #wadidog #jebeldog #omanipaws #omanidog #desertdog #rescuedog #seizure #epilepsy #canineepilepsy #pexion #clusterseizures
I had some really really rough moments during my #hospitalstay but in the end it is worth it
My Hero. Seizure cluster is finally over but not without injuries. This is sadly becoming the norm for this poor girl. Bella fought hard and thankfully won this one with a little help of lots of large dose rescue medications. Look at that smile! Despite everything Bella still manages to smile. Her inner strength is absolutely astounding. We only have one more dose of these drugs left so are desperately hoping the drs see sense soon. #bellathebrave #epilepsywarrior #geneticepilepsy #rescuemeds #seizuressuck #epilepsy #dystonia #clusterseizures #fightlikeagirl #pcdh19epilepsy #kcnq2 #pcdh19 #scn9a #thoughshebebutlittlesheisfierce
I had another seizure this morning. 😔 My seizures make me tired for a little bit. My brother, Jackson, always makes sure I’m okay. He’ll lay on me or next to me and let my mom know if I’m about to have another one. Mom says we are both good boys! #dogsofinstagram #chiuahuasofinstagram #sleepypuppy #dogsonbeds #dogbed #happypuppy #puppies #dogs #happyplace #food #adorable #raleigh #mutt #rescue #seriousface ##rescuedogsofinstagram #rescuedog #goodboy #dogvogue #clusterseizures #seizure #nofun #epilepsy #dogepilepsy #dogmedicine #peanutbutter #iphonex @eukanuba
It's been a while so it's about time I get the word out again. I suffer from epilepsy. I have now grown to have cluster seizures. Which are grand mal seizures back to back over a few days. Every month. I never know when or where they are going to happen. It's awful. I am a survivor. Save a life and educate yourself on what to do. #epilepsywarrior #epilepsy #epilepsyawareness #seizure #invisableillness #selfie #momlife #smile #SUDEP #hero #bemyhero #survivor #savealife #clusterseizures #grandmal #tonicclonicseizures #tonicclonic #nocturnalseizures #seizuressuck #epilepsysucks
Having a rough day ❤😥❤ I love you
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