#chronicwarrior

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Alright, so today my energy was super low due to very little sleep last night and I don’t do naps lol. But whatever I didn’t do today I will do tomorrow for sure!! 🤜🏾🤜🏾 no excuses🤬 I seriously need to get me some pre workout 💪🏾💯 Snapchat- mr_fyzique #MRFYZIQUE #ITRAIN #traindirty #blaksuperhero #Godfirst #NPC #NPC #fitnessmodel #FromCrohnsToFitness #FITNESSADDICT #TRAINER #athletes #chronicillness #chronicwarrior #BLACKSAMPSON
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Oh, hey #MS there ya are. LOL I've actually had a really decent week and a bit. Until today. The body has finally said, ok you're done for now. It's so strange how I can feel it coming on. But at least I'm learning to recognize the signs. And so now, I will try and rest and hopefully get back to more good days very, very soon. ✌❤ #mymsjourney #multiplesclerosis #mswarrior #chronicillness #chronicwarrior #autoimmunedisease #choosehappiness #babewithamobilityaid #thisisMS #MSawareness #cureMS #Repost @theunchargeables (@get_repost ) ・・・ Challenge accepted.
"And the day came when the risk to remain tight in a bud was more painful than the risk it took to blossom." -Anaïs Nin
“At 30 you finally start to catch up on those dreams you’ve been chasing for the last 10 plus years” 🎈 - Bonidette Lanz
I’ve been working on getting a bunch of stuff done around the house before I have surgery. Cleaning, dusting, laundry, and a bath for the dogs. All this while trying not to start a painful flare! Well, I’m listening to my body...it’s tired and done for the day. So lunch while playing with SnapChat. Then couch potato and Netflix for me 😉 Hope you’re all having a great day! Remember to listen to your body and stay strong 💗💪🏼 #totalkneereplacement #kneesurgery
Sleep study one of three is in the books. Only squeaked out 5.5 hours of sleep (they want 7) after quadrupling my dose AND adding a benadryl. Needless to say , I crashed when I got back home and JUST WOKE UP. . It was only 85% as bad as I expected. It was like a night in the worst hotel room you've ever seen, with a shared bathroom, and a bunch of wires getting wrapped up around you along with the sheets. All the fun stuff comes with the 3rd study, apparently. . I'm gonna be honest: I'm neither thrilled nor very hopeful this is going to somehow miraculously improve my life and health. But I will submit to my doctor and jump the hurdle and hope for the best. . In the meantime, fall is still acting like a petulant child and everyone here has sore throats just for fun. I wonder some days if moving is really the only way I'm ever going to get healthy. . Blessings to you--I hope the sun is shining SOMEWHERE today! . . . . #functionalish #chronicillness #chronicpain #chronicfatigue #invisibleillness #epsteinbarr #chronicwarrior #livingwithlimits #abundantlife #faithblogger #sleepstudy
hey guys 💕 I guess I’ll do a little introduction post. I’m 22 years old and I live in NYC with my lovely supportive boyfriend & our two cats. I’m diagnosed with multiple chronic illnesses that have turned my entire life upside down. I’m currently only taking online courses and use a wheelchair as a mobility aid because I’m my POTS make it impossible for me to even walk across my apartment without fainting. I’m heading to the Mayo Clinic dysautonomia center in November to get more intensive treatment and stabilized, because there aren’t many specialists in my area. I got sick of bombarding my personal Instagram & finsta with health updates so I made this account to keep it here & also to connect with other chronic warriors! stay tuned for more updates and love to you all❤️
✨For years I was sick. I grew up with asthma and would routinely go to the hospital when I got the flu. In college I was exposed to mold and my thyroid symptoms started to show up. I was tired, had anxiety, couldn't sleep, had stomach issues, my hair began falling out, and my skin was a mess. I literally did not feel beautiful from the ages of 20 to 26. I despised the reflection in the mirror. No amount of hair product, makeup or clothing could make me feel any different. ✨After years of working through my issues with Hashimotos (a thyroid disease) and Lyme disease, I began to feel better. But for another two years I didn't take care of my appearance because I was stuck in the survival mentality. In September of 2017, at the age of 28, I decided to invest in myself. I started a new workout program and a legit skincare regimen (Rodan and Fields). I watched my skin and body become different. The health and beauty I felt from the inside was starting to shine through. 3 months ago I invested in a hair care routine (Monat) and my hair is growing in thicker than ever. I also began investing in my wardrobe and makeup, something I've NEVER done. Today, when I look in the mirror, I like who I am. I feel confident in who I am WITHOUT this external stuff, but man it feels awesome to embody it fully in the physical form. ✨Clothing, makeup, and skincare cannot MAKE you feel beautiful. It cannot take away the pain you feel from being chronically ill. But if you're healing and making progress, or even if you're in the thick of it now, don't forget to invest in yourself and what makes YOU feel beautiful. Treat your body like a temple on the inside and out. Eat the right foods for your illness, drink green juice, take high quality supplements, and see a new doctor if your current one isn't helping you. Also, don't forget that you deserve to get your nails and hair done, you deserve a new pair of jeans that look fabulous on you, you deserve new foundation that isn't years old, and you deserve high quality skincare.
➡️➡️➡️ Today marks exactly 3 years since I started my fitness journey, that’s exactly what it is it’s a journey full of ups and downs, full of injuries and surgeries , full of anxiety, full of love and hate, and full of amazing transformations of my mind and body. These pictures might not look like a huge difference, but in the first I’m 110lbs and today I’m 125 I’ve learned a lot. I’ve fought like hell for this and still continue to fight. What’s wrong with being confident and proud of your journey?! 🖤 #transformationtuesday #beforeandafter #bodybuilding #bodytransformation #girlswholift #chronicwarrior #fightingsicknesswithfitness #girlswithmuscle #mindbodysoul #loveyourself #liftweights #fitnessmotivation #confidence #tuesdaymotivation #itsajourney #girlboss #pnw #zbodyfitnessinc #redheadsdoitbetter
Another beautiful sidewalk bouquet 🌸 This has a lovely little California poppy. These little pop up bouquets cheer me up immensely. I feel like if they can grow in a little crack in the sidewalk then there is hope 👉🏻 Swip for close up of the impossible perfection of nature
тнιѕ нaмѕa ѕpoon ιѕ now lιѕтed ιn oυr eтѕy ѕнop! ғιlled wιтн aquamarine, amethysт, raιnвow qυarтz and ѕlιver. ιт нaѕ a ѕoғт and ѕooтнιng energy. : : "´*•.¸(*•.¸♥¸.•*´)¸.•*´ ♥«´`•lιnĸ ιn вιo..°•´¨`»♥ .¸.•*(¸.•*´♥`*•.¸)`*•." : : #chronicpain #chronicillness #chronicwarrior #chronicfatigue #ankylosingspondylitis #fibromyalgia #witchythings #gypsy #theoriginalspoonmaker #anxiety #depression #anxietyrelief #depressionwarrior #anxietywarrior #theoriginalspoonmaker #osteoarthritis #arthritis #arthritisawareness #tartbytara #spoon #spoonie #spoonielife #spooniewarrior #spoonieproblems #spooniesupport #gemspoon #spooniesofinstagram #healingspoon #healingspoons
Yesterday was one of the worst pain days I have ever had. It was just awful. And on top of all that, my crappy counselor put me into the wrong chemistry course and all other science courses are full so I'm screwed. If I can't figure out another chemistry or science course, I won't be able to get my AA when I graduate, and I've been working so hard towards that. . . . #hufflepuff #hufflepride #hufflepuffpride #chronicallyhufflepuff #harrypotter #potterhead #aesthetic #black #black aesthetic #pinterest #introvert #anxiety #ocd #ibd #ibdlife #scd #chronicillness #invisibleillness #crohnsdisease #crohns #crohnswarrior #spoonie #spoonielife #inspiration #hope #naturalhealing #honesty #chronicwarrior #choosejoy
Two weeks post #fusion #operation & #recovery feels great, yet I must remember to take it slow. The most important factor for a #lumbarfusion #surgery is ensuring that the bone grafted (from the iliac crest or something) & laid between L5 and S1 (in my, & Tiger Wood's cases for example) heals as a bigol' log of bone, hence fusing the 2 vertebrae into 1.💃 . If I do anything to compromise the setting of that bone - such as bending, twisting & lifting around that lumbar-sacral area - I could screw the whole operation & have to get it done all over again! 💩 . I'm taking on this #rehab guns blazing! Did you know that nicotine is toxic for bone growth & tobacco consumption is the single largest risk for failure of the bone successfully fusing. So no tobacco.❌ No bending or twisting.❌ But lots of sitting, standing & walking to gently load the bone + start to #rehab the back extensors that have been sliced up.✔ 😊 . I need people to do chill activity with so please hit me up if you're keen on a walk, swim, game of pool or Frisbee, etc. Thank you for the love and support. ❤ . 👉 PRETTY PLEASE HIT ME UP AND TELL ME ANYTHING YOU KNOW IF YOU HAVE HAD A SIMILAR FUSION TO ME (AND TIGER) BEFORE... I COULD USE THE INTEL AND INSPO! 👈 #gotiger . . . . . #chronicpain #pain #chronicwarrior #chronicpainawareness #postoperative #rehabilitation #spinalfusion #chroniccomrade
“I don’t believe in aging. I believe in forever altering one’s aspect to the sun.” ~ Virginia Woolf
My night... . Sleep study number one. Here's hoping I actually sleep. . Not gonna lie, feeling pretty anxious. I dont do sleep well. I never have. So now the thought of lying here, in a strange place, HAVING TO FALL ASLEEP doe not have me in a restful frame of mind. . Oh, and the fact I accidentally fell asleep for 3 hours this afternoon probably won't help, either. . Wish me luck! . . . . #functionalish #chronicillness #chronicpain #chronicfatigue #invisibleillness #epsteinbarr #chronicwarrior #livingwithlimits #abundantlife #faithblogger #sleepstudy
💫🌊🌕 Full moon vibes pulling me into my 30th orbit 🙌 🎈
😍 Huge thank you to @sisterb24 for purchasing these scissors & washi tapes off the Chronic Warrior Box amazon wishlist!! It was a surprise receiving these & have helped so much with putting together the care packages for this month!! 🙂💗💕💙💜 #chronicwarriorboxes #chronicillness #chronicillnessbox #carepackage #carepackages #spreadhappiness #giveback #sicklife #illness #gofundme #gofundmedonations #donations #donationsneeded #donationsaccepted #chronicwarrior #chronicwarriors #invisibleillness #chronicillnesswarrior #invisibleillnessawareness #thankssomuch #cancer #copd #eds #cysticfibrosis #pots #amazonwishlist #wishlist
Yea this right here 🤔🤔🤔 I need some fat lol any one wanna donate 😭😭 lol when your body fat reads error...I got that low low fat or no no fat lol Snapchat- mr_fyzique #MRFYZIQUE #ITRAIN #traindirty #blaksuperhero #Godfirst #NPC #NPC #fitnessmodel #FromCrohnsToFitness #FITNESSADDICT #TRAINER #athletes #chronicillness #chronicwarrior #BLACKSAMPSON
. Hasta un 60% de las personas con lupus experimentarán algún tipo de problemas de memoria, como recordar nombres, fechas y citas. _______ Me pasa todo el tiempo, es tan molesto y frustrante 😕 / It happens to me all the time, is so annoying and frustrating... #lupus #lupuselsalvador #lupusawareness #lupusinfo #lupuseduction #sle #chronicillness #autoinmunedisease #chronicwarrior . #Repost @lupus_uk (@get_repost ) ・・・ #worldlupusday fact 9. Learn more about #lupus on our website at www.lupusuk.org.uk. #lupusawareness #sle #discoidlupus #invisibleillness #chronicillness #thisislupus
Right now, I'm thanking myself for every single workout I've ever done. I'm thanking myself for never giving up, pushing past the pain, climbing the mountains, literally AND figuratively. I'm also looking very much forward to getting fit again after all this, because I've already made it this far! #hysterectomy #hysterectomyrecovery #endometriosis #chronicwarrior #fightingforme
💙 Looking forward to tonight's full moon. 🌕 In just 2 days, I will have completed 30 orbits around the Sun. 🙌😀💫 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Image: composite of supermoon 11/13/16 + detail of my eye + light refracting in a prism ©
Today was a good day!! Hit chest and triceps and did some abs, mind you I haven’t done abs in over a year lol 😂 but I still killed it! 🤜🏾🤜🏾 I’m coming back hard 🤬 watch me 💯💪🏾 Snapchat- mr_fyzique #MRFYZIQUE #ITRAIN #traindirty #blaksuperhero #Godfirst #NPC #NPC #fitnessmodel #FromCrohnsToFitness #FITNESSADDICT #TRAINER #athletes #chronicillness #chronicwarrior #BLACKSAMPSON
First day back to yoga! Got here and took out a curb, forgot Bella’s SD collar, forgot a blanket for her (she’s laying on a thin towel), and didn’t get a spot in the back. Hopefully class goes a lot better 🤞🏼 . . . #tbi #tbiawareness #braininjury #chronicpain #alldayeveryday #pushon #fighter #chronicovercomer #chronicwarrior #servicedogintraining #respectthevest #donotpet #servicedog #helperdog #sdit #mygirl #blackdog #dogswithjobs #dogsthatwork #workingdog #workingline #workinglineGSD #bettertogether #germanshepherd #blackgermanshepherd #gsd #TYD #trustyourdog #independencetogether #bettertogether
Had an early test this morning and then my family and I took a bit of a break to check out the Heritage Museum. So cool!!! If you're ever at the #MayoClinic and have a chance I would highly recommend stopping in. There were family heirlooms and history. This family and the beginning of the clinic is truly remarkable. The Mayo Brothers put a huge amount of their own money into starting the Mayo Clinic and just about everyone in that and the next generation contributed in some way. There's two much to write it all, but most of the pictures are of heirlooms and key people. The 8th picture is some things that represent/are from the first patient that had open heart surgery! The 9th is a to-scale replica of one of the Mayo Families boats. . . We're making some solid headway here as far as figuring out why I'm so limited in what I can do and what I can eat. I'm hoping we get some more clarity with the remaining tests! . . #tea #history #heirlooms #chronicillness #chronicwarrior
“My scars (both internal and external) felt ugly and unwanted when they were new and raw, but with time I love them and am proud of them. I honor them as proof of my body’s resilience.” We couldn’t have said it better. Thank you @christiemangir for sharing this. ❤️ . . . #careandwear #cancerwarrior #chronicwarrior #fibrowarrior #lymewarrior #fightlikeawarrior #chronicillness #invisibleillness #butyoudontlooksick #chronicallyfabulous #ivtherapy #infusionday #survivor #thriver #chronicpain #iwillbeatthis #piccline #powerport #healthwear #scars #honoryourscars #badgeofhonor #resilience #proud #honor #proofyoulived #live #mybody #quote #repost
Meet me where the sky touches the sea 💙
The Face of Sick! Woke up with glowing skin and lips drenched in vitamin e oil, but that still wasn’t enough. Instead of looking, I closed my eyes and said, “What do you feel.” I didn’t answer, instead I waited for it to answer my call. 💖 #ChronicWarrior Update, moving slow inspired my poem so maybe it’s not that bad! 🤗 #Love #MelaninDripping #DripDropWontStop #DropDripTopSip #BrownSkin #Goddess #LightGoddess #LightQueen #TakeYourTime #ChronicWarrior #ChronicLover #ChronicIllnesses #ChronicPain #CannabisHeals #Cannabis
What makes you happy? Don't over think it, just think of the really simple, day to day things that make you smile. Here's my top 3: ⭐ Reading ⭐ Comfy clothes ⭐ Fresh air Today i was lucky enough to combine all 3! The first day of my week off has been spent recovering from working the weekend. I won't bore you with the details, we're all familiar with PEM! But i managed a couple of hours in the sunshine with my book :) Comment with what makes you happy!! Love and spoons 🖤☮️🥄 . . . . . #chroniccommunity #postexertionalmalaise #chronicwarrior #chronicsupport #spoonie #spooniewarrior #spooniesisterhood #spooniesupport #cfsME #canyouseeMEnow #MEcfs #bookworm #butyoudontlooksick #butyoudontlookill #invisibleillness #millionsmissing #hashimotos #myalgicencephalomyelitis #mdd #depression #mentalhealthawareness #autoimmunewarrior #selflove #selfcare #mentalhealth #lightupthedarkness #happinessproject #recovery
I did another thing today! 😂 Sharing my journals because sharing is caring! 🤗💖 #ChronicWarrior https://www.facebook.com/100000192900835/posts/2349905545025853/
A few days before Friday I was getting very fatigued and having minor swelling in my fingers with redness. All weekend I felt drugged and my face and joints have been swollen painfully. No redness yet in the elbows and knees but they're the most swollen and it hurts my whole arms and legs. Been in a POTS flare but with normal blood pressure (praise Florinef) and Raynaud's has been making my legs go numb. I have also lost five pounds since Friday! 😑😭 Anyways sorry for complaining, I'm just cranky and needed to get it out. Counting down the days until Plaquenil kicks in- was good timing to start it on Friday. #spoonie #spoonieproblems #chronicillness #chronicwarrior #pots #posturalorthostatictachycardiasyndrome #dysautonomia #raynauds #autoimmunedisease #undifferentiatedconnectivetissuedisease #uctd
I am not a morning person. I am also, apparently, not a sleeper. Which, for someone who loves sleep as much as I do, feels a bit like breaking up with your life-long boyfriend. . The good news: My meds worked last night and I was asleep by 11:30. . The bad news: the music I use to relax and fall asleep turned on me at 5:00 am and decided stiring movie themes were most appropriate to my current situation. . I begged to differ. . So, thanks to my very efficient sympathetic nervous system, I AM AWAKE. . I'm working to tell myself different stories. To write this morning, for instance, as an opportunity to listen to the crickets and marinate in the joy that brings me, rather than writing it as the great tragedy of waking up with only 5.5 hours of sleep when my body needs a steady 8-10 to heal. . Because the story I tell myself matters. And as a writer, I get to choose. . . . . #functionalish #chronicillness #chronicpain #chronicfatigue #invisibleillness #epsteinbarr #insomnia #chronicwarrior #livingwithlimits #abundantlife #faithblogger
Happy birthday little big boy! You are 7 years already 😱😍 Yesterday we celebrated his birthday with friends and family and he is spoiled 😂 today he can share his cupcakes with classmates (dutch tradition) pokémon it is. I made his cake and the cupcakes 🙈 #birthday #boy #son #love #family #friends #clusterheadache #chronicallyill #chronicwarrior #keepfighting
It’s no secret that I’ve been obsessed with sunflowers since I was a little girl. I love the concept behind them - stand tall and always turn to face the bright side of life. Whenever my illness brings me down, I remind myself of the sunflower. 😊🌻 I encourage you to do the same. Happy Monday, Warriors! #blogger #fibro #fibroblogger #multiplesclerosis #devicsdisease #autoimmunedisease #chroniclife #chronicpain #chronicdisease #chronicwarrior #chronicfatigue #inspiration #inspirationalpage #inspirationalwomen #motivation #FutureMotivationalSpeaker #dreamer #hope #strenth #followmyblog #followmypage #warrior #nmo #depression #youarenotalone #youareenough #strength #fibro #fibromyalgia #awareness
Resharing from @colleenmichellelewis - "i would argue that healthy minds are MORE important than healthy bodies, but i like this graphic anyway. 💖"
🙌💖 Give love to our warrior sister @kshealthjourney - "On today’s agenda was to switch me over to a liquid version of the medication that they’re giving me before meals to see if that works well enough for me to go home. My GI doc came by and said if I tolerate that I can go home tonight or tomorrow morning. It’s always tough deciding when to go home; on one hand, I want to be in my own bed so badly, but on the other hand, I don’t want to leave too early and end up back in the ER. - Unfortunately, I didn’t tolerate my lunch well on just the liquid version of my medication. They’re pretty sure the same medication is also causing the migraines I’ve been having for the past several days, so unfortunately they had to lower the dose to see if that helps my head. Obviously it’s going to make managing my GI issues harder, so I’m not sure how that’s going to work. At this point they’re pretty sure I have gastroparesis; they will obviously do a full workup when I’m discharged to make sure that’s what’s going on, but it feels like we’re getting close to the bottom of this. 🤞🏼 - Also, I had to miss a support group put on by my cardiologist and @dysautonomiaintl which I’ve been looking forward to for 6 months. Pretty ironic that I missed it due to being in the hospital from issues related to Dysautonomia. 😒🙄"
Great to be holistic for the immune system. Massage, essential oils, epsom salt jacuzzi, Now this is helping with the swelling..... In addition the main part of the day is Happy Birthday Celebrations with two Friends who celebrate their bdays in September. This is our girls day out together!! 🤗💙🌊☀️🌈🌎🌟❤️. @loungegirl @pamburrill. #girlsday #relaxationtime . #lupielori #learning #loopieloricari #gratefulheart #grateful #lupus #lupusawareness #lupusflare #lupusawarenessmonth #lupusawarenessmonth #chronicillness #chronicpain #chronicwarrior #chronicillnesswarrior #chronicpain #swelling #swellingsucks #butterflyrash #butterflyrash
Earlier today, I tried Yoking with Kmt! It was AWESOME! I sweat out some major toxins and actually felt super drained in this moment. I needed help leaving the Hoop House and I’m thankful for my brother, @king_van36 for lending his large stature in my time of need! I’m thankful for Kmt sharing her gift! And my Gem Friend for illuminating the vibes! @emeraldmorrell I’ll share more later, but the point is, chronic illness can be fucking fabulous because we’re fucking fabulous! Ase! #ChronicWarriorsUnite #ChronicWarrior #LightWorker #TodayWasFun #LotsOfStories #LiveLongAndProsper #GottaRepresentForTheTrekkies #WhetherILikeItOrNotIWasSchooledInStarTrek
Here’s a lovely Sunday reminder to nurture and care for yourself ❤️ Via @drawnbymary
New app allows you to keep track of flare symptoms associated with chronic illnesses. Thanks @beingfibromom #FlareDown #Fibromyalgia #FibroPain #FibroFlare #FibroFog #FibroFatigue #FibroWarrior #ChronicIlless #ChronicWarrior #Fatigue #Inflammation
Just on the floor doing yoga 🙃
This post is centred around AvPD Swipe to learn more. Awareness is extremely important so if you are able to share that would be amazing. Also if you have had AvPD, or someone you know currently is going through it please feel free to share your personal experiences below, so people can scroll through the comments and read them. - Important Disclaimer: This is only a summary, and is not to be used to try and self diagnose. If you suspect that your child suffers from AvPD please try to see a professional. Therapy can really help, and professionals will be able to take possible differential diagnosis into consideration. - #awareness #disability #disabilityawareness #chronicillness #chronicwarrior #spoonie #mentalhealth #ableism #endableism #support #invisibledisability #invisibleillness #pleaseread #support #education #awarenessribbon #loveyourself #mentalillness #avpd #avpdawareness #avoidantpersonalitydisorder #personalitydisorder #personalitydisorders #personalitydisorderawareness
I love fall. Like, my ideal year would be 3 months of real spring, 7 months of fall, and then Christmas. With a crap ton of snow from Thanksgiving until January 1. Then fall, fall, and more fall. . But, here's the deal. My body, as of late, hates fall. And the level of betrayal I feel over this bodily act of agression is akin to if my husband were to suddenly decide he will no longer eat Mexican food. I CAN'T. HANDLE. IT. . This kiddo right here is part of my autumnal distress, unfortunately. As much as I love this child, he seriously needs his own apartment. Because he brings home EVERY SINGLE GERM THAT HAS EVER EXISTED AND BREATHES THEM ALL OVER MY HOUSE. Hence, we both have fall colds. Which is great on top of the regular I-feel-like-crap-ness. . But sometimes love is letting your son still live at home (and snuggle with you on the couch) because he is, after all, only 15. And sometimes love is trusting that seasons pass. That temperatures will even out. That sun and rain are both essential. And that it's all a part of the one great and glorious life we've been given, as strange and wonky as the gift may, at times, seem. . In the meantime, love is also sometimes dayquil and hot tea and every natural remedy you can think of. So let's love ourselves. However we need it most, today. . . . . #functionalish #chronicillness #chronicpain #chronicfatigue #invisibleillness #epsteinbarr #chronicwarrior #livingwithlimits #abundantlife #faithblogger
💥💁🏼‍♀️ The thing is, I could have easily been in a wheelchair coming up on my 30th birthday next week... 🎈♿ so easily, esp according to my specialists. 🚫💕 Even 2 years ago I thought that might be the path I was going down*. 🌺 Instead I'm approaching 30 next Thursday looking at an entirely new set of goals for myself, goals that align with who I really am inside, like hiking the Catalina Trail over several days, trekking the jungle to breath-taking waterfalls that wheelchairs cannot ascend to (I ALSO RESOLVED TO MAKE THIS MY REALITY ⭐FOR⭐ MY SISTERS ON WHEELS❣❣❣) , white-water-rafting in faraway countries, the skydiving I always dreamed of, leading an example of healing in the spoonie community that I am also now caring for (@thespooniesisterhood ), creating a compassionate art/writing/educational/empowering business via what I've learned these 17 years, and continuing to move forward in my life believing fully and abundantly in every bit of growth that I know is meant for me 🐛❤🦋💪😄🕊 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ “I don’t believe in aging. I believe in forever altering one’s aspect to the sun.” ~ Virginia Woolf 🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ * let's be real, any of us could end up in a wheelchair tomorrow, no matter our conditions or positions. Nothing is guaranteed. Do not take anything for granted! Be so fuckin thankful for every ability man 🙌💙🙏 ⠀⠀⠀⠀⠀⠀⠀⠀⠀ And if you are in a wheelchair, I'm simply grateful that you have that tool to help you thrive! Did you know that there is a medical condition that eventually makes any kind of thriving near-impossible? 😭 I chose a few years ago to see the hand that I am dealt ♦️♥️🃏♥️♦️ as an absolute blessing in the light of the possibility to be born with that rare reality: ⤵️ "Fibrodysplasia ossificans progressiva (FOP) is a disorder in which muscle tissue and connective tissue such as tendons and ligaments are gradually replaced by bone (ossified), forming bone outside the skeleton (extra-skeletal or heterotopic bone) that constrains movement." 💔❤ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⚡🌈💐🌻 MAY YOUR BLESSINGS ONLY MULTIPLY MY FRIENDS, MY GARDEN OF FELLOW FLOWERS 🌻💐🌈⚡
Major #chronicillnessproblems ...when you get caught in a total downpour and can't run 😂😂. . I shuffled my way home head held high, in my definitely not waterproof jacket. It was glorious sunshine when I left the house. Guess my hair doesnt need a wash anymore 🤷‍♀️😂.
And I'll praise you in this storm And I will lift my hands That you are who you are No matter where I am And every tear I've cried You hold in your hand You never left my side And though my heart is torn I will praise you in this storm-Casting Crowns ♥️👑 #castingcrowns #sundayfunday #praiseyou #praiseyouinthestorm #sundaydevotion #darksky #instagood #instascripture #portraitphotography #chronicwarrior #blessed #portland #pnw #orgeon #model #photography #photoshoot #godgivemestrength #takeitonedayatatime #itsajourney #godisgreat #rainstorm #sundaythoughts #confidence #portlandmodel @mohtown_13
Having some Sunday morning down time after visiting with some #family nearby last night. I played with #kineticsand for the first time with one of my little cousins!! This stuff is so cool!!! Definitely sore this morning, but it was so worth it ❤️. . . #chronicillness #chronicwarrior #tea #penguinpajamas #twinings
There's a bear in there And on there as well Open wide, Calm down insides Its pain school Through my butchery of a childhood fav, I couldn’t help but overshare my funny predicament and the lengths I’m resorting to, to try and ease the pain so points if you can guess the rhyme and share a smile with me. Having pushed myself a little hard this weekend after my op on Monday and not taken doctors order of rest all that well, this is now my current situation- heat packs in all the places! It never hurts to crack a smile at my ongoing misadventures with endo and while not exactly a beaver down there, these furry bears will hopefully do the job and just maybe my current state has given you a momentary break from your own flare time tonight. #smilesmaketheworldabetterplace #rippingoffplayschool #tunesstuckinyourhead #endolife #endostateofmind #itsallaboutperspective #yougotthis #chronicwarrior
#honesty 🌻🖤✨ ; ; ; Probably out of focus in my own reflection, lost in a thought, wishing to change the things that are so much deeper than this skin I’m in. Trying to love myself everyday and remind me to believe that I can keep pushing forward. #getintomyhead Edit; Thoughts: “why do I stand like that?”
Happy Friday, #spoonie #chronicwarrior friends! Powerhouse line up comin’ at ya! For days when we wake up feeling like we’ve been hit by a truck 😷🌿 + 2 oz Ningxia red supplement #deadwithoutred +Wellness tea: 1 drop Thieves, 1 drop Copaiba, 1 drop Lemon, splash of Bragg apple cider vinegar, and touch of honey in hot water (*starter kit oils) + a real long gargle, swish, gargle repeat of our favorite Thieves mouthwash and warm water with lots of salt. + I take a spoonful of coconut oil and two drops of Thieves and rub it on my neck, up behind ears, etc. + Inner defense or longevity capsules (2-4 a day) + lots and lots of water + Wash our hands, dishes, surfaces, doorknobs, etc with all our thieves products and diffuse thieves everywhere! 💪🏻💪🏻💪🏻 {Just went live sharing all our #fridayfaves }
“most people have no idea how good their body is designed to feel.” (kevin trudeau) • did you think of your body as the home that your soul lives in? do you listen to it when it speaks? your physical body is always telling you the story of your spirit, so let it be heard, friends! • 1. listen to the signs your body is giving you to SLOW DOWN or rest. my body gives me all the “stop and relax” signs when I’m listening.. which for me is head tension, tired all the time, lack of focus, tummy issues, stuffy.. so on and so on. do you know your body's signs?? are you sleeping and resting enough so your body can heal? • 2. listen to your wise gut- physically and emotionally!! our gut is our second brain.. truly our organs’ first brain. it controls everything within us that we don’t personally have control over!! are we treating it right?! have you been eating abnormally? have you been eating enough? moving regularly? eating your veggies and fruits?! • 3. are you drinking enough water?? taking vitamins? getting all the immune support you need? a good aim for upping H2O is half your body weight in oz. you can help rid your body of toxins by adding some citrus oils to your water daily! • happy wellness wednesday🌿 . #spoonie #spoonielife #chronicwarrior #endosisters
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