It's the day after my colonoscopy and it's mostly good news!
So there is nothing wrong with my colon like cancer or anything like that 👍 we're doing biopsies to see if I have colitis though and I have to wait until October 2nd to find out about that and probably as of right now the thing that is wrong with my colon the most is how long it is. Its 5ft long according to my doctor and I'm very tiny!
So pretty much having a long colon is I'm absorbing too much which causes my constipation because there isn't enough for my body to realize it needs to poop!
Honestly I'm just waiting on those results but can I just say that I love seeing my insides? It fascinates me personally!
I also really love my doctors instructions of "Keep smiling!" .
#chronicillness #chronicallyill #chronicovercomer #chronicallyfabulous #disability #disabled #ibs #irritablebowelsyndrome #irritablebowel #irritablestomach #ibswarrior #ibsc #colonoscopy
Doctors always seem astonished to learn of my multiple chronic illnesses and all the medications I have to take to manage each condition. For years my primary care physician has repeated the ever frustrating line, “you’re only _____ years young. People your age shouldn’t have this many medical problems.” Well, let’s just take a step back and consider the implications of that. Of course I don’t want to be sick nor do I want to be tethered to treatments that take several hours to complete each day just to maintain my current (not so great) level of health. Nevertheless, this is my reality. To respond to this type of comment I’ve learned to cognitively reframe the thought. To do this, you ask yourself if the thought (or comment in this case) is helpful or not helpful?” ———NOT HELPFUL——— It is not helpful to have a negative outlook encompassing my entire being just because I’m chronically ill. It is NOT HELPFUL to self-blame. While the purpose of the comment might not be intentionally harmful, the fact is that when doctors question your medical regimens and stop listening to what you’re telling them works and doesn’t work, it is detrimental to your health and psychological well-being.
And, side-note, does someone want to tell my body that I’m “too young” to have these problems? I feel like doctors forget the congenital nature of my diseases and their comorbidities. I was pretty young at birth too, you know? But I’m sure my body just didn’t get the memo 🤷♀️.
To those fighting hard battles right now, know that you are doing the best you can. Be kind to yourself even when you are frustrated.
You are strong and resilient. You may feel sad and discouraged now, but you have dealt with incredibly tough circumstances before and you can do it again. So to all of my fellow chronic overcomers, we can do hard things. Together, we will persevere. 💜
#neverstopfighting #strengthtomakeitthrough #chronicillness #chronicovercomer #fightlikeawarrior #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #adrenalinsufficiency #renaltubularacidosis #intractablemigraine #migraine #asthma
The peace and happiness of my ride in the pasture today reminded me of how lucky I am to have good health days and a way to spend them doing something I’ve always loved 💙
• *peep another love of mine in the background of the third slide* @dodgeofficial
Its so easy to look at my life and be frustrated with all that I haven't done. That I've only checked two things off of my list today. Being mad at myself because I took a nap instead of cleaning. Sad because I just can't find the energy to work out. Its so easy to pull yourself down with pointing out all the negatives in your life. After all, we are our own worst critics. Usually, I try to flip it. And be happy that I got the laundry done today, proud that I got most of my steps in, and give myself a pat on the back for getting out of bed at all. I try so hard to find the happy and joy. But today is not one of those days. Today, no matter how hard I try I see my failures and unacomplishmens, I havent been able to look past the unmarked boxes on my check list. So today. I will throw a pity party. I will let myself feel stressed and frustrated and tired and I will let the tears flow until I crawl into bed. Because tomorrow is a new day. Tomorrow will be a happy day. Telling yourself you aren't allowed to feel the sad stuff is telling yourself a lie. Its hiding your hurt and that's how your mental health gets lopsided. So today, let yourself feel whatever you need to feel so that tomorrow is a fresh start.
🚨🚑💔 Please pray for Garrett he had a massive heart attack (a 100% blockage of his right coronary artery) today and we found out he has been having small heart attacks for the last few days as well. But he is always too stubborn to admit anything is wrong. This is his first time ever having to be in the hospital for himself, and let me tell you he doesn’t like it one bit, poor guy. Thankfully they put a stent in and he seems to be doing okay, I will most likely only be able to update my story from now on so if you want to be updated keep a eye out there. It’s crazy to think he could have this happen even when he is so young but his dad had a heart attack at the same age, so genetics are for sure a factor, I’m sure Garrett working so much all the time and doing such hard manual labor didn’t help either. Thanks for all the prayers after I posted on my story, cause I didn’t have time to write everything out in a post till now, Garrett is sleeping comfortably. Colt is jealous because I’m sharing the bed with Garrett😂 when normally I’m in the bed and shares with me. For now he gets the floor but he will probably end up sleeping with him tonight cause of course Garrett will love that, I will be sleeping in a lounge chair next to Garrett’s bed. Today has been so hard. Lots of tears and stress. I’m exhausted but can’t calm my mind down. I will just lay here praying which is all I can do and hope to relax enough to sleep too. Garrett I love you! I am so thankful for you! I can’t believe I almost lost you and I don’t even know what I would do! It’s so crazy for me to be on the other end of the medical emergency and I don’t know how you have done it for so many years with such grace and strength, I’m a mess. 💕💕💕Love you, love you, love you! I don’t think I could say that enough. #ServiceDog #Fighter #IChooseJoy #Vlogger #TheLordIsMyStrength #IChooseJesus #Survivor #Blessed #DoNotDistractServiceDogs #ChronicOvercomer #ICanDoAllThingsThroughChrist #HeIsGreaterThanI #StruckDownButNotDestroyed #FearIsALiar #heartattack #coronaryinfarction #hospital #ontheoutsidelookingin #pleasepray #husband #icantloseyou #GodhasAplan #stressed #surgery #bloodthinners
Being back at school means that we get to hang out with @service.pup.koda
more! 😍 Koda is such a good boy, and Niki is an absolute sweetheart! Koda and Dakota (They will be referred to as “Koda squared”) work side-by-side together so well! They ignore each other when they are basically touching, but still find small ways to cuddle up to each other. I find this super shocking because Dakota absolutely doesn’t like to dog pile, but I guess that changes when a boyfriend comes into the picture!!! 🤔
Got some big appointments coming up soon!! I am actually really excited for, which is something thats weird to think about. There is a point in life when you have a chronic illness, that you’ve been sick for so long (8+ years for me) that when there is new and upcoming things, you get excited about them. Hopefully my appointments will open up some new treatment options! 😍👏🏻
Its been a year since I started using a wheelchair and yes, I can walk, but not for long distances and not every day.
Oddly enough my HR and vitals are most stable when I'm sitting (not lying down or standing) so I use a wheelchair. Though there are many other reasons I use a wheelchair.
This is me fighting, not a sign of me giving up. Every day I fight for my future. I fight for better days that are hoped for but not always imaginable with my conditions and limitations. For those first few seconds every morning I don't know if the spinal dislocations that have been occurring in my sleep have finally made it so I can't walk. So I'm grateful for every step I take, and I'm also grateful for the days I'm in my chair because both days still have an unimaginable potential for love, joy, happiness and beauty. ·
I am an ambulatory wheelchair user. I walk when I can and rest when I need to, and I refuse to be ashamed or hide because I'm different. 💪
#chronicovercomer #ambulatorywheelchairusersexist #notgivingup #ehlersdanlossyndrome #dysautonomia #NCS #Neurocardiogenicsyncope #Zebrastrong #ichoosejoy
Discouraged and frustrated to say the least. What I wanted to do with nutrition is not working out for this gastroparesis body. I am miserable and sick from eating whole foods, fiber, plant based, etc. How can I live like this? Despite my best efforts, faith, and lots of prayer, my body just won't cooperate. My gastroparesis won't go away. My stomach just won't work! 😟 Now, I know there is no cure for GP, but I was hoping I would be an exception!
I must go back to a GP friendly diet, which for me is mostly liquid. Even that just sits in my tummy forever. Not even my medical cannabis is helping. I'm reminded why I needed a feeding tube to begin with. 😟 Without it now, it's hard to get what I need. I am thankful that God is sustaining me through all of this. I will still try to eat as healthy as I can with making my own GP friendly foods.
I can't explain how devastating it feels to have these health issues and no matter what you do, it won't get better. I remain steadfast knowing God is in control and take solace in that. He is after all, the sustainer of life. ✝️ And hey, I don't live on bread alone. 😉 #bebrave #bestrong #remainsteadfast #chronicovercomer #livelifetothefullest #keepmovingforward #chronicillness #invisibleillness #gastroparesis #starvingforacure #eds #ehlersdanlos #ehlersdanlossyndrome #dysautonomia #pots #myastheniagravis #chronicwarrior #spoonie #spoonielife #zebrastrong #psoriaticarthritis #youdontlooksick #mcad #mastcellactivationsyndrome #mastcelldisorder #notgoingdownwithoutafight
🎶I Am A Child of God
Sweet Hour of Prayer 🎶 .
Music is very special to me. Its actually become one of my favorite forms of medicine. If I'm depressed, anxious, or sad I turn on music or just start singing if I don't have access to any at the moment.
I learned the type of music I listen to affects my mood so for me its Christian music, EFY, Mormon Tabernacle choir, classical music mostly but I listen to other types as well! Mostly uplifting songs though. .
I Am A Child of God is my favorite go-to song when I'm not feeling well and its been known to calm me down when in a psychotic episode.
I love the comfort music brings into my heart, and the truths we learn from beautiful music can really help overcome obstacles.
Have you ever thought about how a song makes you feel when you listen to the words? Does it make you feel happy or does it make you feel sad or anxious? Music is powerful, that is why I love songs that make me feel happy and confident. There are enough things in this world to make me sad or unhappy. .
Music is my happy place and favorite form of medicine. [I haven't played these songs in a while and play only by ear really as I have never had lessons. I just love making music even if its not that great 😊]·
#loverofmusic #musictherapy #thechurchofjesuschristoflatterdaysaints #iamachildofgod #Daughterofaking #chronicovercomer #overcomerinchrist #notperfectbutworkingonit #ichoosejoy