7,541 posts

My heart rate goes above 100 anytime I move 😂 but I wanted to show off my coordinating @invisibobble and @apple watch 💁🏼‍♀️ Seriously, both of these items are must haves for any girl💕 #chronicillness #chronicpain #chronicloveclub #chilllife #apple #applewatch #rosegold #rosegoldapplewatch #bobble #hairtie #chronicillnessmusthave #musthave #hairsolutions #heartrate #heartdisease #heartfailure #shortofbreathalways
Wanna see some genuine creative #disabledjoy ? 💖 . . I finished a crochet project I’ve been working on for so long and tweaking it to be just right. I couldn’t contain how happy and proud I felt wearing this. It was a huge lift for me and a massive accomplishment. . . I freaking love how cosy and snuggly this cocoon cardie is, it was adapted from a blanket I made a while ago and it’s going to be perfect for this upcoming cold weather. I am so proud that my little fingers could finish it and that I was able to complete this project with pacing and taking my time. Rib stitching with hyper mobility is rough, y’all. . . Yes, I’m disabled. I have several chronic illnesses that make my life hard and make doing things I love very difficult to achieve. Yes, I am still incredibly happy with what I’ve produced and I’m happy with my life: I can be happy, creative, kawaii as fuck and disabled. #dealwithit .
Over the years I have been so lucky in that my passion in life also acts as a great way to keep me healthy. From a young age I had always been interested in dancing, an interest which quickly evolved into a passion. I am so lucky to be dancing everyday for a job and I am even more thankful that my passion acts to combat the degenerate effects of cystic fibrosis and how the disease effects my lung function • FOCUS- @charli_xcx Thanks @emilyplewss for recording 😂💚 • • • • • • • • • • #cysticfibrosis #cysticfibrosislife #cysticfibrosistrust #cysticfibrosiswarrior #cysticfibrosisfighter #chronicillness #chronicloveclub @fight2breathe @lovetobreathe @chronicloveclub #dance #dancing #focus #charliexcx #chronic #chronicpainwarrior #chronicpain #cysticfibrosisfoundation #CFirl
🌸 Man, I feel like a woman! _ Thank you to all the friends, family, endosisters and instagrammers that have made these last few months a little smoother for me. _ This is just a bump in the road and I’m looking forward to the many options and opportunities available to me. For the immediate future I need to stay as healthy and as positive as possible. I also need to be patient. I am at peace. _ I’m heading back to work soon and feeling anxious for a number of reasons. I just hope my body can keep up with it all. It’s going to be a huge change. _ Special thanks to the following for letting me rant or share inspirational things or have just been there for me: @mynameissarahjane @letsovershare @carlamcressy @youlookokaytome @hueystc @filiboyy_coils @chronically.sophs @mrs_loopy_lea @amanda9t3 @laurenxchristina @christinar_21 @rachfernandes 💖 _ It won’t rain forever. The sun will always come through. I am at peace. S. X _ PS. Swipe for comparison of unfiltered original photo! Good makeup and good lighting helped me out here! Feel so much more confident with my face on. ☺️
Have I mentioned how much I love this pose? Triangle is the perfect pose to increase your breath capacity and open the inner thighs and hips. It's an expansive pose which also lengthens the spine when you take it beyond a lateral stretch. Let's do it together 🕉Stand at the top of your mat in Mountain pose, big toes touching, heels slightly apart. 🕉Take a medium step back with your left leg and face towards the left side of your mat. 🕉Line up your right heel with the middle arch of your left foot. 🕉Place your hands on your hips. 🕉Turn your hips slightly so that you face towards your front leg. 🕉Raise the arms to shoulder height and shift the left hip back while deepening the front hip crease. 🕉Feel the hip of the front leg drawing back while the hip of the back leg rolls down to face the floor. (This action helps to release the lower back and increases the length in the underneath side of the torso.) 🕉As the spine lengthens over the front thigh, reach the bottom hand on to the ankle and raise the top arm, lining up the wrist with the shoulder. 🕉Inhale and open the chest more, gazing straight ahead. 🕉Take 5 deep breaths in the posture. 🕉On your next exhalation, ground down into your front foot, inhale and bring the torso upright. 🕉Turn both feet to the centre. 🕉Repeat on the other side. Want to do more yoga with me? Sign up for my FREE yoga class via the link in my BIO or check out my new BOOK #diabetes #diabetic #typeonediabetic #typeonediabetes #diatribe #diabetichealth #type1 #type1diabetic #diabetics #diabeetus #diabeticgirl #diabeticfitness #diabeticliving #diabeticlife #diabetessupport #yoga #yogi #yogapose #mindbodygram #mbgram #doc #iamwellandgood #selfloveclub #chronicloveclub #healthylifestyle #yogafordiabetes #bodypositivity #trianglepose #yogaforhealth
I’m back from a short social media break. The last few days have been extra painful due to my Gastroparesis symptoms, and trying to eat by mouth didn’t help. Although I know that my digestive system can’t handle solid or puréed foods anymore, the desire to experience once-familiar tastes and textures persists. It pops up and nags at me, despite nausea and abdominal pain. I think it’s tied to social situations, memories, holidays, comfort, and basic human survival instinct. Having a feeding tube doesn’t make that instinct go away, nor does the absence of physical hunger. Most of the time, eating doesn’t cross my mind and I channel my thoughts and energy in other directions. Other times, nausea knocks me flat and all I can do is close my eyes and hope for a wave of sleep to roll over me. I’m truly thankful for the consistent nutrition that @katefarms formula provides through my j-tube. This isn’t a wildly unique challenge, and it highlights the struggle between knowing what’s best for my body and longing for some “normalcy” and simplicity. Life with a feeding tube can be very isolating, especially when it’s the primary source of nutrition. If you’re also struggling to accept a future of enteral feedings, you’re not alone. I’m here to chat and send gentle hugs. As for anyone else with a Tubie friend or family member; please make yourself available to listen. Talking to a trusted love one—someone who won’t judge me or give unsolicited medical advice—is the most constructive way that I process my frustrations. In my experience, difficult feelings only fester when kept hidden. For me, misplaced guilt and shame are the real kickers. As if I’m supposed to have superhuman strength and “messing up” with food is a personal failure. Well, it’s not. My body is messed up and my gastrointestinal system is failing; the person inside needs to give herself a break (and stop talking in third person). You deserve a break, I deserve a break, and it’s okay to be a work in progress. That’s where I am. // Wearing @ritueldefille “Fortune Teller” Forbidden Lipstick [Image Description: Maria looks into the camera with dark plum lips and tousled hair. Her head and shoulders are pictured.]
New Post, Friends! This one was so much fun to write. I hope it’s as fun to read! This was #3 of what I consider the top ten songs of all time. You’ll need to head on over to Riverandquill.com for the title and to read the rest of the article, but here’s a little peek: ... ... “I knew Johnny would be on here somewhere, but when I came up with the list, I judged my favorite songs in relation to how much they wrecked me. ... ... This one wrecked me. I still cry every time I hear it. ... ... When we were in Nashville a year ago, we visited the Johnny Cash museum. After going through all of the stuff, we came to a video of him singing this song. I’d heard it before, but not like this. ... ... This part, after going through someone’s actual empire of dirt had me washing the museum floors with my tears: ... ... ‘What have I become, my sweetest friend? Everyone I know goes away in the end. And you could have it all, my empire of dirt. I will let you down. I will make you hurt.’... ... The build up on the strings and the pain, the longing in his voice: I know he didn’t write it, but he felt it and performed it as if he did. This is one of the hundreds (thousands?) of songs Johnny Cash performed and many more he wrote. His music and his message still resonate with me to this day.” #johnnycash ... ... ... ... ... ... ... ... ... ... ... ... ... ... #chronicillness #interstitialcystitis #IC #heal #healing #hopeforhealing #spoonie #spoonies #encouragement #hope #justkeepswimming #keepgoing #ikeepgoing #instagood #instahope #inspiration #inspired #writing #writingblog #writersofinstagram #chronicblogs #autoimmune #FF #JJ #chronicloveclub #invisibleillness #butyoudontlooksick
Hey everybody!! How are y’all doing? Today I’m posting a pretty awesome recipe discovered and created by my beautiful mama @talithabulson . This recipe is perfect for those sweet cravings that we all get😉 Hope you all make this recipe and enjoy the last bits of summer! • • • 🍪Chocolate Chip Scones🍪 ................................................................... Ingredients: 1 cup rolled oats 1 cup coconut flour 1/2 tsp baking soda 1/2 tsp baking powder 1/4 cup + 2 tbsp coconut oil 1/2 cup coconut sugar 2 eggs/flax eggs 2 tsp vanilla 1/2 cup chocolate chips ................................................................. Directions: 1. In a large bowl, whisk together all dry ingredients except for chocolate chips and set to the side. 2. In a separate medium sized bowl, whisk together all wet ingredients. 3. Gently fold wet ingredients into dry ingredients. Add chocolate chips and distribute evenly. 4. Roll the dough into 1 in balls on a cookie sheet and freeze for 20 min. 5. Take them out of the freezer and bake at 350* until lightly brown. Makes 12-14 scones. • • • Thanks so much reading! Love you all and hope you have a good rest of the week❤️ #vasovagalgal #peoplehopetribe #chroniccommunity #chronicloveclub #glutenfree #glutenfreeliving #dairyfreelife #dairyfree #vegan #veganrecipes #glutenfreevegan #veganfood #potssyndrome #potsawareness #potsie #potsielife #potsies #lymediseasewarrior #lymediseaseawareness #lymie #lymielife #lymiecreations #spoonie #spoonielife #spooniewarrior #spooniesisters
I look around as the world keeps moving... we all keep moving through the years and there are distinct stages of life and times of transition... in the stage of life I’m in right now there has been a consistent theme I see in myself and others: fear. • When family and friends give advice it often comes from a place of fear. “You have to do this or this is going to happen.” “You should do this...” “You can’t do that, this could happen!” Phrases of caution, worry, and “what if” control the conversation. I watch myself and others make decisions and excuses based on fearful thoughts and feelings, not love, hope or trust. • I get the world is a hard place and bad things happen pretty constantly. But i don’t see how our perspectives on the situation really change or prevent those bad things from happening... it doesn’t grant any more control... so why act out of fear when there’s another option? Another option that doesn’t seem riddled with stress, anxiety, shame, and regret. • So this is what I’m working on now... well it’s a piece of the inner work going on in this time of deep refinement (there are many pieces 😉)... shifting my framework and learning to filter others’ fearful thoughts and advice with love, hope, faith and trust. • Tools I’m using: -Spiritual practice (prayer, meditation, worship, scripture study and instruction) -Education through literature (mental and spiritual health resources) -DBT and CBT skills -Journaling -Leaning into my most intimate relationships for insight and assistance. Most importantly boo time 😉 -Essential oil blends specifically formulated to be emotionally supportive -Nutritional diet that supports healthy functioning . . . . . #nelsonmandela #hope #fear #love #encouragement #motivation #positivity #spiritualhealth #introspection
YOU ARE NOT UNRELIABLE. Hear us?! 📷: @connorrrmorris #chronicloveclub
I showed my bloated belly quite a few times. Here's another one! Since I look again like I am pregnant we decided to take a picture of me holding my little food baby in this beautiful location: Beach, sunset, pretty dress. Doesn't this look lovely? 😁 Regrann from @uc_warriorprincess #ibd #ibdawareness #crohns #colitis #food #baby #foodbaby #chronicloveclub #chronicillness #invisibleillness #spoonie #beach #sunset #ibdsuperheroes #spooniesisterhood #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #InflammatoryBowelDisease #CureIBD #IBDawareness #IBDproblems #IBDwarrior #IBDfighter - #regrann
Salt is a beautiful and necessary thing. But too much and... * The human body contains roughly the same concentration of (many different kinds of) salts as seawater. Too little and we die. Too much and we also die. In cooking, if there isn’t enough salt you notice the lack of flavor. Too much salt and the dish is destroyed. * Salt is about essence, enhancement, balance. Friendships, intimate partner, and family relationships are similar. Yet, it’s not the QUANTITY of people in your life but the QUALITY. Too few folks who are kind, compassionate, and loving and it’s difficult to keep going. Loneliness can kill. But too many people who are unsupportive, gossip, neglectful, bullying, physically/emotionally/psychologically abusive are just as deadly in the long run. When we seek out copious numbers of people (on social media and in “real life”) to fill our lives are we just over-salting the food we haven’t even tasted yet? * And because I’m big on pushing my analogies all the way, remember you are the base of your own soup. Friendships and relationships provide balance. And part of the balance is being ok with just you. Maybe you don’t need as much “extra” in your own soup as you thought. And if there’s too much salt, add a little more you. * #ptsd #trauma #anxiety #worry #depression #mentalhealth #chronicillness #pots #eds #dysautonomia #salt #balance #healing #mindfulness #selfcare #compassion #bekind #encouragerssociety #nostigma #chronicloveclub #antibullying
Self destruction comes naturally to me - self compassion does not. Here’s to taking a little better care of ourselves today & putting a hold on self destructive behaviors 💕 We are each so worthy of the love we try to give to others. Today, I am going to try to share the love with the one who needs it most - myself. 💋
@amber_k21a in Tacoma has joined us as a collector! 💜💚💜💚 Donatable items include backpacks, lunch bags, purses, Ipsy bags, water bottles/bottled water, personal hygiene products, feminine hygiene products, healthy snacks, clothes/socks, warm weather gear, or even garbage bags to help them keep items clean and dry! If you wish to participate or even start your own local drive DM me @femj81 to be added to our contact list! If you have items you would like to donate we have the following ladies ready to collect: #spokane DM @femj81 #seattle DM @littlevikingwitch #tacoma DM @amber_k21a #empowerment #fightlikeagirl #communitynotcompetion #donate #causes #helpinghand #womenpower #leadnotfollow #cannaparentscan #womenhelpingwomen #happilyliving #cannabismother #instagram #upperleftusa #pnw #marijuanamadams #hydroponichippies #chronicloveclub #thespooniesisterhood #onelove #lovewins #endthestigma #cannabiscommunity #realcannafam #thestruggleisreal
☀️ Happy Tuesday ☀️ “With the new day comes new strength and new thoughts.” Eleanor Roosevelt
🌥 2018 has been a hard year. Not exclusively bad, by any means, since it opened with the incalculable joy of my engagement, & just a few months later, betrothed made the huge transatlantic move to live with me full-time. ⛅️ I see these things for the profound unforeseen good fortune they are. Yet my health situation has been restrictive & scary in ways I couldn't have imagined. I've been almost totally cut off from my creative community, other than "watching along" on social media. All my own work has had to pause because of the repeated medical crises, admissions, & resulting PTSD symptoms. Losing my Toby, my soul-cat, the animal of my heart, closest this world would let me have to a daemon: that has been the most bitter pain the year has brought. Now more than ever, though, the frailty of my remaining "hostages to fortune" is splashed across my mind. I know that one loss is never a guarantee against more. I miss Toby desperately... all his tender names, the whole lexicon we made for him. All of him, the weight of him. I miss missing him when I was in the hospital, or anywhere away from home. He was at the top of my mind all the time. This year made me feel like a battered ship in rough seas, tossing for some undetermined while, but losing Toby was like smashing my hull into something irrevocable, cruel. The damage is everywhere. I hope this doesn't sound too dramatic because I'm just trying to explain how shattered I am, mind & body. Why I keep being so absent. Truth is I simply feel horrible. 🌋 The literary community is full of amazing, beautiful, gifted people whom I love like crazy, yet I can't help feeling intensely sad at how sick I have been all year, the sheer extremity of it & how it cuts me off. I love the chronic illness community at its best, it can be a fantastic place full of generosity & wisdom, but it's hard to feel that right now. It's a rough path, being sick. We deserve better than the malingering & exploitative "influencers" who've been exposed recently. Trust & truth are the core of our community, so to feel them eroded... it leaves sore places. #mydiseaseisnotyourtrend #ehlersdanlossyndrome #ehlersdanlos #eds
• Life with digestive motility diseases... requiring yet another tube related procedure in three weeks time (had one two weeks ago), and being told that you will need Colorectal surgery after your wedding and honeymoon... but on a brighter note, ya girl got herself a job interview this Thursday! ✨ #colonicinertia #subtotalcolectomy #gastroparesis #chronicloveclub
#stelara day ------- Today I will get my third shot of Stelara, and to be honest, I'm not sure it's actually doing anything for me 🤔😕 ------- Together with Stelara I take #methotraxat once a week. I don't take it because I have a flare up, but to try and keep the #hidradenitis down and hopefully get some of the fistulas to heal.... But, yes there is always a but(unless you're a barbie butt, then ther is nothing 💩😝) I can't see any healing anywhere 😣 ------- I have taken the methotrexate since November 2017. And I'm not impressed. And don't get me started on the Stelara 🙄 I know both medications take time to work, but this is just starting to annoy me. It's not exactly harmless fluids I inject in to my body 👿 ------ So the plan today is to speak with my doctor and try and figure out what is going - or maybe not going on.... #ileostomy #ostomate #baglady #crohnswarrior #crohns #crohnsjourney #ibd #body #chronicloveclub #hs #hidrosadenitissuppurativa #babeswithbags #tuesday #chronic #sick #kickingass #stoma
It has been a good rest day This evening we had a videoconference with my pain doctor. He was not happy to hear that the fever is still around. He was happy though to hear that I am planning to go back to school. As of right now he is not pushing me to go back to cognitive behavioral therapy because I just didn’t feel like it was helping me but if I am in an emotionally different place later I should go back. There are tings he wants to try but not right now because so many other things are changing and happening that we won’t know what is it is not working or causing side effects. Other news is that I am having the blood test to test my cortisol production and the CT of my sinuses on Wednesday.
Today's #ootd : Unwashed hair, yesterday's makeup, and casual/comfy clothes. All black of course 😉🖤 . . Because being one handed takes twice as much work to look all cute and s*** and today, well I just wasn't feeling that(and that's ok). But it didn't stop me from getting up, pushing through the pain and doing what I needed to do. Hope you all had a good Monday! #reallife #mindovermatter #mondaymotivation #chronicloveclub #chronicillnesswarrior #chronicpain
All doctors have been contacted and we are changing my entire allergy treatment. I am stopping my Zyrtec and trying Pepcid and Nasacort. I am a little hesitant because nasal sprays have always given me nose bleeds so we will see how that goes! 😅 . We are also waiting for the results of the second round of food allergy testing. Since I had 2 reactions last week my entire family is a little antsy seeing as we will be traveling soon. . . . #posturalorthostatictachycardiasyndrome #chronicallyill #chronicillness #invisibleillness #butyoudontlooksick #pots #potsie #dysautonomia #spoonie #anaphylaxis #foodallergies #chronicillnesswarrior #peoplehopetribe #gastroparesis #chronicpain #chronicfatigue #chronicallyfabulous #chronicloveclub
LIFE UPDATE🌹‼️ today was a big day! i finally had my post up with my surgeon after 6 long weeks. my incisions healed great and my stoma looks good. unfortunately i will have to continue with the course of antibiotics (cipro & flagyl) for the next month and potentially longer. I am facing the very real possibility of removing my rectum and having a permanent ileostomy. as sad as this makes me, i am just looking to get back to my healthiest self. i would like to postpone this until i graduate university, so we may be looking into biologics soon. despite all this, i’ve been feeling better and at least have the beginning of a plan to get me better. all in all, i’ve decided to just take this recovery day by day and celebrate all my little victories as they come👍🏻☀️ • now onto much better news: I am going to be an ambassador for @mightyme._ and i am so so so excited!! I can’t wait to be a part of this brand Emily has created and help bring awareness and guidance to all chronic illness warriors! head over to @mightyme._ to see monthly posts from people with all kinds of chronic illness offer their support and share their experiences!💪🏼💜
☀️ Keep on shining. _ The past few months have been rocky and heavy on my heart. I need to keep on keeping on! I want to write a blog post about how I feel but I really don’t know how to explain it other than numb. I want to help others, but to do that I need to help myself. I have been so caught up with helping others and making sure they’re okay that I forget my body isn’t the same anymore so I can’t do everything. After a painful doctors appointment this morning, I have tried to get over some news but it’s incredibly hard. I am so thankful that I have such a loving and supportive husband and a handful of wonderful and understanding friends. This too, shall pass. S. X _ #microblog #iamthankful #keeponkeepingon #ttc #doctorsappointment #helpyourself #numb #londonliving #followthejourney #londonblogger #nottheendome #lupus #chronicloveclub #fertility #painmanagement #readmyblog #livefree #selfhealing #influencermarketing #autoimmune #spoonie
My neurosurgeon has been wanting me to get a local neurologist since he is 4hrs away. I had been putting it off and dreading it because let’s be honest I had little confidence in local neurology since my Chiari was missed for years by several doctors. I ended up connecting with another local chronic illness warrior online and she recommended a doctor at RNA. Both of us had seen several other doctors at this practice and did not like them, but she said her last experience was different. Come to find out the doctor she recommended was a parent of one of my previous kinder babies I taught. I didn’t actually put the two together until I ran into this parent/doctor at Target... hello brain fog! I had my first patient visit with her and I already knew she was nice, but today she took the time to really listen to my medically complicated history. I feel like she truly cares and is going to work with my other doctors to try to improve my quality of life even more. I can’t thank her enough because for a chronic illness patient, a doctor like this is hard to find!💜 If you are struggling to find a good doctor, don’t give up! Like I said I had seen other doctors at this practice and hated them! Also, try to connect with other patients in your area... this has been how I have found all my doctors. This is also why I share my journey, so that maybe I can help another zebra out like I have been helped 🦓
Saw this homemade camper and kayaks today and it made me really happy. I’m going to use this picture to make a cheesy cliche and say that we need to remember that we are all unique, and we are all on our own journeys. No two people are alike, no two peoples diagnosis are alike, and no two peoples illnesses present the same way. We are all at various places on our journeys. Some of us have been sick forever, some of us are newly sick, some of us have been diagnosed for awhile, and some of us are still searching for answers. This does not mean that some peoples suffering is more valid than anybody else’s. We all suffer, we all search, we all strive for a better life! I just want to extend my hand out to you all and say, I see you, I hear you, and I believe you. Let’s show the love and support to others the same as we want in return. What are you going to do to make the world better? Much love y’all! 💜 #chronicillness #chronicillnessadvocate #chronicillnesswarrior #chronicillnessawareness #fightlikeawarrior #chronicloveclub #spoonie #spooniestrong #spooniewarrior #zebra #zebrastrong #myalgicencephalomyelitis #chronicfatiguesyndrome
7 years ago at @Disneyland on my favorite ride, Space Mountain, you told me this was perfect and what would make it more perfect was if I’d be your girlfriend 💖💚💏 And here we are 7 years later and I love you more than you know! we’ve been through more than a “normal” couple would go through in a lifetime, but we’ve handled it all with grace, humility and positivity. Thank you for being my number one supporter, best friend, love of my life, and someone that I can count on no matter what. I am so thankful for you putting life on pause while I was so sick and allowing date nights to be spent at the hospital or at home cooking a meal and watching shows/movies because I had no energy or breath to go anywhere. It’s safe to say no matter where we go, we make it a party! Thank you for always making me laugh to the point that I had a cough attack, thank goodness that doesn’t happen anymore 😂 I’m so grateful for you and please know how much I appreciate every little thing you do for me. I love you, Jeff, SO much and can’t wait to be on our first real vacation together in less than 2 weeks! 🌺 here’s to more adventures and living life to the fullest together! Love you forever and ever and ever and always! 💖💚💖💚💖💚💖 — • • • #TiffGotLungs #lungs4tiff #cysticfibrosis #cfawareness #curecf #doublelungtransplant #cfirl #saltycysters #fibro #love #laugh #hope #donatelife #organdonation #dream #donor #65roses #recycleyourself #taylorswift #thankful #justbreathe #spoonie #chronicloveclub #loveofmylife #anniversary #bestfriend
⭐️I've been teaching yoga since I was 25. I never planned to teach but when someone asked me to fill in for a prenatal yoga class when I was pregnant with my son I thought, Why not? ⭐️Teaching was even more of a joy than doing yoga. To see how good yoga made them feel and how much it changed their lives. Well, how that made me feel was and still is indescribable. ⭐️After 27 years of teaching I still can't get enough especially now that I know how much yoga helps me manage my diabetes. ⭐️I am beyond passionate to get this message out there and to share yoga with anyone living with diabetes through all channels! That's why I wrote the book and why I am now working hard to create an online yoga program designed specifically for you. ⭐️There are a ton of online courses out there and a ton of yoga teachers too. If you want to start yoga anywhere you can... ⭐️My aim is to deliver something, personal with heart. So friends who follow me who live with diabetes. I want to know... ⭐️What would you love to learn more of with regards to yoga? What are you struggling with? DM me or comment below. Help me to help you!!! #diabetes #diabetic #typeonediabetic #typeonediabetes #diatribe #diabetichealth #type1 #type1diabetic #diabetics #diabeetus #diabeticgirl #diabeticfitness #diabeticliving #diabeticlife #diabetessupport #yoga #yogi #yogapose #mindbodygram #mbgram #doc #iamwellandgood #selfloveclub #chronicloveclub #healthylifestyle #yogafordiabetes #bodypositivity #beyondtype1 #yogilife
Babe With A Mobility Aid is one of my favourite hashtags. It's somewhere to go when I notice how teenagers look eachother over in passing on streets or shops and then see how their gaze doesn't even register me, aside from the odd glance at my feet or a quick attempt NOT to look. I'm not a teenager to them. I'm a wheelchair user. At least, that's how it feels sometimes. In truth, I am a teenager/babe/Sakara who uses a wheelchair. One should never invalidate the other. I can't avoid using my wheelchair for the sake of fitting in but I don't stop being me when I do use it. I'm so glad I have found some people (both physical-world healthy friends and online #babeswithmobilityaids ) who understand this ♡ ~ Photo description: Close up photo, I'm sitting in my wheelchair facing slightly to the side and looking down a little with half dead (thanks, heat wave) grass in the background, a path and some trees. There is some white writing that says "Babe With A Mobility Aid" in capital letters with a thin white line around the outside of the text. Wearing my 1990s cable knit cream jumper, striped skirt (must post a photograph to show this fully as only a little of the black, white and orange is visible), one ring on the index finger of each hand and brown sunglasses- borrowed from my mum! My hair is down and some of it is floating about my head a little so where the sun catches it from behind it looks slightly like a halo. Oh who am I kidding with my "slightly"? We all know I'm an Angel!... Right? ~ ~ ~ #Spoonie #ChronicIllness #InvisibleIllness #SickChick #MEcfs #MeAwareness #SpoonieBlog #Modelling #DisabledModel #hypermobility #ChronicPain #ChronicLoveClub #CollectifClothing #BabeWithAMobilityAid #DisabledAndCute #GreenSpaces #HeatWave #StuffThatHelps #RetroStyle #TheVintageFashion #OOTD
“You are my age and I want what you have... • I want to be married to someone who loves me. I want to start dating again. It’s been so long. I have an online profile and I’m on all the apps, but every time it gets to point of meeting up... I ghost because I think ‘they’re gonna see me and run, so what’s the point?’ • - what I was told by one of my chronic confidencers battling PCOS when I asked what they wanted most from doing CC together. • 😭 This hit me right in the feels. Can anyone else relate? Because I can. • I hated those apps. I never felt adequate and I feared rejection so much. I met Nick at work and would have sabotaged that too had I not prioritized growing and learning to love myself and the life I lead. Had I not learned to stop solely basing my self worth on my body. • No one should ever have to fear that their appearance will cause them to be rejected for the incredible people they truly are. No one should have to feel their illness will forever trap them in a body they hate. No one should love themselves that little, especially because of their appearance and illness. EVERYONE has qualities that make them remarkable. Everyone deserves genuine love... • & my last point? Everyone deserves to BELIEVE they deserve that love. • I have 3 🆓 calls left. If you related to this and felt like I was speaking right to you, we need to get you one of them. I get it. I promise... you’re not done yet.
Holy Cow Trail Stampede 10 Mile/10k/5k what an event. We literally beat the 🐄 🐄🐄 to the course! 😂 Helped & volunteered with setup, registration, lots of school donations & finish line tear down. On a warm day, smart pacing & consistency led to solid 92nd Race of 2018. . . . *5k: 25:50 | 8:19 pace | 16 of 118 | 3rd Age Group *Finish 📷 courtesy of @3wraces Swipe➡for creative cow sighting & my @dexcom COM(W) shirt if you look hard enough 😂. Also, a 📷 of setting up banners not satellites! . . . ⭐Coming around the midway point; The lead race sweeper Kosper told me Chewey- looking 💪 & gave me 👌! Temps were rising; I wasn't 🏃 super fast but I had steadily passed a few🏃 & just focused on me. The field has gone out too fast early on this 🔥 day & it was showing; run my usual consistent time & I would be fine in the last 1 mile! That's how I've managed, survived & thrived! Do what you can with what you have! . . . ⭐Consistent efforts & staying true to yourself will always lead to your best present you! . . . . . . #runwithme #MotivationMonday #justrun #runhard #pushforward #finishline #RunCheweyRun #runcolfax #RaiseAwareness #T1D #Diabetes #Migraine #WageHope #Dexcomwarrior #WarriorUp #c3fit_usa #keepshowingup #beyondtype1 #outdoorrunning #runitfast #dowhatyoucan #altrarunning #runshots #3wraces #volunteerwork #heartrunners #chronicloveclub #xtremerunnerslife #InnerThoughts #chronicillnesswarrior
“I come to the garden alone, While the dew is still on the roses” - In the Garden ... ... I love wandering these gardens. Even if my kids are running in three different directions, and my dog is taking a crap in the middle of the roses, I still get roped into the beauty. ... ... Do you have a place which does the same for you? Tell me about it below. Where is it? Why do you love it? When do you go? ... ... ... ... ... ... ... ... ... ... ... #chronicillness #interstitialcystitis #IC #heal #healing #hopeforhealing #spoonie #spoonies #encouragement #hope #justkeepswimming #keepgoing #ikeepgoing #instagood #instahope #inspiration #inspired #writing #writingblog #writersofinstagram #chronicblogs #autoimmune #FF #JJ #chronicloveclub #invisibleillness #butyoudontlooksick
A hard lesson to learn, but I am FINALLY at peace with my #chronicillnesses I truly believe we must become the best version of ourselves, no matter what tragedies and struggles we have faced. Take on today like it’s a brand new start! You just never know what life has in store for you. Be #grateful for #yourjourney #starttoday #thankful #weallhaveastory #shareit #embraceit #learnfromit #nevergiveup #amen #chronicpain #crps #crpswarrior #chronicillnesswarrior #lupus #fibromyalgia #insomnia #arthritis #degenerativediscdisease #spinalstenosis #spinalfusion #ibs #gerd #occipitalneuralgia #migraine #invisibleillness #chronicloveclub #autoimmunedisease #lovethelifeyoulive
New blog post! I wrote this over the weekend after reflecting on my life. I thought this was worthy of sharing with the world. If you are interested in reading it, please click the link in my bio. 💜🙏🏼💪🏼🙌🏼 #newblogpost #newpost #blog #chronicillnessblogger #spoonie #onetoughspoonie #autoimmunedisease #connectivetissuedisease #lupus
Grateful I'm so thankful I got to experience this moment, being by the sea, scooting towards the setting sun. Because truth is that this picture was taken in the first days. Since then my body has been struggling a lot. Strong pain that partly makes me unable to move or even breathe properly and persistent fever. I've needed to start taking my back up antibiotic and try my best to get through the day. Altough not what I had hoped for I focus on the small glimpses of holiday feeling I GET to have. And appreciate every single one of them
It’s Monday! A day that’s like New Year’s! A new beginning ! ~ Inspired to reset and rebalance . ~ I have been feeling like some subconsciously absorbed stress has caught up to me..feel achy, fatigued, and my digestion is weak. ~ So why wait ..I decided to do an informal body and mind cleanse. Nothing fancy really. ~ Starting last night I began an intermittent 14 hr food fast. ~ This morning I started my day with some breathing exercises; to energize my body, fire up the digestive tract, and clear my mind of that Monday fog. In Yoga it’s called “ kapalabhati breathing “. ~ A couple of hours later I broke my food fast with some chicken bone broth and added collagen. ~ And that’s it! Simple right? Easy and informal. I will just continue to be both mindful today of what I consume both mentally and physically. ~ What does your Monday look like ? ~ #guthealth
Find yourself someone who looks at you like our dog looks at his daddy!! 😍🐶 These boys are honestly a massive part of my #supportgroup alongside my family and friends! It's hard having a #chronicillness and being #disabled but the love of these wonderful people give me courage every day. 💕💕 Today has been a loooong day as I've had my second gastric emptying study to see what the next options are with my #gastroparesis and #chronicnausea which is great. The scanner wasn't positioned particularly well so I had to stand every time they wanted an XRay picture so now my #chronicpain is at an insane level 😥😥 Double the recovery to do now to say I'm still in recovery from my #nervedamage spinal cord operation from Liverpool! Good job I like a challenge eh?! 😂😂 What are the biggest challenges facing you at the moment my lovely #spoonies ? ❤️❤️ #disabilityglam #wheelchairwarrior #wheelchairprincess #lifeonwheels #sciawareness #wheelchairwoman #onwheels #spoonie #spoonieproblems #spoonieprobs #spooniestrong #spooniewarrior #babewithamobilityaid #illgrammers #ChronicallyFabulous #neuropathy #nervepain #spinalcordinjury #spinalinjuryrecovery #chronicloveclub #disability #disabledandcute
It’s this beautiful woman’s birthday today ❤️ • I always have a hard time choosing the words to describe my love for her, our relationship, and how wonderful she is because no words do it justice. She is an unspeakable blessing from God. • I’ve been inspired by her giving nature for as long as I can remember - she’s always been willing to sacrifice her own comforts and desires in order to provide what’s best to those she loves. She is rarely appreciated for all she does or given the same care and love in return and yet she never ceases to do it. • She loves me, accepts me, and challenges me to be better every single day. I hope I can one day be as amazing as she is 😘 • Happiest of birthdays mommy dearest! I love you to the moon and back 🌝 . . . . . Photos: @landonjacob #hbd #mommy #bestie #liveauthentic #relationships
August 13 · Monday (Day 25) 😐 Making my way downtown. Sleepy eyes; fixing my head wrap the whole way. 🤷🏻‍♀️ x We've recently made an important discovery about my blood sugar. I've been on high doses of steriods for 3 years, but my blood sugar has never been regularly tested. So when I suddenly started spiking sugars in the 300s after transplant (normal range 70-120) we didn't understand why, because the dosing wasn't different than before. Now, we know that this has been happening the entire time. For the last 2-3 years, I've often struggled with unexplained mood swings, anxiety, depression, & other drastic neurological changes. I've always felt too fast or agressive, without even knowing that the way I was feeling was abnormal. Now we know it wasn't psychological at all. It was my blood sugar reacting to steriods. I've been in a Prednisone induced high the entire time. 🧠 I realize now that a lot of the last 3 years of my life were likely seriously affected by this as they moved around my medications. 💊 This is incredibly frustrating, because if it had been tested, certain parts of my life could have been very different. I take full responsibility for my actions, but this is quite the explaination. 🙃 I'm just happy that everything finally makes sense. & As I can feel my brain adjusting to what it should be again, I am so excited to experince life the way that I should have been all a long. 🦋 With a real brain. For the first time, my whole, actual brain 🧠 Me. * * * * * #poements #recovery #recoverywarrior #columbus #spooniestrong #invisibleillness #hospitalglam #chronicillness #chronicloveclub #bethematch #aeriereal #selfcare #selflove #BetheMatchAction
We can and we will because we’re bad ass like that ✨
Another Monday has come around. Work is about to be super busy for the next month, but trying not to stress. Despite the rainy weather making me want to just stay home and lay around I’m going to try to stay positive and knock out them goals! . . . . . #mondaymotivation #positivevibesonly #staypositive #positivevibes #fitspo #fitspiration #ulcerativecolitis #invisibleillness #chronicillness #chronicloveclub #spoonie #spoonielife
As a yoga teacher thriving with Hashimotos, mother of 2 young boys, and a caregiver to a husband with colon cancer going through treatment; it’s been a challenge giving myself the self-care I need and deserve. Who doesn’t deserve to love themselves ?! ~ But honestly, the treatment is fairly new, and it’s taken time for me to adjust, and practice what I preach, “ the art of self-care”, RADICAL self-care. ~ Yesterday, I came across a post by Eileen Laird of @phoenix.helix , it said, “I know you are tired, I know you are physically drained, But you have to keep going”. - The last statement was changed to, “ you have to rest “. ~ There are no spa days in sight. But I did realize there are moments; spa moments . ~ it’s laying in savanna with my students, standing under the sun and feeling it’s kiss, taking a mindful deep breath, and taking another. ~ And just being at home, just being. Doing nothing. ~ Reminding myself that “ it’s ok to rest”. I don’t have to keep going for the moment. ~ So I did just that. Today, I laid down on the couch. Once with some tea in the morning and later while dinner cooked. ~ Moments. ~ They make all the difference. ~ And I know very soon this will be a season that has passed. ~ What moments of rest did you have this weekend? ~ original quote posted by Phoenix Helix is via @steph_gaudreau ~ #yoga #gratitude #positivequotes
My health ruined the weekend’s plans. We had tickets for Friday and Sunday’s film screenings at Somerset House and made it to neither. I let my cousin down too on Saturday, after telling her I’d be okay to go see a documentary with her. In reality I’ve not been out of PJs since Friday evening. My new illness coping method of not fretting over missed things/wasted money and carrying on optimistically buying tickets for things I might not be able to manage on the day is being tested. Chris made it far easier to not be upset, though. I wobbled into the living room to find this note - we had a home film screening of Rebecca, which would have been tonight’s open air film. He has so much patience with my limitations- more than I myself do, and tries hard to make another night in feel special. It really helps. 🎥 #disability #disabilityblogger #chronicillness #chronicfatigue #fatigue #eds #ehlersdanlossyndrome #heds #pots #dysautonomia #film #hitchcock #alfredhitchcock #rebecca #classicfilm #chronicloveclub #chronicpain #peoplehopetribe
2018 ➡️ 2006 Apparently it is an annual thing. Back when I was 6 years old Melissa let me do her hair (and probably just made it into a bit knot) all the way to this summer. It’s been another okay day. My mom and I went to Costco and I drove wheelie around. One of wheelie’s wheels is shaking but Idk when it will be able to be fixed because school starts in a little over a week. When we first got in it was kind of awkward because a lady started pointing and yelling “just like that” when we came in. I didn’t notice but then my mom told me and I started staring back at her but kind of ignoring her at the same time. She ended up chasing up all the way to the other end of the store (we were not running away we just thought she was kind of weird) and then asked about Wheelie and explained that they are looking for one for her father in law. In the end she ended up being nice but the whole encounter started out really awkwardly. And I have been a bit moody the past few days. It might be the new med, being off of meds for a couple of days, stress. I don’t really know. Any ways school starts on Thursday the 23 rd (I think - I should really double check that. And I am as ready as I will ever be. I got my text books (and a GoPro but that is not important) on Amazon today. Now all that is left to be ready to start school is going to the school and finding the accessible doors (old buildings = not all sorts are accessible) and elevators and then I think I am ready to go. I am super nervous to go back to school. 1) I actually have to get up and be on time 2) being around people means I am going to be sick all the time 3) I actually have to interact with people unlike when I go to the store and pretend I can’t see or hear anyone 4) (probably the worst fear) every fall my digestive system acts up and I don’t think I would be able to emotionally handle it this year But surprisingly I am actually a little excited 1) not being alone all the time (but I actually kind of like it) 2) I have 2 classes with my friend and we have not been together since 5the grade (9 years ago). And that’s about it.
A few days ago i had a 7 hour cortisol day curve test at the hospital to figure out some anomalies with my adrenal insufficiency treatment. They had to yank me off my hydrocortisone medication the day before which meant that as my cortisol came crashing back down to my dangerously low natural levels, all of my symptoms came flooding back. Pain, fatigue, disorientation, nausea, dizziness & more. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ My dysautonomia flared up and I couldn't stop fainting over and over again. IT. WAS. BAD! And all I needed was those magical little hydrocortisone pills and it would have all subsided in 4 mins. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ We wanted to do other tests that weren't possible because I couldn't stand up for more than 3 mins without fainting. So my endocrinologist is pushing for me to have more in depth testing for my dysautonomia with a neurologist, which is hard to get done in Australia. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ It was such a hard day and I'm still even sicker than usual. Thankfully I saw the beautiful @gabbyblessing at @amy.jean.brow.agency the day before for a lash lift, so my lashes could stand up without help, even though I couldn't 😉
There are just some things not meant for you but that doesn’t mean you won’t be happy In the end our footsteps always lead us to the things we are meant to do —Courtney Peppernell— . . . . . @courtneypeppernell #poetry #journey #liveauthentic #purpose #happy
The mental fog is real today. I can't focus on anything and my brain feels like it's in a fog realm of migraines and pain. I even feel like the right side of my body is short-circuiting. I'm hopeful 🤞🏼🤞🏼 the neurologist this week can give me some direction. #fibromyalgia #fibromyalgiaawareness #fibrofog #spoonie #spooniestrong #spoonielife #thinbluespoonie #chronicpain #chronicloveclub #chronicillness #invisibleillness #invisibleillnessawareness #autoimmunedisease #autoimmunewarrior #hashimotos #hashimotosthyroiditis #thyroidproblems #thyroid #photographer #photography #blogger #blog #bloggers #bloggerlife #lyrics #songquotes #bloggersofinstagram
We got to the hospital at 8:00am this morning. Noah was very swollen and he had three bowel movement which were a bit bloody. I had to walk out of the room as I was so overwhelmed. So of course my anxiety wasn’t good. I took a moment to breath and remind myself to strong for Noah. So I went back into his room and focus on Noah. He drink 8 ozs of Pedialyte. He been upset due to the pain so they are giving him morphine to keep him comfortable. He sleeping a lot today but that to be expected. Thank you for all you for all the support, prayers and messages. 🤗😘❤️ #ladyanxiety #anxiety #socialanxiety #depression #mentalhealth #anxietyquotes #postiviequotes #anxietysupport #motivation #inspiration #mentalillness #selfesteem #selfrespect #selfacceptance #blogger #anxietydisorder #recovery #loveyourself #instagram #health #advocate #panicattack #mentalhealthsupport #youcandothis #anxietyblog #anxietyhelp #supportanxietyart #chronicloveclub #sickbaby #sickkidshospital
This is a picture of Baby Noah before his surgery. Tyler’s Baby Brother Noah, still in surgery as they are putting pain blockers in his stomach. They had to fully open him up As the bowel was so struck that a portion of his bowel had die. So they had to remove some of the bowels and reattach it. They also found a lump and remove it and sending it to pathology for testing. Once he in recovery we will send another update. Thank you for all the prayers and support. #ladyanxiety #anxiety #socialanxiety #depression #mentalhealth #anxietyquotes #postiviequotes #anxietysupport #motivation #inspiration #mentalillness #selfesteem #sickkidshospital #selfrespect #selfacceptance #blogger #anxietydisorder #recovery #loveyourself #instagram #pain #health #advocate #panicattack #mentalhealthsupport #anxietyblog #anxietyhelp #supportanxietyart #chronicloveclub #sickbaby
"The normality of life I had grown accustomed to would eventually change when I was diagnosed with Crohn’s disease." ~ @theresearchrad 🔹 🏥This is a quote taken from my blog "My Crohn's story" where I share my diagnosis of Crohn's disease. 🔹 🌐Visit my blog on my website (link in bio) to read more: https://www.theresearchrad.com/blogs/my-crohn-s-story 🔹 #radiography #radiographer #theresearchrad #crohnsdisease #crohnsfighter #invisibleillness #chronicloveclub #crohnsandcolitisuk #crohnswarrior #medblog #healthtalk #medicine #surgery #lifequotes #fitness #meded #positivevibes #medicalfield #quoteoftheday #nursingschool #medicalschool #surgeon #nurse #medschool #premed #disease #futuredoctor #chronicillnessblogger #friends #personalblog
Here’s a gentle reminder to take your meds, do your treatments, physical therapy, or whatever else your doctor has prescribed to help your health. If your body is struggling, do what you can to help it. Try your best to be a compliant patient! . I’ll be the first to agree that doctors don’t have everything right and that their treatment ideas don’t always work, but I’ll also give anything a try if my doctors think it will help. Because of my willingness to try new meds and therapies, we’ve found quite a few that really help my body! . So even though it’s exhausting, take care of that body of yours. It may need a lot of extra help, but you only have one body. Treat it right. . Alternatively, if you think a treatment may be causing more harm then good, don’t be afraid to speak up and ask. Advocacy and honesty is another way to be a good patient. 💕 . . . . . . . . . . #chronicillness #spoonie #wheelchairlife #ehlersdanlossyndrome #treatment #medication #pills #mylife #chronicloveclub #mastcelldisease #disability #chronicpain #physicaltherapy #encouragement #patientcompliance
Me, in all my natural glory. I wore actual clothes yesterday even though I felt yucky. My ankles gave out twice yesterday while walking around and I had a hard time keep ahold of things. Glad My sister let me use her as a crutch. 😅 . I got a fancy new compression slip for my knee! Going to talk to my rheumatologist about possible stabilizers for my ankles/wrists. My mobility seems to be slipping away from me. . . . #posturalorthostatictachycardiasyndrome #chronicallyill #chronicillness #invisibleillness #butyoudontlooksick #pots #potsie #dysautonomia #spoonie #chronicillnesswarrior #peoplehopetribe #gastroparesis #chronicpain #chronicfatigue #chronicallyfabulous #chronicloveclub
It’s been a good weekend. I’m definitely not ready for Monday again which also means another week of school🙃 overall, my sugar has been pretty good this week. I made it through the first two weeks of school without any major setbacks due to crazy bg’s, I’m very greatful about that because school and diabetes can be difficult. Anyway, I forgot to say anything on Friday but I do have a new blog post up, and the link is in my bio if you wanna check that out. #type1diabetes #lifeofatype1 #chronicloveclub #livebeyond #beyondtype1
Flares don't care about what needs to be done or what you're in the middle of doing. They don't care if you're working or running errands, sleeping or having a lazy day. However, depsite painful and infuriating as it is, I find myself smiling at the little things that I can do during a flare. I can curl up and binge watch my favorite YouTube videos, read a book I haven't had time for, sip a cup of tea and cuddle with my pup, Bella. Despite all the negativity that comes with a flare, sometimes finding one thing to smile about can help you fight through the pain. #lupuswarrior #chronicpain #lupuswarriors #chronicloveclub #spoonie
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