Today I shared in my stories about my ‘ugh’ day. I always get really scared posting about my health on my social media because I worry potential clients will be deterred booking with me. But I share my story because I know I’m not alone when it comes to my situation. I’ve connected with so many already with similar stories; people who were once living lives that made them tired and sick.
After I hit rock bottom with my Crohn’s Disease and IBS earlier this year, I gave my body time to heal and decided to start my own business.
I still have days now where my body just says ‘nup’. But I’m doing a job that I love and listening to what my body needs.
I hope that by sharing tidbits from my life, I can show people you don’t have to life a life where you’re running around like a headless chook. You don’t necessarily have to quit your job, move home with your parents and start your own business... but you can make changes to live a happier and healthier life. Listen to your body and press pause before life does it for you.
My favourite kind of clients are those who’ve started their own business to step in to their purpose and be the happiest and healthiest versions of themselves. Because that’s the kind of brand I want to connect with.
#graphicdesigner #graphicdesign #freelancer #bosslady #crohnsdisease #ibs #chronicillness #entrepreneur #toowoombabusiness #toowoomba #businessowner #purpose #story #mystory
Cantaloupe flushes toxins out of the digestive tract🌟
Learn more about the healing powers of cantaloupe in my new book Liver Rescue, link in bio👆🏻
Friendship with Aspergers.
Friendship is a hard thing when you have aspergers. I never quite understand the social dynamics of friendship and I am never quite sure if a 'friend' is really a friend and actually likes me.
Recently I've had a couple of people who I thought were friends, delete me from Facebook with no warning and to me, no reason why they would delete me so all I can assume is that they never liked me in the first place?
I am so unsure as to whether I am actually being nice when I think I'm being nice as I never intend to upset anyone but I have been told I'm blunt sometimes but I just don't realise.
I do have some 'best' friends though. These are girls that have stuck with me for years and I trust that they actually like me and they understand my issues and know I only ever want to be liked and be a good friend.
Aspergers is a funny old thing. Imagine not knowing when to talk in a conversation, not knowing if you're talking too much, too little, the wrong topic. Imagine not understanding the joke or understanding the sarcasm. That is my daily life and it is exhausting.
#friends #aspergers #aspie #aspielife #mumlife #mumblog #mumblogger #instamum #motherhood #mumof2 #eds #ehlersdanlos #ehlersdanlossyndrome #spoonie #invisibleillness #chronicallyill #chronicillness #chronicmum #zebra_mumma #zebrawarrior
Delicious Galia melon and grocery refill for the week ⬅️swipe!
We also got in the fridge (not pictured) 5kilos of red grapes, cauliflower, broccoli, celery, fennel. And all the sprouts and microgreens on the windowsill. The fridge is always full so everything else that can’t fit stays in the living room. Those colors give me life 😍
So much pain lately. The season changes/weather changes bring on flares for me. The pain in my ribs and back have been so bad that I haven't been sleeping well. Every way I turn causes pain.
I'm not whining...I'm just giving you a glimpse into a fibro warriors world.
Happy Wednesday, y'all! 💜
9 years of M.E this week.
This was the last photo of me where I felt "sort-of" okay.
3 months before I got a virus that attacked all my organs and left me incredibly ill.
The months between the virus and this photo I was very tired and had little energy.
This week 9 years ago the pain, dizziness and extreme exhaustion set in, along with all the other symptoms.
9 years of this has been hard work but I'm still surviving.
What did you get for your 16th? I got M.E.
Ps. My Mum may look drunk but she just reacts poorly to cameras 😂
#MEisatotalbitch #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #chronicillness #spoonie #severeme
How can he still find you desirable? A question that crosses my mind so often.
My appearance was VERY different when I first met Noah. I was glowing, perfect body, bleach blonde hair and a perfect tan. Now, I have more rolls than I can count, and no hair! But yet I’m still as desirable to him as I was two years ago, if not more. He’s watched everything I’ve gone through and he’s embraced every scar, stretch mark and any new “rolls”. I’ve found that because of his encouragement for self love I’ve stared to stop thinking of my appearance. I’m loved and I’m learning to accept my body.
Self love and acceptance is HARD. Especially when the body changes dramatically because of health. I have my days when I feel like a literal potato, and then other days I’m strutting my stuff like no other. It comes in waves and that’s okay. It’s reality and it deserves to be talked about! I hope everyone finds that encouragement, from something may it be a person, a quote, religion, whatever it may be.. everyone is deserving.
That’s my inspirational saga of the day! #acceptance
Another day in bed and joined by our grandpup @obnoxiousthepup
again. Cancelled yet another appointment, this time missing our local writers group which sucked. I did sorta manage an online writing webinar before falling back down the hole of exhaustion again. .
Trying to both manage keeping a foot in the world and my body's need for rest is tough. That sweet spot is still elusive. In the meantime I'll spoil our grandpup and binge watch some old TV shows where it doesn't matter if I fall asleep as I've seen them all before. .
Thank you to everyone who has sent lovely messages I read them all and wish I had the energy to respond individually to them all. But know they are really appreciated.
[Three images: 1 Michelle is lying in bed wearing a green top and her glasses. Her face is partially covered by a light green pillow. To the right of frame a very cute black labradoodle lies on a blue floral doona legs outstretched. 2 same image but more Nox and less Michelle. 3 Nox is stretched over my belly. This last one has been most of today's view.]
#Dysautonomia #ChronicIllness #Disability #Flare #ChronicLife #Pets #PetTherapy
Allez ! Viens prendre ta claque avec moi 🤩🤣
Tout travail en profondeur débute par poser des constats, déculpabiliser un bon coup, se pardonner, puis réunir son courage pour défaire ce qu’on a appris et reformater son cerveau ❤️ Si si, c’est possible 😉
Que tu croies ou non que tu peux le faire, dans les 2 cas tu as raison. Choisis juste ton camp 🌺✨😘
#breakthestigma #mentalhealth #mamierebelle #aces #acestoohigh
🌟Wellness Wednesday 🌟
Today i’d like to talk about chronic illness. I’ve never spoken about this before because I HATE the idea of coming across as “poor me” 🙈 but I’ve realised that talking about this may help other people who are suffering from the same thing
5 years ago I was diagnosed with chronic reflux disease (GERD). It became so bad that I was sick every day and even lost the ability to speak because of the damage being done to my throat and vocal chords 😔
I was put on medication for life...but after a year, I realised that the medication was only masking my illness and symptoms; it wasn’t curing it ❌
I was through with being medicated, so I sought answers through diet and supplementation. I had independent testing for intolerances, which led to me remove dairy from my diet.
I took myself off of my medication, and after a lot of trial and error, I found my symptoms improving by following a diet similar to the leaky gut diet (i’ll talk about this in more detail soon) 🌟
Now, I have always been an advocate for flexible dieting and balanced living...but for some of us unfortunate few battling hidden illnesses, diet will always be a little more complicated in order to maintain our health. My own slip ups with diet have caused my GERD to return after 4 years of being back to full health 😖
I’m on a mission to get myself back to where I was again though, which is why i’ve been super quiet 🙈 (i’m already seeing improvements now that I know exactly what I need to do!)
How many of you out there suffer from hidden illnesses?
Idag fick vi ett helt fantastiskt samtal från Ellens primära läkare, en fantastisk läkare OCH människa! ❤️
Hon har ringt och ringt och ringt till barnkirurgin nästan ända sedan hon skickade remissen på knappen (i maj) för att försöka skynda på att hon ska få den, eller att vi iallafall ska få veta ungefär NÄR!
Idag hade hon äntligen fått en preliminär tid för när operationen kommer ske! Vecka 42 någon gång (15-19okt)!! Det är då Ellen kommer vara längst fram i kön, men vi är såklart medvetna om att risken finns att det inte kan ske då eftersom Ellen är en högrisk sövning, därför måste det finnas en plats på BIVA åt henne - om det skulle behövas. Det kan vara så också att vi får en tid då det finns en plats på BIVA men att ett annat barn akut behöver platsen - då skjuts Ellens operation fram, men hon kommer fortfarande vara längst fram i kön. Därför tror jag att även om det skulle ske flera gånger att operationen behöver skjutas fram så borde hon ju ha opererats innan november är slut iallafall! 🙏🏻❤️ Det här samtalet kunde verkligen inte komma lägligare! Ellen har börjat få mycket mer besvär av sonden och jag som förälder har mått extremt dåligt av att se henne lida, utan att kunna göra något för att hjälpa henne. Det har känts som att vi kommer gå under hela familjen, men nu ser vi ÄNTLIGEN ljuset i slutet av den här tunneln.
Samtidigt är man ju såklart livrädd, minns så väl känslan av att sitta och vänta medans dom opererar - utan att veta hur det går. Hon är som sagt en högrisk patient, men vi måste tro på att allt kommer gå bra❤️ Min förhoppning är att hon kommer ha opererats innan sin födelsedag, och vakna upp på BUVA och inte BIVA, att allt ska gå helt perfekt och att hon kommer kunna äta tårta på sin 1årsdag 😭🙏🏻❤️
#prematur #prematurebaby #premature #34weeker #arpkd #arpkdwarrior #arpkdawareness #kidney #kidneydisease #kidneywarrior #pkd #warrior #chronicillness #chronicillnesswarrior #chronicillnessawareness #feedingtube #feedingtubeawareness #knapp #gastrostomia #gastrostomi
My first time ever making fat bombs - they are absolutely amazing, and I'm not proud to admit this, but I had 5 of them, at once - I just could NOT stop eating! I guess there goes lunch for me today 😮 😬
And here is the recipe:
* please keep in mind that I soaked all the seeds over night and then dry roasted them in the oven, in order to reduce the amount of anti-nutrients in them
- 12 tbsp of coconut flakes
- 6 tbsp pumpkin seeds
- 6 tbsp sunflower seeds
- 3 tbsp flax seeds
- 3 tbsp sesame seeds
- 3 tbsp hemp seeds
- 3 tbsp coconut flour
- 6 tbsp coconut oil
- 4 tbsp creamed coconut
Mix everything together in a food processor, until it becomes a soft paste, and then divide it into 28 individual fat bombs (or whichever number is more convenient for you) - I used an ice cube tray, seemed like the easiest way to measure and store them. Super simple and quick, and now there’s always a delicious little treat waiting for me in the freezer, if my body asks.
For quite some time, I was completely off nuts and seeds (following a strict AIP diet), but decided recently to reintroduce them and my body reacted totally ok - as long as I have them only once in a while, and not too many at once, AND only if they are soaked and roasted first.
Each bomb has 91 calories, 8.6 g fat, 1 g net carbs, 1.95 g protein. They are also rich in vitamin e, selenium, magnesium, potassium, manganese and iron. #keto #ketosis #ketodiet #ketogenic #ketorecipes #dairyfreeketo #dairyfree #lowcarb #glutenfree #grainfree #paleo #paleodiet #paleorecipes #fatbombs #aipreintro #aip #intuitiveeating #foodcombining #guthealth #healing #foodasmedicine #cleaneating #realfood #healthyfood #multiplesclerosis #autoimmunedisease #chronicillness
Reminder for all of you:
Listen to your body, go out when you can and want to, play that piano, go shopping, meet your friends,... And when you're having a difficult day ➡️ REST.
There's no shame in taking a step back. It's something I'm still learning every day.
Have you ever seen fear or anxiety depicted in a more cute image?! I know he’s just chewing on his nuts most likely but he looked how I feel on occasions! Reality is I despise fear and anxiety… Too often it taps me on the shoulder as I edge towards sleep and it can bring the darkest of thoughts that utterly mess with sleep and my head in general, resulting in a difficult day ahead. When living with a chronic illness you definitely have to have a plan about this - a way that you take on those thoughts and hide them, change them, do what ever you need to do to make sure you keep seeing the light in life. What is truly good. We’ve got an article on our blog about how to feel better - ways in which people living with chronic illnesses have found their happy, distracted themselves or just found a great source of distraction that can maintain a feeling of positivity. It’s on today’s profile link. There is also a blog on ways to empower your support network to help you if you need a little help in getting there - so important not to be afraid to ask for help.
Please do share your thoughts too. After a sleepless night I would love to hear others suggestions as to how to keep the night demons away. In the meantime - I’m loving the squirrel!!!
I need your help!! 🤞🏽 About 23 years ago I was diagnosed with endometriosis, pcos & dysmenorrhea. First of many diagnoses. First of many surgeries. Since then I have been diagnosed with arthritis, degenerative disc disease, scoliosis, nerve damage, a necrotic nerve in my spine, stenosis, bpd, ptsd, generalized anxiety disorder & panic disorder, I have had two TBI’s (traumatic brain injury) and I have undiagnosed seizures. I received a diagnosis of fibromyalgia about 5 years ago but now my doctors are thinking that is incorrect and that I have MS. I have 3 MRIs scheduled. October 11th I have a full hysterectomy scheduled. After that my neurosurgeon is trying another spinal injection to see if it helps me get back on my feet, or at least helps to curb the constant pain and slows the numbing from spreading. If it doesn’t he wants me to consider another back surgery 😩 I have been in bed again for a month, waiting for a wheelchair, unable to work and provide for my family, unable to buy my medications.
So here I am asking you for help. If you’ve read this far, just for that, I appreciate you! 💚🙏🏽 Any donation helps! And if you can’t donate, spreading the word would be a great help too! 👍🏼 Thank you! Bless up! 💚✌🏼 Link in Bio ✌🏼💚 https://www.gofundme.com/sorensmedicalfund
#spoonie #spoonielife #chronicillness #chronicpain #pain #recovery #healing #gofundme #share #instagood #love #cannabiscommunity #420 #710 #sorensmedicalfund #thecharmedmisfit #chronicallycrazy
One of the bigger shifts I needed to make was my attitude about the medical profession.
I needed to shift from feeling powerless to seeing them as providers of a service and like any other service, I wanted one that felt right for me.
Finding a doctor willing to listen and partner with you can often feel like the holy grail.
Use what you can from the one you have.
Understand that you have the right to do your research and make an informed choice that feels best for you.
Accept the fact that the medical profession like any other business, exists to fill a need and make money so where you can, invest in the providers who are willing to partner with you, not dictate to you. #chronicillness #hashimotos #makeitworkforyou
Courgettes are still in season everywhere. My staple on most days. Soon they’ll be mega expensive so make the most of them.
This mornings drinks, cucumber juice, watermelon juice which I looooovveeee, fresh berry smoothie which has raspberries,blackberries blueberries, strawberries and a banana and then fresh Lemon water, I'll also make my mango smoothie before bed, it's important to remember when changing your diet to a healing one, to do it slowly and gradually, the more you eat and drink like this the more you are removing all those nasty toxins from your body that have kept you sick for so long, I started off with just added some more fruit into my diet, I then adding fruit and 1 smoothie a day, and then gradually I slowly am cutting out dairy and meat, sometimes if you remove all the foods at once and bombard your body with all this healing food you can get more fatigued to begin with and sometimes detox headaches, so remember to do it slowly and be kind to yourself if you make a slip up tomorrow is a new day 😘😘
So happy to get home today 🌳
Visit the link in our bio to read Connie Rogers' story
🌿💙📟💉 ...something I struggle with as a person thriving (!!!) with #type1diabetes
is the environmental impact of the medical waste that I generate. I need things like lancets, syringes/insulin pen tips and infusion sets in order to do what is necessary to survive, but these items are generally made of plastic. They are also often wrapped in packaging that often includes plastic (to keep items like infusion sets sterile). Even the cardboard packaging that contains things like sensors for glucose monitoring is coated with plastic and can't be recycled as a result. Of course, I still try to reduce my waste & impact where possible - for example, I use an old @lushcosmetics
perfume tin to store my lancets on-the-go. They fit perfectly! 🦄 QOTD - how do you feel about medical waste and the environment...how do you reduce your impact?
Rare does not mean alone
With over 7,000 listed rare diseases affecting 300m people worldwide - rare is not that rare..health tech needs to learn from how “orphan drugs” are developed. See how we at nOink are addressing this.
Injecting 4 times a day, 27 tablets a day, heat pads, TENS machine, opiates daily, anti seziure medication, cool packs, laying down most of the day, using a walking stick, using a wheelchair, broken mentally - this is what this disease makes me endure every day and sometimes I cope, other days I'm completely lost, I wish it was easier, I wish there was an answer, I wish I could get help 💛 #spoonielife #chronicillness #tarlovcystdisease #meningealdiverticulumcyst #spinalcordinjury #spinalnerves #spinaldecompression #nhs #nhnn
Tonight I taught my first yoga class since finishing my diploma exams earlier this month. Another milestone achieved.
This photo was the sky before class, it was a good omen.
I'd love to hear what milestones you have reached this year. Or something you are pleased about getting done recently.
Lots of love and energy to you all, I hope your body and mind are kind to you today ❤Claire xoxox
Tag a friend who needs to see this post or would enjoy my account 💗. Come visit me at www.chroniclifehacks.com for ideas to make your days with chronic illness more enjoyable.
Link in bio for my new Get Creative book- Unlock Time and Energy so you can fit Creative Activities into Your Life (whatever your life looks like….). DM me your email address and I will add you to my Little Letters newsletter for a discount code for September.
Want to know a simple way to start your day that’s laden with health benefits? .
Begin every morning with a cup of hot, steamy, boiling water. Hot water dilates your cells, tissues and organs, which promotes circulation, digestion, hydration and elasticity, and washes away impurities. .
Let’s break this down:
Even if you get just temporary improved circulation while drinking hot water, you’re promoting oxygen-rich blood flow throughout your body, and oxygen is life-force. .
Most eat a diet high in processed foods, that are devoid of the two most life-giving substances on the planet, water and oxygen. This causes dehydration throughout the body, which devolves down to the single most common digestive complaint today, chronic constipation. .
Chronic constipation is the single chronic condition with the most detrimental side-effects on the human body and quality of life.
That the human body is on average 50-75% water, it makes sense that we maintain healthy levels of hydration for radiant, supple skin, on the inside and out, beginning on the cellular level… And to the above point, to avoid chronic constipation. .
When water is hot enough, it promotes the release of toxins out of your cells, tissues and organs, and toxicity can cause excess weight, fatigue, brain fog and every other health symptom you experience. .
A few additional recommendations:
Sip water throughout the day for maximum hydration. .
As an analogy, imagine a dry sponge. Can it pick up water off your counter as readily as a damp sponge? No. Your cells are the same, but begin with the cup of hot water every morning. .
First thing in the morning, omit any additives, like lemon, and especially like caffeine which is dehydrating. By sipping plain, hot steamy water first thing in the morning, you’re not yet asking your body to digest. This is perfect for those like me who practice intermittent fasting. .
Try it and see how many seemingly benign problems seem to go away.
Questions? Post them below. I’d love to help!