#chronicallyill

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When I am really tired I focus on doing #AnotherStep towards completing a task. So often my head becomes a mess of tasks or a swirl of emotion, the feeling of overwhelm or that everything really is too hard today.  Somehow though just deciding on #AnotherStep I gain a bit of momentum.  I remind myself that I have to do all the steps sometime and each step done is one less to go. #AnotherStep might be taking the wet clothes out of the washing machine.  Cleaning my teeth.  Filling my waterbottle.  Taking meds and supplements. Filling out the easy parts of paperwork.  Handwriting some points for an email that needs writing. The overall goal may be getting the clothes onto the washing line, getting ready to leave the house, actually going to bed, finalising paperwork etc.. / Sometimes the steps feel too insignificant to want to get up from the couch and do.  Sometimes the small tasks we think are insignificant end up being more involved. Often though, this one step will be followed by completing another and another. / Our mind often needs the blinkers and precise #tinytask to focus on. / Sometimes the task makes us actually look at something our mind had made into a bigger deal than it really is. E.g. paperwork: if you fill out your personal details and look over the other questions you might realise that there is one doozy but the others you will be able to plod through over time. / Some questions to ask. Will it be any easier at a future time?  Will future me be grateful if I get it done now? #ForFutureMe . Is there something i'd rather do at a future time or when I have a bit more energy or less symptoms? / Sometimes we have an order of importance in our head and it is hard to do a lower priority task first.  But I try and do that when I just know I probably wont get a high priority task done.  It is a balance as you don't want to use up your energy and make it less likely you will get back to the tasks higher up the list. / Sometimes the lower priority task will get you moving and give you a sense of achievement and set your head up for a harder task. Lots of love and energy to you all, I hope today your body and mind are kind to you. ❤Claire xoxox
CW: Violence These screenshots are from 5 different news reports from 4 different states in which violence has occurred due to people illegally using disabled parking spots. These events are all from the last year...and there are even more instances. Obviously, no one deserves to DIE for illegal parking. These are deranged people commiting violence. I had no idea this was happening. This is a serious reminder to NOT illegally park in those spots if you do not have the proper documentation. Also, if you are concerned about illegal parking in your state, many states have specific protocols, including sometimes a specific number to call, to report this. It is not your job to go up to a stranger and try to solve the problem. I understand the desire to educate, but it seems like too often these situations are escalating to violence. Be safe and smart. If you don't have a permit, don't use a disabled spot even for a second...period. If you see a person with a disabled placard who does not look disabled, leave them alone...not all illnesses are visible and you have no right to their medical information. Let disabled people have their spaces (parking, toliets, lifts, etc.) I wish these reminders did not need to be given, but, apparently, they very much do. . . [ID: pic 1 screenshot of headline reading "Flordia Man Killed in Stabbing over Handicap Accessible Parking Spot." Image 2 is screenshot of article that contains that excerpt: "Michael Drejka, 47, was charged with manslaughter in the July 19 death of 28-year-old Markeis McGlockton during a dispute over a handicapped parking spot at a convenience store in Clearwater." Image 3 is a news article with excerpt: "The witness said an argument erupted over a handicap parking space outside the Boston Market store in Swampscott." Image 4 is another news article headline: Alabama man in custody following violent dispute in Winder over handicapped parking spot. Image 5 is new report stating: HOUSTON — The Houston Police Department is investigating after an argument over a handicapped parking spot escalated to gun violence Wednesday night in the Gulfcrest area."
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BODY POSITIVITY INSTAGRAMMERS “Het is enorm fijn dat daarom meer acceptatie komt, maar is het echt zo makkelijk als het lijkt? Zeker als je ziek bent heb je weinig vertrouwen in je lichaam en liefde is vaak ver te zoeken. Vaak is het op social media één groot prachtig beeld, en lijkt iedereen perfect.” Onze blogger Eline, @elinesierink , schreef over haar favoriete body positivity geïnspireerde Instagrammers. ✖️✖️✖️✖️✖️✖️✖️✖️✖️✖️ ✖️✖️✖️✖️✖️✖️✖️✖️✖️✖️ #justliveblognl #blog #blogger #nederlandseblogger #medicijnen #chronischziek #chronischepijn #chronicfatigue #chronischevermoeidheid #chronicpain #chronicillness #chronicallyill #spoonie #spoonielife #spoonieproblems #positief #motivatie #mindset #onzichtbaarziek #disability #mentalillness #depression #veracamilla #bodyposipanda #bodypositivity #body #bodypositive
Hospital family 💜 ---------- So schnell geht auch schon die erste Woche um - mir geht es schon deutlich besser, auch wenn ich noch schnell erschöpft bin. Ansonsten tut es mir gut, dass momentan #Semesterferien sind und ich somit auch wirklich Zeit zum Ausruhen habe. Ich muss zwar noch zwei Hausarbeiten schreiben, aber dafür müsste ich eh erstmal in die Bib von daher... 😅💁🏼‍♀️ . Ich könnte mir zwar schöneres vorstellen als 90% der vorlesungsfreien Zeit in diversen Krankenhäusern zu verbringen, aber in Anbetracht der Tatsache, dass ich zuhause auch nicht so viel mehr machen könnte... Was soll's 😅 Außerdem ist auch im Krankenhaus nicht alles "doof." So viele tolle Menschen. So viele kleine Dinge. So viele wertvolle Momente. Es ist zwar immer noch Krankenhaus, aber gerade wenn man so häufig und so lange da ist, ist es nicht "nur" Krankenhaus. Es ist gerade eine sehr intensive und spannende Zeit und irgendwo ist das Krankenhaus - die Menschen hier - ein Stück Familie geworden. 💜 . . #waitinglist #warteliste #transplantjourney #blogger #blog #blogger_de #cysticfibrosis #Mukoviszidose #cyster #fighter #chronicallyill #chronicdisease #hospital #krankenhaus #medizin #medicine #spoonie #potd #uni #student #hausarbeit #familie #family #nurse #65roses #justbreathe #liebe #love #lungtransplant
Anywhere, anytime⏱ So often the hustle and bustle of life gets ahead of us and we don’t give our body the treatment it needs to recover. Take your EZ anywhere you go and let your body enjoy the benefits of consistent recovery💥 #pain #fitness #instalike #health #happiness #motivation #fitfam #jointpain #pain #chronicallyill #fibro #exhaustion #chronicpain #fatigue #chronicillness #musclepain #jointpain #naturalhealing #painrelief #female #headpain #antiInflammitory #healthy #naturalPainRelief #naturalpainrelief #pregnancypains #pregnancy #naturalpainrelief
Feeling blah, in a bit of a flare, Googled animals in wheelchairs. Awwwwwww happy cuties! 😍 First therapy appointment tomorrow. Mental health matters. I need to better cope with my chronic illness. End the stigma. . . [ID: image contains 8 pictures of animals in wheelchairs. First picture is a pink baby pig with its two back legs paralyzed so it is wearing a red harness with two little wheels in the back. Second picture is a white alpaca with curly fur with its neck curved to look at the camera, wearing red harness with two wheels on the back. Third picture is a spotted black and gray dog with a long body and in place of its two front legs are too big pink wheels, the dog is running and looks active. The fourth picture is a orange and white patched cat with a pink harness that has two black wheels on the back. The fifth picture is a white and gray Bunny with a pink harness with wheels on the back. The sixth picture is a baby ponies that is tan and white wearing a blue metal wheelchair with two wheels in the back. The seventh picture is a baby goat that is white with floppy ears and is wearing a black and red wheelchair contraption with wheels on the back. The eigth picture is an all white duck with an orange beak that is sitting on a fabric sling attached to white poles and wheels, you can see one leg underneath.]
Update: Still here. Been struggling to find my motivation through all the chronic bs I've been dealing with lately. Between almost constant headaches, fatigue, foggy brain and an overall depressed/anxious state, I've not been as focused on eating and exercising. The focus the last week or two have been on self care. It's so important to remember that in order to be successful in other endeavors, we need to take care of ourselves internally and mentally first. If we ignore it, push it aside, or power through it, we are bound to break down and burn out after a while. I will be back at logging my food and working out again shortly. Trying my best to be #spooniestrong in coping with my chronic illnesses. . #chellelosesit #motivation #struggle #update #weightlossjourney #healthjourney #fattofit #gettinghealthy #mentalhealth #mentalillness #chronicillness #chronicallyill #spoonie #thyroidectomy #depression #anxiety #selfcare #selflove #fatigue #foggybrain #headaches #migraine #health #nofilter
Story of my life! 🤦🏽‍♀️ #Repost @activelyautoimmune with @get_repost ・・・ Anyone else play this game? 🎲 The best thing about is it never ends! • Another day in bed, definitely playing this game...think it’s a combo of a steroid come down, lupus flare from hen do/IKEA & normal person sick. But who knows 🤷‍♀️ #warrior #fighter #emotionalhealth #curlygirls #curlyhair #curls #autoimmunediseaseawareness #invisibleillness #chronicdisease #chronicallyill #chronicillness #chronicpain #autoimmunedisease #autoimmunewarrior #autoimmune
All my intracranial hypertension/ transverse sinus stenosis peeps, how long did it take after stent placement to feel “normal” again and not have inflammation issues anymore? It feels like I did when I was a week post-op. Feels like a sledgehammer is smashing into my head exact where the stent was placed. #IIH #IntracranialHypertension #TransverseSinusStenosis #SinusStenosis #Inflammation #Pain #Stent #BrainStent #BrainSurgery #ChronicPain #Chronicallyill #Chronicillness #ChronicallyFighting #ChiariMalformation #EhlersDanlosSyndrome #EDS
The truth : I've been struggling. I try so hard to keep it together, but lord in heaven some days it's Hard. As. Nails. I have anxiety and anxiety related depression, I have a whole host of physical health issues that have drastically changed my life. I wish I could say something inspirational like "I have them but they don't have me". But that would be a lie. There are days when they swallow me whole. There are days where fighting back just isn't an option. . .. ... So, what have I been doing ? I'm making changes to force myself to reframe my thinking. I'm getting my life back. No, I'm taking it back from the things that I can't control. I can't control the flares, I can't control what people think. I can't control the physical pain. I can't control how others think, act or what they say. I can can control what I do with my time. I can control how I allow others to treat me. I can can control my shame. I can control my voice. I've decided to take up art again, I've begun to dedicate more time to reading. I'm researching new treatments and I'm taking care - real care- of of myself. I'm not going to hate my body for what it's taken from me, I'm going to love it for what it's giving me. You know, it's those small seemingly insignificant things that can make the difference when you're fighting for yourself. New pens and a journal. Really good quality tea. The nice soap from the market. Long showers. Whole nutritious food. Giving yourself permission to love yourself, even though your life is not what you aspired it to be. We don't know if we have two hours, or 20 years. Those decisions and choices of when it all stops, when we make our last trip around the sun- it's dreamless, it's infinity and it's unknown. For now, I'll make the most of each moment. I'll take pause to breathe it all in and let it all out. Xo #spoonie #althespoons #selfcare #whatsinyourheart #chronicallyill #sicknees #mentalheslthawareness #mentalhealth #inspo #gettingittogether #chronicillness #immunehealth #disorders #anxiety #depression #fibromyalgia #immunedisease #blooddisorder #womenshealth #youcandoit #icandoit #strength #strong #bigheart #women #girls #thisisresllyhardtoputoutthere
Everyone who is diagnosed with a chronic illness goes through this. They miss their old lives. They miss opportunities they might have once had available. I was incredibly lucky to have been diagnosed at a very young age, so I’ve always known my limits, and I’ve always known that I’m different. But for some people, they are living their best lives, regularly riding horses, and doing activities, and going to all of these places, and doing all these things, and then one day their symptoms become too much to power through. They realize that something isn’t right. They can no longer do the things they once loved and their lives are taken from them. This is often is more extreme cases, but it’s happened to at least three people I know off the top of my head. So, we are allowed to be bitter and miss the life we once had. Our feelings are valid. It’s totally okay to miss the person you once were. But don’t forget that this new person you are, can still do and be great things. {ID: a white text post by windowghost that says “ Let me be angry that sin chronically ill. Let me feel jealous, and cheated, and all of the horrible feelings that come with acceptance. I’m not yet ready to accept that my life will be full of chronic pain and fatigue, and migraines, and vomiting. Eventually I’ll figure it out, and I’ll learn to live with it. But right now, I’m scared and confused, and angry.” Below this, there is a comment by 1spoonieatatime that says “this is really important. Even when you do learn to live with it- and you will- it’s okay to get angry, especially on bad days. Feelings hit you in waves, and being honest about your feelings isn’t a bad thing.” } #eds #ehlersdanlossyndrome #awareness #chronicillness #chronicpain #chronicallyill #disabled #disablity #invisibleillness #notalldisabilitiesarevisible #ournormal #painmanagement #spoonie #spoontheory #zebrastrong #zebrawarrior
The flower photo was taken this summer. I think about how far I have come in my own growth, [or sometimes lack of] through all the struggles, all the frustration, all the tears I've cried that have brought me to this point....I have to remember how far I have come on this journey with Dysautonomia. All the love and support from others, have helped me get through the most difficult challenges. If I were a flower I'm sure I'd be missing a few petals, but each of us have our own unique beauty. Don't allow chronic illness to take that away. #dysautonomia #chronicillness #posturalorthostatictachycardiasyndrome #potsie #pots #spoonielife #spoonie #bloomwhereyouareplanted #icandoallthings #fearfullyandwonderfullymade #invisibleillness #chronicallyill #butyoudontlooksick #spooniestrong #raiseawareness #awareness #dysautonomiasucks #fightingforhealth #dysautonomiaawareness
Mast Cell Activation Disorder (MCAD) is one condition I have that causes me to have allergic reactions. There are easily 100 different types of triggers that could set off a reaction. It’s hard to avoid all of them, even taking my medication, I can still have an allergic reaction. The first picture is me when I’m not having a reaction, the second is during the reaction, and the third is when my medications start taking affect and it starts going away. This condition alone causes me over 30 symptoms, and some days, I experience all of them. My reactions aren’t always physically obvious either. Certain foods can trigger a reaction and I may only have gastrointestinal symptoms then. That means my face may not swell up, get hives, or redness. So it’s more difficult to see that there is something wrong with me. There are times where I need to go to the hospital, but if I do my rescue treatments and take my medications in time-I don’t need to go. I use an albuterol nebulizer, multiple inhalers, Benadryl, IV Fluids, and other antihistamines to pass a reaction. You never know what someone is struggling with physically or mentally. Family, medical professionals, and emergency responders should be more accepting of that. It’s not easy being ill. To other zebras/spoonies reading this, you’re not alone in your medical fight today. We can get past these reactions together❤️It’s posts and accounts like these that show us as a chronically ill community that we’re not alone. #mastcellactivationdisorder #mcad #ivfluids #lactatedringers #ivhydration #allergicreaction #benadryl #allegra #singulair #quercetin #inhalers #albuterol #asthmaflareup #pots #eds #dysautonmia #spoonie #zebra #chronicallyill #invisibleillness #facialswelling #hives #flushing
Extremely old post, but i removed commenting on one pic and deleted the caption. I understand booties are necessary in extreme heat, I constantly check the ground Trooper is walking on for temperature. However if you make a comment about booties, and I see it as rude or hate I will delete it or turn off commenting. Messaging me won’t make a difference. You don’t need your little comment on my post to start a fight or black list me🙄 TROOPER HAS 3 SETS OF BOOTIES AND HE WEARS THEM WHEN NEEDED. I protect his paws and always will. • • • • 🌟Random Tags🌟 #diabeticalertdog #diabetic #servicedog #servicedogintraining #medicalalertdog #mybaby #mylove #t1d #workingdog #workingdogsofig #servicedogofig #gsd #gsdofinstagram #workingdog #workingdogsofig #shepherd #trooper #sdit #diabetes #Germanshepherd #purebred #psychiatricservicedog #workingk9 #servicek9 #chronicallyill #type1 #autoimmune • • • • ✨🐾Follow our pack🐾✨ • @service_labrador 💝 @service_pupper_kola 💜 @servicedogbosco ♥️ @super.jupiter.sdit ❣️ @castiel.the.sdit 💞 @district.k9 💖
When everything seems to be going wrong ON TOP of having a chronic illness (and fun new symptoms!! 😖) - my car just stalled and I’m supposed to be in court in the morning because a person is contesting a restraining order I filed against them..... it’s another abuser tactic and there’s no reason a judge wouldn’t grant an order another judge already deemed necessary, right? I only have more evidence that I’m coming with.... but still..... 😰😢😫😞 My life sounds like a shit show all the time and I’m so sick of it. What am I doing wrong??? But yeah SUPER hard to keep being like “oh I’m good!” Cuz I don’t want people to start getting sick of my complaining and my anxiety already says they are etc etc etc.... Idk. I’m trying to keep grounded. Don’t disassociate. Stay here. Sleep. #mentalhealth #chronicillness #cartrouble #anxiety #friends ... #Repost @its.not.my.salt ・・・ When you take it out on the people around you, even though you know it’s not there fault at all 😔 #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #invisibleillness #butyoudontlooksick #relatable #funny
To those of you who know about my past, you’ll know that I’ve struggled with an eating disorder. To those of you who don’t, hello. For a long time I was under the impression that I was 100% recovered. I was not. And that’s okay. I became very unwell very quickly. As a disabled young woman, I put an immense amount of pressure onto myself and subsequently started to slip up and relapse. I know that’s something deeply rooted inside of me, that feeling of needing to amount to something so much more than I can give, so I’ve got 40 days to try and pull my head out of my ass with that. Again, if you know me, you know how much I’ve tried to fight for people to realise the connection between eating disorders and disability. I’ll still be fighting for that more than ever. I’ve made the decision to go get much needed help & take some time off work. I am very disheartened to leave my job but I know the clinic is the best option for me & for my physical and mental health. Thank u to everyone for the support over the years 💝 - - - Image description: me in a black beanie and a grey nike t shirt. - - - - - #disabled #disability #chronicallyill #disabledwomen #chronicillness #cripplepunk #eatingdisorderrecovery
It’s decided that I’m sticking with this binder size. I’m pretty stoked, so I thought I’d share how it looks with a relatively tight T-shirt! I’m really happy with the results 😊😊 .. Unfortunately, I still need to return this binder and exchange it for an identical one. The stitching in one of the seams was already coming out when it arrived and tying off he ends hasn’t helped, so I need to exchange it. :/ I’m bummed that I have to keep waiting to actually start wearing it. But it’s okay! Soon enough. :) . . Description: three lower quality photos of Lilan - a white person with dark features, blue hair, some facial hair, double silver nose rings, and a teal gem labret stud - taken in a mirror, on straight-on and two of either profile - they’re wearing a purple shirt with a rainbow graphic that has the international symbol for accessibility, lettering reads “DISABLED & QUEER”; their chest looks significantly flatter than in earlier photos. . . #theythem #queer #trans #disabled #queerAF #genderqueer #nonbinary #agender #transgender #ftx #chronicallyill #floralqueer #desertqueer . #binder #chestbinding #thattransaesthetic . #selfie #thisiswhatqueerlookslike #thisiswhattranslookslike #transisbeautiful #disabledandcute #disBABEled #bluehair #dyedhair #pierced #facialpiercings #facialhair #unibrow #browgamestrong
Spent some time out with my momma today 💛 My tea upset my stomach but I powered through. We soaked up the sunshine and did some window shopping. I started my second IV antibiotic today for H. Pylori. It may or may not #kickmybutt so we’ll see. I just can’t wait to maybe feel better . . . . #spoonie #spoonielife #gastroparesis #lymedisease #lyme #lymedontkillmyvibe #potssyndrome #potsie #pots #autoimmunedisease #autoimmune #chronicallyill #chronicillness #chronicpain #tpn #piccline #centralline #mightywell
This is my fave every time I check out a Facebook support group. The #CRPS support groups are full of fake science and medicine shaming. The #gluten -free support groups are full of food shaming and outright false information about food. I now frequent makeup groups because people there tell each other that they’re beautiful and encourage you to try products and never shame you for what you choose to buy or how you wear it. Dear support groups, be more like the supportive makeup groups. . . . . . . #gfree #spoonie #chronicpain #chronicillness #foodallergies #fakescience #glutenfreeliving #wheatfree #coeliac #celiac #raredisease #makeup #beautyblogger #foodblogger #chronicallyill #autoimmune #sansgluten #beautyblog #makeupaddict #nogluten #makeuplover #bblogger #instamakeup #instabeauty #celiacdisease #glutenfreefollowme #butyoudontlooksick #wakeupandmakeup
I have ADD and people frequently ask me if I have Autism, because of some of my mannerisms such as fidgeting/stimming, hyperfixation, bad with social cues, etc. It’s not weird, unnatural or bad to have ADD or Autism. • • Reposting from @chronically_queer • • Follow me for similar posts: @chronically.couched @leos_sick @pastelpsychosisposts • • • #chronicallyill #chronicillness #disabled #disability #mentalhealth #chronicpain #limitedmobility #mentalillness #insomnia #EDS #IBS #CFSME #endometriosis #bipolar #PCOS #POTS #spoonies #ableism #spooniesunite #mobilityaids #wheelchair #homeless #autism #autistic #actuallyautistic #add #adhd #attentiondeficitdisorder
Went on a short #kayaking trip, got a #haircut (which this picture does NOT reflect lol), and my boyfriend got to meet my family. :) All in all, a successful and kind day. 💖 #cute #queer #indigenous #disabled #chronicallyill #spoonie #snapchat #smile #selflove
⠀ It's another Monday and I'm sure our to-do lists are completely full again! Let's not let the day of the week get in our way.⠀ ⠀ Diffuse this blend all day until your work is done.⠀ ⠀ Drop your top 3 priorities on your to-do list in the comments and by the end of the day, I'll check back in with you!
[TW: weight, self harm, & ED] -------------------------------- I recently gained around 15 lbs, give or take. Along with everything else I've been going through, I have had a lot of body image issues. I have delt with eating disorder issues, self harm (specific to body image issues; I self harm for other reasons too), and I dress in bagy, covering clothes and almost never leave the house without makeup on because I hate how my body looks. None of my doctors at every really surprised by my ED habits and say that anyone with all my food-related health issues, and other health issues in general, would have ED issues, but I've never found that exactly comforting. When I was having bad ED and body image issues, my mom hid the scale that used to always be in our bathroom next to the sink because I had come to weigh myself many many times a day, sometimes even several times within a few minutes, and this was adding to my ED and body image issues. After my last hospitalization, these issues became less of an issue for awhile. However, the other day my sister took the scale out to weigh herself while I was in the room because she hadn't realized that it has been hidden from me. She claimed that the (brand new) scale must be off or broken because it weighed her at a bit less than she had been for quite some time. My mom then checked and came out at her normal weight, so we decided it wasn't broken. She wanted me to check myself to see to make sure, and even though I thought of the possible issues with this, I decided that I was strong enough now to not care. I hadn't imagined how much I would weigh in at though. I thought it would be the same number as usual, which still always was way too high for me, but it ended up being sufficiently higher. My mom and I tried to brush it off, saying that yeah the scale must be off. It still bothered me though. Last night I went looking for something and accidentally came across a different scale that had also been hidden. I couldn't resist checking. I wanted to know if I really had gained all that weight. I hoped again that the other scale was off [continued in comments below]
A still from Saturday’s #performance with the #AXISSummerIntensive2018 with @jen_on_wheels @cyborgcircus and Julia. The look of #joy is #incredible . This is what happens when #disabled #queer folks are empowered to create movement together! Check out the livestream of the performance to see the #magic for yourself here: https://www.facebook.com/axisdancecomp/videos/10156268332032605/ #dance #wheelchairdance #disableddancer #disability #disabilitypride #choreography #ribbon #glitter #sparkle #popdance #contemporary #love #community #care #oakland #chronicillness #chronicallyill #circuseverydamnday #circus
Woke up this morning with splitting headache, achy body, and extreme fatigue. Just a thing that happens every so often with my chronic illness. I am currently working in a warehouse, so I decided to call in, but I will not be there for long! God is calling me to school to put my focus on him and school. Even as I was experiencing dehibillating headaches...I kept holding onto Gods promises. God is so good yall. There is a purpose for the pain!!!💜
This week’s sheet pan veggies include: garlic, shallot, purple and orange carrots, tri color new potatos, corn, and asparagus. Seasoned with lots of salt, cracked black pepper, and chili flake.😋 The only downside of using food as medicine is the amount of energy it takes- I’m so grateful to have had help cooking & separating out small portions to freeze for the rest of the week. Meal prep is typically a Sunday night thing, but at least it’s getting done, right?💪🏻💖💜
Sometimes I assume they hate me for no good reason. It makes no sense but it's how the childhood trauma I've experienced manifests itself. So I'm learning to just text "I love you" randomly to my friends just because... I do. And I may not talk to you for a week or a month but damn it I still love you with all my heart. I'm just weird. Sorry. I think the only person I don't do this to is my aunt. Probably because she's likely seen me shit my pants at 2 and possibly 20 so im pretty sure I can't further dissapoint her past that. #rheumatismproblems #rheumatoidarthritis #majordepressivedisorder #majoraccomplishments #juvenilerheumatoidarthritis #momlife #chronicallyillmom #chronicallyill #postpartumjourney #postpartumedepressionisreal #postpartumOCD #postpartumpsychosis #ppd #substanceabuse #substanceabusecounseling
UPDATE: Today I had a doctor appointment with my PCP for a shot and physical so that I'm all good this week for school. I had started seeing a different PCP for awhile because we were desperate for answers and thought a doctor my dad had been going to might be more helpful. However, today was just for normal routine stuff, so we just went to work doctor was available, which just happened to be my old doctor. It was the best doctor appointment we had in a very long time. With everything that's happened, I've developed really bad doctor anxiety plus most doctors appointments are dead ends and just a waste of time energy, but today wasn't like that at all. The doctor listened to everything we said, just as he always does. He reminded me that the palpitations I've been having are probably just from my Ritalin (duh!), didn't argue with me even one but when I said I am strongly against the HPV vaccine (even though many other doctors have tried really hard to convince me to get it), and finally put in a working diagnosis of MCAS and is sending me to an allergist to confirm it. This doctor also was the one who diagnosed me with another thing before when no one else would listen to us to anything was wrong. He's really helpful because he brings me back to reality when I'm overreacting about something simple, knows when there really is something going on and doesn't take any convincing, and overall is just really easy to talk to and reassuring. So thankful and relieved after today. ----- #chronicillness #awareness #invisibleillness #mentalhealth #mentalhealthissues #mentalillness #physicalillness #undiagnosed #pain #anxiety #anxious #struggles #chronicallyill #chronic #thoughts #mythoughts #brain #writing #anxiety #celiac #depression #ocd #eoe #gerd #adhd #undiagnosed #selfharm #struggles #itsnotinmyheaditsinmyactualbrain #doctor #doctorappointment #thankful
I never thought I would find someone to love me on my worst day. I never thought I would find someone who loves me so much despite my illnesses. You are so kind and caring, you always put my needs before anything. I know I can count on you for the rest of my life. Thank you for loving me on my best days and my worst. 117 days and you’ll be my husband 💕 I love you baldy 😉 #chronicallyill #chronicillness #posturalorthostatictachycardiasyndrome #ehlersdanlossyndrome #futurehusband #baldy
the middle is messy. but it's also where the magic happens. - @brenebrown 🦋🌖 #healingisaprocess #myyoga
psa.
💚I am #chronicallyillchronicallyfabulous and have Chronic Lyme Disease. I will be using my stories once a week to discuss varying topics and issues about chronic illness and shed some light on the daily life of those who are chronically ill. I will try to stick with Wednesday as the discussion day, but that all depends on my health and energy every Wednesday. Go ahead and take a look at my stories for some great questions I’ve received so far and some answers. I will go more in depth with each topic throughout the weeks. If you find this annoying or not important, you can go ahead and unfuckingfollow me. I have spent too many years hiding my illness and keeping quiet. My stitching came about because of my illness, to appreciate my stitching you need to respect my story.💚 #spoonie #lyme #lymedisease #lymewarrior #spoonielife #chronicillness #chronicpain #chronicallyill #chronicallyfabulous #crossstitch #invisibleillness #chroniclymedisease #ableist #ableism #illness
This morning I woke up to a text from one of my good friends from church, as I often do. She checks on my every couple of days or so and is the kind of friend that that won't take "okay" or "fine" as an answer when asking me how I'm doing and I love her for that. This morning she asked how I was doing, I told her I was okay, she wouldn't take that as an answer, and so I told her the truth, that I have been really not okay the last few days, and she immediately sent me a prayer. She always knows exactly what to say, and never says a lot, but always just enough. She then put a message in our church small-group group chat telling people how I was doing and that I needed prayers and support. Within minutes I started getting texts from some of the girls from my small group with both Bible verses and just someone conversation to distract me. It was weird, though, that none of them mentioned anything about the group chat and just acted as if they had randomly thought you text me. I asked my friends about this, and she just said "It's because they love you." And it was so true. These girls have been there for me all year and never once judged. They even made me a huge care package earlier in the year when I was in the hospital a bunch. I love them so much. Friends like these are truly a blessing from God. #blessing #friends #good #proverbs #God #Godisgood #bible #bibleverse #chronicillness #awareness #invisibleillness #mentalhealth #mentalhealthissues #mentalillness #physicalillness #undiagnosed #pain #anxiety #anxious #struggles #chronicallyill #celiac #depression #ocd #eoe #gerd #adhd #undiagnosed #selfharm #struggles #itsnotinmyheaditsinmyactualbrain
Medical update: My labs and urine tests came back good (for what the DR tested for). My vitamin D levels are finally back in range too 🙌🏻 #chronicallyill #rheumatoiddisease #spoonie #purplehair #chronicillness #rheumatoidarthritis #butyoudontlooksick #invisibleillness
Carpied the hell out of this diem with my fav babes. ❤️ Updates on the recovery later. It’s been a bitch. #thisisms
All doctors have been contacted and we are changing my entire allergy treatment. I am stopping my Zyrtec and trying Pepcid and Nasacort. I am a little hesitant because nasal sprays have always given me nose bleeds so we will see how that goes! 😅 . We are also waiting for the results of the second round of food allergy testing. Since I had 2 reactions last week my entire family is a little antsy seeing as we will be traveling soon. . . . #posturalorthostatictachycardiasyndrome #chronicallyill #chronicillness #invisibleillness #butyoudontlooksick #pots #potsie #dysautonomia #spoonie #anaphylaxis #foodallergies #chronicillnesswarrior #peoplehopetribe #gastroparesis #chronicpain #chronicfatigue #chronicallyfabulous #chronicloveclub
Officially in the final stages of dental work before surgery! I got my surgical wires placed on my braces Thursday. I wasn’t expecting to get them this soon so it was exciting. They’ll hopefully have a surgery date set by September once I get my last set of scans done to see how much longer my teeth need to be in the braces before my Orthodontist Specialist can give the all clear. This has been such a long and frustrating 3yr process so I’m just very excited to almost be done.🎉 - #chronicillness #chronicallyill #spoonie #lymphaticmalformation #cystichygroma #lmawareness #lymphaticmalformationawareness
This little ghost plush is one of my faves. I'm really tired tired, I miss having a special interest. I also have this intense head pressure bone ache things going on. Also been waking up gasping for air like I forgot how to breathe?? My body is weird and I'm ready for bed and it's only 7pm!🤦‍♂️ . . . . . . . #stimtoys #stimming #autistic #actuallyautistic #specialinterest #tangletoy #tangletoys #stimtastic #chronicillness #chronicallyill #chronicmigraines #fibromyalgia
I felt more like a human today. . I got a shitload of writing done over the last few days. T did all the laundry in the apartment which gave me the space to do that. . It also seems like I’ve gotten my suspected MCAS mostly controlled with a schedule of histamine inhibitors around the clock. As long as I take them on time, I have minimal reactions at home. I haven’t tested that in the real world yet which feels scary but 🤷🏻‍♂️ . I still haven’t responded to my rheumy about the cardiology workup offer. It’s on my to-do list for tomorrow, though, along with finding more freelancing to do... especially since I already owe one health system $500 and am waiting on recent testing to be processed in the other. Being an adult and sick AF is interesting. . #writer #writersofinstagram #freelance #freelancewriter #nonbinary #genderfluid #pansexual #queer #chronicallyill #disabled #chronicillness #chronicpain
Had my local neurologist appt today and it went well 🤗 she’s sending me to MUSC for physical therapy on my jaw and my shoulders #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #neurologist #chronicallyill #chronicallyfabulous #fuckyouchronicillness
If anyone needs prayers, good vibes, healing hopes my friend Kayla needs it. Kayla and I met about six years ago but have never met in real life. We can FaceTime for hours without evening so how much time passes. We have the ability to confide in the other even crying over the phone just to hear the others voice. One of the first things I said when I woke up from the coma was “Did someone tell Kayla?” This girls been in the hospital for over a month. She’s so strong and needs prayers. Childhood cancer, mass cell disease, epilepsy, you name it she has it. If you could just drop a prayer or send a prayer I’d be so thankful. Kayla needs more than 4% chance. #childhoodcancer #childhoodcancerawareness #morethan4 #masscelldisease #chronicpain #chronicillness #chronicillnessadvocate #chronicallyill #spoonie #spooniesisters
Took Finley to the field round back, as he's had no stimulation all day bless him. The stars are INSANELY clear tonight. My phone couldn't manage a decent pic though 😞 Hey, even though there's only 1 INCH difference between my new wheels & my old ones, the improvement is crazy!! Not only do these bigger wheels make it easier for Lyle to push my chair, but they also handle potholes & grass much easier...how crazy is that?! I might save up to get some good 8" wheels (these are just from my rollator!), but for now I'll just enjoy the improvement & hope they don't break on me 😂 #Labrador #puppy #dogwalk #ilovemyboyfriend #chronicpain #chronicfatigue #chronicallyill #chronicillness #POTSsyndrome #disabled #disability #spoonie #actuallyautistic #asd #aspergers #hypermobile   #sicknotweak   #wheelchair #dysautonomia #potsie   #bipolardisorder #bipolar
Grapes would have to be my favourite fruit. Not only because they are sweet & delicious & easy to eat anywhere, but because of their tremendous healing power. A mono fruit diet of only grapes is excellent for cleansing, detoxifying & healing the body. They are astringent & extremely alkaline, which makes them powerful for drawing out acids/toxins from the body. Dr. Morse has excellent YouTube videos on DETOXIFICATION & HEALING CRISIS, so if you wanted to embark on anything like this, may I suggest that you watch these first. Then you will understand how powerful these little beauties are & exactly what to expect. 🍇👌
Yesterday I had a really bad chronically ill day so I had to take it off. Today will also be a rest day. Justtttt in case. Lol. In the meanwhile, here's eevvee's arm cover and the necklace! Very close to being done. Maybe if I have enough energy I'll work on some of the smaller bits tonight. Keeping my fingers crossed. :3 Design by: @_sunsetdragon_ #sunsetdragon #cosplayer #cosplaygirl #cosplayersofinstagram #cosplaygirlsofimstagram #cosplay #eevee #mermaid #pokemon #pokemoncosplay #eeveecosplay #wip #handmade #dragoncon #dragoncon2018 #chronicallyill #chronicillnesslife #chronicillness #fibromyalgia #fibro #hashimotos #autoimmunedisease #chronicillnesswarrior
Some encouragement for those fighting battles that are not always visible. We are all warriors at some point just know “you got this”
Tw.............. . . ... Because I thought I was worthless. A waste of skin. A money pit. A burden. I was trying to figure out how to hang myself with my bedsheet each night. I'd wanted to die for so long I didn't know how to live at all. Compliments felt like burning nails stabbed into my useless heart. Things are better now but I will never forget that #trauma . #psychosis is very traumatizing. . . #rheumatismproblems #rheumatoidarthritis #majordepressivedisorder #majoraccomplishments #juvenilerheumatoidarthritis #momlife #chronicallyillmom #chronicallyill #postpartumjourney #postpartumedepressionisreal #postpartumOCD #postpartumpsychosis #ppd #substanceabuse #substanceabusecounseling
Hello plastic throne. #chronicillness #chronicallyill #queer
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