#chronicIllness

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Birthday 🎁 Loot from my monster! I ❤️ him so! .....All self care related cuz ya know! #MCM ⠀ new leaf 🍃 health tracker... already reducing stress & re-programming cycle to match moon cycle @GetBellaBeat Turmeric Latte, helps with clarity in brain fog from @TheGingerPeople (which I am currently perfecting my rainbow 🌈 steamed milk designs in) & a new anxiety relieving weighted blanket @ynmhome ! #spoiled #birthdaygirl #turmeric #raredisease #chronicillness #invisibleillness #ureacycledisorder #zebra #weightedblanket #bellabeat #spoonie #butyoudontlooksick
Lunchies! @amygetsbetter the best ‘sausage’ rolls 🤤 Sorry I haven’t been posting much. Ive not been feeling well and have been in a lot of pain since moving 🙈 and am having a lot of trouble with the Drs down here being unwilling to prescribe me ivabradine without another referral to the local cardiologist who failed to diagnose me with POTS in the first place #anorexiarecovery #edrecovery #quorn #quornsausages #eatittobeatit #chronicillnessawareness #potssyndrome #pots #posturalorthostatictachycardiasyndrome #eds #ehlersdanlossyndrome #ehlersdanlos #cfs #chronicfatiguesyndrome #chronicpain #chronicillness #chronicfatigue #chronicillnesslife #spoonie #spoonielife #spoonieproblems
Haircut and then back to bed to recover! 😏 #chronicillness #chronicpain #spoonielife
One of the worst things about my ‘sick’ time was the plain not knowing. Not knowing if this thing or that would make me feel worse, not knowing how to make myself feel better. And of course the not knowing impacts your mental health so you become a bit scared – a bit scared of going out, a bit scared of trying to exercise…a bit scared of everything, really. ⠀ ⠀ Because if your body’s rebelling, it throws everything else in life out of whack. The diary was the key for me: I gave myself the knowledge I have now. I found my trigger foods and situations and I know as long as I avoid them, I’ll be 💯. Don’t you want to know too?! www.thefooddiary.co⠀ --⠀ PS: I know this picture doesn't correspond to the caption at all, but we were fostering a cat for a little while and she plonked herself down in in the middle of my photo sesh and I just loved it 😍💓⠀ ⠀ º⠀ º⠀ º⠀ #takecontrolofyourhealth #thefooddiaryco #fooddiary #ibsdiary #ibs #irritablebowelsyndrome #ibslife #glutenfree #coeliac #lowfodmap #fodmapdiet #catsofinstagram #chronicillness #spoonie #foodintolerances #tummytroubles #autoimmunediet #flareup #crohnsandcolitis #digestion #choosehappy #becauseitworks
Just had my hair cut in preperation for the holiday. I was surprised by how much was on the floor at the end! My hair grows quickly and is quite thick as well. #haircut #hair #edrecovery #fibromyalgia #myalgicencephalomyelitis #cfs #chronicillness #chronicpain #holidayprep #spoonie
I didnt leave moms side last night, I kept alerting to her anxiety and tried to comfort her while she slept. I laid so close to her that I had to be touching her at all times. She may have had a moment of weakness last night, but even the strongest people are allowed to. You have to understand, my mom was emotionally, mentally and physically abused for 27 years. She wasnt allowed to feel or she would get yelled at and abused more. It was a trigger for her #Narcissist . And this person used her emotions against her constantly. So to actually be able to feel emotion, and work through them without scruitny is a very different experiance for mom. And she already tries to be as transparent as possible. • • Meet our Pawtners!: @captain_morgan_celebripup @thetornadodawgs @super.dorkie.gizmo @dexterthegermanservicedog • • Tags: #ServiceDog #MedicalAlert #ChronicIllness #ServiceDogsOfMichigan #PTSD #AnxietyDisorder #CysticFibrosis #LiverDisease #PrimaryBilinaryCirhosis #LiverFibrosis #PepticUlcerDisease #IBS #VanishingBileductSyndrome #SevereEndomitriosis #AdoptDontShop #AdoptADogSaveALife #Pointer #Boxer #Whippet
Say hello to our new volunteer Jason. He's supporting our residents with activities!. He's only been with us a week and he's loving it already!. If your interested in volunteering with us please click the link in our bio for more info.
“The results aren’t happening.” “Why aren’t my results showing up yet?” “Nothing is changing.” . This ☝🏼is the reason you take photos of yourself during your fitness journey. These photos are just one year apart. And oh my, how far I’ve come .... physically, mentally & spiritually. . Results do NOT happen overnight. For nobody. You have to WORK HARD day in AND day out! You have to show up for YOU! . #workoutroutine #workoutmotivation #flashbackfriday #workoutresults #showupforyou #selfcarefirst #pcosawareness #chronicillness #gastroparesis #pcos #liftingladies
Today I did #SomeNotNone and made an embroidered birthday card for a friend (see it in my stories). I have so many bigger embroidery ideas but a small goal meant I actually made something today. / We often need reminding to start small and actually get on and do some creative things. On my stories people are sharing what creative things they will try the #SomeNotNone strategy with this weekend. So far ideas have related to decopage, painting, and collage. What might you work on? I am really excited to hear in the comments and stories 💛. I have included how to use #SomeNotNone to help you do more creative activities in my Get Creative book. I am offering a money back guarantee with my book. If you find it isn't for you right now I will happily refund your money. For the rest of the month my newsletter subscribers get a 20% off code (dm me your email address if you want to join). / Image2: When we have minimal spare energy so many things we enjoy stop featuring in our life. But choosing to embrace #SomeNotNone you can zoom in and create a goal that is realistic and then set about achieving it.  Finding the energy and headspace for extra things is hard but doing 5 or 15 minutes a few times can feel satisfying if we let it even though we want to do a 'normal' amount. / My #SomeNotNone strategy means 1)Doing some of an activity rather than giving it up entirely. 2)Working out how to add things to your life to make it more enjoyable and 3)Making ideas smaller so they are more manageable (my #TinyTasks can help here). / Lots of love and energy to you all, I hope your body and mind are kind to you today ❤Claire xoxox Tag a friend who needs to see this post or would enjoy my account 💗. Come visit me at www.chroniclifehacks.com for ideas to make your days with chronic illness more enjoyable
I find that 'how is your fertility?' is one of the first question that people ask me. It is sad that people don't ask me about my pain levels on a daily basis but they will openly ask me about my fertility. #quote #quotes #Endometriosis #anxiety #endowarrior #invisibleillness #1in10 #chronicillness #womenshealth   #reproductivehealth #mentalhealth #Endometriosisawareness #fertility #fertilityissues
Is he right or is he right? These outcomes would be considered unacceptable in any other disease. Why do we accept this with Lyme patients? #lymedisease #lyme #lymediseaseawareness #lymewarrior #chronicillness #chronicpain #cfs #invisibleillness #chronicillnesswarrior #lymelife #fightforacure #fightlikeagirl #spoonie #spoonielife #lymedontkillmyvibe #healthiswealth
I loved this. This is so true. I thought this was funny because I have such a hard time sitting on the couch for long periods of time. I have all this titanium in my neck and a 3rd herniated disc below my hardware. Normally, it's nearly impossible for me to get comfortable and eventually I have to stand. Makes watching a movie with my family very difficult. That's why I LOVE cannabis. It gives me back the big and the little things. ❤️🌿🤘 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . #cbd #cannabis #medicalcannabis #medicalcannabismd   #newagestoner   #cannabispatient #mdcannabis #cannabiscommunity #cannabissaves #painwarrior #chronicpain #chronsdisease #chronicillness #qualityoflifematters #cannabislife #cannabisheals #endthestigma #maryjane #bmoremaryjane
#Repost @themightysite (@get_repost ) ・・・ A friendly reminder from @emilycoxhead that we don't have to do it all, and we don't have to be perfect. @emilycoxhead says: ••• "Social media and general life has this (not so) wonderful way of making you feel all of the above, like you’re not doing enough of *insert whatever here* and that you should feel guilty for not being able to do it all... well I say balls to that. I’ll never aim for perfect, I’m quite happy being totally and utterly imperfect and knowing what I could improve on when I feel like it/get round to it." ••• Tag someone who may need this reminder today. 💛 ••• #invisibleillness #mentalhealth #mentalhealthawareness #chronicillnesswarrior #mentalhealthmatters #mentalhealthday #chronicfatigue #chronicillness #spoonie #spoonielife #mentalhealthwarrior #mentalillness #fibromyalgia #fibro #lupus #PTSD #cancer #disability #ehlersdanlossyndrome #potssyndrome #endometriosis #endowarrior #depression #anxiety #crohns #themightysite
DAY SEVEN Most frequent asked question number TWO: how long does it take for you to draw an illustration like this? Answer: the actual drawing, around 10-14 days, but the research of the area takes longest, usually people commission me to draw areas that I am already very familiar with, otherwise I'll be so obsessive I need to learn about every building, every shop, every tree species, and find all the possible maps and aerial photo 😹 Day seven also includes I'll run around the village around three times after breakfast and lunch hahahah to "observe" and sketch ------------------------------------------------------------------#art #illustration #picturebook #interiordesign #vscojapan #beautifuldestinations #lonelyplanet #creativityfound #darlingmovement #thatsdarling #pbhk #studio #catsofig #poodle #fitspo #freelance #hkig #livefolk #絵本 #morningslikethese #run #t1d #spoonie #chronicillness #mytinyatlas #dream #nature #美術館 #大地の芸術祭 #sea
Mein Magen fühlt sich wieder besser an, will ihn aber noch nicht überfordern 😇 also gibt es wieder warmen Reisbrei mit Mandelmus, Ahornsirup, pürierten und nicht pürierten🍌 und ein bisschen leckerer 'Deko'😋 . My tummy feels better, but I don't want to risk anything😇 so it's just some warm ricemeal, almond butter,maple syrup, mashed and sliced 🍌...and some 'decorations'🤗😋 . #josiesglutopia #josieslifewithcrohns #morbuscrohn #crohnsfighter #crohns #crohnie #cu #colitisulcerosa #ced #ibd #zöliakie #celiac #glutenfrei #glutenfree #chronicillness #lifewithchronicillness #invisibleillness #chronicfatigue #spoonie #spooniesisterhood #cleanfood #healthyfood #nourishbodyandmind #selfcare #achtsamkeit #mindfulness #staystrong #butyoudontlooksick #livethelifeyoulove #glücklichmitzöliakieundmorbuscrohn
Taken from an excerpt on The Mighty, regarding rage episodes in people with Borderline Personality Disorder. I was doing so well... But PMDD & exhaustion turns me into a monster every time. 😭 . . #chronicillness #mentalillness #chronicallyill #disabled #mentalhealth #chronicfatigue #borderline #bpd #borderlinepersonalitydisorder #eupd #borderlinerage #rage #anger #raredisease #abuse #survivor #metoo #pmdd #ptsd #neurotypical #anxiety #depression #struggling #adultadhd #stress #bpdrecovery
ME: Yang angle na payat ako ha.😒 RENZ: Say no more! 😏
Hoping this video will be up on the weekend, about my crohn’s journey, if you can’t wait go check out my blog, link in bio #vlog #blog #crohnsdisease #malabsorption #bilesalts #myjourney #diagnosis #crohnsdiagnosis #chronicillness #chronicpain #chronicfatigue
Some of our Volunteers from @cityandguilds yesterday with Stephen
Hoping this video will be up on the weekend, about my crohn’s journey, if you can’t wait go check out my blog, link in bio #vlog #blog #crohnsdisease #malabsorption #bilesalts #myjourney #diagnosis #crohnsdiagnosis #chronicillness #chronicpain #chronicfatigue
This was me about two years ago. I had become a single parent in early 2016 after a bad situation. I faced difficulties as a non-EU expat, but ultimately got to stay in the UK to raise my daughter. I was eager to go back to work and improve our life, but I knew it was important not to to disappear to off to long working days given that my daughter’s other parent had exited her life. When she was eligible for 15 hours of childcare every week, I started taking the train into Leicester to take classes as a prelude to returning to work. I had my own flat for us, food on the table, and a working body that carried me everywhere I needed to go for us. Everyday, I walked at least 2 miles, and some days about 7. I found clothes at charity shops, and had furniture sent from Amazon paid for by my old coworkers. When I could afford it, we would take the train somewhere nice. Life had begun again for me. #singleparent #survival #stress #chronicillness #mysteriousillness #rashes #cfs #chronicfatigue #swollenlymphnodes #debilitating #lymedisease
This weekend I'm going to practise some self-care. I'm planning to have a few warm baths, put a mask in my hair, and avoid talking to everyone as much as I can. I'm also hoping to finally work up the courage to try acupuncture or cupping. Does anyone else have a plan for the weekend? #exhausted #selfcare #invisibledisease #psoriaticarthritis #drained #chronicillness #chronicpain #spoonie
Happy Friday everyone! Why not start your weekend on a positive note, spare 2 minutes to become a hero! Become an organ donor! 💗 #EndTheWaitingList #positivevibes
Blood draw selfie! 20 minutes in and out and hats without and appointment. Let’s see how low my #vitamind is because I have to supplement or I’m never at a healthy number and it doesn’t matter how much fortified food or time I spend in the sun. Once you’re deficient , you’re deficient. Next stop @panerabread . #chronicillness #depression #anxiety #ptsd #panicattack #mentalhealth #mentalillness #reclaimhope
I had a really good run with getting dressed lately - I went 11 whole days where I got dressed every single day! This is unheard of. I haven’t done this for over a year I don’t think. So that’s really positive! 😁 Today I’m crashing so staying in my cute 🦄 jammies. Comfort is key + the cuteness just makes it even better. 🌸 What’s your go to comfy clothing for flare days? Interested in hearing other suggestions for days like these! 📷 @cappuchinnu @neeshcomics • • • [image description: a comic drawn on a white background of two smiling women standing up side by side. They are drawn in different styles - the woman on the left is by @cappuchinnu and the one on the right is by @neeshcomics. The one on the left has a long black braid, glasses, and is wearing pink pyjamas with her arms up in the air. The one on the right has pink hair and is wearing a large oversized t-shirt and slippers. Above their heads in plain black text it says “PYJAMAS VS. T-SHIRTS”]
Lots of molting going on around here. Is it normal for a rooster to lose all of his wing feathers? We've gotten 5 more since this picture. My gut says they aren't well (because it seems all we do is one illness to the next) but I don't know where to start. Our feed store has Rooster Booster back in stock today so I'm hoping that and a de-worming will be a good start. #brahma #molting #chronicillness #ilovemychickens #freerange #crazychickenlady #chickenenthusiast #instagood #makesmesmile #cutepets #farmgirl #farmlife #urbanchickens #farmkids #naturalremedies #chickensno #chickencuddles #chickenpeople #babychicks #freerangechickens #backyardpoultry #lapchicken #happychickens #chicken #chickens #mothers #c #love #beautiful
Happy Friday friends ❤️!! Today I went for my first acupuncture appointment, and other than having several needles stabbed into my arms, legs and head it was pretty relaxing. Has anyone else tried it?? #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #mecfs #mecfsawareness #cfs #mecfsproblems #mecfssucks #chronicillness #millionsmissing #millionsmissinguk #spoonies #spoonielife #blog #blogger #bloglife
Vandaag met mijn lieve vriendin @jelskemarit gehad over eten👩🏻‍🍳. En dan vooral eten om op gewicht te blijven want wanneer we dit niet doen, vallen we echt zo snel af! We zijn er achter gekomen dat ons lichaam constant aan het vechten is tegen de ziekte MS, zelfs als wij niks doen, en toen kwam ze met de goede vergelijking: alsof we elke dag een marathon lopen (zo vermoeid zijn we in ieder geval💆🏻‍♀️) Zo treffend!😱 voor sommigen is het een ‘droom’ om te kunnen eten wat je maar wil maar dat ‘eten’ kan je ook tegen gaan staan wanneer het een ‘moeten’ wordt. Soms ben ik te moe om te eten, te moe om er uberhaupt over na te denken en raak ik zo gefrustreerd met als resultaat dan maar niks en dus: gewichtsverlies. Dus lage bloeddruk, haaruitval en nog meer kwaaltjes. Gelukkig heb ik een lieve vriend die mij steunt en familie die mij er graag bij helpt om lekker te eten🤗💕
We're posting our new sales brochure to LUPUS UK members today. It includes our range of new #ChristmasCards and other #gifts which are all available to order online at www.lupusuk.org.uk/shop #lupus #lupusawareness #sle #discoidlupus #invisibleillness #chronicillness #charity
What alternative therapies do you use for your pain? When my analgesia fails me (codeine, paracetamol, ibuprofen, naproxen, buscopan), I do whatever else I can do try and reduce my pain! This means heat packs on my back and belly, emptying my bladder and bowels, peppermint tea, magnesium gummies, turmeric gummies, a TENS machine (I’m a huge fan of the @myliviaofficial ) and deep breathing/mindfulness! Share your tips and tricks! . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . #endometriosis #endometriosiswarrior #endometriosissurgery #endendo #endometriosisawareness #selfloveclub #lookaftereachother #spoonieproblems #lookafteryourself #surgery #itsokaynottobeokay #itsokaytoaskforhelp #gynae #gynaecology #medicine #chronicpain #chronicillness #naturalbeauty #notjustabadperiod #pcos #polycysticovariansyndrome #adenomyosis #adenomyosisawareness #abdopain #laparoscopy #health
It’s Cash App Friday! If anyone out there can help me, I would be eternally grateful! I’m living on social security disability, and still cannot afford my meds, and sometimes groceries. Please help if you are able! 💜💕 . . #chronicillness #medication #groceries #cashapp #cashappfriday #donations #pleasehelp #chronicallyraven
Eddie and spent some time outside today. My pain has been okay again today thank goodness. Feeling good is good. . . The sun is sooo amazing for rejuvenating the soul. After hanging the sun hangs I had a steam bath. Extra rejuvenation right? 😍😍 . . I’m feeling good, happy and chill then endometriosis rears it’s ugly head. What a fun roller coaster today has been. 🛫🛬 . . Can’t wait to start again tomorrow and see what this new inspiration brings me. . . . . . . . . #endometriosisawareness #endometriosissucks #dailyfight #chronicpaininmyass #chronicpain #chronicillness #womenempoweringwomen #killingitdaily #futuresuccessstory #abundanceoflove #happylifejourney #freedomwithtime #happywellnesssearch #jointhejourney #watchmebethebest #silverhairdontcare #silverhair #silverlove #bleachsuccessstory #milkshakehaircare #milkshakehair #milkshakehairofficial
Too funny! This is so true! I'm obsessed with that show, but the script does get a little annoying. I just like to see how it would be to live in another part of the world. . . . . . . . . #househunters #househuntersinternational #timetomove #movingabroad #moving #hgtvaddict #currentmood #chronicillness #chronicallyill #chronicpain #invisibleillness #lymedisease #lymedontkillmyvibe #fibromyalgia #spoonie #endometriosis #endosisters #mecfs #eds #multiplesclerosis
A common theme I hear weekly with my coaching clients is they struggle with bloating. Checking in loud and clear with having SIBO and still working on healing to this day. I’ve been on my SIBO journey for quite some time. Here’s what I know to be true for me, I’ve done a lot of SIBO treatments 9 to be exact. I play with my fodmaps weekly. The food I rotated in this week was tomatoes and let’s just say my body isn’t quite ready for this yummy fruit. My SIBO numbers were the highest my Functional Medicine Doctor has ever seen in her practice and this is pretty much all she does. I’ve been an athlete my entire life and I now know without a doubt that adhesions do have something to do with it. I’ve played with different exercises and every single time I work my core or any other trunk rotation exercise I experience symptoms the next few days like I’m relapsing from the sheer force of my fascia adhesions. What is Fascia?! Fascia is a type of connective tissue that forms a continuous body-wide web inside of us, surrounding and interpenetrating all of our muscles, bones, organs, nerves, and blood and lymph vessels. In fact, in addition to forming the architecture that weaves our inner structures together, our connective tissue system as a whole also absorbs and transmits force inside of us, working in conjunction with our muscular system to create smooth, efficient movement. It’s primarily collagen, beneath the skin that attaches, stabilizes, encloses, and separates muscles and other internal organs. You will get fascia tears from injuries, surgeries, broken bones as well as a consequence of surgery anywhere in the body. Scars are a natural consequence of healing and repairing damaged tissues. As I understand fascia more and tune into what my body telling and work with my wellness team I am now starting to put to the pieces together as to why I continue to relapse. # As far as bloating for me here are a few tips I use weekly to help me reduce the bloat! # MORE IN COMMENTS ⬇️⬇️⬇️
It’s nearly the end of Urology awareness month and I have discovered a catheter in my favourite colour and funky coloured valves! 😀. Going to admit this cheers me up a bit, I had to change it again because the UTI type pain started again :(. Right now my catheters dont last nearly as long as they should and they get stuck every change. I am also having to change at home as the #hospitals here have stopped using female length catheters because nurses were putting them in males... people don’t usually think this is a big deal but the normal length ones are so long and for a short*** smallish woman they are massive. (Down to my knees without being stuck down!) are just silly. Why have the #nhs not retrained the nurses instead?? It HURTS when they get caught and seems rather sexist. So... a rough point of the day so far but feeling much better now that it is changed! Roll on November to see what’s happening with Urostomy. #urology #neurology #neurogenicbladder #catheter #spc #suprapubic #foley #bladder #medical #ehlersdanlossyndrome #eds #gastroparesis #chronicillness #chronicallysick #chronicallyill #chronicpaim #ME #cfs #tubie #urologyawarenessmonth #spoonie #spoons #butyoudontlooksick #stretchmarks #mylife #stoma #tattoo
Chocolate mousse is often a go-to dessert for me, and @aria_birmingham make this, which also has mint sorbet tucked in that little chocolate cocoon...and there’s no coming back from this 😄😋 yummmm x
(Ok so kinda gross pics after the first one btw) With that aside, hi I’m Sam I’m 15 and I have hEDS and some other things but hEDS affects me the most. I also have a passion for pole vault which is kinda difficult when you have crappy joints (all you other EDSers where you at.) A year ago I had surgery to repair my tfcc after I tore it(last pic), I also recently had my cast taken off my thumb because it would dislocate if a gust of wind blew on it, it even dislocated while IN a hard cast!! For now there’s no more splint on it because according to doctor and the parents I’m “faking it and if I’m happy my thumb will stay in” sooo wtf. I’ve had a good lot of surgeries and am trying to avoid a thumb fusion:) my most problematic joints are my shoulders, hips, thumbs, knees, and wrists which is kinda an extensive list, but what can ya do. Anyway that’s enough for now and that is some of me:) #ehlersdanlossyndrome #eds #heds #polevault #tfcctear #chronicillness
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