#chiari

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Seguitelo il Dott. Malone ♥️ Esercita nel campo della neurologia per i bambini 😆uno spettacolo vederlo con i suoi pazienti 🔥 un angelo 🤩 #Repost @t_malone3 ・・・ Girls run the world 🌎 especially this one. Let me tell you she has a Heart of Gold and the wheel of a fighter. She is the true meaning of courage and bravery. With her magnificent parents, this little lady can do anything. She has the 👀of a🐯 ▫️ ▫️ ▫️ ▫️ #neurology #runtheworld #girls #cerebralpalsy #physicianassistant #neurosurgery #nurse #doctor #cancer #chiari #hydrocephalus #patientadvocate #lipsync #spinraza #sma #patient #instagood #pacu #dance #MrNeuro #nicu #aapa #picu #bowties #bowtie @beyonce #neurology #pacunurse @chocchildrens @theshaderoom @chopdaily #dance #dancer @theellenshow @beyonce.jayz @beyonce904 @freehugsproject.tv
Arnold Chiari awareness month! AND...my surgeon was the best, so if anyone needs a neurosurgeon recommendation, let me know #arnoldchiarimalformation #chiari #typeone
Got purple? Did you get one? Did you win the cookie bouquet? Great turnout for the Conquer Chiari 5K Fundraiser yesterday. . . . #chiari #chiariawareness #chiariwarrior #chiaricookies #purpleribbonwarrior #cookies #empowersocial #fortmohave #bullheadcity #laughlin #lakehavasu #needlesca #kingman #oursweetstudio #shoplocal #womeninbusiness #veteranowned #cakecents
Vuoi dimagrire? Chiamaci! Fisseremo per te un appuntamento per un programma alimentare personalizzato abbinato al nostro protocollo “Weight Loss”. La prova é gratuita!!!
One of the more annoying new symptoms I have been battling for last year is weakness in my feet. My right is the worst and I have been documenting the decrease in movement I have. This is my recent one I took after my foot was feeling really off. For someone who used to be a dancer this is quite a decline in the amount of movement my toes could do. Thankfully with my new set of doctors one has finally sent me to get a range of nerve conduction test. Sheldon has also taken to lying on it (thanks). #chiari #feet #syringomyelia #ehlersdanlossyndrome #potssyndrome #occulttetheredcord #dysautonomia #cci
Tripped when trying to climb the concrete steps. Concussion? It happened a couple of years ago.no loss of consciousness. Very disoriented. Photophobia Hypersensitivity to noise. Vision a bit blurry. I had intended to bring my cane today but forgot. #femoroacetabularimpingementwarrior #spoonie #spoonielife #spoonieproblems #spooniefamily #spooniewarrior #spoonieprobs #spooniecommunity #spoonieliving #spooniestrong #tetheredcord #tetheredcordsyndrome #syringomyelia #chiari #chiaristrong #chiariwarrior #degenerativediscprobs
Our sweet Reese suffers from central sleep apnea. #chiarimalformation #chiari #chiariwarrior #chiarisucks #chiarilife #chiariawareness2018
We don't want to "save you" rather we want to teach you how to save yourself #CIAAGStrong !
Occhiali Trussardi: leggero,semplice e di tendenza! 🐕 @trussardi #trussardi #galileo #derigo #occhiale #glasses #look #likes #chiari #brescia
La disperazione nel veder fallito l'assalto al WR di Kipchoge per pochi secondi, ricordandosi poi di aver fatto solo 12 km. Du Pass Per Ciare 2018 ✔️ #Run #12 #Km #Visioni #Al #Traguardo #Kipchoge #Wr #Race #4 #Avis #Chiari #Villa #Mazzotti #Sunday #Morning #Brescia #Italy
Vicolo Carceri
This little boy is so amazing, strong, smart and incredibly sweet! He has such a light to him! Whenever him and his family walk into a room the whole room lights up with smiles and laughs! They are all so brave and strong! I’m so happy I met them! Thank you guys so much for being there for me even when I am being a brat :)<3 #Chiari #hopekids #relentless
It was so great to make it to #conquerchiari walk today with my team! My team is small, but it's the best team ever!! As we walked, I ran into my sign which was made for me and I didnt even know that they were doing this!! I cried seeing it. When I registered for the walk, I created my group which I called Anna's fight so that anyone who I invited registered they could register in my group. But I had no idea I would be seeing my name there as I struggled to walk it. And was happy to join kellye who was there walking for her late husband. #chiarimalformation #awareness #chiari
Here’s the link to watch Niagara Falls go purple for #chiariawareness tonight! https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str #chiari #conquerchiari
I got very emotional when a fellow chiarian presenter Kimber with this survivor ribbon. I think it made it even more real than it already was. #chiarimalformation #survivor #brainsurgery #brainsurgerysurvivor #chiari #chiariwarrior #chiarian #zipperhead #fighter #littlegirlbigbattle #brave #shemakesmebrave #iwearpurpleformydaughter #kimberstrong #fightlikeadragon
His Amazing Grace is so undeserved, yet He is willing to give it freely. I’m excited that this operation is the healing and not the battle. There is HOPE for all Chiarians! Jesus Christ is the way, the truth and the life! Chiari will be defeated! Jesus is the healer🌿 . #amazinggrace #hope #healing #surgery #brainsurgery #spinesurgery #chiari #chiarimalformation #chiari1malformation #christian . https://crownedforglory.blog/2015/05/31/chiari-journey-amazing-grace/
We were so proud to donate the signs for this event. Giving back is so important to us here at Monarch! Please learn more and donate at: Http://conquerchiari.com
What do you mean I can’t go outside? I just got home and the latch on the screen door is broken. Under “Marshall Law” (rules I make up for myself) it means I’m free to go! It will give me something to do while the feed me/change me person unpacks!💕 Marshall #wonsieambassador #welovewonsie
Ha sido un verdadero placer conoceros y darme la oportunidad de vivir ésto con vosotros. No tengo palabras y solo os deseo lo mejor de lo mejor con Luces...porque lo merecéis. Por el trabajo,por la ilusión y por dedicar ese pedacito de tu obra a la malformación de Arnold chiari, y por la parte que me corresponde. 1000000000 GRACIAS Enhorabuena por éstos premios merecidos❤️ . . . . #luces #filminfest #luces #chiari #premios #festival #loveit #happy #orgullosa @bluetearproducciones #nitdelart
The ONLY way I have made it this far is because of the blessing of a loving #family that has put up with all of the situations I have faced. I hope I remember to say 'thank you' as often as I think I do. Our #caregivers are the best around and we love you! #chiari #chiarimalformation #braininjury #memoryloss
So many beautiful people came out to support miss Bebe and her group of #chiarimalformation warriors💜💜 Thank you for having me! #nudgepudge #bullheadcity #chiariwarrior #chiarisucks #chiari
⚠️GOFUNDME LINK ⚠️ ➡️ BIO @sarahgolden_olly ***Please everyone my mum desperately needs your help. I can’t even be here to comfort her anymore but she’s in desperate need of life saving brain and neck surgery. She did all she could to save me, every little thing possible! Even if you can’t donate anything (worldwide donations are available) then please PLEASE share with everyone you know. Facebook, Twitter, anything... on my gofundme page you should be able to find a video of me and see just how sick I am. Well I am worsening every week. It’s vital I get these operations done ASAP and this huge amount of money seems like it’s an impossibility. But with your help and help of others, I could get the life saving operations I so desperately need. I am also a registered charity now so please get your colleagues and bosses involved if you can, that’ll really help too. Any fundraisers etc, anything at all you can do to help 🙏🏼 Thank you so much and god bless you all 💜*** #gofundme #donate #pleasehelp #donations #getwell #usa #england #australia #newzealand #canada #mylife #needhelp #sick #lyme #lymedisease #chroniclyme #illness #fundraiser #needhelp #eds #ehlersdanlossyndrome #awareness #CCI #chiari #chiarimalformation #worldwide #chonicallyill #pots #posturalorthostatictachycardiasyndrome
Numbers don't lie! I grabbed a couple screenshots from my #fitbit app to see just how I slept on my new @bearmattress on night 1. On the left is when I was #sleeping on the #futon and on the right is night 1 on #bearmattress I woke up with less #pain in my hips and realized I hadn't suffered from #nightsweats 🤗 I'll continue #updates 🦓💪 If you want to learn more about bear🐻, check out the link in my bio! #zebrastrong #ehlersdanlossyndrome #occipitalneuralgia #chiari #chiarian #chiaristrong #chiarilife #zipperheads #awareness #cure #hope #spooniestrong #spooniefamily #spoonielife #spoonie #hack
Today we drove to Austin to help support my sister and all the survivors of Arnold Chiari Malformation! My sister was one of the few who had decompression brain surgery and had amazing results. She still has side effects because this disease is incurable. Chiari is so underfunded and under researched! #chiarimalformation #chiariawareness #chiari #chiariwarriors #chiariwalk #ccwaa2018 #austin
Good Morning IG world!! “Happiness is a cat.”
All smiles today with my #chiariwarrior !! He is just taking it all in today almost like he had been in a fog for a long time. He’s singing along to songs, saying new words and just so so happy. I don’t know how much of this is a result of the surgery, but something is changing in him. I’m so proud to be his Mama and witness the joy in his eyes again 💙#chiarimalformation #chiari #lularoe @lularoe #lularoelynnae #chiariawareness #rideforthebrand #proudmom #lularoefamily
3...2...1... 💣WEEK END!!! 💣Iniziamolo al meglio con una bella carica di Crack Pie🤩 💪🏼🌈 . . . #crackpie #eliquid #svapando #svapandorovato #svapandorovatochiari #vape #chillandvape #weekend #sabatosera #sballatidicrackpie #vapeitaly #vapenotsmoke #piazzacavour #rovato #chiari #bontà
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