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One of the more annoying new symptoms I have been battling for last year is weakness in my feet. My right is the worst and I have been documenting the decrease in movement I have. This is my recent one I took after my foot was feeling really off.
For someone who used to be a dancer this is quite a decline in the amount of movement my toes could do. Thankfully with my new set of doctors one has finally sent me to get a range of nerve conduction test.
Sheldon has also taken to lying on it (thanks). #chiari #feet #syringomyelia #ehlersdanlossyndrome #potssyndrome #occulttetheredcord #dysautonomia #cci
We don't want to "save you" rather we want to teach you how to save yourself
This little boy is so amazing, strong, smart and incredibly sweet! He has such a light to him! Whenever him and his family walk into a room the whole room lights up with smiles and laughs! They are all so brave and strong! I’m so happy I met them! Thank you guys so much for being there for me even when I am being a brat :)<3 #Chiari #hopekids #relentless
It was so great to make it to #conquerchiari
walk today with my team! My team is small, but it's the best team ever!! As we walked, I ran into my sign which was made for me and I didnt even know that they were doing this!! I cried seeing it. When I registered for the walk, I created my group which I called Anna's fight so that anyone who I invited registered they could register in my group. But I had no idea I would be seeing my name there as I struggled to walk it. And was happy to join kellye who was there walking for her late husband.
#chiarimalformation #awareness #chiari
We were so proud to donate the signs for this event. Giving back is so important to us here at Monarch! Please learn more and donate at: Http://conquerchiari.com
What do you mean I can’t go outside? I just got home and the latch on the screen door is broken. Under “Marshall Law” (rules I make up for myself) it means I’m free to go! It will give me something to do while the feed me/change me person unpacks!💕 Marshall #wonsieambassador #welovewonsie
Good Morning IG world!! “Happiness is a cat.”