#cfwarrior

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Around 3 months ago I wanted to meet a goal of 300 lbs for the #sumodeadlift so I wrote a 3 month training plan that centered around meeting that goal. Today was the final workout of my plan and I hit my goal. I guess the only thing left to do was to clap 👏🏻 - Now that it’s over, I must say that the sumo deadlift is not a favorite of mine. I prefer the trap bar deadlift the most. I haven’t gone for the conventional deadlift for quite a while. I think I’ll do that one next. What’s your favorite type of deadlift? - - - #deadlifts #strength #stronger #train #fitlife #cf #core #legday #weighttraining #guyswholift #flex #gains #cfwarrior #wod #healthylife #motivation #workhard #exercise #workout #fitness #fitspo #fitfam #fatloss #instafit #dedicated #gym #gymtime
When Noah proposed, the first person I told was my Sami. And I knew in a heartbeat I’d be asking her to be my maid of honor. Before she passed we made plans to use Lavender in the wedding, in any way we could manage. Lavender is the color of the cystic fibrosis ribbon, so I worked hard to make it the standout color in our wedding, especially when we lost her. Given all of our hard work, and the importance of this element, we were devastated when we received our wedding photos and all of the purple had been edited out. Not only did our work seem like a waste, but my heart broke when I realized Sami wouldn’t be included in these special photos like I imagined. - The pictures you see here were taken by my brand new sister, @cassondremae_photography who helped me to keep my vision alive. She offered her absolutely unreal talent to retake wedding photos that we will cherish for a lifetime. Not only did she go out of her way to keep the Lavender details alive, she also sought out amazing women who dressed me up and made me look like a princess. But most importantly, Cassie lifted our spirits and captured our love in these beautiful and fun works of art. I am forever grateful to be part of such a warm and generous family. And I will never forget this magical day💜 📸: @cassondremae_photography 💇🏽‍♀️: @rb_artistry 💄: @cait_bozzone_esthetics_makeup 💐: @chesterhometown135
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Perfect way for a princess to celebrate her birthday 🍾🍩 24 years down and many more to live! #cysticfibrosis #cfwarrior #cysticfibrosisawareness #saltygirl #princess #bubbly #pink #donuts #model #lace #goddess #24yearsyoung Photographer- @angelvarelaphoto
CF is a roller coaster. When you think you’re doing well, your test results say your sick but when you aren’t feeling well...tests come back A-OK. What is that?! First check up at St Mikes today since I got off steroids. Unfortunately, my lung functions dropped 7% which brings me down to a lovely 34%. I’ve been doing 3 KM walks and weights 4 days a week to get ready for the wedding. GOOD NEWS- down 12 lbs in 5 weeks 🙌🏻 keep on, keepin’ on. I’ve added 2 antibiotics to my routine for the next 2 weeks trying to turn this lung function around. It’s only 10 more pills a day...what’s 10 more? 😧 welcome to the day to day changes CF brings. #endcf #cfwarrior #somanypills #antibioticoverload #thankfulformydoctors
I’ve been DYING to post this photo, and now that I finally have this floral bib listed in my shop, I felt like now was the time! . Maxine is the most amazing mama to Indigo, while simultaneously fighting cystic fibrosis each and every day. She’s such a strong, beautiful soul and Indigo is just the sweetest little human- I love connecting with such inspiring mamas up here in Hudson. ❤️ . Maxine’s cystic fibrosis pregnancy story was even featured on @TheBump earlier this year! You can read more about her at https://www.thebump.com/a/pregnant-with-cystic-fibrosis or by clicking the link in her profile. . Thank you @maxinewears_indigo for sharing your story, and your baby, with our tribe! 😘 . Maxine is wearing the Bloom Top Knot Headwrap and Indigo is wearing the Bloom Heirloom Bib. 📷 @turnquistphotography #chelseaandmarbles
If the AffloVest can do this while you are holding a cup of coffee, imagine what it's doing in your lungs! #Sponsored by @biophysicscorp
Research is being done at the McGill university health Center on an infection called pseudomonas, and this infection affects many people who fight CF everyday! Today I went on the news for interview, to help continue to raise awareness for CF! This new research gives me hope to keep fighting, and reminding me one day we will find the means to kick CF in the butt! 💪🏼💜🌹 #cfwarrior #staystrong #staysalty #cfawareness #awareness #cbc #strength #pseudomonas #65redroses
Oula, ça fait un bail que j'ai rien poster 😱 Boulot à fond. Et ce soir après 4 jours bien chargés, je termine pas une garde samu (20h-8h), le week-end va être dur. Ces derniers temps je n'ai pas beaucoup d'énergie et les garde de nuit m'en demande encore plus..j'aime quand même venir en aide aux personnes mais c'est compliqué. 3 mois que je ne suis pas aller à la salle, mon corps ne suis plus vraiment. Je vais le commander des compléments plus des "booster" en espérant que ça puisse m'aider à reprendre un rythme de training. En tout cas, je vous souhaite une bonne. Nuit et courage à ceux qui travaillent également 😉 Force et courage à vous 💪🏻 #video #gyrophare #ambulance #paramedic #emergency #samu #work #fitfam #fitfamily #fitnessaddict #motivation #transformation #cysticfibrosis #teamshape #teamshapeevolution #cffighter #cfwarrior #mucoviscidose #frenchie #night #passion #volkswagen
Me & Emi-Jo Emily biked across the “Bumbleville Bridge...” #bike2breathe #fightcfwithBEF #rockCF #cfathlé #cfwarrior #curecf #cysticfibrosisfighter #boomeresiasonfoundation
Follow me and let us fighting together against Cystic Fibrosis 👊 This picture is from my last 6h-race No human is limited (Eliud Kipchoge) ________________________________________________ #cf #mukoviszidose #breathe #cfboy #cfman #lovetobreathe #cfawareness #65roses #chronicillness #beatingcf #cfwarrior #illness #lungs #justbreathe #mukoman #mukoboy #saltysquad #cfer #cfstrong #lifeisgood #fitwithcf #blogger #munich #happy #superhero #runnersofinstagram
"It's not about being the best, it's about being better than you were yestarday." As most of you know I have CF which comes along with many other health issues. I've felt like a zombie for the last two and half weeks, but Tuesday I decide to go shoot reguardless how I felt because I knew it'd give me a chance to improve myself anf it did. I challenged myself with lighting and not posing her to much. --------------- #shannelspeacefulphotography #localphotographer #cysticfibrosis #teacherslife #familymatters #cyster #cfwarrior #cfawareness #breathingexercises #cfshannel #photolove #photolife #aestheticshot #colorfulworld #urbanartist #naturecaptures #naturephotos #wildlifeaddicts #flowerphoto #floral_splash #couplesgoals #couplephoto #engagment #weddingphoto #beautifulwedding #kidsphoto #vogsmask #cfdontstopme #childrenofinstgram #breatheinbreatheout
It’s been way too long since I’ve climbed! It felt good to get back on that side of the gym... although my forearms protested loudly! #ninja #anw #ninjatraining #cysticfibrosis #cfwarrior #cfwarriorninja
Guys! There's ONE day left on this campaign! $25 per shirt in many sizes. Remember 100% of my proceeds go towards my lung transplant fund! The link is in my BIO!! #TransplantLife #GetZitaNewLungs #FuCF #CysticFibrosis #CFlife #Dreamers #DonateLife #Fundraising #CFwarrior #65roses #BreatheEasy
🌟And bonus!🌟 We’ve added a Sprit Shop to the website! We have necklaces, bracelets, and even tassel earrings that are completely customizable to show off your team’s colors! 🏈🏀⚽️
🍁IT’S HERE!🍁 . . . Fall is upon us and temperatures are dropping (except in Charlotte, NC 😂), but never fear... Sel de Vie is ready to help keep your style cool as the seasons change! We are incredibly excited to bring you five new jewelry collections, each honoring a brave CF warrior. Without further ado, we would like to introduce you to our Army Neutrals Fall 2018 Line!
«S’il y a bien une chose que j’ai apprise au cours de tous ces entraînements, c’est que nous sommes toujours meilleurs que ce que nous croyons.» #sportaddict #fitness #sportsgirl #runninggirl #runneuse #running #cftr #cfstrong #muco #mucoviscidose #basicfit #gastroparesis #justbreathe #cfwarrior
Help me pray for 2 women that are at Shands in Gainesville, FL today. Both are friends of mine thru FB and are members of our transplant family support group. “J” just received her 2nd set of donor lungs and is in ICU after a successful 2nd transplant. The next 72 hours are critical for her. “A” is being taken to the OR soon to undergo her 2nd double lung transplant as well. She’s been battling AMR (like David) and is going into this 2nd transplant very weak. Pray her body is strong enough to survive and that her body will receive these new lungs better than the last pair she received. In both cases, please take a moment to remember the donor and their families. If you haven’t registered as an organ donor, please consider doing so. So many are in need and waiting. You can’t take them with you when you leave. Recycle yourself ♻️ Donate Life ♻️ Donate blood ♻️ Donate plasma ♻️ Donate platelets #cf #cysticfibrosis #cysticfibrosisawareness #organdonorssavelives #doublelungtransplantrecipient #cfsucks #donateblood #donateplasma #organdonor #lungtransplant #lungs #donateplatelets #donatelife #recycleyourself #breathe #breatheasy #cfwarriors #cfwarrior
Both wearing jeans on #jeansforgenes day. 👩‍👦👖👖@jeans_for_genes @cftrustuk
I honestly don’t know what life was like before I discovered @dailyharvest ~ Cystic Fibrosis not only effects the lungs, but other areas of the body too. My body doesn’t absorb nutrients that well, that means it’s even more important for me to eat healthy foods. These cups are filled with organic ingredients that are good for my mind, body and soul. I’ll be packing my smoothie to-go and taking the dogs for a walk, it’s a perfect cloudy day!✨You can do a happy dance too! Get your first 3 Daily Harvest cups for free! Use the code: RE-8M78KR6🥑🥒🍑🍎✨
Bit of colobreathe before I head off home from work.... Busy one tonight people remember it's all about the "fitting the meds in" 👍👊 #cf #cfwarrior #cysticfibrosis #colobreathe #neb #pod #life #busy #time #livelong #staystrong #car #hometime #peace #✌️
My Meal Plan for the next 7 days. Those of you who know me, will know this is the least amount of food i have been on since I was a child, and even more noticeably a LOT less Kcal than what I am previously used to. However this year has been a constant battle due to new complications of Cystic Fibrosis Referred Diabetes, with my sugars back in January being 30+ some days. A lot of hard work has gone into bringing them down below 12, and by massively dropping food intake and then slowly building the intake back up to the required level I hope to get over the final hurdle of hitting both consistent single figures and eliminating major post meal sugar spikes. I will now always be on Insulin for the rest of my life, however once I can get this last hurdle down, there's no stopping me again 😉 #cysticfibrosis #cflife #cfdiabetes #cfdiet #diabetes #insulindependent #mealplan #diet #dietplan #healthy #health #medical #longpost #cfwarrior
I might have been 115 soaking wet. In 2014 I started my fitness journey. I have put on 55lbs of muscle and the last 2 years I've learned more on how to improve the body to grow the way I want it to. Some people say "oh it's genetics". Well I know I worked my ass off, went through alot of pain, and have stayed dedicated to this life. In the end I believe heart will outweigh gentics. Having cystic fibrosis plays a huge role on not gaining weight. Eating 3500 calories a day and 4-5 meals a day was not easy. Now it's a lifestyle and if I don't do everything ive been doing these past 4 years then I feel like I'm failing myself. Anyone out there that is dealing with cystic fibrosis or any other ilness all I can say is fight, fight till you can't no more. Do not let you I'll as definine you, where you are going in life, who you want to be with, don't let anyone tell you you can't because of you illness. You deserve to try and when you have given it all you got and still far short, you won. The doctors told me I would have made it to 10 maybe, well that was 35 years ago. Nobody can take God's plan away from you but you. #cfstrong #cfwarrior #fitnessislife #cysticfibrosis #nevergiveup #nopainnogain #fightforacure #fighttobreathe #curecysticfibrosis #cffamily #cfstrong ##doctorstreatbutGodheals #Godfirst #fitlife #fitnessgoals #musclebuilding #mensphysique #musclegrowth #neverquit #failureisnotanoption #cyaticfibrosisfoundation
Do you know why we say #singforyourlungs ???? Well, here is a #FBF of Sean front and center🎶 #theroomwhereithappened #workthoselungs #cysticfibrosis #CFwarrior #takethatCF 🎤
Hair cut done! Feeling fresh, I get it done every two weeks (usually) if you look good you feel good, if you're feeling a bit rough, and a bit down go out get a new top, shoes, hair done, nails whatever it is that makes you feel good and puts that grin on your face! #cf #cfwarrior #cysticfibrosis #65roses #fit #fitness #haircut #fresh #feelgood #lookgood #naked #stubble #razor #foil #work #muscles #🙈 #🙄
There are milestones, and there are #CFmilestones . Kalvin, we're so proud of you for setting up your own airway clearance therapy! We're humbled to share your example of courage, strength and optimism with other boys and girls just like you. . . . The Vest® Airway Clearance System. . . . #ourinspiration #cfwarrior #getitdone #cflife #airwayclearance #thevestsystem #thevestairwayclearancesystem #thevest #vest #cysticfibrosis #cf #cysticfibrosisawareness #65roses #sixtyfiveroses #hillrom . . . . #Repost @kristinsolomko ・・・ He did his set up all by himself for the first time. I caught him in the fridge getting out his meds so naturally I went to help, but he insisted that he do it himself. He’s growing up so fast. #kalvinmichael #cysticfibrosis #treatments #cfjedi #cfwarrior
Thanks for the cuppa Eddie! Number two on my list of things I love about having cf - I get to meet some amazing people. Eddie Butler is pretty much the voice of rugby and it’s amazing to have him supporting 24hrs4cf 😉 🏉 #RoadTo1Million #24hrs4cf #CFWarriors - - - - - - #motivation #fitness #fitnessmotivation #cardio #workout #fit #cysticfibrosis #beatcf #justbreathe #cfwarrior #goals #inspiration #fitspo #instafit #fitfam #fitfamuk #train #getfit #physique #core #tattoo #inkedmen #inked #tattoos #inspiration
Humbling experience at @midamtransplant yesterday evening. In front of a monument to honor those who gave the gift of life @barnesjewish @donatelifeamerica #lungtransplant #transplant #curecf #cysticfibrosis #fightcfwithbef #cfwarrior
The promo video for this years 24hrs4cf world record attempt drops on Monday... @buffoonfm have yet again done an incredible job and we’re on the road again this morning! 🙌 #RoadTo1Million #24hrs4cf #CFWarriors - - - - - - #motivation #fitness #fitnessmotivation #cardio #workout #fit #cysticfibrosis #beatcf #justbreathe #cfwarrior #goals #inspiration #fitspo #instafit #fitfam #fitfamuk #train #getfit #physique #core #tattoo #inkedmen #inked #tattoos #inspiration
#ThrowBackThursday - I remember being SO excited this day because they removed the IV from her head and I could finally put a bow on her. The IV got removed because the specialist finally got the PICC line in after the second attempt. Because of all the wires, tubes, and lines I couldn’t even dress her up in all the newborn clothes she had. By the time she was discharged she was almost a month old and a size up. This was also one of the first times I could hold her again after her surgery. Because she had an epidural to control her post-op pain we weren’t able to hold her and pick her up for several days. . . . #cysticfibrosis #cf #meconiumileus #survivor #nicuawareness #cfbaby #tbt #cffighter #cfwarrior #curecf #curecysticfibrosis #sixtyfiveroses
It’s #thirstythursday for the ok family hauler. We love our @ford #f150sport . Gets our #cfwarrior where she needs to go! #cysticfibrosis #curecf @curecfmiami #curecfmiata
“Meet me in St. Louie, Louie!!” We made it!!! @rockcfem and I battled 90+ heat all day exhausted yet proud!! #youcannotfail #cfwarrior #cfawareness #curecf #rockcf #fightcfwithbef #lungtransplant #lungtransplantsurvivor @lungtransplantproject
🌜If you get tired, learn to rest, not to quit🌛- Banksy
~Views from above~ Today was filled with wonderful moments. I spent the day with a great friend and successfully went to 5 different places. (With little to no anxiety) Slowly but surely my anxiety is going away and I couldn’t be more relieved. It has ran my life for too long. I sold a few things on posh/merc which meant I got to see one of my favorite people: Noah, at the post office. Days like today are few and far between, but it’s up to me to make the changes. 🌞Keep your face to the sunshine and you cannot see a shadow🌞
Track & field race. Both kids came in faster than last week. 👍🏻👍🏻#cfwarrior
Chelsea (@Salty_Yogi ) doesn’t let CF get in the way of living her life! Thanks for sharing Chelsea! Share your photos or videos with us by tagging us with #AffloVest
Starting contest pre so went up a little more to feel the weight for the max axle!! Core and triceps need this prep big time!! Feel week on the top but not worried when the time comes!! #cfwarrior #fit #strongman #fitness #cysticfibrosis #cfstrong #strongmantraining #fitness #fitnessmotivation #justbreathe #axlepress
🎶 Yo Ho, Yo Ho, Yo Ho, Yo Ho, Yo Ho You'll love the life of a thief You'll relish the life of a crook There's barrels of fun enough for ev'ryone And you'll get treasures by the ton So come and sign the book Join up with Captain Hook🎶 Pax is going on a a Disney Cruise next month and we're getting her outfits together and I am obsessed with her Captain Hook costume for Pirate Night. #purpleforpaxton #cfwarrior #supertubie #ibdfighter #ulcerativecolitis #ulcerativepancolitis #cysticfibrosis #65roses #curecf #saltygirl #fucf #growingupdisney #disneyside #disney #captainhook #nevergrowup
😱😱😱 it’s taking a while but we are on the way to getting our first month of orkambi 🎉🎉 #quinntessentialcure #cysticfibrosis #orkambi #cfwarrior
I've needed to spend the past few days in the hospital for IV antibiotics. Its a bummer but its my first time in 8 years here and also needing a PICC so I had a great run of being healthy thanks to Kalydeco, excerise, and my CF team. You know they rock when they go for a walk with you so you can get fresh air! All I can say is THANK YOU! To all my CF friends, keep going, exercise, and participate in clinical trials if you can. I did and it made an amazing difference in my life and they truly make a difference to our community. #curecf #clinicaltrials #kalydeco #cysticfibrosis #believe #rockcf #theboltsruncf #thebolts #hope #cf #cfrunner #warrior #cfwarrior #raredisease
You’ve come a long way, not without the highest of the highs & lowest of the lows of course but here you are. 8 years ago when you were first diagnosed I had no idea what to expect and true to your nature you ALWAYS keep things interesting. In these 8 years you’ve taught me more than I could have ever imagined, changed the woman I am & is everything I hope to be. I still can’t believe God trusted me with you and loving you is my most greatest, most challenging, incredible gifts. Your health can and has changed at the drop of a hat but today we celebrate 3 years admission free, to my Cystic Fibrosis & now Scoliosis warrior I love you Mia . . Big thank you to @sickkidstoronto for the greatest health care in the world and to @cfcanada for inching the CF community closer & closer to a cure . #cf #cysticfibrosis #cfwarrior #cysticfibrosisawareness #cfawareness #3years #3 #cysticfibrosiswarrior #sickkids #sickkidsfoundation #sickkidshospital #fucf #toronto #ontario #canada #yyz #ytz #the6 #65roses #65rosesforcysticfibrosis #scoliosis #scoliosisawareness #scoliosiswarrior #stronggirl #cfstrong #saltygirl #saltygirls #hospitallife #curecf #curecysticfibrosis
Meditation, something I do most evenings before bed. This really helps with anxiety, stress, depression, and just staying happy. Us guys with CF have times where we all worry, stress ourselves out, which can often lead to an admission in my last 3 cases!! I managed to stay out of hospital IV free for 6 years prior to this!! The last 2 years I've had 3 admissions, all relating to stress. So this is something I am now passionate about, staying focused and happy, and fingers crossed it will keep me out of that dreaded hospital! 😁👍👊 #meditation #cf #cfwarrior #cysticfibrosis #65roses #fit #fitness #yoga #budda #happy #happiness #staystrong #day #night
I actually cant believe this was over 3 years ago it only seems like yesterday. The summer after finishing my exams and before college miss those days.. although i dont miss having that awful feeding tube in my stomach thank fuck thats gone ☺️ i was also doing well with my lungs here as my lung function was in the 70's now its in the 40's oh how i wish i could go back 😩 #throwback #throwbackthursday #thursdaythrowback #thursday #oldpic #blackandwhitefilter #blackandwhitepic #summerpic #3yearsago #happy #like4likes #likeback #likeforlike #positive #smile #cysticfibrosis #cflife #cysticfibrosisawareness #cfgirl #cfwarrior #cffighter #blackandwhite #shorts #longhair #happytimes #ruffordabbey #ruffordabbeycountrypark
Why do things the conventional way 😜
Feeling so inspired by this artist I’ve recently learned about; @colbycrisler Colby is a CF Warrior who has recently undergone a double lung transplant and uses the breath she has to SING the most beautiful songs worshiping Jesus! This song, May 26th, has been playing on repeat for me this morning! Take a minute this morning to Thank God for the wonderful air you’re able to breathe deep into your lungs. Not everyone is so fortunate. Kudos to Colby for using your lungs in such a beautiful way! #cysticfibrosis #cfwarrior #justbreathe #hismercy
Bike2Breathe - Jerry Cahill & Emily Schaller in St Louis - MEET & GREET at Mid America Transplant HQ - Thursday, Sept 20th at 5:30pm #bike2breathe #cureCFwithBEF #letsrockcf #rockcf #youcannotfail #cfwarrior #cfathlé #donatelife #totalcarerx #lungtransplantproject #curecf #vertexpharmaceuticals
Day 4 of #bike2breathe is underway! Starting off in Indy and on our way to St. Louis with @rockcfem ! Day 4 St Louis - MEET & GREET at Mid America Transplant HQ - Thursday, Sept 20th at 5:30pm . #curecf #cfawareness #fightcfwithbef #letsrockcf #cfwarrior
Increased my 1 rep max on my sumo deadlift today! Getting stronger every day! #1repmax #gettingstronger #weightlifting #cfweightlifter #cfwarrior #cysticfibrosis
After seeing the doc this morning, it turns out I have two stress fractures in my right hand. No injection was allowed as there’s too much risk of the tendons rupturing. Training for this challenge was always going to be high risk. Attempting this challenge will be even higher risk. However if it was easy, it wouldn’t be a challenge. So the show must go on and as a wise man once said “This is no time for ease and comfort. It is time to dare and endure.” 💪 #RoadTo1Million #24hrs4cf #CFWarriors - - - - - - #motivation #fitness #fitnessmotivation #cardio #workout #fit #cysticfibrosis #beatcf #justbreathe #cfwarrior #goals #inspiration #fitspo #instafit #fitfam #fitfamuk #train #getfit #physique #core #tattoo #inkedmen #inked #tattoos #inspiration
I was gunna do a bunch of jump cut clips from lower weight to higher but i honestly was NOT expecting this weight but I got it! 375 lbs for a new PR 💪😁🌱 I was doing 1x5 working sets from 225 and up and I hit 320 for 5 and 350 for 5 also pr's, so I had to go for it lol woohoo for those #vegainz 💪😉🌱 #fucf #cfvegan #cysticfibrosisvegan #cfwarrior #webewarrior #cfstrong #veganfit #plantshaveprotein 🌱🌰🌳🌲🌴🌵🍄🌾🌿🍂🍃🍁🍀🌹
THANK YOU! The Kickstarter campaign for my upcoming book ‘47 / A Life With Cystic Fibrosis’ ended this morning and achieved over 250% it its target. I’ve been absolutely blown away by the support. A huge thank you to everyone who backed the campaign. I can’t wait to share it with you. See link in my bio for more information about the project
Couldn't fit breakfast in at home this morning, that's right I chose medication over breakfast, as I knew I could just eat at work 👍 It's these little things that make the difference to your health, try your best not to skip nebs, tablets etc... 😁👊 #cf #cfwarrior #cysticfibrosis #65roses #porridge #oats #food #breakfast #work #fit #fitness #likeforlikes
Getreu dem Motto von Eliud Kipchoge suche ich mir weitere Ziele, um stets motiviert zu sein ↗️👌👍 Und nie zu viele Gedanken daran verschwenden, was noch kommen könnte, sondern immer versuchen im hier und jetzt zu leben 👍 _________________________________________ #photooftheday #run #runner #marathon #runners #instarunner #runhappy #jogging #garmin #halfmarathon #cfwarrior #marathontraining #runningman #runnerscommunity #instafit #runnersofinstagram #laufen #happyrunner #runitfast #runnersworld #runforfun #worlderunners #runnerslife #instarunning #cflife #adidasrunner
The first day of my #jujutsu #training , had to do #sparring against my teacher 😅 it was so hard but really good. 🤘😀⠀ .⠀ .⠀ .⠀ #fitness #TBThursday #tbt #sport #fitness #workout #lifestyle #hardwork #fit #fitfam #strength #patience #somuchfun #muscles #cfsucks #fightcf #cfwarrior #fighting #boxing #boxer #sports
It’s been a long time since I posted// I finally got my new portable vest and I love it! It’s so much better than the big machine I’ve always had 💜 #cfirl
March of dimes came yesterday & took pictures of my Little Dipper 💜 #bodhistrong #cfwarrior #marchofdimes
Had my First CF clinic visit in Texas. It was successful!!! #cfwarrior #65roses #fucf #cysticfibrosis #tylertexas #cfclinic
Leading up to today, I was filled with anxious thoughts. I swore I was going to have to be admitted for a course of IV Antibiotics and special monitoring since I’ve been sick for months. But, not only did I get the clear....I had ZERO ANXIETY all day. I was so nervous for this appointment and had tons of anxiety on top of my typical daily anxiety. But today...NONE. It may not seem like a big deal, but it’s a huge deal for someone who suffers from crippling anxiety every single day. The Cystic Fibrosis team just increased my breathing treatments and gave me some Flonase for my chronic sinusitis (finally) I have another follow up in 6 weeks to see if anything has improved. For those of you who know, my FEV1 level was 2.38 on my PFT’s. It was a long day of traveling, talking, and planning. I’m spending the rest of the night relaxing and soaking up the good news. Thank you to everyone who wished me well 💛
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