#cfs

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Happy Fri-YAY Everyone! Feeling a tad better today. Not sure how long it'll last but I'm running with it! Could be the meds kicking in too🤣 Started the morning off with a little yoga & a good breakfast ( 1egg, 2 /2c broccoli with 3 chicken apple sausages) and decided to try wearing my compression socks to see if that helps my legs. Hope everyone woke up with a little pep in their step today as I did! Have a great one! TGIF #spoonie  #spooniesupport  #spooniesunite  #spooniefamily  #chroniclife #chronicallyill  #chronicillness  #chronicillnesswarrior  #invisibleillness  #butyoudontlooksick  #cfs  #fatigue  #chronicfatigue  #chronicfatiguesyndrome  #chronicpain  #health  #sick  #recovery
I have double politics after lunch which is making me anxious and idk if i want to go bc i feel so trapped and horrible in that room. Also after that its my friends sleepover so we r going to asda and then we will make dinner and bake cookies and theres cake so idk how much i will end up having to eat and i cant workout either so im going to gain so much. I already look so huge and disgusting and now this is just going to make me even worse. But maybe it can boost my metabolism a little?on sunday i will workout tonnes bc i have thai boxing and gym and i will workout at home as well. I just need to be thin so so badly . #exhausted #cfs #tired #crying #ocd #anxiety #depression #perfectionism #ed #ednos #kms #mentalillness #eatingdisorder #struggle #sad #empty #hopeful #hopeless #anxious #depressed #tired #food #thin #motivation #bodyimage #hate #disgust #update #eatingdisorder #mentalhealth #mentalillness #workout #exhausted #cfs #tired #crying #ocd #anxiety #depression #perfectionism #ed #ednos #anorexia #kms #mentalillness #eatingdisorder #struggle #sad #empty #hopeful #hopeless #anxious #depressed #tired #food #thin #motivation #bodyimage #hate #disgust #update #eatingdisorder #mentalhealth #mentalillness #workout
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I started training 5 years ago. I didn't know it back then but the direction of my life changed the first day I walked through those gyms doors. It's been the most incredible journey, so much so that qualified as a PT & an NLP practitioner so that I could help others on there's. I want to share yours! My new guide Get Built & Build a Positive Mindset is currently available on preorder for half price at just £20. SALE ENDS SUNDAY! (Link in bio) How was I to know then that opening those doors would in turn open so many in my life. For me it has been transformative in mind and body so it only made sense for my guide to include a focus on personal development. This guide includes a 6 week planner to help you establish a solid routine with NLP & Coaching techniques to support you in building your productivity and cultivate a positive mindset. It's taken me so long to come out with a new guide because I had a vision and didn't want to settle for anything less. I wanted to create it entirely myself (including the tech) so it was 100% in line with my vision. This guide is it. I am so proud of it and so excited about it. I can't wait to share it with you and watch you start the journey that changed my life completely. Thank you to my business mentor and coach @laurentickner for giving me the support and strength to make this vision a reality. Click the link in my bio and grab your copy as soon as possible so you don't miss out! https://fight-the-fad.com/p/get-built-build-a-positive-mindset
Ano que vem tem mais! #TBT #ExércitoBrasileiro #CFS
Lunchies! @amygetsbetter the best ‘sausage’ rolls 🤤 Sorry I haven’t been posting much. Ive not been feeling well and have been in a lot of pain since moving 🙈 and am having a lot of trouble with the Drs down here being unwilling to prescribe me ivabradine without another referral to the local cardiologist who failed to diagnose me with POTS in the first place #anorexiarecovery #edrecovery #quorn #quornsausages #eatittobeatit #chronicillnessawareness #potssyndrome #pots #posturalorthostatictachycardiasyndrome #eds #ehlersdanlossyndrome #ehlersdanlos #cfs #chronicfatiguesyndrome #chronicpain #chronicillness #chronicfatigue #chronicillnesslife #spoonie #spoonielife #spoonieproblems
Just had my hair cut in preperation for the holiday. I was surprised by how much was on the floor at the end! My hair grows quickly and is quite thick as well. #haircut #hair #edrecovery #fibromyalgia #myalgicencephalomyelitis #cfs #chronicillness #chronicpain #holidayprep #spoonie
Today I did #SomeNotNone and made an embroidered birthday card for a friend (see it in my stories). I have so many bigger embroidery ideas but a small goal meant I actually made something today. / We often need reminding to start small and actually get on and do some creative things. On my stories people are sharing what creative things they will try the #SomeNotNone strategy with this weekend. So far ideas have related to decopage, painting, and collage. What might you work on? I am really excited to hear in the comments and stories 💛. I have included how to use #SomeNotNone to help you do more creative activities in my Get Creative book. I am offering a money back guarantee with my book. If you find it isn't for you right now I will happily refund your money. For the rest of the month my newsletter subscribers get a 20% off code (dm me your email address if you want to join). / Image2: When we have minimal spare energy so many things we enjoy stop featuring in our life. But choosing to embrace #SomeNotNone you can zoom in and create a goal that is realistic and then set about achieving it.  Finding the energy and headspace for extra things is hard but doing 5 or 15 minutes a few times can feel satisfying if we let it even though we want to do a 'normal' amount. / My #SomeNotNone strategy means 1)Doing some of an activity rather than giving it up entirely. 2)Working out how to add things to your life to make it more enjoyable and 3)Making ideas smaller so they are more manageable (my #TinyTasks can help here). / Lots of love and energy to you all, I hope your body and mind are kind to you today ❤Claire xoxox Tag a friend who needs to see this post or would enjoy my account 💗. Come visit me at www.chroniclifehacks.com for ideas to make your days with chronic illness more enjoyable
Is he right or is he right? These outcomes would be considered unacceptable in any other disease. Why do we accept this with Lyme patients? #lymedisease #lyme #lymediseaseawareness #lymewarrior #chronicillness #chronicpain #cfs #invisibleillness #chronicillnesswarrior #lymelife #fightforacure #fightlikeagirl #spoonie #spoonielife #lymedontkillmyvibe #healthiswealth
This was me about two years ago. I had become a single parent in early 2016 after a bad situation. I faced difficulties as a non-EU expat, but ultimately got to stay in the UK to raise my daughter. I was eager to go back to work and improve our life, but I knew it was important not to to disappear to off to long working days given that my daughter’s other parent had exited her life. When she was eligible for 15 hours of childcare every week, I started taking the train into Leicester to take classes as a prelude to returning to work. I had my own flat for us, food on the table, and a working body that carried me everywhere I needed to go for us. Everyday, I walked at least 2 miles, and some days about 7. I found clothes at charity shops, and had furniture sent from Amazon paid for by my old coworkers. When I could afford it, we would take the train somewhere nice. Life had begun again for me. #singleparent #survival #stress #chronicillness #mysteriousillness #rashes #cfs #chronicfatigue #swollenlymphnodes #debilitating #lymedisease
😴 The caption on my photo is NO JOKE 🙅 . I left home at 7am this morning: ➡️Drove to the post office ➡️Drove back home to drop our parcel home ➡️Drove SOUTH to drop Master Burke to school ➡️Drove NORTH to drop Miss Jewel to daycare ➡️Drove to the newsagents to post a letter ➡️Drove into the city to work (Yes I work TWO jobs because...I CAN 🤩) ➡️Drove SOUTH to daycare + collected kids ➡️Drove NORTH to visit visiting relatives ➡️Drove SOUTH home... This. This is when my already HECTIC day got ridiculous 😫 Picture a baby that thought after their routine bath was bedtime...but oh no, not tonight. I found a baby dove in my garage. The garage that has been locked all day. Don't know where the f*&k this baby 🕊️ came from but it was injured so I called the Wildlife Carers (who were amazing) and had to pack the HANGRY, EXHAUSTED toddler + child BACK INTO THE CAR🤦 ➡️Drove SOUTH to the wildlife carer Forgot my 🤓 to see so here I am driving around Cairns with sunglasses on at night so I don't KILL US ALL 🤦 Then I remembered I hadn't dropped the cash 💵 to my mower man who was starting to worry that I wasn't going to pay him so... ➡️We drove NORTH again to drop off 💵 ➡️We drove SOUTH again to get home. Finally. At 7.30pm 😴 . . . If you can TOP my day, COMMENT BELOW 👇👇👇 . My liver is lucky I'm too exhausted to punish it for that kinda day 🙄 That's all I'm sayin 💁 . #tfif #tgif #whataday #whataweek #tired #cfs #mumlife #mummiesonamission #bossbabe #bosslady #girlboss #realtalk #open #honest #mentalhealth #mentalhealthawareness #crazy #wellbeing #wellness #wildlife #famila #family #picoftheday #goodvibesonly
I had a really good run with getting dressed lately - I went 11 whole days where I got dressed every single day! This is unheard of. I haven’t done this for over a year I don’t think. So that’s really positive! 😁 Today I’m crashing so staying in my cute 🦄 jammies. Comfort is key + the cuteness just makes it even better. 🌸 What’s your go to comfy clothing for flare days? Interested in hearing other suggestions for days like these! 📷 @cappuchinnu @neeshcomics • • • [image description: a comic drawn on a white background of two smiling women standing up side by side. They are drawn in different styles - the woman on the left is by @cappuchinnu and the one on the right is by @neeshcomics. The one on the left has a long black braid, glasses, and is wearing pink pyjamas with her arms up in the air. The one on the right has pink hair and is wearing a large oversized t-shirt and slippers. Above their heads in plain black text it says “PYJAMAS VS. T-SHIRTS”]
If someone could come do my @arsenalbykenyatta workout for me too, that would be GREAT! Good morning.
Happy Friday friends ❤️!! Today I went for my first acupuncture appointment, and other than having several needles stabbed into my arms, legs and head it was pretty relaxing. Has anyone else tried it?? #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #mecfs #mecfsawareness #cfs #mecfsproblems #mecfssucks #chronicillness #millionsmissing #millionsmissinguk #spoonies #spoonielife #blog #blogger #bloglife
It’s nearly the end of Urology awareness month and I have discovered a catheter in my favourite colour and funky coloured valves! 😀. Going to admit this cheers me up a bit, I had to change it again because the UTI type pain started again :(. Right now my catheters dont last nearly as long as they should and they get stuck every change. I am also having to change at home as the #hospitals here have stopped using female length catheters because nurses were putting them in males... people don’t usually think this is a big deal but the normal length ones are so long and for a short*** smallish woman they are massive. (Down to my knees without being stuck down!) are just silly. Why have the #nhs not retrained the nurses instead?? It HURTS when they get caught and seems rather sexist. So... a rough point of the day so far but feeling much better now that it is changed! Roll on November to see what’s happening with Urostomy. #urology #neurology #neurogenicbladder #catheter #spc #suprapubic #foley #bladder #medical #ehlersdanlossyndrome #eds #gastroparesis #chronicillness #chronicallysick #chronicallyill #chronicpaim #ME #cfs #tubie #urologyawarenessmonth #spoonie #spoons #butyoudontlooksick #stretchmarks #mylife #stoma #tattoo
Feeling a teeny bit better today I got a good night's sleep, my anxiety and stress levels are a little better Working really hard to make myself feel better More furry therapy with my kitty cat today Need to sort out my blue badge renewal, but they seem to be asking for loads of information I don't have this time, that means a phone call 😩 #thefarawaygirlspoonie #ME #CFS #fibromyalgia #chronicpainsyndrome #OsteoArthritis #spineissues #toothacheallover #palegirl #spoonie #chargie #theunchargeables #chronicillness #mentalhealth #anxiety #depression #invisibleillness #disabled #disability #fatigue #chronicfatiguesyndrome #MyalgicEncephalomyelitis
Don't give up. You're not alone x bit.ly/2xrtowl #lymedisease #lyme #CFS #fibromyalgia #warriors #strongerthanyouknow
Adding the flu shot to an aleready compromised immune system can really do more harm than good. What to do if you want to protect yorself from getting the flu, or make sure you have a gentle and natural treatment option on hand, should you get the flu. Homeopathy has a long history of use in both preventing and treating the flu, really effectively! Our online clinic will be hosting a FREE mini-course this fall on how to use homeopathy for prevention and self treatment. We'll be takling about the most commonly used homeopathic remedies used for the flu, how to take them, and where you can purchase them (the remedies we'll be covering are available at most health food stores and are inexpensive). Follow us on fb to be notified of this FREE event😊🌺🍃 FB: Natural Treatment for Chronic Fatigue Syndrome CFS / ME FB GROUP: Integrative Homeopathy for CFS/ME, Fibromyalgia, Lyme, Post Viral Fatigue Syndrome #flu #fluprevention #flutreatment #homeopathyflu #cfs #cfsme #mecfs #fibromyalgia #myalgicencephalomyelitis #lyme #postviralfatigue #postviralfatiguesyndrome #mononucleosis #chronicillness #fibromyalgia #glandularfever #chronicpain #homeopathycfs #homeopathyme #homeopathyfibro #spoonies #spoonielife #unrestfilm #painawareness #vaccineinjury #hpvvaccineinjury #hpvdetox #hpvinjury #gardasilrecovery #gardasilgirls #gardasilinjured
Our official poster for Invisible short film ~ raising awareness for Chronic Fatigue Syndrome♥️ If you want to learn more about it and even chuck a few cheeky dollars our way so we can raise awareness for invisible illnesses, head on over to our campaign! Links in the bio! we would be forever thankful! ♥️ #Repost @invisibleshortfilm2018 with @get_repost ・・・ Our wonderful official poster for Invisible! . ✖️ ✖️ ✖️ The concept behind the poster was to visually explore how people with CFS may appear to be fine on the outside, however, behind the scenes, they are burnt out and often in a mentally hazy state. This has been designed by the wonderful, @sarahjaynedee ! We would like to thank her for bringing our director's vision alive and for being incredibly patient and accommodating to the nature of this story ♥️ ✖️ ✖️ ✖️ Starring: @emma.annand Writer, Director & Co-Producer: @gemmalouisemurphy Co-Producer: @zomo First Assistant Director: @lucy.jacobson Director of Photography: @nathansmartmusic Production Designer: @impress_the_empress Sound Recorder & Mixer: @odinkaris Editor: @stilldylanking . ✖️ ✖️ ✖️ #invisibleshortfilm #shortfilm #melbourneshortfilm #director #producer #writer #actor #femaledirector #femaleproducers #femalewriters #screenwriter #chronicfatiguesyndrome #cfs #ME #myalgicencephalomyelitis #myalgicencephalopathy #fibromyalgia #chronicfatigueawareness #chronicfatiguewarrior #chronicfatiguefighter #chronicfatiguesucks #chronicillness #chronicpain #chronicillnessawareness #myalgicencephalomyelitisawareness #fibromyalgiaawareness #fibromyalgiawarrior #lunasevenproductions
Oh yeah and a surprise #episode #podcast https://www.podomatic.com/podcasts/quirkygems/episodes/2018-09-21T02_04_25-07_00 Or Thequirkygem.wordpress.com Don't forget to subscribe! #lifestyle #career #radio #podcastlife #transition #PMS #menstrualmigraine #hubbylove #inbetween #notdead #radiolife #relaxing #benefits #disability #cfs #migraine #stormbronagh #stormali #weather #lupus #fibromyalgia #subscribenow #Tuesday #Friday
Our wonderful official poster for Invisible! . ✖️ ✖️ ✖️ The concept behind the poster was to visually explore how people with CFS may appear to be fine on the outside, however, behind the scenes, they are burnt out and often in a mentally hazy state. This has been designed by the wonderful, @sarahjaynedee ! We would like to thank her for bringing our director's vision alive and for being incredibly patient and accommodating to the nature of this story ♥️ ✖️ ✖️ ✖️ Starring: @emma.annand Writer, Director & Co-Producer: @gemmalouisemurphy Co-Producer: @zomo First Assistant Director: @lucy.jacobson Director of Photography: @nathansmartmusic Production Designer: @impress_the_empress Sound Recorder & Mixer: @odinkaris Editor: @stilldylanking . ✖️ ✖️ ✖️ #invisibleshortfilm #shortfilm #melbourneshortfilm #director #producer #writer #actor #femaledirector #femaleproducers #femalewriters #screenwriter #chronicfatiguesyndrome #cfs #ME #myalgicencephalomyelitis #myalgicencephalopathy #fibromyalgia #chronicfatigueawareness #chronicfatiguewarrior #chronicfatiguefighter #chronicfatiguesucks #chronicillness #chronicpain #chronicillnessawareness #myalgicencephalomyelitisawareness #fibromyalgiaawareness #fibromyalgiawarrior #lunasevenproductions
Delicious home-made vegan nachos! 😍💚 Contains squash and cashew 'cheese,' guacamole, tomato salsa and tasty kebab spiced soy 'meat' by @eat_oumph 👌🏻 Awesome idea by my partner ⭐💕 . ⚡Steam chopped squash and soak cashews, then blend with nutritional yeast, salt and pepper. Fry oomph soy meat for a few minutes. Mash avocados with garlic, coriander and lime juice. Dice tomatoes with red onion, coriander and lime juice. Pile into baked nacho crisps 🎉 . . . . #vegan #veganfood #veganrecipes , #whatveganseat , #veganfoodporn #veganuk #vegansofig #veganlife #veganshare #plantbased #vegetarian #wfpb #foodie #healthy #healthyfood #foodofinstagram #easyrecipes #cfs #chronicillness #chronicfatigue #spoonie #protein #vegancommunity #veganedinburgh #veganscotland #veganuk #govegan #homecooking #mealprep #veganjunkfood
Do you want to purchase a 🏡 or 🚘 but you can't right now because of your low credit score? Are you tired of being denied and cant get approved for anything.Click the link in bio to set up your free session to get your credit on track to get you approved. . . #fridaymood #payday #boss #legacy #financialliteracy #debtfreejourney #mission850 #cfs #creditrepair #texas #dallasrealtor #houstonrealtor #forbes #financialadvisor #financialfreedom #securethebag #forbesquotes #forbes #creditscore #homebuyers #motivation #success #increase #goals #firsttimehomebuyer
Morning World..here in southern England the weather is superb and perfect photography weather..mindful that this Instagram page is about M.E.. then those of you with M E/CFS etc.will understand when I say what it feels like to be unable to go out and play due to being up or about perhaps not even an hour the day before.years of this..years of getting into Buddhism.years of meditation "letting g go" years of gratitude. Still tough sometimes to maintain my equilibrium..so .. 🍵time and try a smile.it works.theres nearly always something to smile about for most of us,right? For me..it's irony #adrenalfatigue #cfs #chronicfatiguesyndrome #chronicfatigue #fatigue $#fybromyalgia #mecfs #me #smile
I feel like I've got a tonne of new followers lately and that I should re introduce myself 💁 Hi, I'm Zoë. I am a 20 year old Uni Student, and my pronouns are they/she. I have multiple chronic illnesses (hEDS, CFS etc...) resulting in being disabled, and I am Hard of Hearing. The majority of my conditions are in some way connected to my Ehlers-Danlos Syndrome (hEDS), although a few, such as my hearing loss, do not directly relate. I also identify as Bisexual/ Queer and will occasionally post about how that effects my life experiences as a whole. I have a large family with a whole lotta dogs, cats and birds amongst other things (the cat in the photo is specifically MY cat but there's more cats in my life that one 🐈) I basically document my life here, and on my YouTube channel also 'Zoë's Tribe' where I upload weekly Vlogs every Monday and discuss life with a disability. I have a Blog at www.zoestribe.wordpress.com which I've only just started really, so not much goes on there, but it gives me a place to write more than can be contained in an Instagram caption. This account started basically as a way for me to spam the Internet with pictures of my pets - hence why my handle is @zoes_tribe and not chronicallyzoe, or the like. If you scroll down my page there starts being less of me and more of my dogs aha. This account morphed into being a way I could keep my family and friends updated on how I was doing and what I was doing, without having lots of people ask me the same question (so basically what social media is for 🤣) and because a lot of my life is impacted by my health, I ended up talking about that a lot. When I started talking about my health I found that other people were talking about it too, and that basically set the course for what My Tribe is now. This isn't wholly a health account, or a personal account, but sort of an a vaguely political mush mash of the two. I do have a personal @pinkrosesandtea if you want more blog/ behind the scenes stuff follow that. . . #spoonie #gettoknowme #ehlersdanlossyndrome #hEDS #EDS #intestinaldysmotility #gasticstasis #lazybowelsyndrome #chronicpain #cfs #hardofhearing #zoestribe
New episode up after a little while away. Were talking makeup! #blueeyeshadow #makeup #lupus #chronicillness #positivity #spoonielife #creativity You don't wanna miss! https://www.podomatic.com/podcasts/quirkygems/episodes/2018-09-21T01_37_00-07_00. Or Thequirkygem.wordpress.com #bbcreme @garnieruk #garner #mermaids #funny #feelgood #feelings #hubbylove ❤️ #couple #cfs #fibro #endo #mums #highlighter #revelations #play #download #subscribe @stitcherpodcasts
37 will be a great year ❤️ welcoming in all the good vibes with @sarahhenigman and the amazing music of @tashsultanaofficial 🌿☀️🧘‍♀️🎈 ----------------------------------------------- ✔️ Women's Health & Lifestyle Coach. ✔️ Healing the root cause & balancing the body. ✔️ Facebook - Hooked On High Vibes. ✔️ Twitter - hookedonhv. ✔️ Pinterest - Sarah Hook. ✔️ Health Coaching-hello@hookedonhighvibes.com ✨ www.hookedonhighvibes.com
This post is ✨❤️🙌🏻 PLEASE read! #Repost @spoonfulsofkindness ・・・ Not all disability’s are visible, some look like the person on the left, and some look like the girl on the right. You have no idea what’s going in someone else’s life. When you see an athletic, fashionable young girl park in a disabled space, let her park! It’s not your job to decide who gets to park where. Disabled people come in all different shape and sizes. That includes completely invisibly disabled. cut👏🏼 people👏🏼 some👏🏼 slack👏🏼 It’s not your job to be a knight in shining armour and save the poor disabled people from the evil fakers. Disabled people aren’t all the same! What’s your opinion? LMK!! - [ID: A drawing of 2 girls on a white background. The girls on the left is young with black hair and tan skin. She is sat down legs crossed wearing retro clothes . The girl on the right is in a wheelchair, she has blonde short hair and is wearing plain clothes] ——————————🌼—————————— #spoonie #spoonieselfcare #spoonfulsofkindness #chronicillness #chronicpain #warrior #potsie #art #kindness #drawme #love #spoonielife #elhersdanlossyndrome #gastroparesis #lymedisease #mecfs #cfs #crps #mentalhealth #depression #anxiety #selfcare
Smoothies all morning for me today as I have a busy morning out , from left to right mango and orange juice, watermelon slush, berry smoothie which has blueberry, blackberries, strawberries, raspberries, and cucumber. Then another mango and orange juice because it's my favourite, in between this I'll be drinking plain water too to keep hydrated #cfs #naturallyhealing #watermelon #foodismedicine #gilbertsyndrome #cfswarrior #mango #berrysmoothie
Boken i hus og testing av oppskrifter. Spennende lesing 🤓 Flere som har erfaringer fra Medical Medium de vil dele? #medicalmediumnorge #medicalmedium #fibrojentene #skjoldbruskkjertel #antiinflammatorisk #fibromyalgi #cfs #utmattelse #fatigue
Cytoplan’s wholefood vitamins gave me life before and after getting pg. They helped me through my glandular fever and resulting chronic fatigue/ post viral fatigue which I had for months and months and hid it from everybody save my nearest and dearest. Battling with trying to keep up my job, frequent work trips and a new micro managing boss.No more!🤚🏽So of course I’m now on their wholefood vits for pregnancy supplemented with extra vitamin c when needed cos #fatigue . This is not at all sponsored, just an honest review of what has worked for me. #firsttrimester #diaryofablackyummymummy #pregnancyjourney #pregnancyvitamins
School run time 💖 then I'm hoping to see a friend this morning if I'm still feeling human-ish! #schoolrun #winter #coats #love #smile #daughter #me #cfs #mecfs #cfsme #myalgicencephalomyelitis #pwme #thisgirlcan #chronicfatiguesyndrome #fighter #pain #tired #chronicillness
Когда за моим видом не смотрит @happy_nika , то меня можно встретить «розовым фламинго»😂😂😂😂 #пхукет #phuket #kovalev_travel #thailand #cfs #бм
A few hundred yards from here a girl as part of our geology Alevel trip fell and badly broke her leg and air lifted to hospital. as a healthy 17year old it was quite exciting though obviously saddened for the girl; and not least as she was off from college for ages. it turns out it was a life changing event for her..I guess we can all have those..whether or not it's a physical Injury 🙄 this pic was taken with a zorki 4k camera.my Christmas present from mum and dad at age 11.#adrenalfatigue #exhaustion #cfs #chronicfatiguesyndrome #chronicfatigue #fatigue #fybromyalgia #mecfs #me #waterfalls #blackmountains
"Colour in the Darkness" You don't have to lose your colourful plants in the Darkness. Here's a photo showing the effect of a simple 4w spotlight mounted high level catch the beauty of the planting and the detail of a piece of wall art. . . . . . . . . . #outdoor #garden #gardenlights #gardenlighting #gardendesign #cfs #chelsea #london #project #led #ledlighting #architect #mood #waterproof #backyard #lightingdesign #photooftheday #photograph #gardens #nighttime #cosy #outdoor #outdoorlighting #friday #friyay
Spotlight Practitioner. Specialising in #ME , #CFS , #Fibromyalgia , #IBS and #Anxiety , Jane Sinclair will guide and support you to full #recovery . Either face to face in #Manchester or via #Skype , Jane’s expertise are in finding the route causes of your #pain https://www.facebook.com/JaneSinclairMickel/ #chronicpain
Some of these pain descriptions are harder to illustrate than others, but I enjoy a challenge! * @diane_is_probably_in_bed says ‘My pain looks like plastic toy soldiers constantly picking me with bayonets while I’m on one of those vibration plates (and also Bob the Builder is doing renovations in my head). * What does your pain look like? * If you would like a snapshot of your pain, just complete the sentence ‘My pain looks like...’ below or in a DM to me and I will make a collage to illustrate it. Then I’ll post it here (with credit to you of course) so we can show the world our pain. * * * #pain #snapshotsofpain #mypainlookslike #fibromyalgia #chronicpain #chronicillness #invisibleillness #crps #cfs #analogcollage #collageaday #collageartist #collageart #instaart #artshare #customcollage #share #art #illustration #fibrowarrior #chronicloveclub #cutandpaste #earthquake #migraine #endometriosis #huffpostlifestyle #mypain #explainmypain
Find a moment in every day #beauty #chronicillness #cfs #dysautonomia
Took this photo through my patio doors in my bedroom little fella got used to me weilding my camera about and the double glazing is hardly noticable 🤓result!👍 #adrenalfatigue #exhaustion #cfs #chronicfatiguesyndrome #chronicfatigue #fatigue #fybromyalgia #mecfs #me #squirrel
The waters of zurich
You would think that I've made a few before but this was my first ever pie. Blackberries from our Lane and apples from a neighbour. Stick in some Stem Ginger (ill up the quantity of this next time as it was sublime addition!) and you've got a small piece of deliciousness #guthealth #healthygut #polyphenols #dietaryfibre #delicious #instaday #instapic #additivefree #cfs #littlebitofnaughty #pie #tart #applepie #preservativefree #wholefood #freefrom #gutmicrobiome #microbiome
Heading home on Junmar 4. #cfs
stem cell update! _____________________ I’ve been feeling pretty decently well this week, for my standards at least. But to be fair, the last couple weeks were pretty dark weeks physically and mentally, and I knew they were attributed to hormones and my stem cells trying to heal my body. _____________________ Even though I’m feeling decent this week, I am quick to say this doesn’t necessarily mean anything. I try to keep hopes high yet expectations low, so if and when I have a bad week, it won’t hit me as hard, and I’ll give myself grace. _____________________ But during the “not so bad” weeks like this week, I’ve been working, going to trauma therapy and doctor’s appointments, going to the gym (!) for some light weights and doing everything I can to maintain the healing process. And even though I’ve been pretty dizzy this week, I got to go to a Yelp Elite event last night and have some fun which is always good for my soul ❤️ _____________________ Chronic illness friends: what are some things you do on those “not so bad” weeks for fun?
Truth. I care about such different things now on my life. . . . . . . #chronicillness #chronicpain #warrior #lifechange #cfs #spoonie
Old digital sketch 🎑 had my second DMSO treatment this morning, can't remember if I mentioned it here or just in my stories that I've begun this treatment for interstitial cystitis. We're hoping it'll not only help my IC but reduce the general nerve sensitivity in my abdomen. Either way I'm relieved to have a treatment and something to try that's not just pain management! 🐻 I also got my sleep study results back, I don't understand half of it and my GP didn't help much with that so I might try and have a call with the specialist. But long story short! There's no obvious chronic sleep disorders (like apnea/narcolepsy etc) so that's a relief, but there's definitely some abnormalities with what my body does while I'm sleeping. Which is also kind of a relief, because that means we've got a solid explanation for at least some of my fatigue, and finally fucking SOMETHING to work with. Now we have some medical proof and therefore more treatment options! Which is hopeful. I can't remember the exact details but oxygen saturation drops too low (still breathing just not well) I have hypersomnia and multiple issues with my sleep cycles. Reduced REM sleep, and a couple things that indicate "behaviourally induced insufficient sleep syndrome" like basically chronic sleep deprivation caused by insomnia, chronic pain and PTSD. Which over time changes your body's sleep processes I guess? So treatment plan for now consists of being super strict with my sleep schedule (having anxiety meds, melatonin, magnesium, higher dose of beta blockers has all helped this!!!) And raising my iron levels from 44 to 75 to improve my restless leg syndrome. Apparently my legs don't stop moving when I'm asleep 😂🤸 and I'm waking myself up. So we'll try that for a while and see how I go! He also suggested Modafinil for extra sleepy days buuuut I'm kind of at my max amount of meds already. And taking stimulants and beta blockers at the same time is just such a stupidly funny idea. But I guess it's good to keep my options open, if nothing else helps then I'll consider it later. ___ #art #drawing #sketch #digitalpainting #digitalsketch #tiger #illustration #illo #design #cfs #spoonie #artgram
Loved using my first Charmed Aroma honeybee bath bomb. The bath was perfect for soothing my aching joints. It smelled like honeysuckle and had this gorgeous bee inspired ring inside (valued at $70) 💍🐝🛀 . . . #strongwomen #tattooedgirls #chronicillness #chronicfatigue #cfs #chronicfatiguesyndrome #invisibleillness #invisibleillnessawareness #arthritis #spoonie #pain #painsomnia #autoimmune #autoimmunedisease #rheumatoidarthritis #charmedaroma #honey #honeysuckle #honeybee #bathbomb #ringreveal #bee #bees
Me as a tshirt. (Also me in a tshirt, but whatever!) . #tired #belief #tshirt #cfsme #cfs #chronicillness #funnytshirt #chronicfatigue
I've been thinking about trying MCT oil, and since there's 10% discount (+ 5% extra discount with code BCB955) at iHerb.com this week, I think it's the excellent moment to try it.💪 I want an MCT with only C8, because I gather that is the best form. Sadly, Dr. Mercola's Ketone Energy is the only MCT oil that is not included in the 10% discount special and Bulletproof Brain Octane Oil is out of stock! 😱 Do you know another brand of MCT oil that is only C8 and what are your experiences with MCT oil? I just learned that Sports Research has an all C8 MCT oil and Zenwise Health has one with 95%-99% C8. Is anyone familiar with either of those brands? Your input is greatly appreciated! 🙏 #mctoil #keto #ketone #drmercola #bulletproof #C8 #caprylicacid #brainfuel #mitochondria #candida #antibacterial #antiviral #lowgradeinflammation #guthealth #weightloss #brainhealth #health #fitness #supplements #me #cfs #fm #fibro #brainfog #kosher #glutenfree #vegan #paleo #zenwisehealth #sportsresearch
Chronic pain? It's not having the strength to get out of bed every morning, not having the strength to even brush your hair or put on some pants ... It's feeling in a way that you can not do anything with your life, it's feeling pain as if a truck would have passed me by... It's hearing every part of your body cracking in a painful way and not knowing what to do... Not having something that helps the pain disappear for at least a minute of your life... It is having people telling you that your pain is not real, that you imagine everything or that you are reacting in an exaggerated way... It is not knowing if it is better to sleep with or without the pillow at night because it hurts anyway... It is not sleeping at night because any position you take to sleep is painful... It's feeling sad, lonely, upset, angry, because you're tired of living this way ... It's touching your body and crying because every part of your body hurts in a way that even the simplest touch makes you scream... If you know someone in chronic pain, support it, it's really hard to live that way ... Do not make them feel crazy because believe me the pain is not fake, it's real ...
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